tuulavintage tuulavintage

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Jessica Stein  Wanderer in a past life 🍃 Mum to the strongest human. Learning to advocate for extremely rare chromosome disorders 🌻

From Ru’s first time watching the sun rise. Back home after another few days in Hospital, grateful for irreplaceable moments together like these to get us through.

How all rainy days should be spent; turning in to prunes together while learning everything there is to know about bubbles... especially eating them 🌿🐥🛁✨ @byron_beach_abodes

To me, food is one of the biggest joys in life and I find solace in cooking. Unfortunately due to Ru’s complex feeding issues and oral aversion she cannot eat solids, so we spend majority of every day trying to help food stay in. The only way we have been able to share a meal as a family is by blending a selective diet for her with our @vitamix_aunz Ascent, which has just been made even more manageable with their new smaller cups and bowls. We will slowly grade up consistency until hopefully the day Ru will be able to eat and grow typically, but until then any exposure to food is invaluable. #vitamixaunz #feedyourlife

Somehow it is the smallest human I’ve ever known that has the biggest personality ✨🌻🌈😎🍄

The universe is not trying to break you, my dear, it’s trying to find a way to wake you up, so that you will see what is real, and worth fighting for. It takes time to heal, but it also takes courage.

Thank you @landroveraus for getting us out and in to what feels like the other side of the world. Where the rolling hills look like Tuscany but better yet it is only a road trip from home ❤️

Most days I think that if Ru could get any happier she might just burst 💕 Playing with her besties in the @templefarmhouse_byron mud kitchen 🍋

And just like that I’ve had an unintentional month off social media... Ru was quite unwell for a few weeks last month, but recovered well enough for a little road trip with some of our closest friends. ✨ @templefarmhouse_byron

Not long until we’re making new memories back here together 💕

Home 🤗 With our happy little vegemite 🌈

When @landroveraus loaned us one of their incredible Discovery’s we thought we would be roaming Australia’s outback and coastlines together in it. Of course “life happens when you are busy making plans” and as we have spent a vast majority of the year in hospitals, our car also spent it in their multilevel car parks. But we are so grateful to have this car help us escape every chance we can. Ru’s doing so well and we’re beyond excited to be making plans to adventure more together through the coming months, expanding her horizons. ✨☁️

Ru tearing down the wards at our local hospital at 7am. Sometimes we think she wants to come back in because she misses all of her wonderful nurse friends too much 😂❤️🌈 “And though she be but little, she is fierce.”

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