As some of you may know, I was recently diagnosed with ALS. I received the news in December, a little less than 4 months after getting married to Katie ( @batlashes ). What began as seemingly minor symptoms of twitching, weakness in the hands, and slurred speech, has now revealed itself as a full blown terminal illness for which there is no cure.
For those unfamiliar, ALS, also known as Lou Gehrig's disease, affects the motor neurons in a person's brain and spinal cord, causing muscles to rapidly waste away. ALS patients don't, however, experience any deterioration of the mind, and instead must endure remaining totally aware as the disease robs them of all bodily functions. Unfortunately, after only a few months after diagnosis, I am already experiencing major deterioration in my speech, my ability to walk and even simply buttoning my clothes. While there's hope for treatment and remission for those suffering with cancer, there is no stopping ALS. Once it hits it keeps progressing until the person afflicted is paralyzed and unable to communicate entirely. My life expectancy is 2-5 years.
Nothing can describe the devastation we feel. No one should have to experience this kind of tragedy. I will soon be wheelchair bound. I will require the care of an in-home nurse to assist me in making sure my needs are met while
my wife is at work. Our medical bills will continue to pile up. I know times can be tough for all of us, but I simply ask that if you're able to make a donation you please visit the website link in my profile. Any amount would be greatly appreciated. In addition, we will be organizing fundraisers in the coming months. Please come to the Ogden April 13th at 7:00 PM for music and raffles to raise awareness. If you work for a company that is able to make a donation of cash or products to auction, please email us through the website and let us know.
Thanks for taking the time to read this. I'm grateful for your friendship and any help you can provide.
#teamgarbear #fuckALS #lougherigsdisease #icebucketchallenge #ALSSucks #yestheresiceinthebucket