#treachercollins

MOST RECENT

Banyodan sonra baroş 😂😂
Yakışıklı baroş 😎
Kıvırcık salata baroş 🍀
Gülen yuzune kurban olayim ben annemmm❤❤ canim evlatt.. seni cok seviyorum.. iyi ki varsin seni veren rabbime şükürler olsun🙏🙏 #trakeostomi #treachercollins #treachercollinssyndromebeautiful #treachercollinssyndrome #tcs #tcsmom #farkindalik #mucizem #mucize #canimoglum #wonder #iyiki #hamdolsun #sukurlerolsun #marulkafa #kivircik #saç

Let it show! Let it show!
Can’t hide it here on my head!
Let it show! Let it show!
Wear bright soft-bands instead
I won’t hear,
what you’re going to say.
Put my Baha on!
It looks great on me everyday.

Incredibly proud of this woman right here.

Helen opened up about her life living with anxiety, along with this she shared her love for her beautiful partner Amy and the beautiful life they've created together.
Sharing stories, sharing love, opening up = makes our world a beautiful place to be.

#loveyourself #treachercollins #raisingawareness #antibullying #tcs #baha #hearingaids #mentalhealth #healthymind #healthysoul #healthybody #anxiety

今年のお盆は
トリーチャーコリンズ症候群の
山川記代香ちゃんが
大阪まで会いに来てくれました♡
.
遊んだ様子をブログに書いたので
良かったら読んでくれると嬉しいな*ˊᵕˋ*💕
.
She has a TreacherCollins syndrome.
It made me so happy that you came a long way to see me. ❤️
We got excited over talking about the Wonder(movie🎬).
.
.
#トリーチャーコリンズ症候群 #山川記代香 #平成最後の夏 #あべのハルカス #treachercollins #tcs #abenoharukas #wonder #口唇口蓋裂 #口唇裂 #口蓋裂 #갈림증 #언청이 #clp #cleftlipandpalate #cleft #cleftlip #cleftpalate #cleftproud #cleftstrong #youtube

Back to school sale ends August 15. Use coupon code: SCHOOL15 for 15% off all softbands & Toy BAHA's with matching headband for your doll. FREE shipping when you purchase 4 or more items at The Baha Bowtique on Etsy (link in my profile). Softbands are compatible with Oticon Ponto and Cochlear Baha Hearing Aids.

Friends, this is why Little Flower Projects exists. Back in March we were asked to check on a little boy who needed specialized care. It wasn't this boy. This boy, You, was in the bed next to the one we were asked to look at.
-
Looking at the first picture you can probably guess why he caught our eye. He was covered in blankets and so very small, but the way he tracked me with his eyes made me realize that he was much older than his size indicated. I carefully lifted the blankets and peeked under them. I saw skin and bones, a concave abdomen, protruding hip bones and skeletal arms and legs. All the while those beautiful little eyes stared into mine.
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I asked how old he was and was told 6 months. He weighed 2.9 kg. Just over 6 lbs which is smaller than an average newborn. I asked why he was so skinny and was told that he was difficult to feed and that they were unable to get a NG tube inserted.
-
Both boys we saw that day were taken into Little Flower Projects. Fast forward 4 months and we have the second picture. We didn't even need to insert an NG tube. You ate willingly and heartily and has almost doubled his body weight by gaining 2.5 kg (5.5 lbs)! He went from not even being able to lift his head to rolling and scooting. His progress has been incredible and we look forward to watching him continue to grow bigger and stronger.
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This, my friends, is what love can do! This is why Little Flower Projects exists. Orphan care is not an easy task. It isn't all cuddles and cute babies. It is a turbulent and complicated dance where much goes on behind the scenes and if a misstep is made serious consequences can result.
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But lives are on the line, and so we press on. Through all of the difficulties, challenging healthcare systems , labile rules and regulations, changing relationships between non profits, orphanages, nations, etc. etc. We press on.
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These children deserve life. They deserve hope. They deserve a future.
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#chinalittleflower #chinaadoption #chinaorphans #orphancare #adoption #specialneedsadoption #roomforonemore #boyswaitlonger #nonprofit #morealikethandifferent #presson #life #savinglives #strong #treachercollins #lookwhatlovecando #love

I love to jump!!

Eric and I were so happy to host today’s Ear Community Picnic in Charleston. Melissa and the @earcommunity have helped thousands of people stay educated about the technologies available, surgical steps, how to battle insurance and most importantly allow parents and kids to feel less alone in this journey. The beautiful friendships made today amongst the 80 (!!!) of us were palpable. Thank you to everyone for traveling and coming all this way! #earcommunity #microtia #luckyears #luckyparents #bahasrule #bahababy #tcs #treachercollins 💙👂🏼🙌🏼💫

Hoy empecé un curso de #MiniChef acá les dejo mis primeras creaciones
#treachercollinsvenezuela
#treachercollinssyndrome
#treachercollins
#asoc.sindrometreachercollins
#bibianagarciadeltoro

My deepest thanks for inviting me @treachercollinsmexico ✨What an amazing experience! ❤️🤗 #Conference #TreacherCollins

У меня есть список «любимых» вопросов от врачей в России. Так вот топовый - «не ушёл ли от вас муж после рождения такого ребёнка? ». Илья любит Лёву безмерно от макушки до пяточек, таким какой он есть с самого его рождения. Ещё в родблоке, пока педиатр описывала мне все особенности моего ребёнка , Илья неустанно повторял, что у нас лучший малыш на свете . Он никогда не понимал, почему я запрещаю ему выкладывать его фотки. Никогда не понимал моего горя , ведь его сын прекрасен. Это мимо меня , но не мимо Ильи проплыло облако счастья и безграничной, безусловной любви. Лёва тоже любит Илью какой-то сумасшедшей любовью , обычно так любят мам 😂. Это трудно передать словами , это надо увидеть .
Было ли ему легко этот год ? Не-а, всем, кто был рядом со мной в этот год, было очень трудно ( как вы понимаете я была супер плаксой) . Ему особенно . До сих пор удивляюсь его стойкости и равновесию. Спасибо тебе родной, что выдержал меня. Это и есть любовь, и в горе, и в радости . #МоеЛьвиноеСердце #treachercollins #treachercollinssyndrome #tcs #lovemelovemyface

Wie die Zeit vergeht, unglaublich.. Da war sie gerade mal 3 Tage alt und nun schon fast ein halbes Jahr. Wo ist die Zeit nur hin?
Soo unendlich Stolz und so dankbar, das ich sie habe und das wir eine Familie sein können. 💕
#itsagirl #girl #newborn #newbornshooting #babygirl #mommy #mum #mummy #mamatochter #treachercollins #syndrome #liebe #liebemeineslebens #minimonday #tochter #muttertochter #mädchen #mädchenmama #firstlove #tochterliebe

Reposting from @lulas_dudes_and_dolls_ about something amazing they are doing to help a truly incredible little boy...... #Repost @lulas_dudes_and_dolls_ with @get_repost
・・・
Myself and Lucy are excited to announce we are fundraising for LOUI LEGEND again! This little man stole our hearts a few years ago now and we follow his story closely. To try and help We have designed alongside with mum @kawasakikarly two T-shirts for children & adults in honour of Loui!!! This hopefully will Help raise money to contribute for the specialist surgeries that will enable Loui to have a better quality of life.
We will be donating 50% from each sale to @loui.legend
Loui was born with a life changing condition called Treacher-Collins Syndrome which affects the development of the bones and the tissues of the face. Loui unfortunately has a severe case meaning because of his receded chin he needs a tracheostomy to breathe, gastrostomy in his tummy to feed and two bone anchored hearing aids (BAHAs) on a band around his head to hear.
Loui requires 24hour care •
Loui has already had 9 anaesthetics in his little life and has lots more gruelling surgery and procedures to go through. A lot of these procedures cannot be done till he is older and some of them cannot be funded for by the NHS and some of them need to be done in America so we are fundraising indefinitely to get him all the procedures and operations he needs in his life.

Loui's next specialist surgery is to have his palate repaired its the subcranial rotation jaw distraction surgery in Seattle, America that will hopefully enable him to be rid of the tracheostomy.
The estimate for this surgery alone is £214,000! •

Every little helps... buying one of these t-shirts not only supports this little legend but gets his family one step closer!! #Louilegend #lulasdudesanddolls #kidsofinstagram #charity #fundraising #treachercollinssyndrome #treachercollins #tracheostomy #loui #legend #supportingalegend #louisarmy

What do you see when you look at me? 🎶
I was inspired by @atleeeey’s recreation of @heatherbarongracie’s Noises music video look 🤘🏻 @milkmakeup Blur Stick, Baked Matte Bronzer Stick, Kush Mascara
@tartecosmetics Shape Tape Concealer
@anastasiabeverlyhills Dark Brown Dipbrow Pomade, Red Ochre Eyeshadow
@inglot_ca AMC Cream Foundation, Body Pigment Powder 156, JLo Livin The Highlight in Radiant
@katvondbeauty Shade & Light Contour Palette, Nos Fur Atoo Everlasting Liquid Lipstick
@nyxcosmetics_canada Espresso Tinted Brow Mascara
Brushes by @morphebrushes
#microtia #bilateralmicrotia #goldenharsyndrome #treachercollins #milkmakeup #kushmascara #tartecosmetics #anastasiabeverlyhills #abhbrows #inglot #inglotcanada #katvondbeauty #kvdlook #kvdbeauty #morphe #morphebrushes #ultabeauty #sephora #sephoracanada #nyx #nyxprofessionalmakeup #nyxcanada #nyxcosmeticspro #wakeupandmakeup #undiscovered_muas #palewaves

#Repost @lulas_dudes_and_dolls_ with @get_repost
・・・
Myself and Lucy are excited to announce we are fundraising for LOUI LEGEND again! This little man stole our hearts a few years ago now and we follow his story closely. To try and help We have designed alongside with mum @kawasakikarly two T-shirts for children & adults in honour of Loui!!! This hopefully will Help raise money to contribute for the specialist surgeries that will enable Loui to have a better quality of life.
We will be donating 50% from each sale to @loui.legend
Loui was born with a life changing condition called Treacher-Collins Syndrome which affects the development of the bones and the tissues of the face. Loui unfortunately has a severe case meaning because of his receded chin he needs a tracheostomy to breathe, gastrostomy in his tummy to feed and two bone anchored hearing aids (BAHAs) on a band around his head to hear.
Loui requires 24hour care •
Loui has already had 9 anaesthetics in his little life and has lots more gruelling surgery and procedures to go through. A lot of these procedures cannot be done till he is older and some of them cannot be funded for by the NHS and some of them need to be done in America so we are fundraising indefinitely to get him all the procedures and operations he needs in his life.

Loui's next specialist surgery is to have his palate repaired its the subcranial rotation jaw distraction surgery in Seattle, America that will hopefully enable him to be rid of the tracheostomy.
The estimate for this surgery alone is £214,000! •

Every little helps... buying one of these t-shirts not only supports this little legend but gets his family one step closer!! #Louilegend #lulasdudesanddolls #kidsofinstagram #charity #fundraising #treachercollinssyndrome #treachercollins #tracheostomy #loui #legend #supportingalegend #louisarmy

Myself and Lucy are excited to announce we are fundraising for LOUI LEGEND again! This little man stole our hearts a few years ago now and we follow his story closely. To try and help We have designed alongside with mum @kawasakikarly two T-shirts for children & adults in honour of Loui!!! This hopefully will Help raise money to contribute for the specialist surgeries that will enable Loui to have a better quality of life.
We will be donating 50% from each sale to @loui.legend
Loui was born with a life changing condition called Treacher-Collins Syndrome which affects the development of the bones and the tissues of the face. Loui unfortunately has a severe case meaning because of his receded chin he needs a tracheostomy to breathe, gastrostomy in his tummy to feed and two bone anchored hearing aids (BAHAs) on a band around his head to hear.
Loui requires 24hour care •
Loui has already had 9 anaesthetics in his little life and has lots more gruelling surgery and procedures to go through. A lot of these procedures cannot be done till he is older and some of them cannot be funded for by the NHS and some of them need to be done in America so we are fundraising indefinitely to get him all the procedures and operations he needs in his life.

Loui's next specialist surgery is to have his palate repaired its the subcranial rotation jaw distraction surgery in Seattle, America that will hopefully enable him to be rid of the tracheostomy.
The estimate for this surgery alone is £214,000! •

Every little helps... buying one of these t-shirts not only supports this little legend but gets his family one step closer!! #Louilegend #lulasdudesanddolls #kidsofinstagram #charity #fundraising #treachercollinssyndrome #treachercollins #tracheostomy #loui #legend #supportingalegend #louisarmy

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