#trigeminalneuralgia

MOST RECENT

Do you ever feel like you want to give context and explain when people see you, in real life, why you have to use XYZ just to make it through the day? Or are you sometimes so used to YOUR normal that you don’t consciously remember all of your accoutrements and it takes a minute or two to realize why people are staring?

I don’t use medical tools for attention, and often I fall in the latter category of not remembering I don’t look “normal” right now, but it’s kind of hard to take all my necessary precautions without drawing attention of some kind when in public and around those who aren’t aware of my situation.

Thankfully today, it came from a sweet little girl who was kindly asking me questions and was interested in learning (and was a really good runner! I had to tell her, as she zoomed around the store). It was a moment of smiles amidst a way too long early afternoon at the Sprint store. This was snapped about halfway through our escapade today. Currently in the dark bedroom, lying flat and still, aside from typing this caption.

Thank You, Jesus, for the ability to leave the house today and accomplish something with my husband! And also, thank You for rest. And for being an example that we’re supposed to rest at times. And for me, one of those times is...now.

Heute gab es eine „Instagram Convention“ und es war total toll! Viele liebe Menschen kennengelernt und sie ins Herz geschlossen. Eine tolle MS Familie die über das Social Media hinausgeht. Danke @pa_trick79 und @mandyhorn83 für die Einladung. Schade das morgen schon wieder alles vorbei ist. Next stop #berlin 🎗 #ms #msfighter #mssucks #msfamily #multiplesklerose #multiplesklerosefighter #multiplesklerosekämpfer #multiplesclerosis #multiplesclerosisfighter #berlin #miststück #justcureit #multipleskleroseberlin #dmsg #diemshatsnichtleichtmitmir #madestrong #berlin #trotzms #thisisms #thisisme #tregeminusentzündung #trigeminalneuralgia #fatigue #chronischkomisch #chronisch

Its been awhile since I've posted a picture of myself. Doctors appointments, medical testing, different variations of pharmaceutical cocktails that I despise have me withdrawn. My weight fluctuates, my pain is gone one minute and in full force the next. My body seizes and has spasms, however, here I am. I know that life is still beautiful. Every morning a sunrise opens my eyes and I deeply inhale. This is new for me, all of it. New eyes open type shit. My perceptions have changed and I feel it swirling inside of me. Growth. Bare with me. I won't always be elusive.
#trigeminalneuralgia #occipitalneuralgia

We’re the chronically ill, the misunderstood, we’re the spoonies. And here are the people who love us and don’t care about our brokenness. We are warriors, and we fight an invisible battle every second against our own bodies. Keep going my friends.
Please come join our secret Spoonie Warriors Facebook Group.
https://m.facebook.com/groups/222375341676410

#group #spoonie #warrior #facebook #spooniestrong #rheumatoidarthritis #trigeminalneuralgia #galaxy #strong #fibromyalgia #pcos #chronicillness #secret #bohemian #sick #cfs

Fellow patients: I’ve come across something that may help those with MS and/or Trigeminal Neuralgia/Glossopharyngeal Neuralgia. I’ve read a majority of good reviews on Planetary Herbals Myelin Sheath Support, but as we all know, our individual bodies react differently to treatments/supplements. As always, consult with a medical professional prior to altering your healthcare regiment •

I’ll keep you updated as to whether or not I’ve noticed any significant changes in the coming weeks •

God bless and happy healing ❤️

Guys, I did it!
I fought through the pain and used lots of glitter, oh how I have missed makeup ❤️
#mua #makeup #glittereyeshadow #trigeminalneuralgia #trigeminalneuralgiawarrior
#trigeminalneuralgiaawareness

Trigeminal neuralgia+ stomach bug= sucks, but i survived so here’s a selfie 🤳 .
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#powerofmakeup #trigeminalneuralgia #sick #purproartist ##purbeauty #southerncharm #texas #imalive #southerngirl

My nug pendant from @gbearglass my favorite glass artist in the world! I’m absolutely in awe of it, it is GORGEOUS and so much fun to look at🌝
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#adventures #beauty #nature #worldreefers #magic #aesthetic #Trigeminalneuralgia #gypsy #chronicillness #isupportcannabis #iwillmarrymary #bongbeauties #girlswithtattoos #wanderlust #imanalien #aliengirl #animalsoverhumans #stardustinwaves #photography #nugpendant #nug #glassart #badass #pendysofig #myphotography #plantlife

Since being diagnosed with trigeminal neuralgia I have found a medication plan that helps me the most. We took about a 4 month break from #ttc (since it’s not an option with my medications) and have been researching a lot about adoption. We have some family members who are adopted and some friends that have adopted. It is something we feel very strongly about and are already making our first steps in this new journey. We have been researching different agencies in Indiana and have found one we love so far in Indianapolis. We will travel there on July 17th for our first seminar on adoption. It’s been a long 2.5 years #ttc but we believe this was all in God’s plan for us!!! 🙏🏻🙏🏻🙏🏻 •
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#ttc #ttccommunity #ttcjourney #ttcsupport #adoption #adoptionjourney #adoptionstory #iui #iuijourney #iuifail #ourstory #infertility #infertilitysucks #infertilityjourney #infertilitytoadoption #southernindiana #furbabies #indianaadoption #ouradoptionstory #ouradoptionjourney #trigeminalneuralgia #trigeminalneuralgiaawareness #ttcwithtn #indianapolis #firstseminar #adoptionisforus #adoptionstory #adoptionrocks

Swift and neat

Do you agree?
I strongly agree 💔

The week after our decision to do an injectable monitors IUI cycle I became extremely sick. I was having severe numbness on one side of my face, tongue, nose, etc. Each day became more and more painful. I finally decided to go see my family doctor. She diagnosed me with Bell’s Palsy and prescribed me steroids to help with it. Next day I was in the worst pain of my life. I was rushed to the emergency room and I was diagnosed incorrectly. I had all the symptoms of Trigeminal Nueralgia and needed to get into a specialist next day. After thorough tests and evaluation I was diagnosed officially. Gabapentin was my only option to help control the spasms in my face as well as to help reduce pain. Gabapentin has no known birth defects (that’s why I chose it because there are other alternatives that are much more effective) in women who have conceived while on it but my fertility clinic will not allow me to be on it and go through treatments. I have had a rough time getting in touch with any women who have ran into this problem before. Any women out there #TTC with #trigeminalneuralgia ??? •
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#ttc #ttccommunity #ttcjourney #ttcsupport #adoption #adoptionjourney #adoptionstory #iui #iuijourney #iuifail #ourstory #infertility #infertilitysucks #infertilityjourney #infertilitytoadoption #southernindiana #furbabies #indianaadoption #ouradoptionstory #ouradoptionjourney #trigeminalneuralgia #trigeminalneuralgiawarrior #trigeminalneuralgiasucks #TNwhileTTC

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