Look at this little face. My beautiful boy, full of hopes and dreams just like any other six year old.
It’s easy to look at this photo and do nothing else but appreciate what a cutie he is (I know I’m biased - it’s a mama’s prerogative to be!) but I want you to keep looking at this photo for just a little longer.
This is my son, my greatest love. He will one day be essentially paralysed from the neck down. His muscles will feel so weak that even wriggling his fingers will be exhausting. He will lose the ability to swallow. He will lose the ability to go to the toilet naturally. He will lose the ability to hug me and play with my hair. He will lose the ability to breathe independently.
Duchenne Muscular Dystrophy is a child killer. Children gain skills and independence in the first 5-6 years of their life and then everything is taken from them.
Zach will be one of the lucky ones if he’s still walking this time next year.
Imagine if this smiling face was the face of your child, or a child you know and love. Imagine being told what I’ve been told and that there’s no cure and not a lot you can do to slow down the progression of this evil disease.
Duchenne is the biggest genetic killer of children, yet most people don’t even know it exists which is so frustrating when it’s something that’s consuming your entire life. Taking your child from you.
Help me spread awareness, for Zach. Help me fight for a better life for my son and children like him 💙