#victoryovervasculitis

MOST RECENT

Patrick Lane was diagnosed with a form of vasculitis in September 2016. His passion for basketball and helping others encouraged him to host a basketball tournament. All of the proceeds from the Victory over Vasculitis 3V3 Basketball Tournament will be donated to the Vasculitis Foundation.
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If you are around the Medford, MA area and want to meet new people while playing basketball for a great cause please contact Patrick Lane: Lanepd23@gmail.com
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The cost is $20 per player and there will be 3-5 player teams. The champion will receive a prize and bragging rights! #victoryovervasculitis

Saturday’s are all about family, but for those who are new to my feed, I want to tell you about my extended family, a community of compassionate people that are truly living up to the hashtag #bethechange - the staff and board members @vasculitisfoundation + the entire #vasculitiscommunity we serve.
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After the loss of my father in 2009 to #wegeners (a type of vasculitis disease, an autoimmune disease that causes inflammation of blood vessels) I was left with an enormous void of which a short Instagram post CAN NOT a lot room for full expression. But, I was also left with a drive to make sure that his loss was not in vain, that his family would turn his passing into a passionate commitment to improve the lives of others with #vasculitis.
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I am a proud board member of @vasculitisfoundation, joining ten other members that are diligently working to best manage the resources and improve the support network of the foundation. This month is #VasculitisAwarenessMonth and we are working to increase awareness + raise funds for new research programs, educational seminars, tech improvements and patient lobbing support. See my feed throughout the day for inspiring men and women that are making a change in the vasculitis + #autoimmunecommunity ++ HOW YOU CAN HELP this worthy cause 🙏.
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In a few weeks, I will finally be able to reveal plans for the launch of the Ilya Peckerman Vasculitis Teaching Fellowship Program, which my family fund in partnership with @vasculitisfoundation + a leading hospital in NYC, will kick off. The goal is to host seminars/CMEs to educate primary care doctors on the early signs of vasculitis, as this is key in improving and saving lives. 💛


COMMENT: how are you going to be the change? Mama what is your hustle with heart? 🙏💛 Every action has a ripple reaction in the world. Put out those powerful mama vibes, and have a blessed weekend. #victoryovervasculitis #autoimmune #dogooddeeds #dogoodwork

Some days #running is fun! That fun was seen on my face yesterday. Today... a much different story during my #discipleofsnyder session. They can't all be fun, but seeing results through hard work is always gratifying. ⚡

#runtoinspire #victoryovervasculitis #vasculitisawareness #golikeneverbefore #skechersperformance #gofast #running #trackandfield #discipleofsnyder #noexcuses #goingthedistance #author #selfpublished #athletesarebrandstoo #gorun #lifeinthefastlane #vasculitis #motivation #fastfriday

As I’ve been learning from Dr.Southern, one passionate lung disease specialist from Cleveland clinic about his research into autoimmune, vasculitis and interstitial diseases. My absolute respect to all their contributions. Looking forward to more revolutions in medicine.
Here is my small painting to his office, to #vascultisawareness month, the warrior patients/ friends who battle it with constant patience. And especially to those affected by lungs ... the minutes or hours where you have to steer them a little, little harder. 😌 KEEP STEERING! cheers to the drive for #victoryovervasculitis and hope you have a good lung day!
#vasculitis #churgstraussyndrome #churgstrauss #vascularity #victoryovervasculitis #autoimmunedisease #vasculitisawareness #lungs #lungcancer #vasculitisawarenessmonth #vasculitis2018 #autoimmunepaleo #autoimmuneprotocol #raredisease #rarediseaseday #rarediseases #lungdisease #copd #pnemonia #bronchitis

A few shots from today's pre race run for @tcmarathon #tc1mile tomorrow night. Excited to be back in the Twin Cities and sharing the #victoryovervasculitis campaign during #vasculitisawareness month!
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Don't forget I'll be @ Lakes Running Company tonight @ 6:30pm sharing my story n reading an excerpt from my book Going the Distance.
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#runtoinspire #victoryovervasculitis #vasculitisawareness #golikeneverbefore #skechersperformance #gofast #running #trackandfield #discipleofsnyder #noexcuses #goingthedistance #author #selfpublished #athletesarebrandstoo #gorun #vasculitis #haveafastday #cocoaelite 📸@bill_wilde

A little #tbt in honor of #vasculitisawareness month. This picture was taking roughly 10 yrs ago while I was bloated from large doses of prednisone to save my kidneys from shutting down and prevent my #vasculitis from spreading even further. My junior yr of college I finally put in the dreaded freshman 15 in a 1 week hospital stay. At this point I'm well over 20 lbs over my race weight n wondering if I'd ever be able to compete again. I said I was going to beat Vasculitis, but I had no clue what that meant. *
It's been an incredible journey over the last 10 years. When I get frustrated with my performances or my ability to compete on the world's biggest stage, I have to remind myself of times like this picture. During my lowest points in life and when I was fighting for my life, I was still trying to get out the door for a run. Call me crazy, but it's what I had to do to keep my sanity.
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T-minus 1 wk till my #victoryovervasculitis tour lands in Minneapolis, MN for the @tcmarathon 1 mile! *
#runtoinspire #victoryovervasculitis #golikeneverbefore #skechersperformance #discipleofsnyder #trackandfield #running #tracklife #goingthedistance #author #selfpublished #athletesarebrandstoo #gorun #lifeinthefastlane #cocoaelite #downbutnotout

Everybody all smiles after a #discipleofsnyder quarters of doom session. Hard work is always easier w/ friends, that or misery loves company. You decide. *
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#runtoinspire #victoryovervasculitis #vasculitisawareness #golikeneverbefore #skechersperformance #gofast #running #runcoach #trackandfield #werunhighpoint #oldmanspeed #vasculitis #motivation #workoutwednesday

Today marks the 10th anniversary of my #Vasculitis diagnosis. After 10 years of ups n downs with my #Health, I'm happy to celebrate like any #discipleofsnyder would, w/ 2 runs, sprints, a gym session, and long trip down memory lane. Then of course the mandatory recovery food of donuts, pizza, and beer. I wrote a few words about the often unbelievable journey over the last last 10 yrs. From the bottom of my heart, thank you to each and every one of you that have been a part of this journey. Link in bio!
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#runtoinspire #victoryovervasculitis #vasculitisawareness #golikeneverbefore #skechersperformance #gofast #running #trackandfield #noexcuses #running #selfpublished #author #goingthedistance #athletesarebrandstoo #gorun #lifeinthefastlane #Healthcare #speedkills

We’ve been keeping a pretty big secret - and we’re still not spilling ALL the beans (you’ll have to come see for yourself!) - BUT we’ve got something really special to give away to celebrate our fifth #vinoforvasculitis 🎉🤗 We can’t wait to give them out - first come, first serve! SEE YOU GUYS IN A WEEK! #CelebratingDanielle #SwagBag #victoryovervasculitis #vasculitis #vino2018

#TheRock will always be the home of @appstatexctf. I'm sad the track is being removed from the stadium. While in town for the week, I couldn't resist the urge to lace up the my @skechersperformance #gofast spikes n rip a few sprints for old times sake. This track became my happy place in 2009 and will forever hold a special place in ❤️.
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#runtoinspire #victoryovervasculitis #vasculitisawareness #golikeneverbefore #skechersperformance #discipleofsnyder #trackandfield #running #vasculitis #author #selfpublished #athletesarebrandstoo #goingthedistance #speedkills #oldmanspeed #gorun #cocoaelite

Don’t miss tonight’s event! We will be joined by sub-4 miler Brandon Hudgins and his sponsor, Skechers Performance. Try to arrive a little before 5:30 so you can grab some demo shoes to try before setting off for the run! If you want to come for Brandon’s talk and book signing only, plan to arrive by about 6:15.
#runboone #goingthedistance #victoryovervasculitis #skechersperformance

What a week n it's only Tuesday! Still feeling #inspired from yesterday's #bostonmarathon2018. Thanks to that energy, I had my best #discipleofsnyder workout in 20 months and have a trip to #Boone on tap. #lifeisgood
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Boone/Blowing Rock/Watauga County peeps, I'll be @upnrunningboone on Thurs night for the group run. I'll help do a @skechersperformance demo, give u a little #motivational chat, n of course I'll have copies of Going the Distance for $12. So stop by and say hi!
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#runtoinspire #victoryovervasculitis #vasculitisawareness #golikeneverbefore #skechersperformance #gofast #running #trackandfield #discipleofsnyder #noexcuses #goingthedistance #author #selfpublished #athletesarebrandstoo #gorun #vasculitis #tracktuesday #cocoaelite

Just a couple of jabronis hiding out back n licking our wounds after some hill reps. Finally some warm weather to blind people with our paleness. *not pictured, the hill we destroyed*
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#runtoinspire #victoryovervasculitis #vasculitisawareness #golikeneverbefore #skechersperformance #gofast #running #trackandfield #discipleofsnyder #noexcuses #goingthedistance #author #selfpublished #athletesarebrandstoo #gorun #vasculitis #legday

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