#veds

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"We'll meet again, don't know when..." #zebrastrong #veds

Rakh sko to ek Nishani h hum
Bhul jaao to ek Kahani h hum Khushi ki dhoop ho ya gum k baaadal
Dono me Jo brse would paani h hum #VEDS

Bit cold #veds

@vedaakeenan is feeling the aloha spirit at Lahaina park🌴🌺😍 #wcw #girlswhoskate #veds

Zaman sekolah 'dulu'
#veds

backstage at #VEDS for @ceciliarosellofficial

Dah ada yang fly pun benda ni tak siap siap.

#quinsturnseven #veds

Ayyyyy reppin dat zebra filter on Snapchat as the zebra is the symbol for EDS sufferers worldwide ✨ #ehlersdanlossyndrome #VEDS #zebralife #chiari #chronicillness

ala gmbr blurr lol ni gmbr quins dinner back then in 2014 & with Veds! Baru perasan tak cukup quorum ni Iman takde, Mirza, Syu :,) Semua dah nak masuk 20 skrg dulu memasing nakal-nakal, dgn kena denda selalu tak buat homework apa semua, nak kena jawab quiz cikgu nani baru boleh masuk lab or duduk, dgn cikgu Am punya suara lagi ahahaha stay safe everyone & belajar elok-elok! 🙌🏻 #quinsturnsseven #veds

MOST RECENT

My random musing this morning... When you're used to life with EDS, the disorder becomes glaringly obvious in other people! While their doctor considers them a total mystery or even accuses them of faking, we can see how perfectly their symptoms fit the EDS criteria. It could be a friend or a blog we follow or just a random person's story we stumble upon, but it's always frustrating! Especially if they have been prescribed treatments that are contraindicated for us zebras. Hey medical professionals- "If you can't connect the issues, think connective tissues!" The sooner the correct diagnosis is made, the sooner the patient can start receiving the proper care and improving their quality of life.
#spoonie #spoonielife #chronicillness #butyoudontlooksick #invisibleillness #ehlersdanlossyndrome #ehlersdanlos #hEDS #cEDS #vEDS #medicalzebra #medicalmystery #undiagnosed #neglected #medstudent #medschool #medical #mysterydiagnosis #raredisease #dysautonomia #posturalorthostatictachycardiasyndrome #gastroparesis #mcad #anaphylaxis #angioedema #hypermobility #jointhypermobility #arthritis #zebra

Speaking of hyper-extensible skin... (see my last post for details). Thank you, Sara @sarageurts , for sharing your story!! So inspiring, empowering, and brave! It's not easy to share your struggle, journey and experiences, but the more of us that do the more we will spread the word about EDS! 👏🏼👏🏼👏🏼 #rolemodel Video repost @people #ifyadontknownowyaknow #sundayschooled #chronic #chronicillness #chronicpain #chronicallyill #chronicfatigue #ehlersdanlossyndrome #ehlersdanlos #eds #edsawareness #classicaleds #heds #veds #hypermobility #migraine #pots #pcos #ddd #lupus #me #ibd #ibs #depression #anxiety #spoonies #thrivingandsurviving #sickerthanyouraverage #lifehacksforchronicillness

💡💡💡I can scrape my arm against something, not even fully break the skin, and have a scar for three years 🤦🏼‍♀️ For me one of the worst skin symptoms (besides slow healing) is the eraser-feeling I get when I brush up against something the wrong way. It literally feels like someone is running an eraser back and forth over my skin ✏️✏️✏️😵 it's so painful but luckily doesn't last very long. Anything can cause it...seat belts, clothing, other people brushing up against me..it catches me off guard every single time! How many of you experience this? I also have very translucent skin, which is another symptom of EDS. Velvety-soft skin is a symptom, as well, but I don't hate that! picture repost @eds_goddess #ifyadontknownowyaknow #sundayschooled #chronic #chronicillness #chronicpain #chronicallyill #chronicfatigue #ehlersdanlossyndrome #ehlersdanlos #eds #edsawareness #classicaleds #heds #veds #hypermobility #edsproblems #migraine #pots #pcos #ddd #lupus #me #ibd #ibs #depression #anxiety #spoonies #butyoudontlooksick #sickerthanyouraverage #lifehacksforchronicillness

Curious how this will end with dragons & a corrupt kingdom?? pre-order your copy of
Myths & Magic Boxset
for 99cents!
Amazon: https://www.amazon.com/dp/B072LPDFQK/

#cross #mythsandmagicboxset #mythsandmagic #daroach #mustread #veds #eds #raisingawareness #dragons #witches #kingdom #bookstagram #booklover #fantasy #ya #yalover

Ray Cross was born with a genetic disorder, resulting in a fragile body. One day
Ray hears news that his real father, a king from a secret land hidden in the far north of Canada, is dying & wishes to meet his son.
With his doctor & newly-met twin, Ray travels to the forgotten village of Yardis, where magic, myth, & corruption are abundant. But the longer he stays in the village he discovers an evil force threatening the king & his village.
But there’s more than the king & a village tied to Yardis & Ray. He finds friendship & more from a band of brothers who are part witch, dragon, & healer. With new alliances & new abilities, Ray wars with himself on playing it safe or risking it all to save the ones he loves.
Can Ray rise above his fragile disorder to become the hero for once in his life?

Pre-order Myths & Magic Boxset, featuring 21 full length fantasy, paranormal, & sci-fi novels & novellas including Cross by D.A. Roach
Amazon: https://www.amazon.com/dp/B072LPDFQK/
#99cents #bookdeal #cross #fantasy #fantasyfictioo #fantasybook #paranormal #scifi #boxset #bestsellingauthor #mythsandmagic #mythsandmagicboxset #bookstagram #booklover #bookworm #veds #raisingawareness #eds

Guess who's in back in hospital again? Something went wrong in the leg I always called the "good one": a loud pop and unbearable pain. It's not broken for God's sake but shit, it does hurt! X-rays now, let them be positive rays 😁 #ehlersdanlos #ehlersdanlossyndrome #zebrafamily #vasculareds #veds #vascularehlersdanlos #smiletherapy #smilethroughthepain #findacure #helptheresearch #saveme #cureme #spreadtheword #ehlersdanlossyndromeawareness #ehlersdanlosawareness #wheelchairgirls #wheelchairs #wheelchairlife

Literally all I dreamt of this entire week was making it to Friday evening so I could get back in bed👌🏼👌🏼😴 Multiple dr appointments, a MRI, two herniated discs compressing my spinal cord, and fighting my insurance company every step of the way (while still making it through a 40 hr work week) drained the hell out of me. So glad it's over 🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼🙌🏼 🌱LIFE HACK 🌱: Give yourself a "clock out" or a "check out" time at the end of the week. Do your best to get done what you need to get done, but don't let it consume your thoughts for the entire weekend. Allow yourself to chill out and decompress bc lord knows you deserve it‼️Monday will be another round of fighting/advocating for yourself, and putting on that brace face you wear so well... but for now just recuperate and take care of you #finallyfriday #chronic #chronicillness #chronicpain #chronicfatigue #chronicallyill #eds #edsawareness #classicaleds #heds #veds #hypermobility #migraine #pots #pcos #lyme #lupus #crps #ddd #me #ibd #depression #anxiety #spoonies #tgif #butyoudontlooksick #thrivingandsurviving #sickerthanyouraverage #strongerthanyouraverage #lifehacksforchronicillness

A friend of mine who had #ehlersdanlossyndrome passed away today. She had a fragile heart like me. 42 years old. I still hope my life will last forever. Good bye Amica, Hope you're in a peaceful and painfree place. I love you. #ehlersdanlos #vasculareds #veds #vascularehlersdanlos #findacure #helptheresearch #saveme #cureme #spreadtheword #ehlersdanlossyndromeawareness #ehlersdanlosawareness

Seeing total strangers come together and support one another, empathize with and relate to each other over this unimaginable battle called chronic illness is such an incredible thing to witness 💞 The wonderful woman behind the @findingsolaceproject has been doing her part by designing, creating, and shipping handmade bracelets to fellow chronic illness sufferers who need a little pick me up (and a reminder that we're not along in our fight with chronic illness). And now she has created a t-shirt to share with all of us, as well! Go check out her page and click the link in her bio to order a shirt for yourself or someone else battling chronic illness. She only needs to sell 5 more shirts in order to reach her goal of donating the proceeds to a charity supporting the fight against chronic illness. (If not the website will keep all of the profits👎🏼👎🏼). Check it out and purchase your t-shirt before time runs out! Only 9 days left! ❣️If nothing else, @findingsolaceproject deserves to be recognized for spending the time, money, and effort creating these bracelets and shirts, thank you for that! ❣️#payingitforward #chronic #eds #heds #veds #pots #lymedisease #lupus #migraine #ibs #ibd #ddd #chronichope #dontstopgetitgetit #strongerthanyouraverage #sickerthanyouraverage #lifehacksforchronicillness ••••
Repost @findingsolaceproject (@get_repost)
・・・
REMINDER 💋
Please help & get the word out there to reach the target sales 🎯If you know a friend or family member who would be interested, this is their last chance to own this limited edition spoonie tee 👚👕 You can view photos of the tees in my posts and the happy owners 🎉 #LimitedEdition #SpoonieTee #LastChance #ChronicallyAwesome #ChronicIllness #ChronicPain #ChronicallyIll #Spoonie #MentalHealth #Endometriosis #Fibromyalgia #CFS #ChronicallyFabulous

#EDS #vEDS = More Awareness Needed

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