#worlddownsyndromeday

MOST RECENT

Off Camera 🎥 .
🐵 So here’s the story ... this ornament was on the bedside table. One day I was practising walking with Elijah. He could stand but had not yet walked unsupported - we would hold his hands just like the angel. .
🐵 Elijah picked it up and dropped it, so it broke. .
🐵 I picked up the little boy and angel and said to Elijah in a stern voice “Look, Elijah, this is you and so now you have to walk by yourself! Come on, we’re going to do it!”
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🐵 I got him ready about 3 steps away from the bed and let go ... and off he went! 1, 2, 3 and fell onto the bed. What a feeling! I jumped around and hugged him! Later Mum came home and we shared the great news!
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🐵 Now we cherish our little ‘broken’ ornament - now it means so much more to us. .
🐵The End😀

This weeks hero - science superstar! Bet many could learn a thing or two about cells from this young lady!
This is Reegan. She is 14 years old and in grade 9. She loves dancing, music, signing with songs and learning in general. She swims in special Olympic swim and has won many ribbons. She’s a constant surprise and shatters preconceived ideas of what people with down syndrome can or will do. Never put down limits.
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#downsyndromeadventures to share your hero with us!

🐵Finally here! Please find the link to this video in our profile. Don’t forget to subscribe to YouTube! Thanks and enjoy, Crumpet 🐵🧡😀💛💙🇦🇺

Off Camera 🎥 🐵there’s a lovely story behind this ornament, which I think we got when Elijah was about 2. To our family it represented how we were all able to support Elijah to develop - in more ways than just helping him to walk (he was a late walker). I was going to edit a clip with Elijah but my software is locking up. Will post later. 🐵🧡

Off Camera 🎥 🐵Not where’s Wally, WHERE’S ELIJAH? Can you find his picture? Swipe to get a clue, then swipe again to see Elijah’s submission to the Australian SBS Radio Languages Competition.

Today I'm thankful for the insulin that keeps my daughter alive every single time a carbohydrate, even gluten-free ones, enter her mouth.

Because, it wasn't that long ago that Type 1 Diabetes was an immediate death sentence. It was only in 1941, when Sir Frederick Banting discovered insulin for therapeutic use - And hello, that ain't that long ago.
So, today on #WorldDiabetesDay, it's so far from how I feel on #WorldDownsyndromeDay, because I don't really celebrate much of this absolutely exhausting disease - I can at least sign a Birthday card for Banting to help @Beyondtype1 break the @GuinnessWorldRecords for most signatures on an e-greeting card.
Sign here or link in stories: https://bantingsbirthday.org/

#HappyBirthdayBanting
#T1DAwareness
#T1DStrong
#welovecarbs
#happysoulproject

Here’s a sneak peak of the BLOOPER reel at the end! 🐵 HALF A DAY to go!
🐵School values film is READY! Releasing this Thursday around 10 a.m. Rio de Janeiro, Brazil time! 🐵 Elijah’s reading and memory challenge is to be able to read and then later recite from memory all 7 school values. Will he be able to do it??? Watch and see!
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🎹 Soundtrack change - SONG FOR ELIJAH will no longer feature, sorry. It’s too noisy with all the talking, so we will release it later with a slide show. 🎹

🐵 Just 1 day to go!
🐵School values film done! Releasing this Thursday around 10 a.m. Rio de Janeiro, Brazil time! 🐵 Elijah’s reading and memory challenge is to be able to read and then later recite from memory all 7 school values. Will he be able to do it??? Watch and see!
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🎹 Soundtrack change - SONG FOR ELIJAH will no longer feature, sorry. It’s too noisy with all the talking, so we will release it later with a slide show. 🎹

🐵 1 DAY TO GO!!!!
🐵School values film nearly done! Releasing this Thursday around 10 a.m. Rio de Janeiro, Brazil time! 🐵 Elijah’s reading and memory challenge is to be able to read and then later recite from memory all 7 school values. Will he be able to do it??? Watch and see!
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🎹 Soundtrack change - SONG FOR ELIJAH will no longer feature, sorry. It’s too noisy with all the talking, so we will release it later with a slide show. 🎹

Today is World Down Syndrome Day (3/21 for Trisomy 21)! We're encouraging everyone to rock your brightest, silliest, and maybe even most mismatched socks to show your support by saying different is awesome! 💙💛
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#wdsd18 #worlddownsyndromeday #rockyoursocks #lotsofsocks #downsyndrome #downsyndromeawareness #downsyndromecat #specialneeds #specialneedscat #cats #rockyoursocksfornadia #socks #extrachromosomeextracute #t21 #trisomy21 #nothingdownaboutit
Via

Off Camera 🎥
Here is the Elijah Eats Eggs book. Please comment and let us know if you would like to see more!😀 I think he was 5 when we made this.

Off Camera 🎥
My alarm clock (Elijah) wakes me at 5.30 to show me the books he is reading. Thanks, Elijah, good job! (How do I encourage this behaviour and not have it happen tomorrow?). 😃 See the laminated ‘books’ - we made those for Elijah to take to Kindergarten so he could do a presentation (he was non-verbal at the time so he used a speech-generating device) and engage with his friends. They went crazy hearing ‘his’ voice for the first time😀.

🐵 2 days to go!
🐵School values film nearly done! Releasing this Thursday around 10 a.m. Rio de Janeiro, Brazil time! 🐵 Elijah’s reading and memory challenge is to be able to read and then later recite from memory all 7 school values. Will he be able to do it??? Watch and see!

Rocking my odd happysocks today in support of #worlddownsyndromeday #rockyoursocks #happinesseverywhere

🐵 2 days to go! 🐵School values film nearly done! Releasing this Thursday around 10 a.m. Rio de Janeiro, Brazil time! 🐵 Elijah’s reading and memory challenge is to be able to read and then later recite from memory all 7 school values. Will he be able to do it??? Watch and see!
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🎹 Soundtrack SONG FOR ELIJAH - first release ever.🎹
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Down syndrome Awareness EVERY Day

Thanks to the Down Syndrome Association UK 🇬🇧 for supporting us! Great work - worldwide advocacy at its best! ❤️Elijah and Crumpet 🐵😀💙💛❤️🇦🇺

Thanks for supporting us! We finally got Instagram up and running! Good luck at the national congress!
Best wishes, Elijah and Crumpet.
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🐵😀💛💙❤️🇦🇺

School values film nearly done! Releasing this Thursday around 10 a.m. Rio de Janeiro, Brazil time!
🐵 3 days to go!
🐵 Elijah’s reading and memory challenge is to be able to read and then later recite from memory all 7 school values. Will he be able to do it??? Watch and see!
.
🎹 Soundtrack SONG FOR ELIJAH - first release ever. 🎹
.
Down syndrome Awareness EVERY Day

School values film nearly done! Releasing this Thursday around 10 a.m. Rio de Janeiro, Brazil time!
🐵 3 days to go!
🐵 Elijah’s reading and memory challenge is to be able to read and then later recite from memory all 7 school values. Will he be able to do it??? Watch and see!
.
🎹 Soundtrack SONG FOR ELIJAH - first release ever.

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