#uctd

MOST RECENT

I had my post-op appointment this morning and it went well! No problems and everything looked good. 😊

I can't wait until I can get back to exercising and start on my strength training! My fiancé is already eating healthy and working out, so it will be great to finally join him. 😊 While he is already ready for a 5k (to make it with a good pace for each mile), I definitely am not. 😂

Do any of you guys run virtual 5ks? Any great ones that you would recommend? Right now I have looked into runDisney and Hogwarts Running Club, and I plan to do one later this year!

Or the days where the pain is controllable. Today was the first day in ages I was able to do a bit of organizing and cleaning. Crazy thing to be thrilled about, but since I have become disabled one of the things that bothers me is not being able to care for my home in the manner I like. Today was a good day... tomorrow might not be. At least I know I enjoyed doing a bit of much needed house keeping. Hopefully it won’t be too long before I get another chance. #cfsme #tiredgirl #sleepygirl #migraine #fibromyalgia #uctd #peoplehopetribe #millionsmissing #housebound #exhausted #lowpainday #audrainreallife #myazlife

When you’re basically allergic to the sun but the Army sends you to a desert duty station against medical advice, anyway.
I think I’m handling this well. #army #armywife #autoimmunedisease #spoonielife #keto #uctd

Just another day in the life of an #autoimmunedisease patient #uctd

What happens during a flare... been mostly stuck in bed for the last few days, feeling awful, not able to really take care of myself including my skin. On the healing side of things now (all praise prednisone 🙌) but it’s going to take a while to recover. #lupus #autoimmunedisease #uctd #lupusflare #prednisonetotherescue #prednisone

I missed last night’s meds and it’s all Ella’s fault! The routine was 1) meds, 2) feed Ella. Then #chronickidneydisease tanked her appetite and I have to remember 😩
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#ella #catsofinstagram #brainfog #lupus #uctd

There’s nothing quite like a good old dose of emotional stress or trauma to boost autoimmunity and increase those chronic pain levels! You can go for a while feeling pretty okay and living relatively pain free, sometimes even forgetting that there’s anything wrong with you at all, but then something happens that rocks your world and you come crashing back down again. Such is life I suppose though... You just have to keep riding the waves and live for those blissful moments of calm! 🌊🏄🏼‍♀️

I hate complaining to you guys but I feel so tired and so done. Right now, I’m making a list and I’m forcing myself find any and every little thing that either makes me smile (or has ever made me smile), and I am writing it all down so that I can remind myself how much I have to be thankful for. ✨📝✨ #Depression just smacked me in the face for no good reason. Again. I’ve fought off this lying dog many times before (does it ever really go away?)...but I’m tired and so sick of hurting in all of the ways a person can hurt (physically, emotionally, mentally). 😓
Right now, in my notes, I am thankful for my easy evening, preceded by a nap, along with the cool blue TV light glowing on my quiet kiddos’ sweet faces ....they were cuddling with me and watching a movie in my bed. #spooniemamaFTW

Also, I am thankful for you and so glad that you are here! I feel lucky 🍀 that I get to be a part of this community. I love your courage and I often find myself in awe of your strength sand perseverance. You share stories of hope, give glimpses into your beautiful lives, and share experiences that make us spoonies feel “normal“. 🙌

Sending out hugs and spoons. 💛
#exhausted #depressed #teampajamas #spoonie #spoonielife #spooniesunite #mctd #mctdsupport #autoimmunedisease #mixedconnectivetissuedisease #mctdsucks #uctd #lupus #sjogrens #rheumatoidarthritis #scleroderma #polymyositis #fibromyalgia #ankylosingspondylitis #hashimotos #chronicillness #chronicpain #chronicfatigue #MS #anxiety #panicdisorder

Follow @mctd_support on Twitter & follow 'MCTD_Support - Spoonies Unite' on Facebook! 👍

Been in for a week time to enjoy the heat! #melanin #melaninrich #spoonieproblems #motd #uctd

Enjoying the 70 degree weather outdoors before the predicted snow showers on Sunday!

My sister and I didn't walk as long as I wanted to since my joints weren't cooperating, but we still had a good time!

It's been a rough week...who am I kidding? It's been a rough year. I don't talk about what life is like for me with chronic conditions. I don't like to dwell in the negative nor do I like to be seen as though I'm asking for pity. But sometimes, sitting is too hard on my body. Sometimes I'd go to the hospital if I thought they could help. Sometimes everything hurts and the fatigue is just too much. And that when I rest. Because some days are like that...even in Australia. #chronicillness #spoonie #uctd #lcss #raynauds #GERD #slapouttaspoons

This is a pic ‘before’ first symptoms of Diffuse Scleroderma took hold 2006 ...

Before Sclero took over my body, I had it all, athletic body, amazing hair, I was fit and healthy, blessed to have given natural birth to 3 beautiful babies, but I was so stuck & consumed with self hate and loathing, that I just couldn’t see it, nor could I feel gratitude for it!

Yeah went to the gym with my daughter. Now it's time for bed. Playing medication roulette is making me 😝 looking forward to seeing my primary Dr. tomorrow for hinky bloodwork and fibro. Next week I get to see the neurologist. Thank goodness I have a lot of sick leave and just got paid. This will be 5 appointments in 4 weeks.
#workinprogress #rny #gastricbypass #weightlossjourney #weightlosssurgery #rnyinstacrew #health #rnycommunity #wlscommunity #losingweight #weightloss #tattooed #tattoo #tattoos #fitfam #beautiful #pretty #chesttattoo #shorthairdontcare #pnw #chronicillness #autoimmunewarrior #fighter #osteoarthritis #autoimmune #raynauds #uctd #fibromyalgia #planetfitness

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