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"The scars you bear are the signs of a COMPETITOR, that you are STRONGER then whatever tried to hurt you; you SURVIVED." #chd #zipperclub #boyswithscars #oneweekpostopenheart #ourWARRIOR ๐Ÿ’™โค๏ธ

I mean, who wouldnโ€™t want to sit on a wooden alligator #chd #chdwarrior #zipperclubmember #zipperclub #tetraologyoffallot

Since Ava is blessed with so many sweet people curious as to how our meeting with the surgeon went, hereโ€™s a little update with a pic of the pretty gemstone bracelet Ava found in the Academy of Sciences gift shop.
Dr Reddy was very confident he can successfully take down and redo everything done in Avaโ€™s many previous surgeries, which is necessary for her heart health and continued growth. Surgery will last between 8-12 hours, with a hospital stay of 7-14 days and two months home from school. Knowing Ava, Greg and I pretty much know to expect the max numbers as the minimum while hoping that isnโ€™t the case. It is expected that this will be the last open heart surgery she will need for at least 10 years. Mama is personally hoping for some major medical advancements in the world of CHD in the next 10 years.
46 days ๐Ÿ’— #chd #heartkid #zipperclub #heartofawarrior #mightyava

The face you make when the 'boss' decides you're her #dogchair so glad Chiba let's Josie do anything to her ๐Ÿ˜‚ and I love her #babyfro
#chd #chdawareness #chdwarrior #hlhs #hlhswarrior #heartbaby #zipperclub #jw #dogsandbabies

Hi! My name is Tank and I pulled my ng tube out today...but more importantly, I finished 5 full bottles on my own!!!!!!!! We cannot explain it, but it seems that something from the strokes has seemingly resolved itself essentially overnight. He took all of his feeds by mouth and within the allotted 30 minutes, how cool is that?!? He yanked out his ng tube late this afternoon. Mike and I have decided to leave it out for now and see what tomorrow brings. Tomorrow he has numerous follow ups at CHLA. Hopeful all appointments continue to go smoothly and that he continues to feed well tomorrow. Go Tank, Go. #tankstrong #mysonhassuperpowers

16 weeks post #openheartsurgery and very grateful for some slow mornings. Going back to work has been much more taxing (itโ€™s week 4!) than I could have dreamed. Even at only three shorter days a week itโ€™s really kicking my a$$. I think to myself, why on earth did I think I was ready for this?!? And to be fair I kind of am ready but maybe not totally. I want to be my โ€œnormal selfโ€ again but thatโ€™s probably not happening anytime soon and maybe that old version wonโ€™t return totally either. I find I am slower and less energetic still #sotired . I feel a bit disconnected from whatโ€™s happening in front of me sometimes, like watching a movie of me trying to be all better. And the acting is kind of bad actually. I need to put less pressure on myself and focus on enjoying more of the slow stuff like 9am snuggles with my big red Bella bear on my few remaining days off. For anyone else that is recovering from ohs my biggest struggles are upper neck/back pain, some chest clicking, incision discomfort, chest muscle discomfort, fatigue and emotional goop. #goldenretriever #heartsurgery #posto #zipperclub #recovery

Christian is all of us during Heart Walk season. ๐Ÿ™Œ๐Ÿ‘Ÿโค๏ธFind a walk in your area at the link in our bio. #Repost @christianshearttof ใƒปใƒปใƒป
Christian can't wait for the Lowcountry Heart Walk! #thisisfour #christiansheart #tof #tetralogyoffallot #chd #chdwarrior #chdawareness #zipperclub #digeorgesyndrome #lowcountry #lowcountryheartwalk #lowcountryheartwalk2017 #americanheartassociation #aha #lowcountryaha #boomerang @lowcountryaha

MOST RECENT

"The scars you bear are the signs of a COMPETITOR, that you are STRONGER then whatever tried to hurt you; you SURVIVED." #chd #zipperclub #boyswithscars #oneweekpostopenheart #ourWARRIOR ๐Ÿ’™โค๏ธ

Hey Canada ! We are challenging you to find your 1 in 100 Champion and help raise awareness for Congenital Heart Disease! Share your video, picture or story of your 1 in 100 Champion on social media between now and CHD Awareness week, starting February 7th, and show your support for over 250,000 Canadians living with CHD. Donโ€™t forget to tag us in your post and use the hashtags #1in100 #CHD #CCHA. Full details on website, link in bio!

I mean, who wouldnโ€™t want to sit on a wooden alligator #chd #chdwarrior #zipperclubmember #zipperclub #tetraologyoffallot

#tbt to 4 years ago today when little Teagan came to work with mommy and wanted the client to box ๐ŸฅŠ Time flies!

www.keridonfitness.com

So proud of our Tommy Bear ๐Ÿป๐Ÿป๐Ÿป why not do something amazing this Christmas & donate ยฃ1 to @thebromptonfountain in Tommy Bears name using the link in our bio โค๏ธโค๏ธโค๏ธ if everyone donated just ยฃ1 imagine the difference that would make to the babies children & parents who are spending Christmas in hospital this year
#heartwarrior #chdbabies #zipperclub #chdbaby #chd #vsd #heartbaby #heartmum #ohs #royalbrompton #bromptonfountain #london #chelsea #bromptonbaby #donate

So much determination in these photos of CA member @archiesissons ๐Ÿ’ช๐Ÿป๐Ÿ’ช๐Ÿป#Repost
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My favourite three running pics. #cardiacathletes (the BHF one was London marathon a year after my triple)

Swipe to enjoy @bob_the_triathlete โ€™s strong finish! ๐Ÿ˜‚๐ŸŽ…๐Ÿป#cardiacathletes
#Repost
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Cheeky Santa Dash #cardiacathletes @cardiacathletes #running #runner #fun #athlete #ohs #nevergiveup #anythingispossible #cheekysantadash

16 weeks post #openheartsurgery and very grateful for some slow mornings. Going back to work has been much more taxing (itโ€™s week 4!) than I could have dreamed. Even at only three shorter days a week itโ€™s really kicking my a$$. I think to myself, why on earth did I think I was ready for this?!? And to be fair I kind of am ready but maybe not totally. I want to be my โ€œnormal selfโ€ again but thatโ€™s probably not happening anytime soon and maybe that old version wonโ€™t return totally either. I find I am slower and less energetic still #sotired . I feel a bit disconnected from whatโ€™s happening in front of me sometimes, like watching a movie of me trying to be all better. And the acting is kind of bad actually. I need to put less pressure on myself and focus on enjoying more of the slow stuff like 9am snuggles with my big red Bella bear on my few remaining days off. For anyone else that is recovering from ohs my biggest struggles are upper neck/back pain, some chest clicking, incision discomfort, chest muscle discomfort, fatigue and emotional goop. #goldenretriever #heartsurgery #posto #zipperclub #recovery

No matter your pace or progress all that matters is that you are working towards your goals. Don't compare yourself to anyone but you! You will get to where you want to be all you have to do is not give up!

#morningmotivation #fitnessquotes #lifequotes #weightlossquotes #fattofit #neversaynever #dontgiveup #dontquit #goals #journey #fitnessjourney #weightloss #fitmom #fitness #fitfam #weightlossjourney #igfitness #igweightloss #igquotes #motivation #running #zipperclub #fitheartmom

Since Ava is blessed with so many sweet people curious as to how our meeting with the surgeon went, hereโ€™s a little update with a pic of the pretty gemstone bracelet Ava found in the Academy of Sciences gift shop.
Dr Reddy was very confident he can successfully take down and redo everything done in Avaโ€™s many previous surgeries, which is necessary for her heart health and continued growth. Surgery will last between 8-12 hours, with a hospital stay of 7-14 days and two months home from school. Knowing Ava, Greg and I pretty much know to expect the max numbers as the minimum while hoping that isnโ€™t the case. It is expected that this will be the last open heart surgery she will need for at least 10 years. Mama is personally hoping for some major medical advancements in the world of CHD in the next 10 years.
46 days ๐Ÿ’— #chd #heartkid #zipperclub #heartofawarrior #mightyava

Planking away.โ €
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I might be s*** at cardio, but my core is ace!โ €
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There's no need to be good at everything, but the main thing is that you keep trying. Pushing your limits just a little bit will make you stronger eventually.โ €
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#zipperclub #zipperclubmember #chdsurvivor #CHDaware #healthblogger #openheartsurgerysurvivor #openheartsurgery #pacemaker #heartdisease #heartsurgery #congenitalheartdefect #heartwarriors #congenitalheartdisease #plank #planking #planks #plankpose #plankaday #plankitout #planklife #plankhold #plankinglikeaboss #fitness #fitnessmotivation #workout #workouttime #gym #gymlife #excercise #bodyweight โ €

Need a scar appreciation day today for myself, got to keep telling myself that these scars show I'm still here and I'm making a ruckus whether you like it or not โค
*For over 10yrs I've been on this never ending journey ๐Ÿ’ช๐Ÿฝ
#openheartsurgery #openheartsurgerysurvivor #heartdiseaseawareness #heartpatient #zipperclub #hocm #hcm #scarsforlife #scarsfordays #scars #scarsarebeautiful #scars #effyourbeautystandards #heartcondition #invisibleillness #managingmyillness #heartwarrior #allisnotwhatyousee

Today TODAY today TODAY!!!!
๐Ÿ’™๐Ÿ’ช๐Ÿ’™๐Ÿ’ช๐Ÿ’™๐Ÿ’ช๐Ÿ’™๐Ÿ’ช๐Ÿ’™
Are โ€œhealthy, happy & fitโ€ on your to-do list for 2018?!? If yes, today is officially the day to say YES to YOU!!
Drop a โ€œ๐Ÿ’œโ€ or message for details!!
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#heartstrong #openyourheart #leadwithlove #headbandsfordays #fitmomma #morninggirl #liveinspired #goodtogreat #dreamitanddoit #highschoolsweethearts #zipperclub #hrrocks #choosehappy #bodyimagemovement #chicagolife #followyourheart #workoutclothesaddict #vacationlover #yogapantsforthewin #BEyou #lifeisbetteratthebeach #familyisforever #nikefree #lakelife #veggiegirl #messybunandgettingthingsdone #sunshineinmyheart #strongnotskinny #heart #strong ๐Ÿ’œ๐Ÿ’™๐Ÿ’œ๐Ÿ’™๐Ÿ’œ

Going Home Today! โคโคโค #HeartWarrior #ZipperClub #SuperMan

Hi! My name is Tank and I pulled my ng tube out today...but more importantly, I finished 5 full bottles on my own!!!!!!!! We cannot explain it, but it seems that something from the strokes has seemingly resolved itself essentially overnight. He took all of his feeds by mouth and within the allotted 30 minutes, how cool is that?!? He yanked out his ng tube late this afternoon. Mike and I have decided to leave it out for now and see what tomorrow brings. Tomorrow he has numerous follow ups at CHLA. Hopeful all appointments continue to go smoothly and that he continues to feed well tomorrow. Go Tank, Go. #tankstrong #mysonhassuperpowers

"There are certain people that'll inhabit a small, quiet space inside your heart despite any circumstance, happening, or situation. They left a piece of themselves when your souls collided upon impact and they'll always subtly remain." -V. Erickson Sometimes you meet important people in the most unexpected places. During our stay at Primary's, My little family had the pleasure of having Kris as our nurse. We liked her so much that we made sure to request her every day she worked. She gave Aria incredible care, and we felt a little more human after our conversations. Brent and I adore her. From the moment she told the man she was training to "go wash your hands, and don't forget to scrub under your nails!" then turning to us saying "I know how nasty guys can be," we knew we liked her. ๐Ÿ˜‚She brought sunshine to some gloomy days. โค๏ธ#primarychildrens #favoritenurse #chd #heartwarrior #zipperclub

Look, ma! No breathing tube! ๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป Iโ€™ve missed this face and his sweet little voice... #TeamHeartBaker #BakersHeartโค๏ธ #openheartsurgery #avcanaldefect

Drove out to Chicago today to hang with the bestie. We hit up her gym, got food, got dessert, and talked for a million hours. Weโ€™re both really excited to be starting this new healthy chapter of our lives! Love you boo @yung_athena_

What a difference a year makes ๐Ÿค—. Momma says I'm the man but only when I be good. ๐Ÿ˜‚ She calls me Mighty Aiden the Heart Warrior, she even sings me the same song she sung to me while in the hospital.
I found my Christmas presents but mommy hid them again. And we have two trees. 1 for our first Christmas and 1 for last year.
We meet my new cardiologist and pediatrician next month. ๐Ÿ˜ Mommas worried as always, but I'll be okay I'm Mighty Aiden #1in100 #TeamAiden #HeartWarrior #ZipperClub #MommasBaby #WeGoWithTheFallot #chdawareness

The face you make when the 'boss' decides you're her #dogchair so glad Chiba let's Josie do anything to her ๐Ÿ˜‚ and I love her #babyfro
#chd #chdawareness #chdwarrior #hlhs #hlhswarrior #heartbaby #zipperclub #jw #dogsandbabies

Kenley face timing her BFF ๐Ÿ’œ I think shes excited ๐Ÿ˜‚ She gets to visit them this weekend!!!!! #New #Friends thanks to the #BuddyCruise2017 ๐Ÿ’™๐Ÿ’› #Blessed๐Ÿ™ #Grateful #RoadTrip #Louisiana #Neighbors #KenleysKrew #LIFEisbetterwithyou #TheLuckyFew #DownSyndrome ๐Ÿ’™๐Ÿ’› #CHD #MendedHearts #ZipperClub

What an eventful day! Doggie heaven! #zipperclub #tof #chd #soonernation #ousooners #oufootball

Funemployment is better with a friend... 8 weeks left of pro hours, last minute ice cream ventures, annoying people at cafes and bike shops, and also having quality time with my daughter before full-time shift work begins. @annie.mcdonagh can you please not go back to work until the end of Feb? ๐Ÿ˜‚

Gotta say - my @lumierecycling
jersey was ๐Ÿ‘Œ at keeping me cool on Coot-tha strength repeats in a Brisbane summer!

#cyclist #cycling #womenscycling #ridelikeagirl #chickswhoridebikes #aussiecycling #lumierecycling #neopro #thepedalercyclery #cardiacathlete #zipperclub #bnecc #cyclingmumsaustralia #kaskprotone #kaskhelmets #brisbaneriver

Calling all heart warriors! One of our favorite CHD bloggers, Mary Beth Meyer, is hosting a giveaway for one of our heart warrior shirts on her feed! Check it out @mimisopenheart !

#CHDwarrior #CHD #CHDaware #CHDawareness #congenitalheartdefect #congenitalheartdisease #1in100 #zipperclub #hearthero #giveaway #CHDlife

Tis the season for giving๐ŸŽ„ I am giving away this brand new adorable *medium* size(please keep this in mind when entering) light gray short sleeve #heartwarrior shirt from the wonderful @chdwarriorshop. As a fellow heart warrior, I LOVE my shirt and what this shop stands for! To enter give away: Follow me @mimisopenheart 2) LIKE this picture and 3) tag a heart warrior(can say yourself๐Ÿ™‹๐Ÿผ)โค๏ธ Giveaway ends Saturday night, 12/16 โค๏ธ .
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#chdawareness #chdpatient #mimisopenheart #openheartsurgery #chronicillness #chdlife #chdwarrior #openheartsurgerysurvivor #blogger #auntie #auntielife #1in100 #lifestyleblogger #chdsurvivor #zipperclub #chd #hopefulheartsfoundation #zipperclubmember #avcanal #zippersisters #invisibleillness #heartwarrior #giveaway #openheartsurgery #heartdisease #congenitalheartdisease

The goobers!!! . You almost cant see Izzy's scar. We had such a good surgeon and are so thankful he did such an amazing job with her. .
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Side note, I really hate the camera on my new phone. The quality sucks.
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#siblings #tof #heartwarrior #chd #zipperclub #love #heartbaby #tubie #kids

Johnathon ( one of the twins heading 6x open ) is due for his 6th open heart surgery in the morning. Wishing him all the best..these guys are doing tonnes to raise money for BHF so stay tuned for the new year where we will be collaberating on something BIG! #openheartsurgery #ohs #heartsurgery #chd #chdwarrior #chdawareness #bhf #heart #hearthealth #goodluck #bestwishes #congenitalheartdefect #zipperclub #charity #pma

A good trip to the cardiologist today. Riley and Traeโ€™s hearts are both going strong. Neither one are on medications, and weโ€™ve gone to yearly visits! (Weโ€™ve gone every 6 months since Trae was a baby) They weโ€™re also both excited to get a doctorโ€™s note to get them out of gym class. ๐Ÿ‘#heartwarriors #chdwarrior #zipperclub #congenitalheartdefect

Heeeyyy guys!! So update... today is day three of my intermittent fasting and I'm not gonna lie, today has been HARD. All I can think about is food and my stomach is actually rumbling with hunger. I know this is all part of my body adjusting to the change but it's still sooooo hard right now. Bah, I'm gonna have a cup of black coffee and hope this hunger subsides... or at least gets manageable. Today is a light workout day (doing 45 min incline walk and booty workout w/just body weight) so I won't be having as many calories, but I have been finding it hard to fit all my calories into my 5 hour feeding window. I'll have to readjust it next week. I'm at a 19/5 split for this IF right now since it works better for my current work schedule. Once the holiday stand down is over, I'll be going to a 16/8 split.... hopefully :).
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#intermittentfasting #openheartsurgery #openheartwarrior #asd #chd #zipperclub #strong #fitfam #fitspo #16weeksday3 #stayingfocused #noonesaiditwouldbeeasy #chdawareness #IF

Santa came to OU Childrenโ€™s, it will be a pic to remember. #chd #tof #openheart #zipperclub

This kid is nothing short of a miracle. Age 2 on the left, immediately following her 2nd open heart surgery (4th heart surgery). The right, her 5th grade school picture. Grateful. Proud. Full of love. #zipperclub #chdsurvivor #congenitalheartdefect #tricuspidatresia #heartwarrior #mendedheart #childrenheartfoundation #chdstrong #heartdefect #warrior #heart #grateful #mykidrocks #chdawareness #chronicillness

The sweetest boy Iโ€™ve ever laid eyes on ๐Ÿ˜ Liam is on lock down and wonโ€™t be leaving the house unless itโ€™s for doctor appointments (we are visiting Santa soon and that is the only exception) until RSV/flu season is over with. Iโ€™m not risking my little one getting sick and ending up in the hospital. I just wanted to make a reminder to you all to wash your hands frequently and DO NOT put your lips on babies. Even healthy babies. If Liam catches RSV (even with the synagis shot) he is at high risk and it could cost him his life. If you do not feel good, stay home. Do not put other people in danger. These babies canโ€™t fight a cold like normal babies. Stay healthy this winter season. ๐Ÿ’™ #LiamStrong #hypoplasticleftheartsyndrome #hlhs #hlhswarrior #hlhsawareness #hlhssurvivor #chd #chdwarrior #chdawareness #chdsucks #heartkiddo #heartwarrior #heartmom #1in100 #zipperclub

Living with a heart condition and a lot of other health issues, all while preparing for another open heart surgery can be physically and mentally debilitating. With that, I am determined to not let this disease define me and have me โ€œwaste awayโ€ any more days here on this earth. Anxiety is seeping in as I prepare for another open heart. Although itโ€™s not for quite a few months, it also seems right around the corner and therefore I feel the need to have everything in order. Which is clearly impossible๐Ÿคฆ๐Ÿผโ€โ™€๏ธ Reading these two books have been beyond helpful for this part of life. First off, you NEED to tell yourself everyday you are worth more than all the pain and suffering you endure every single moment of the day! The Simplified Life book on simplifying has allowed me to come back to the heart of life and prepare for a time that will be exhausting, but taught me what to let go of and what to truly put first. And writing things about yourself and how you will get through another grueling surgery is so IMPORTANT and its taken me years to realize that. I HIGHLY recommend these booksโค๏ธ Know you are worth more than your disease๐Ÿ’•#heartcondition

Spacco tutto! ๐Ÿƒโ€โ™‚๏ธ๐Ÿ˜…๐Ÿ™ˆ....i funerali si terranno...โšฐ๐Ÿค˜๐Ÿคก
Scherzi a parte oggi ho voluto andare un pรฒ oltre correndo decisamente di piรน e niente sono emozioni indescrivibili ๐Ÿ’š
Mi ha anche beccato @raimondo.davide sulla romana che voleva farmi un video ๐Ÿ˜‚๐Ÿ˜… ma ti prego guarda come sono combinato ahahaha grande Davide ๐Ÿ‘๐Ÿป๐Ÿ˜Š
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#bordighera #8k #cuore #heartdefect #zipperclub #scarsarebeautiful #scarsarebeautifulproject #running #sport #wearetherunners #noexcuses #lifeisbeautiful #nevergiveup #justdoit #motivation #tomtomrunner3 #determination #openheart #openheartsurgery #instamoment #heartstrong #heartwarrior #heart #bepositive #moment #autoironia #facciamociunarisata #pagliaccio

This really speaks to me this morning! 2018 will be here before we know it. Trust me, I am not hurrying along Christmas๐ŸŽ„, but I am hoping to assure we are all set up for an amazing, healthy, & fit 2018!๐Ÿ’—
๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡
Tomorrow is the BIG DAY! Tomorrow you can officially commit to YOU! 90 days together to kick off the year TOGETHER!!!
๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹๐Ÿฆ‹
Are you ready to FLY with me?!?
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#heartstrong #openyourheart #leadwithlove #headbandsfordays #fitmomma #morninggirl #liveinspired #goodtogreat #dreamitanddoit #highschoolsweethearts #zipperclub #hrrocks #choosehappy #bodyimagemovement #chicagolife #followyourheart #workoutclothesaddict #vacationlover #yogapantsforthewin #BEyou #lifeisbetteratthebeach #familyisforever #nikefree #lakelife #veggiegirl #messybunandgettingthingsdone #sunshineinmyheart #strongnotskinny #heart #strong ๐Ÿ’œ๐Ÿ’™๐Ÿ’œ๐Ÿ’™๐Ÿ’œ

5 weeks post op. My scar is healing so well. I'm healing well!
It feels strange getting out and doing normal things. Like I'm carrying around a secret. I look normal, I look like I'm well but I just don't feel it. I feel so grateful. But I am so looking forward to feeling 100% I want to get rid of this weight I put on when my heart wasn't at full capacity. 2018, I'm coming for ya!
#ohs #heartsurgery #zipper #zipperclub #heart #heartwarrior #survivor #healing #scars #gettingthere

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