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vasculitisfoundation vasculitisfoundation

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Vasculitis Foundation  Supporting & empowering vasculitis patients, care givers and the medical community for over 30 years, through education, awareness, and research.

http://www.vasculitisfoundation.org/events/2017-international-vasculitis-symposium-chicago-illinois/

It's easy to get stuck after you (or your loved one) have been diagnosed with a rare disease like vasculitis. Regurgitating the Who/what/how will not help you move forward. Be mindful of what is and create the next chapter - your path for the healthiest you can be, your journey to #victoryovervasculitis, maybe even your desire to get involved with @vasculitisfoundation so that your unique story, skills, and soul can help others as they create their next chapter. πŸ™ For those who attended the International Vasculitis Symposium in Chicago, last month, we hope you enjoyed the #mindfulness sessions and are applying the skills you learned in your daily life. πŸ™ The past has happened. How can you make the current moment, the now, better? How can you start the next chapter of your life with more awareness? #minfdulmonday #motivationmonday As always, we are here for you - call, email, poke, dm us with anything that's on your mind. πŸ™ #strongertogether #vasculitiscommunity #vasculitissymposium #VFSymposium2017

Tomorrow is the start of the 2017 International Vasculitis Symposium, taking place in Chicago. If you are attending, use our event hashtag #VFSymposium when sharing photos. For those not attending, follow along via Instastories starting tomorrow June 23-June 25. Click link in bio to learn more about the various topics and exciting panels we have planned. πŸ™ leave a comment if there is a panel you would like to see us cover as a Live Instagram feed. As always, have a wonderful day and do your #PersonalBest #victoryovervasculitis

We're so proud of @bhudgnasty for his amazing race, last night - the first on his new #victoryovervasculitis tour, the first after a major #vasculitis relapse, just 1 day after coming off prednisone. πŸ™ He's doing his #PersonalBest every day and hopefully inspiring you to do the same. πŸ™πŸ˜ if your personal best is getting out of bed, taking a small walk outside, or being able to play with your kids, that's a victory. πŸ™πŸ˜ The journey isn't easy, but we are here for you. Follow @bhudgnasty #teambrandon inspirational running tour, as he shares his highs, lows, and tips for how you can focus on discovering your daily wins. πŸ™ The mind is a powerful muscle. Flex πŸ’ͺ it with positive energy. #mindfulness #wellnesswarrior #wellnesswednesday #strongertogether

We are so excited to finally have our new fitness tanks for women. Workout and support the cause! #victoryovervasculitis on front with @vasculitisfoundation info on the back for extra awareness 😍 I (@pamelapekerman ) wear mine to remind me to push on, to fight for everyone in the #vasculitiscommunity #autoimmunecommunity. I wear mine to remember my father, who had #wegeners. I wear mine because I'm a #wegenerswarrior #wellnesswarrior. Why will you wear yours? Visit @vasculitisfoundation website and click "store". We also have basic cotton tanks and more πŸ™πŸ˜

Tonight is NORD’s Annual Rare Impact Award Dinner in Washington, DC. We're proud @bhudgnasty will be accepting an award for his work with #VictoryoverVasculitis Campaign.
NORD is livestreaming the event starting at 7:30 p.m. Eastern. Brandon will take the stage and give a short speech at approximately 8:45 p.m. Click link in bio to watch the feed. #philanthropy #vasculitiscommunity #vasculitisawarenessmonth #autoimmunedisease #raredisease #nord

Vasculitis Awareness Month is here and we're getting the word out on @eyeopenertv today!! Tune in 5:40am (check local listings) as patient and advocate Maggie Lea shares her journey, plus she fun fundraiser taking place in Minnesota (and soon Dallas) benefiting @vasculitisfoundation #vasculitisawarenessmonth #autoimmunedisease #vasculitiscommunity #autoimmunecommunity #eyeopenertv #charity #philanthropy

We were so thrilled @abc7dc #GoodMorningWashington featured @vasculitisfoundation president tKaren Hirsch to share her story finding a diagnosis for son @michael__hirsch + the amazing work being doing in DC during @rarediseasedayus #RareDisease on Capital Hill. We are stronger united as one rare and special voice. πŸ’ͺ😍 for all the moms, care givers and patients that took park in yesterday's event around the world, keep your spirits high and your voices strong!

Do you want to recognize a health care professionals who made the diagnosis of vasculitis for you/your loved one, someone that has helped you put the pieces together about what is going on with your body? ✨ Applications are open for the @vasculitisfoundation VF RED AWARDS honoring the efforts of physicians that care for #vasculitis patients. Click link in bio to learn more. #wellnesswednesday

Journaling is a great tool for self care and self love. πŸ™ take a few moments to express your gratitude for life (no matter how hard the journey might be, there are always pockets of light in the darkness). ✨Plus, journaling is a great way to combat stress, which may impacts your gut health and inflammation. ✨Try it and let us know how it's going. As always @vasculitisfoundation is here for you. Share your comments here, or visit us www.VasculitisFoundation.org. ✨ Let us know what we can do to support your #wellnesswarrior journey, be in medical questions, physician references, local support groups or how you can get involved in #vasculitisawarenessmonth this coming May 2017. ✨ we are stronger together #VictoryOverVasculitis

Sending you love, positive light and good health in 2017! Happy New Year from @vasculitisfoundation πŸŽ‰πŸŽ‰

Friday Fact: wegners is winnable !!! ✨

We love how #wegnerswarrior @michael__hirsch is using his athletic platform to make a positive change for #vasculitisawareness ✨

Watch @michael__hirsch play in tonight's @orangebowlevents sponsored by @capitalone 8pm EST #gowolverines #goblue #orangebowl #collagefootball

Be a warrior, not a worrier! Let this be your mantra, as we enter 2017. The road to recovery isn't easy, but we are here for you every step of the way. @vasculitisfoundation is a community of doctors, patients, and care givers all standing together, gaining strength from one another. #beawarrior

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