Today is world IBD day, I’ve been a Crohnie 14 years now and an ostomate 3 years. This is life for me and so many others, inc my OH who goes through it all with me and is so supportive, despite his illness being just as hard to deal with at times. We push each other to carry on and not to give up on days were we're just to tired and in pain. It's the only one good thing to come from having IBD is i met someone just like me and I'm so thankful for him everyday. He’s my rock and my best friend.
I've a loving, caring family too, who'd I'd be lost without and some pretty awesome friends who are always there for me. This battle is hard on everyone around me, I know people inc my parents wish they could do more for me and to take all this away. Life is hard at times, there’s days were I think why me? What have I done to deserve this? my body is broken, it attacks itself from the inside, so no one on the outside can see my pain and suffering.
I’ve lost jobs and friends because I’m too sick, not everyone you meet is going to understand this illness. No one is going to understand why you can’t go out and be “normal”, no one understands until you get it yourself. The ones who do, they are the special ones, they are the ones who are there for you day or night, they are the ones who see you at your worst and your most vulnerable, they are the ones who support you no matter what and don’t question you. This is my reality and it’s not pretty, I’m peeling back the make up and the fancy clothes, this is the real me.
I’m 31 years old and I poop out my stomach into a bag, I lay awake at night in pain, I’ve been inside hospitals more times than I can count, I’ve been pumped full of drugs I don’t want to be on, drugs that I don’t know what damage they maybe doing to my body, but if I don’t take my medicine, things could be far worse than they are. I’ve had X-rays and MRI’s I’m not surprised I don’t glow in the dark, I’ve had to be fed via a feeding tube as my body couldn’t absorb things, I’ve had sepsis twice, I will need more surgery one day, this is a huge operation to remove my large bowel/rectum. We need a cure #worldibdday