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thechronicills thechronicills

447 posts   9079 followers   7501 followings

DANIELLE GLENISTER 🇦🇺🎥💊🇺🇸  A Genetic Trainwreck™ on a medical odyssey to reclaim life from CHRONIC ILLness. 🎥 Have your INVISIBLE ILLNESS illuminated in our documentary below:

http://www.thechronicills.com/

JUST OVERDO IT?... It's safe to say that it's a universal experience when you're chronically ill, that you need to recharge your battery, like, a lot.
Like, a lot, a lot... A LOT.
I used to feel really guilty about this & ultimately deem myself lazy. This is not only untrue, but also a damaging way of looking at things. I mean, who needs MORE guilt in their lives... amirite?
Us humans all have the same "battery" (give or take a bit of juice depending on lifestyle, diet, exercise, etc) that requires periodical recharging.
But, when you live with a chronic illness or injury, everything the "normals" do requiring a "normal" amount of energy expenditure takes MUCH MORE energy out of us! This is because our main power supply is busy being distributed, by our clever bodies, to deal with our inherent & ongoing biological malady.
What's my point?
JUST. NAP.
Just, do it.
Take a nap & give zero fucks about it.
You're doing what you need to do to enable your body to keep-on keeping-on with a chronic illness.
Plug yourself into that power socket we call the couch (my preferred napping spot) & recharge your drained battery.
You are not lazy.
I repeat.
You are NOT LAZY.
You have been working overtime & you need this rest.
And hopefully, when you awaken, you'll have that little bit of drool on the cushion signaling it was a bloody good one.
The Drool™ is all I can wish for you all in your napping endevours, really.
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#thyroiddisease
#ankylosingspondylitis #osteoarthritis
#EhlersDanlosSyndrome #ButYouDontLookSick #ChronicPain #EDS #diabetes #fatigue #multiplesclerosis #ulcerativecolitis#arthritis #rheumatoidarthritis #chronicpain #lyme #lymedisease #ibs #ibd #lupus #autoimmunedisease #endometriosis #ptsd #pcos #migraines #crohns #depression #anxiety #invisibledisease #invisibleillness

THE MONDAYEST MONDAY TO EVER MONDAY... I swear it was Friday, like, 5 minutes ago. I don’t know about you but since chronic illness came to stay, braining, in any capacity, feels exactly like this image👆
Except the hoop is on fire, my brain ‘pedestal’ is swaying from side to side & there are mean, old crocodiles snapping their chops in a pool 50ft below. 🧠🤹‍♀️🎪
You get the idea. 😏
Over the years I’ve spent my fair share of time feeling like the dumbest smart-person on the planet. The synapses in my brain are either deactivated, dead or in some kind of cryogenic sleep mode. Either way, most of the time they are NOT working & it's frustrating as hell.
Basically, to a someone with a chronic illness, everyday feels like a Monday.
I like to call it Brain Fog City Central™, a place all Spoonies dwell, or at least visit, in some kind of Perpetual Purgatory of Intelligence™.
When you've always been used to your thoughts & mind just working & then they JUST DON'T... it's confusing, frustrating & most importantly: embarrassing. 😖
Well... this is your Monday morning reminder that you CAN handle anything this week throws at you: brain fog or not.
Drink your coffee. ☕️
Don’t freak out. 😱
Stabbing people is generally frowned upon. 🚫🔪
Potty mouths encouraged. 🤬
Cake helps. 🍰👍
Good luck! ☘️
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📷: @vansantenbolleurs .
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#ChronicPain #Dysautonomia #ChronicallyIll #Spoonie #ChronicIllness #Spoonies #SpoonieLife #POTS #SpoonieStrong #SpoonieProblems #SpoonieSupport #SpreadAwareness #Fibromyalgia #FibroWarrior #InvisibleIllness #EhlersDanlosSyndrome #EDS #Disabled #InvisibleDisability #EhlersDanlos #CFS #ChronicFatigue #InvisibleIllnessFighter #RareDisease #RareIllness #RareDiseases #InvisibleDisease #ChronicallyFabulous #ChronicallyAwesome #painwarrior

RE-EVALUATING YOUR WORTH... Quantifying my value with a direct correlation to my productivity has always been one of the things that I’ve struggled the most with throughout my life.
My parents are very hardworking people who prioritized a good education for my sister & I above all else.
I have always been the creative, driven & ambitious type & saw vocational success as the marker for my... well, worth.
At the age of 16 my lofty goals were to have a high powered career in advertising & live in New York City.
To hell with marriage & kids, I was going to be a career woman... heck, maybe even both! It was the new millennium after all & we were told we could “have it all.”
Wait, what’s that saying?
“If you want to make God laugh, tell him about your plans.”
Well, it turned out that Ehlers-Danlos Syndrome had other ideas for how my life would unfold. EDS is the rare, genetic & incurable connective tissue disease I was born with... though I didn’t know it at that time, I wouldn’t be diagnosed for another 17 years, at the age of 33.
I was repeatedly hospitalized for severe & inexplicable anaphylaxis & injured in four seperate car accidents from the time I began my degree in Creative Advertising Design in 2000, at the age of 18, to the time I left my hard earned career due to intractable neuropathic pain in 2014, at the age of 32.
Yes, you read that right. Four car accidents.
No, none of them were my fault... in fact, two of them involved drunk drivers colliding with my vehicle.
The reoccurring anaphylaxis is now attributed to issues with my mast cells (a comorbid condition of EDS). Because of my delightfully defective collagen, I’ve never really recovered from the injuries I sustained. So, needless to say, my career plans were delayed & downright derailed quite frequently.
Every, single time I managed to fight my way back to health & functionality (I was confined to a wheelchair for 9 months when I was 20 years old).
Even when I didn’t think I had it in me.
During university I was told, by multiple specialists, that due to chronic muscular-skeletal/neuropathic pain & various injuries...
CONTINUED IN COMMENTS BELOW 👇

NEON SUNSETS... The evening skies may be full of color but the going is still tough here in Southern California, with the multiple fires surrounding the city flaring up today.
As wind-fanned flames churn their way through canyons & down hillsides toward coastal towns, there have been lots of evacuations.
Though we are safe where we are in West Hollywood, it’s been a difficult week.
Even those who don’t live with a chronic illness are struggling to breathe & are feeling dizzy, nauseous & lethargic.
Our thoughts go out to those in the acutely affected areas & a huge shout out must go to the amazing fire fighters & emergency personnel. They are doing an incredible job.
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📷: @mattcrump
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#LA #LosAngeles #LALife #DTLA #LosAngeles_LA #California #NervePain #Nerves #Neuralgia #Neuropathy #NeuropathicPain #TrigeminalNeuralgiaAwareness #TrigeminalNeuralgiaWarrior #Sciatica #SciaticNerve #SciaticNervePain #MedicinalCannabis #MedicinalMarijuana #CannabisOil #CBD #CBDoil #Cannabidiol #Cannabinoids #HempOil #Hemp #EhlersDanlosSyndrome #ChronicPainWarrior #LAartist #EDS #TrigeminalNeuralgia

HOW ARE YOU? The most loaded question you can ask a person with chronic illness.
“I’m fine.”
The lie we all tell, fingers crossed behind our backs.
Prior to April of this year when I began The Chronic Ills, an invisible illness project, I had never spoken publicly about my condition.
I’d only told a handful of close friends & family & hid All Of The Everything™️ behind those two little words.
“I’m fine.”
That all changed when I decided to speak out about using CBD oil to control my neuropathic pain.
For a bit of context: the media in Australia was misreporting the truth of the medicinal cannabis patient access “situation”.
To my surprise, I was met with a deluge of support & kind words. But it hasn’t always gone that way... which is exactly why I “learned” to tell the lie to mask the pain.
Previous to mustering up the courage to speak my truth, you NEVER would have believed I was so unwell from a quick scan through my personal social media.
I could barely get out of bed or use my left arm & hand.
No one had a clue.
I hadn’t been able to work in over 3 years. No one had any idea.
This is the blessing & the curse of an invisible illness.
“I’m fine” allowed me to avoid uncomfortable conversations about the searing nerve pain, the dislocating joints, the crushing fatigue.
I’ve let VERY FEW people in over the years, and for good reason. "But you don't LOOK sick."
"It's not like you're DYING."
"At least you don't have CANCER."
“You’re too young to be THIS unwell”
Comments like these drove my self esteem into the ground as a child & young adult... and taught me to mask it all with the familiar & oh so comfortable lie:
“I’m fine.”
But comfort does not bring about change.
Here, in this Instagram community, we may all have completely different types of invisible illness & disability, yet we all have the same thread of silent suffering, isolation & a smiling facade.
I truly hope that our invisible illness documentary will raise awareness for us all by having those uncomfortable conversations & as a result create understanding & empathy from the world at large.
If you’d like to be involved go to:
thechronicills.com
No more comfortable lies, ok?
Who’s with me?

THE WORD ON THE STREET... is The Word On The Street, so you can’t argue with that. Remember: everything, and I mean EVERY THING is Figureoutable™️
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#ChronicPain #ChronicallyIll #Spoonie #ChronicIllness #Spoonies #SpoonieLife #SpoonieStrong #InvisibleIllness #InvisibleDisability #ChronicFatigue #InvisibleIllnessFighter #InvisibleDisease #crohns #crohnsdisease #crohnswarrior #crohnsfighter #IBD #crohnsawareness #crohnssucks #crohnsandcolitis #colitis #crohnsiscray #crohnslife #ulcerativecolitis #painwarrior #autoimmunedisease #autoimmuneprotocol #myIBD #findacure

CROHNS & COLITIS AWARENESS... I stumbled upon this fluffy Poonicorn (yes you read that right, a poop that’s a unicorn) & thought it was the perfect mascot for Crohn's & Colitis Awareness Week... I only wish I was holding the purple version in this video!
Scroll across to learn more! 👉
This week was designed to bring together the IBD community around a shared goal-to raise awareness & educate the public about IBD as part of a mission to see a future free of Crohn's & colitis.
I personally don’t have this disease but my cousin does. Known collectively as inflammatory bowel diseases (IBD), Crohn’s disease & ulcerative colitis are painful, medically incurable diseases that attack the digestive system, causing abdominal pain, persistent diarrhea, rectal bleeding, fever & weight loss. The effects of these diseases are largely INVISIBLE, which is why we need to make #IBDvisible!
Crohn's disease may attack anywhere along the digestive tract, while ulcerative colitis inflames only the large intestine (colon). In addition to the impact on the GI tract, in some patients, IBD may also affect the joints, skin, bones, kidneys, liver & eyes.
Information taken from www.crohnscolitisfoundation.org & infographics reposted from @crohnsiscray & @lifewithcrohns
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#crohns #crohnsdisease #crohnswarrior #crohnsfighter #IBD #crohnsawareness #crohnssucks #crohnsandcolitis #colitis #crohnsiscray #crohnslife #ulcerativecolitis #painwarrior #autoimmunedisease #autoimmuneprotocol #myIBD #findacure
#ChronicPain #ChronicallyIll #Spoonie #ChronicIllness #Spoonies #SpoonieLife #SpoonieStrong #InvisibleIllness #InvisibleDisability #ChronicFatigue #InvisibleIllnessFighter #InvisibleDisease

CALIFORNIA ON FIRE... This week has been a hard one in Los Angeles, we are all feeling the effects of the raging wildfires close by.
Our thoughts go out to the homes & animals lost in recent days. It’s been a truly apocalyptic landscape & you can feel that everyone in the city is a little bit on edge.
Yesterday my housemate & I woke up to the sound of our carbon monoxide alarm going off. We are far enough away from the fires to be safe, however I’ve felt so lightheaded that I’ve fallen to the ground several times (for the first time it’s not because of low blood pressure). I’ve had a migraine for two days, have been intensely nauseous (even more so than usual), the smoke filled air is making it quite difficult to breathe & has been wreaking havoc on my poor lungs & sinuses.
Any rain dances, or the like, would be extremely welcome right about now! Stay safe Los Angeles!
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✍🏻: @thatlinearttho
#lupus #lupuswarrior #lupuslife #lupussucks
#interstitialcystitis
#type1diabetes #type1diabetic #diabetes
#multiplesclerosis
#ulcerativecolitis
#rheumatoidarthritis
#autoimmune #autoimmunedisease
#lymedisease
#endometriosis #endowarrior
#crohns #crohnsdisease
#hashimotos #hashimotosdisease
#colitis #arthritis
#pcos #pcosfighter
#epilepsy #epilepsyawareness
#fibromyalgia #fibrowarrior

IT’S OFFICIAL! Yesterday the Australian House of Representatives saw the marriage equality law passed in Australia's parliament with a landslide vote. There was jubilation & tears of joy as the bill passed, almost unanimously & WITHOUT amendment (that is HUGE) to allow two people, regardless of sex, to marry.
The speaker of the House of Representatives declared the vote carried, since only 3 MPs opposed it, triggering a standing ovation from the parliamentarians & public gallery.
Some broke into a rendition of my country’s unofficial anthem “I am Australian”.
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“We are one, but we are many.
And from all the lands on earth we come.
We'll share a dream and sing with one voice, I am, you are, we are Australian."
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I’m not crying, you’re crying!
For thousands of same-sex couples who have already married in other countries, their marriages will be recognised automatically when the bill gets royal assent from the governor general in mid-December.
Couples hoping to marry in Australia will have to wait until the new year (after the standard one month notice period to marry).
The author of the cross-party bill, senator Dean Smith, said that the passage of marriage equality was “a measure of what can be done when people put some of their partisan politics behind”.
Smith is the first openly gay federal parliamentarian in his party & said that the historic social reform was “owned by everyone, it is owned by the Australian people”.
I don’t know about you, but I for one have chills... and for once they’re not caused by my chronic ills! 😆
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💖🏳️‍🌈💙🏳️‍🌈💖🏳️‍🌈💙🏳️‍🌈💖🏳️‍🌈💙🏳️‍🌈💖🏳️‍🌈💙🏳️‍🌈
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#loveislove #equallove #marriageequality #lgbt #lgbtqi #lgbtq #lgbtqia #loveislove🌈 #lgbtlove #stophomophobia #gaymarriage #samesexmarriage #equalrights #loveislovenomatterwhat #bisexual #queer #transgender #lgbtsupport #lgbtcommunity #lgbtrights #lgbtqa #pride #gay #homosexual #lgbtpride #marriageequalityaustralia #yesequality #lovewins

FESTIVE PHARMA... This spoonie-style advent calendar by @weareforeal is mucho en pointe. Today my housemate & I are hollidazzling our apartment. We’re pudding 🍧 up our tree 🎄 decorations ⭐️ & mint condition candy canes 🍬 to, you know, spruce 🌿 things up a bit.
Brace your elf 🧝‍♂️... I CANT STOP USING PUNS! It’s snow laughing matter.
Send help.
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#ChronicPain #Dysautonomia #ChronicallyIll #Spoonie #ChronicIllness #Spoonies #SpoonieLife #POTS #SpoonieStrong #SpoonieProblems #SpoonieSupport #SpreadAwareness #Fibromyalgia #FibroWarrior #InvisibleIllness #EhlersDanlosSyndrome #EDS #Disabled #InvisibleDisability #EhlersDanlos #CFS #ChronicFatigue #InvisibleIllnessFighter #RareDisease #RareIllness #RareDiseases #InvisibleDisease #ChronicallyFabulous #ChronicallyAwesome

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