#undiagnosedillness

MOST RECENT

I’m so exhausted I don’t think I could walk up the stairs if I tried. Something feels so wrong. My head aches and spins. I’m so tired my body feels like lead. My head is fuzzy. I wish I knew what was wrong with me. This is scary
#chronicillnessawareness #disabilityawareness #mentalhealthawareness #chronicillness #chronicmigraine #chronicfatigue #chronicpain #chronicpainwarrior #lgbtq #depression #anxiety #aspergers #asthmatic #asthma #add #autismawareness #stimtoys #fidgetoys #ibs #oralallergysyndrome #undiagnosedillness #undiagnosed #medicalmystery

I struggle mentally so much with acknowledging that it is NOT normal to constantly feel like crap. I've spent my entire life thinking I was dramatic, lazy, making excuses. I'm not disabled. I don't need a service dog. I just need to try harder that's all. Today is a slap in the face reminder that, no, that's not true. You aren't okay. I had a couple of good days and today I'm awful. I've been sweating profusely all morning, heart palpitations, clenching chest pain, dizzy, my legs won't stop shaking and I'm just... not. Okay. I nearly fainted getting my client (#PCA) into the car for church. This isn't normal. But I will smile and do my job. 😃
#health #heartproblems #undiagnosedillness #undiagnosed #servicedog #physicalhealth #sick #mentalhealth #invisibleillness #denial #imfine #chonicfatigue #pain

Good news and bad news!!! Liver tests came back allright so that means no scarring or cirrhosis of my liver so I won't have to get a liver transplant! Bad news is we still don't know what's causing it to be inflamed or why my symptoms are so severe. Celiac test still not back and more blood tests soon. I hate fasting for those they make feel worse 😣. I'm definitely feeling better than I did a few weeks ago though so that's also Good!❤ #undiagnosedillness #gettingbetter #liverproblems

I can’t stop crying, how do I deal with facing the slow loss of being able to do things I love?? -
I feel almost guilty, like I can still walk and take care of myself. Others have it worse. I shouldn’t complain. What if it’s all in my head?
-Swinging was one of my favourite hobbies. The feeling of the movement always calmed me down. But it’s no longer enjoyable, it hurts too much to hold on or swing my legs. I’m crying. Half the time i can’t even convince myself to believe there’s something wrong. Maybe I’m delusional or over exaggerating, others have it worse. I feel guilty, like I’m making it worse than it is. I feel guilty. My head is foggy and I can’t remember much so I can’t even trust my own memory.

#autismacceptance #chronicpainwarrior #chronicillnesswarrior #mentalhealthawareness #chronicpain #guilt #guiltcomplex #depression #anxiety #add #bipolar #aspergers #fibro #chronicmigraine #chronicmigraines #jointpain #brainfog #ibs #oralallergysyndrome #ineedadvice #chronicillnesssupport #chronicpainsucks #undiagnosed #undiagnosedillness #invisibleillness

Someone said this to me today, in reference to there still being more spirit and fight in me (the right) than physical damage done from the undiagnosed illness I’ve had to live with for years (the wrong). And it occurred to me that no matter how very broken we can become in this life, the amount of right we have left can still outweigh the wrongs. Hopefully this little sentiment on a random Tuesday reminds more than me that there is always some right even when life feels so very wrong. 👊

Are my physical symptoms making my mental illness worst ? or is my mental illness causing my physical symptoms? Doc's can't say much yet but until the tests come back; self-help books as 'prescribed'. It took my like 8 tries just to take a decent photo because it's hard with shaky hands...rip

#anxiety #gad #mentalillness #asd #undiagnosedillness #doctorsdontknowwhatswrongwithme

El pasado 29 de Abril ha sido nombrado por la comunidad científica como el día internacional de aquellos pacientes con patologías poco frecuentes aún sin diagnóstico. Se refiere a aquellas enfermedades raras, de las cuales aún realizándose todos los protocolos de estudios requeridos NO se ha llegado a la causa/etiología ú origen de la misma. Se estima que alrededor de un 80% de estos casos pueden tener un origen genético. Este grupo de pacientes están incluido en el grupo de las enfermedades raras sólo que en estos casos la causa no está definida ya que los estudios requeridos,incluso de alta tecnología médico-cientifica no reportan ningún hallazgo específico que permita establecer su diagnóstico y con ello el abordaje terapéutico específico requerido. Existen alrededor de unas 7.000 enfermedades raras en el mundo las cuales ya han logrado estudiarse, saber la causa, el origen. Muchas sin cura pero sí con tratamientos innovadores que limita la progresión de la enfermedad (muchas veces degenerativa) mejorando así la calidad de los pacientes y sus familias. En el caso de aquellas enfermedades "sin diagnóstico" la ciencia sigue realizando esfuerzos en base a estudios científicos de alta envergadura que permita llegar al conocimiento exacto de las mismas. Son raras, son poco frecuentes, son desconocidas, pero NO son invisibles. La esperanza sin duda está en los genes, en la biotecnología, en la terapia Génica. Apoyo desde esta humilde ventana a todos los científicos abocados al estudios de estas enfermedades y a la industria farmacéutica que muchas veces forma parte del milagro de una opción terapéutica. #undiagnosed #undiagnosedillness #undiagnosedDay #raredisease #genes #hopeAreOurGenes

Ummm I'm not fine I'm used to saying I'm fine or okay but deep inside it's a war zone and it hurts like now I used to it so I feel nothing I feel just irritated and angry so angry at the world but in reality it's just me because I have no value and I'm worthless just a waste of life it's self and I've learned to accept that and I don't like helping other ppl with depression or suicide thoughts or self harm because I am struggling My self and I dunno anymore...💔#depressed #suicide #mentalhealth #selfharm #lonely #sad #irritated #bullied #undiagnosedillness #wrists #scars #numb #coldhearted #badperson #suicidethoughts #stupid #helpme #killme #kms #shootme

💯 💯 💯 As soon as my doctor gave me the option to take the summer off before talking about being sent to Mayo Clinic I KNEW God was bringing me into a season of rest. I had been praying for for a few weeks that my body needed a break. When I spend time with the Lord now I’ve been really trying to listen to ways I can flourish in my season. Priority #2 (#1 is time with Jesus) is getting a tan! I’ve been pale for far too long!!! My sweet doctor and nurse said they expect to see a bronzed goddess when I return at the end of summer! 😂😂 #ehlersdanlossyndrome #pots #mcas #undiagnosedillness #undiagnosed #rare #raredisease #genetic #raregeneticdisorder #eds #summeroffun #summer #summer18

In the past 6 months I’ve spent more time picking up prescriptions than I can ever recall in the whole of my life before that.

There have been weeks were I’ve gone to the pharmacy nearly every business day.

I am overflowing with gratitude that this is an option. That I also have the option of drive through pick up.
Yet what remains is the knowledge that chronic illness has struggles not often acknowledged by those suffering and the loved ones who suffer with them.

I’m not looking for a trophy or a pat on the back for the sacrifices - though coffee is always a good idea 😘
Mostly I just need people to see that there’s so much going on beyond the scenes.
#Rxrun #chronicillness #chronicpain #undiagnosedillness #mentalhealthawareness #griefismorethandeath #thankgodfordrivethrupharmacies #walgreens

11: I've injured myself a lot of different ways and places. A few years ago I fell off a skateboard down a small hill (ik I'm really stupid) onto cement. At school I slipped on ice and injured my ancle (but I never got any appointment or care of any sort because no one would believe me) yea if I'm literally crying in pain nothing is wrong -_____-... And once in gym class I somehow cut my finger.
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#30dayselfharmchallenge #lol #selfharm #cuttingmyself #undiagnosedillness #depression #anxiety #panicdisorder

I walked from Griffith Park to the 1st Family fountain and back yesterday to get ready for 2 upcoming walks. Tried again today but the path was flooded so I went to the Wendall St. bridge instead. Not quite a mile, but I haven't walked that far in one spell since before my 4 surgeries. #KetoGirl #KetogenicDiet #KetogenicCom #KetogenicLifestyle #1K #Fairbanks #Alaska #ChronicPain #Spoonie #UndiagnosedIllness

6: with self harm I enjoy how it helps numb the pain for me. It's an escape. It's makes you forget about all your troubles just for a moment..
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#suicide #selfharm #cuttingmyself #splitfamily #mentalhealth #mentalillness #noonebelievesme #bullying #bullied #depressed #depressed #anxiety #anxious #panicattackssuck #anxietyattack #panicattack #undiagnosedillness #nobodylistens #mentalillnessawareness

Flare Day must-haves: Journal, Crystals, and herbal neck wrap!! Making the most of my down days (when I’m not passed out snoring from exhaustion) .
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🙎🏻‍♀️ - people think that because I’m “still sick” it means my breast implants weren’t the cause. .
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I have something for you today: 🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄🙄 — haha I’m kidding (kind of) but honestly — have you read anything I’ve written??? HAVE YOU? How about my friends?? No?? Okay well then, once you understand HOWWWWWWW breast implants made me sick —
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(because contrary to popular belief they didn’t make me sick because they are just evil, demon filled sacks of poison — although ask any of us #breastimplantillness “chicks” that and you might get that vibe cuz hint: we HATE THEM) .
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another hint: it’s because they ACTUALLY did cause our bodies to have a horrible build up nasty heavy metals (which let me be the first to tell you — HUMAN BODIES DONT LIKE THIS!!!) it’s okay for some people who don’t have genetic mutations (AKA 50% of Americans) - why you think so many of us get sick, YO?!!!!? .
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Those gene mutations interrupt your normal programming and replace it with BODY ACHES, Horrific pain, loss of balance, slurred speech, numbness, brain fog, nausea, vomiting, #fibromyalgia #multiplesclerosis #hashimotos #rheumatoidarthritis #lupus #chronicillness #chronicpain and many many many more conditions that GO AWAY (blood tests prove this) after removing implants 🤔 .
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Weird right? Yup. It happens. But we will just keep telling people until they WANT to listen and they want to be proactive about their own health and GET TESTED before going under the knife. 🔪
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For what it’s worth??? You better believe us #breasties will be here for you if you ever need us 💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖
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#invisibleillnessawarenesseveryday #invisibleillnesswarrior #neurotoxicity #mthfrgenemutation #genemutationproblems #chronicillnessmysteries #undiagnosedillness #lifesinceexplant #explantinsta #selfloveisthenewsexy #selfcareisthenewhealthcare #radicalacceptanceisthenewpink #radicalacceptanceinprogress #loveyourselfthough #youarekindofawesome

5: the part of selfharm I hate the most is that some imature people make fun of it. I just want everyone to understand what's it's really like. Plus when people see cuts and selfharm they freak out.
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#suicide #selfharm #cuttingmyself #splitfamily #mentalhealth #mentalillness #noonebelievesme #bullying #bullied #depressed #depressed #anxiety #anxious #panicattackssuck #anxietyattack #panicattack #undiagnosedillness #nobodylistens #mentalillnessawareness

This is especially about the topic of self harm. Mental illnesses are probably even more painful then physical pain. It's hurts even more knowing that no one else can see or feel the pain but you.
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#suicide #selfharm #cuttingmyself #splitfamily #mentalhealth #mentalillness #noonebelievesme #bullying #bullied #depressed #depressed #anxiety #anxious #panicattackssuck #anxietyattack #panicattack #undiagnosedillness #nobodylistens #mentalillnessawareness

Today I hit breaking point. I had my worst emotional breakdown of my life and was in a crying heap on my bathroom floor, so close to just giving up. I looked up at the wall beside me and saw this rainbow and it was the most perfectly timed magical moment of my life. When I was too weak to search for my own rainbows, one literally appeared beside me. I sat there and stared at the wall and watched the rainbow slowly fade away. It was as though the dimmer this rainbow became, the stronger and more empowered I felt. I am so grateful for this moment. A true reminder that I can do this and things will be ok. 🌈
#findingrainbows #chronicillness #chronicpain #chronicfatigue #spoonie #spooniesupport #undiagnosedillness #mentalhealth #rainbow #chasingrainbows #positivity #warrior #icandothis

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