#uctd

MOST RECENT

Giving in is not an option in my world.. #everydayiwantto #butno #justkeepswimming #spoonie #autoimmunedisease #uctd

What’s the one thing you can’t work without????
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For me, it’s music 🎶. The perfect 👌 playlist is the secret to my productivity. The more it pumps me up, the better and more focused I get. .
I’m the type of person that will have my headphones 🎧 on at my computer 🖥 , moving along to the beat of the song. Sometimes takes everything in me not to start all out dancing in the aisles if the right song comes on. .
If I’m working at home , you can bet Alexa is blasting some 2000’s Pop. I’ve been known to bust out a Britney Spears dance routine 💃🐍 in my living room. Music lifts my mood 😄 and makes the day go so much quicker!
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What’s your must-have for the workday???

Swing and a miss, fortune writer. 😂

#spoonie #chronicillness #cfs #uctd #lupus #vasculitis #autoimmunedisease

Moved to the recliner and now have two kitties. Lydia is my black and white Tuxedo kitty. I raised her as a 9 day old after her mother was killed. She really is gorgeous but quite antisocial. This is the best shot we will get to capture her on camera as she is like “ Go AWAY Paparazzi!!!” each time I try to take a picture!!🤣🤣🤣. Notice Wolff is right on my chest because that’s her favorite place!😍 #ludocat #tuxedocat #rescuekitties #mycats #wolffcat #blindcat #catsifinstagram #blindkitty #handicatsofinstagram #spoonie #autoimmunedisease #polyarthritis #uctd #fibromyalgia #cfsisterhood #myalgicencephalomyelitis #cfsme #couchbound #chronicpain #spoonielife #myazlife #pwme

We are couch bound today after a really rough emotional roller coaster of a day yesterday. #wolfftheblindkitty is my constant companion especially if there is sitting or laying around to be done. She is a master of Il bel far niente, the beauty of doing nothing. It’s the perfect day to be couch bound with lots of cups of tea and overcast skies outside. #wolffcat #blindcat #catsifinstagram # blindkitty #handicatsofinstagram #spoonie #autoimmunedisease #polyarthritis #uctd #fibromyalgia #cfsisterhood #myalgicencephalomyelitis #cfsme #couchbound #chronicpain #spoonielife #myazlife #pwme

"Don't let the humans lie to you, moving from your comfortable spot isn't worth it!" #willowwisdom

But he will certainly keep an eye on me and demand pets. 💕

I like to think that I am nearing the end of this flare, but I have still been pretty fatigued, some joint/chest pain, and the worst part? The nausea. It likes to come and go and as a result, I haven't really eaten as much. At least I have this cutie pie to make me smile throughout the day. 😊
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#guineapig #alivguineapigs #onceuponawheek #guineapigs #cavy #pets #furrypotato #petsarefamily #alwayswheektrue #pet #emotionalsupport #uctd #lupus #autoimmunedisease #cuteanimals #alwaysthere #alwayswatching #nauseaistheworst #keepgoing

Opthamology is done and my eyeballs are suitably numbed and dilated. Was the whole world always this blurry and bright?

Wise Wednesday is upon us again! Did you know that systemic Lupus (the most prevalent form of Lupus) can affect many different bodily systems? Some of the most common targets are the kidneys, heart, lungs and brain, but every patient is different. It’s important that we learn about the systemic effects of Lupus so that we can communicate with our doctors. .
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[Image Description: “Here are some ways Lupus can affect the body” down left side of black background. On the right there are 4 lilac blocks. The first has an image of kidneys and reads “Kidneys. Inflammation of the kidneys (nephritis) can impair their ability to get rid of waste products and other toxins from the body effectively.” Second block has an image of a heart and reads “Heart. In some people with lupus, inflammation can occur in the heart itself (myocarditis and endocarditis) or the membrane that surrounds it (pericarditis), causing chest pains or other symptoms.” Third block shows image of lungs and reads “Lungs. Some people with lupus develop pleuritis, an inflammation of the lining of the chest cavity that causes chest pain, particularly with breathing. Patients with lupus also may get pneumonia.” Fourth block shows image of brain and reads “Brain. In some patients, lupus affects the brain or central nervous system. This can cause headaches, dizziness, depression, memory disturbances, vision problems, seizures, stroke or changes in behaviour.”]

“We take better care of our smartphones than we do of ourselves - the phones are always recharged!” #AriannaHuffington

#splittember

After a week with little to no yoga it felt great to get in a decent portion of yoga today. It has been mostly bedrest for me during the last week as I have been fighting off a nasty cold. Hopefully it's all gone now and I can finally start to feel like myself again.

Day 18 #doublepigeon

#strikeapose #practicemakesprogress

Hosts: @jennyg2bfit, @yggdrasilyoga, @steveyoga, @_balance_in_life_, @rayleigh_yoga and @yogafter40

Sponsors (who made this possible): @pucket_pants, @fringe_and_fitness, @getstretchy, @everstretch, @blueridgehemp, @avjorden, @akaluckapparel, @insideoutsideoutsidein, @radhabeauty, @soulfulwear, @aloetteofc3, @infinitystrap, @oilivinglife and @om_style

#splitschallenge #getstretchy #yogaprogress

#yoga #yogachallenge #yogapractice #yogi #yogalifestyle #yogalove #yogafun #yogainspiration

#strength #balance #flexibility

#Yoga4Friendship #outdooryoga #mountainyoga #valdres #hvilepuls

#iamdoingthisforme #yogaforhealth #invisibleillness #chronicillness #uctd #spoonie

#wlsphotochallenge #17 current struggle is feeling a bit emotional. Finally figured out why. It’s not a sad emotional, just emotional. To fix it I made plans to go to my happy place, and get a tattoo with my kido. She wants to get the same tattoo as me Awe 😢😊
#shave #shorthair #shorthairdontcare
#workinprogress #weightlossjourney #rnyinstacrew #health #rnycommunity #wlscommunity #weightloss #tattooed #tattoo #tattoos #fitfam #beautiful #pretty #pnw #thatpnwlife #chronicillness #autoimmunewarrior #fighter #osteoarthritis #autoimmune #raynauds #uctd #fibromyalgia #depression #anxiety

Well FML. Despite my best efforts—round the clock meds to make it behave, a probiotic, Metamucil 3x a day—I just can’t tolerate #plaquenil. Had those stabbing stomach pain tonight, with chills, hot flashes, and (TMI?) diarrhea. Was on the verge of going to the ER but I knew in my heart it’s the Plaquenil. No fever so can’t be anything else, and this is what was happening the first time around. I’m devastated because Plaquenil was helping my joint pain and fatigue. I’m gonna have to stop it again, and I’m already flaring. I’m so disappointed and a little uncertain, because I know I’ll be in a full flare without it, and I’m not sure what my rheumatologist will recommend next. She said all the meds for my #uctd are harsh on the GI system. I’ve looked into meds you inject. I’m assuming they don’t affect the stomach since they go IV and pass your stomach? I don’t know. I have to try it though. Im already struggling with fatigue and joint pain and brain fog. Im barely getting through the day because all I can do is lie down. Im just so frustrated. #spoonie friends, have you had trouble with Plaquenil? What did you switch to? Have you had luck with the new med? Please help.

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