thecurvynerd thecurvynerd

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Jamie  Vlogger. Blogger. 🦋 Writer, soap maker, mental health advocate ⭐️ Agoraphobic| Lupus Warrior | spoonie 🥄 👑, Youtuber 🌟 POTs, dysautonomia etc. 🦄🦄

😷 INVISIBLE ILLNESSES 😷


You may not see them but we FEEL them. Many of us struggle with this. One of worst parts of the struggle is people not believing us. I don’t understand… I can’t imagine that the people who say “well you don’t have to work“ would like to be home sick as hell all the time.



I pay. I Pay dearly for every time I overexert myself. I pay for cleaning the house. I pay for taking a walk. I pay for just visiting someone or having a visitor. I pay for not getting enough sleep. I even pay when I wear clothing that is not good for my body. Some clothes actually feel like they are ripping away my skin or setting it on fire. I can feel every little bump, lump, etc. •


Nausea, fatigue, exhaustion, panic attacks, joint aches, swollen joints, UTIs, general like feeling, random fevers, not being able to eat, etc. These are just some of the things that I go through daily, weekly, monthly etc. •


So for those that disbelieve… Believe what you like. However, I definitely would trade places and take your job if you would like to take my chronic and invisible illnesses. My guess is that you won’t last a week. Stop hating. Start understanding. Stop judging. Start asking if you don’t understand. •


Just because my illness is invisible doesn’t mean I am. •


#invisibleillness #chronicillness #invisibleillnessawareness #spoonieproblems #spooniecommunity #lupus #lupusawarenessmonth #fibromyalgia #lyme #rosacea #endometriosis #pmdd #pcos #hidradenitissuppurativa #agoraphobia #mentalhealthjourney #mentalhealthblogger #mentalhealthmatters #panicattack #panicdisorder #anxietyawareness #butyoudontlooksick #cfsme #dysautonomia #potsie #potssyndrome #hyperadrenergicpots #livenotexist #thrivenotsurvive 💚💚

Only 10 minutes walking yesterday to see mom. See what happens. Thank you #lupus #rosacea #sjogrenssyndrome #autoimmunedisease issues. Not glamorous but real. Because of the #sjogrens I don’t sweat properly so I don’t cool off. My temp was 102 leaving my mom’s house — this is why I loathe summer — a season I used to love. Need rosacea lupus #photosensitive friendly #sunblock recommendations 🙏🏻 #sle #agoraphobic #ptsdawareness #breakthesilence #lyme #skincarehelbal #facialredness #redface It HURTS and is swollen! #spooniesupport #spooniesisters #spoonieproblems #spooniecommunity

This is so beautiful to me. It’s the grapevine and garden behind my mom’s house. I spent an hour and a half there today helping Mom with her computer. Dad sent me home with fresh ( out of his garden ) strawberries 🍓. This is me challenging my anxiety. My biggest problem is that I don’t sweat correctly due to #sjogrenssyndrome 🌸 I finally had to leave because my heart rate was high. I knew it was because I was hot. When I got home my temperature was 101.7. As soon as I got cool it went back to normal. That sucks because I enjoy spending time and photographing the beautiful sites. Anyone know how to keep cool when you don’t sweat? #naturephotography #100DaysOfDoingItAnyway #lupus #grapevines #freshstrawberries #gardenlifestyle #muscadinegrapes #breakthesilence #agoraphobic #agoraphobia #ptsdawareness #ptsd #autoimmunewarrior #spooniesupport #spoonie #spooniesisters #spooniecommunity #livenotexist #livingwithanxiety #panicdisorder #mentalhealthjourney #mentalhealthawarenessmonth 💚

🐾❤️ GO FUND ME FOR PSYCHIATRIC SERVICE DOG 🐾❤️ (( link in bio ))


I have realized what a luxury having a simple haircut, getting your own groceries, or just going to a friend’s house can be. I do weekly trauma therapy as well as medication and CBD oil. However, my psychiatrist wrote me a prescription for a service dog. She believes it will be a great benefit for me. You don’t have to have a prescription but she wrote it to show that she felt it was a severe necessity. I feel like I’ve lost myself.
Chronic overachievers are perfectionists and don’t do well when they have panic attacks just walking out the door. Honestly, I have panic attacks inside my house. But, when I’m inside other people don’t see me breaking down.

My physical diagnosis:

Autoimmune disorders
Chronic migraines
Sjorgens Syndrome
Fibromyalgia
Hyperadrenic Pots ( postural orthostatic tachycardia syndrome )
Psychogenic Seizures

Mental:
PTSD
Agoraphobia
Panic Disorder
OCD
Panic Attacks
Severe specific phobia of doctors and hospitals
Night terrors

I’m hoping that with the aid of more therapy and a properly trained service dog that I will be able to enter the world again. Also, I will be able to go to specific doctors to tackle issues that I have neglected simply because I cannot leave the house. I know that sounds foreign to some people but it is 100% true.

For now I’m setting this up for the cost of the animal, his first vet check, and first 3 months of training. I have taken some freelance jobs to help. They have really messed me up. I’m not sleeping, eating etc. because I’m so exhausted most of the time. But I am trying.If you could find it in your heart to donate one dollar or share I would be so appreciative. Thank you all. Love and hugs. #psychiatricservicedog #ptsd #ptsdawareness #cptsd #servicedogcommunity #servicedog #gofundme #servicedogintraining #potsie #dysautonomia #lupus #agoraphobic #agoraphobic #spooniesupport #spooniesisters #invisibleillness #cfsme #breakthesilence #endthestigma #themighty

😷 PMDD — when hormones attack 👽


I feel like an alien in my own body. PMDD is very misunderstood and rarely spoke about in a rational and intelligent way. I got really upset a few months ago @thedoctorstv joked about PMDD rage. Yes, a disorder that frequently causes suicidal thoughts and actions is so funny — NOT! They should be ashamed!


Definitely suffering major PMDD now. Nausea, and Increased fatigue, increased tachycardia, night sweats, hot flashes, ibs, cramps, more anxiety / depression, unstable sleep and the list goes on. Pair that with my normal day to Day issues plus endometriosis and BOOM — not fun. •

People very often do not talk about this. I think people still think it’s taboo to talk about a woman’s reproductive system and issues around it. I started perimenopause REALLY early as well so with my normal bad anxiety etc., PMDD, endometriosis, and perimenopause..... it’s HELL!


Have you ever heard of PMDD? Let’s spread awareness! Love to all! ❤️💚##





#pmdd #pmddawareness #pcos #perimenopause #endometriosis #agoraphobic #agoraphobia #chronicfatigue #cfsme #ebv #lupus #lyme #raredisease #servicedogcommunity #servicedogpuppy #psychiatricservicedog #servicedogintraining #hormoneimbalance #spooniecommunity #spooniesisters #spooniesupport #spoonies_united #endthestigma #breakthesilence #sickofbeingsick #tiredofbeingtired

❤️🌷 MOTHER’S DAY 2018 🌷❤️


Happy Mother’s Day to all of you mothers out there. Happy Mother’s Day to all of you mothers that don’t even consider yourself “mothers” — fur baby moms, angel baby moms, aunts, good role models etc. ( Pictures of mom’s roses and kitten and Puck cuddling me later )


Today, I surprised my mom. She was so happy to see me — the light in her eyes told the whole story. Also, Puck got to meet his “grandpawrents”. He loved on them. •

We walked back home the quarter mile in 90+ degree heat and sun. Puck did great pacing with me, heeling, and has been cuddling me NONSTOP since we got home. I think he knows I need him. I’m so blessed with all I have! Hope you all have a great day! 🌷🌷❤️🐾😍






#happymothersday #pinkroses #whitekitty #princepucktheservicedog #curvynerd #justonething #ncweather #agoraphobic #agoraphobia #recoveryispossible #stopandsmelltheroses #ptsd #cptsd #pmdd #pms #heatintolerance #potsie #dysautonomia #spoonie #spooniestrong #spooniesisters #spoonieproblems #standardpoodlesofinstagram #servicedogpuppy #psychiatricservicedog #mentalhealthblogger #mentalhealthblogger #lupus ❤️🌷

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