thecurvynerd thecurvynerd

972 posts   2,045 followers   1,334 followings

Jamie  #Soapmaker | #Agoraphobia | #mentalhealthadvocate | #dysautonomia l #lupus 🦋 | #spoonie 🥄 | Need a #SdiT ❤️ | 🐩 Click below to help! ❤️

Holiday Survival Guide! 🎄
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Holidays are hard on everyone. It’s the busiest season for the suicide hotline. It’s the hardest time for people with chronic illnesses because they have to turn down numerous social engagements.
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Thought this was very important to share. Please take time to take care of your mental and physical health. Remember my DM‘s are always open. Love and hugs! ❤️❤️
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🎄
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How do you cope during the holidays? Do you have some tips?
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#suicideprevention #autonomicdysfunction #agoraphobiarecovery #agoraphobia #bodyacceptance #cfs #chronicillness #chronicpain #chronicfatiguesyndrome #chronicallyfabulous #dysautonomia #nonepilepticseizures #hormoneimbalance #mentalillness #holidaysurvivalguide #recoveryishard #healingjourney #joyinthejourney #chronicallyill #panicattack #anxiety #anxietydisorder #servicedogprospect #servicedogsofinstagram #mentalhealthadvocate #mentalhealthblogger #mentalhealthawareness #medicatedandmighty ❤️🎄

Be present instead of buying presents 🎁 .
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It is no secret that every year Christmas either stresses me to the point of exhaustion or makes me very depressed. That’s because so many individuals are so materialistic instead of actually celebrating the presence of each other and the memories made together. .
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My mom was diagnosed with cancer October 5, 2015. Christmas 2016 I broke. That’s what I call it. I was working almost 100 hours a week, checking on my mom 24 seven, making sure she had her medication, chemo, etc.
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I went overboard with gifts because I wanted to make the Christmas special. Now I realize what makes the Christmas special is our presence not the PRESENTS. I was worried because we don’t have money to really buy presents this year. , Tonight, again I was reminded that presents cannot compete with presence. .
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The puppy about I went to visit on a surprise visit to see my family. That’s a huge #agoraphobia win in itself. My mom’s radiant smile and the hug she gave me were better than anything that could be wrapped. I got the joy of her beautiful Christmas tree. I can only stay about 30 minutes because I started getting very dizzy and feverish ( my body temp rises in hot places because of #autonomicdysfunction )
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It was such a lovely visit. It really made me realize even more that gift do not have to be wrapped in gold ribbon. Those smiles, laughter, seeing the tree, and the hugs were the best gifts money can’t buy. Memories can’t be bought — they are made. .
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In that respect, What is your favorite holiday memory?
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#dysautonomia #potsie #posturalorthostatictachycardiasyndrome #christmasdog #christmasmemories #makememoriesnotmoney #agoraphobiarecovery #agoraphobic #ptsd #invisibledisability #mentalhealthrecovery #poodlepuppy #chronicpainwarrior #servicedogprospect #christmastree #oldfashionedchristmas #christmasmemories #chronicfatigue #whitecatsofinstagram #firewood #rusticliving #minimalism #livingmybestlife #joyinthejourney #healingjourney ❤️🎄

Christmas is tough on EVERYONE — I definitely know this. Thank you ALL for the love and support you’ve shown me and most of all respect! You make me feel like I’m not alone in this battle. .
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I’ve been working my hardest but I have half left to pay on the puppy. If I don’t make it by January she goes back which will break my heart. .
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I HATE asking for help. I don’t know if it’s pride or because I was once SO self sufficient and now I’m not. I’m trying my hardest and even working with a rare disease doctor and geneticist. .
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I know everyone is lacking this time of year but if you could help at all — it would mean the world to me. Help can just be a prayer, share, or good vibe. .
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I owe 500.00. I’m trying to sell items locally through my yard sale sites etc. I’m not doing GoFundMe as they take such a big chunk of the proceeds. .
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There is a direct PayPal pool link. ( In my linktree under my bio ) Even if you can’t donate I would appreciate if you could share. .
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Thank you all again. I’m so happy to have found such a supportive community. You’ll never know how much I love not feeling so “alone” in this battle. ( 3 month “birthday” picture )
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❤️🐾
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.#invisibleillness #chronicillness #cfs #raredisease #prayingforanswers #agoraphobia #agoraphobic #bodypositive #dysautonomia #potsie #fibromyalgia #chronicpainwarrior #servicedogssavelives #servicepuppy #servicedogprospect #servicedogsofinstagram #puppiesofinsta #poodlepuppy #mentalhealthrecovery #mentalhealthadvocate #invisibledisability #ptsd #cptsd #panicattack #panicdisorder #butyoudontlooksick #bopowarrior #selflovejourney #chronicpainwarrior #attitudeofgratitude ❤️🐾

Something I wish people would comprehend or at least TRY to understand. Great reminder for #internationaldisabilityday — not all disabilities are visible. Not everyone copes or deals in the same manner. Show the grace and kindness you’d want to be shown. #healthjourney #agoraphobic #agoraphobia #bodypositive #disabilityawareness #invisibleillness #butyoudontlooksick #goalgetter #furmom #chronicillness #chronicpain #cfsme #autoimmunedisease #spoonie #spoonielife #chronicfatiguesyndrome #fibromyalgia #losehatenotweight #sdit #servicepuppy #poodlelover #hormonalimbalance #pcos #pmdd #attitudeofgratitude ❤️

Self care and self love are not a day spent in “waste” but a NECESSITY for my physical and mental well being. I think EVERYONE needs to recharge so their own candles don’t “burn out”. .
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I definitely had a different sort of day planned ( I was going to attempt to go into town etc. ) HOWEVER— a visitor appeared this morning who had not come around since July ( hello TMI and the missing period to my sentences). So, I’m in pain. Cramps etc. I knew with this much extra pain that I was definitely not setting myself up for success. Soooooo.....
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I stayed home. I napped a lot. I unboxed my #fingerling and played with it, I journaled, I played with the doggies, and pulled out the heating pad ( and I have the AC on since my body doesn’t temperature regulate on its own. ) I also did the #boringselfcare — getting all meds in their containers for the week, etc. .
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I’m guessing I’ll be up late due to my naps but that’s OK! I did what was NECESSARY for MY body. Taking care of yourself is not a day of laziness. It’s something I’m learning more and more about. That means taking my meds ( yes I’m not going to hide that I take meds for physical issues as well as my panic/anxiety ) , trying to rest, self care, and I’m VERY VERY slowly learning after 30+ years of self hate to embrace #selflove ❤️
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How was your Sunday? What did you do for YOURself today? .
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#bodypositive #bopowarrior #hormonalimbalance #selflovejourney #invisibledisability #medicatedandmighty #selflove #selfcare #selfcaresunday #selfcarefirst #endpillshaming #agoraphobia #agoraphobic #depressionandanxiety #depression #anxiety #panicattack #cfs #chronicpain #goalgetter #mentalhealthadvocate #mentalhealthmatters #invisibleillness #spoo #sdit #furmom #poodlemom #servicedogssavelives ❤️

I have been feeling quite unwell. My eye is still randomly swelling shut, last night my neck, ear, head were in agony. I realized part of that was my #TMJ BUT .....
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I am TERRIFIED of doctors and hospitals. I used to be fine. This was before I had to explain everything ( so I was not labeled a drug seeker ) and before they gave me the wrong medications ( that were on my bracelet etc. )
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I have developed severe severe #medicalptsd .. I know I’m NOT alone. Seeing my grandmother die after a misdiagnosis ... being given meds that were contraindications etc. have made paralyzed. Going in my heart rate goes to 160 etc. I even get a fever ( Thanks #dysautonomia ). .
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I’m marking with a psychiatrist and counselor. I’ve gotten to the point where I can at least watch medical dramas again. But, I really would like to seek medical attention for my etc. However, the mere thought Of going sets off a major #panicattack — I’m trying to do #selfcare and “be patient with myself.”
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Can anyone relate?
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#agoraphobia #agoraphobic #ptsd #cptsd #mentalhealthrecovery #mentalhealthsupport #tmjdisorder #invisibledisability #invisibleillness #cfs #potsie #anxiety #depression #anxietyproblems #whitecoatsyndrome #bepatientwithyourself #tryingtostaypositive #pmdd #hormonalimbalance #bopowarrior #bodypositive #selflovejourney ❤️

Today is hard. Not only is my body tired and in pain but my mind is as well. .
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#Depression is rearing its ugly head TRYING to convince me I’m not enough — I’m not doing enough — I’m not progressing fast enough — I’m a burden — Etc. I let it speak - I don’t try to hide and push it away but I will not BELIEVE nor lend credence to that voice. .
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I AM DOING THE BEST I CAN! I am trying to extend myself grace and treat myself as I would another. This is difficult but I am slowly learning this is NECESSITY. I can listen to what depression and anxiety tell me but I don’t have to believe those words. .
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I woke in a sweat shivering. That and the anxiety, panic, and tachycardia has not wakened me in quite some time. I admit I HATE this feeling. I will NOT stand on a notion of “pride”. I WILL take my panic medication and I WILL — LEND MYSELF GRACE! .
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Do you beat yourself up or treat yourself like a friend?
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#anxiety #depressionandanxiety #anxietyproblems #panicdisorder #panicattack #agoraphobia #agoraphobic #mentalhealthrecovery #mentalhealthadvocate #mentalhealthawareness #mentalhealthsupport #healingisnotlinear #pmdd #pmddawareness #chronicfatiguesyndrome #recoveryishard #dysautonomia #potsie #anxietyissues #bopo #selfcare #selflove #selfacceptance #selflovefirst #selflovejourney #endthestigma #chronicpain #invisibleillness #invisibledisability

⚠️⚠️ CLUTTER ⚠️⚠️
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I live in a 672sq foot home. I feel like I’m drowning in clutter. It’s not necessarily unnecessary items — it’s just too small of a space and I am OVERWHELMED!
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I have limited “spoons” ( typically 5-15 minutes each pass depending on the day ). I’m working on the “ every time I get up I move/discard/donate/sell or put an item in the correct place. .
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There is an area I need totally redone by THURSDAY and I’m in a state of panic as to how to get it done. Any tips are appreciated. Being upright more than 10-15 minutes max makes me dizzy etc. ( thank you POTS ) and I can’t physically lift/shift a lot. .
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Any ideas are appreciated. I’m sure some of my spoonie friends have creative ways to “get crap done “ without putting yourself in a pain state for 3+ days. So ...... suggestions? Do any of my friends suffer the same dilemma? .
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#goalgetter #positivenergy #spoonieproblems #spoonie #spooniesupport #spoonieprobs #spooniesunite #chronicillness #chronicpain #potsie #dysautonomia #declutteryourlife #declutterchallenge #tryingsomethingnew #agoraphobia #bopo #selfacceptance #selfaccountability #mentalhealthawareness #mentalhealthadvocate #furmom #ptsd #smallhouse #potssyndrome #potsie #posturalorthostatictachycardiasyndrome #chronicfatiguesyndrome #cfsme #gratefulheart #attitudeofgratitude ❤️❤️

I’m trying to be “strong”. Each day I am finding it slightly harder — the pain is more — the exhaustion more. .
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I am seeing a highly regarded specialist at Duke University that believes ALL my symptoms have a common bond ( psychiatric included ). I will explain more when he formally tells me the conclusion. .
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For now, I choose to take a few moments to STOP trying to BE STRONG and not feel the pain. I will allow the tears. I will accept my body and the fact the pain is agonizing at times. .
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BUT — I will be thankful for all I have — this community, a very very few select amazing friends, and my dogs. I shall get up in a few moments to make a rice bag to ATTEMPT to ease the TMJ, Eye, And tooth pain. I will rinse with salt water, and use clove oil. .
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And I will move on. I will make plans. I will remember my blessings but I won’t deny my pain. Because denial only makes it hurt more. Hiding from a monster only makes the monster scarier!
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What are you thankful/grateful for tonight? .
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#positivenergy #chronicillnesswarrior #spoonieproblems #spoonielife #chronicpain #chronicpainwarrior #dysautonomia #attitudeofgratitude #thankfullife #ricebag #cfs #chronicfatigue #inspirationalquotes #qotd #sdit #mentalhealthawareness #radicalacceptance #spoonie #spoonies #spooniecommunity #invisibleillness #invisibledisability #butyoudontlooksick #hormonalimbalance #anxiety #anxietyawareness #panicdisorder #agoraphobia #agoraphobic ❤️

I think this is a great reminder ESPECIALLY around the holidays. Everyone doesn’t always feel cheery, jolly, or “in the mood. “ That is OK! It’s ok to not be ok. Love to all of you — how was your holiday? #itsokaynottobeokay #mentalhealthawareness #mentalhealthblogger #mentalhealthadvocate #mentalhealthmatters #depression #agoraphobia #agoraphobic #bodypositive #cfsme #dysautonomia #gratefulmindset #hsp #losehatenotweight #spoonieproblems #positivenergy #spoonielife #chronicillnesswarrior #chronicpain #haes #endthestigma #mentalhealthisasimportantasphysicalhealth #invisibleillness ❤️❤️

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