#systemicexertionintolerancedisease

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How a body could feel -this- bad and still look -this- cute, is beyond me. I try not to question it.
Moving camp today. It is bittersweet without Muta.
My heart aches for more than one reason. But I will get through it. Just another aspect of being chronically ill. :/ #camping #spoonie #campingwhilechronicallyill #spoonielife #pcos #endometriosis #fibromyalgia #systemicexertionintolerancedisease #anemia #lordosis #arthritis #patellofemoralpainsyndrome #posturalorthostatictachycardiasyndrome #restlesslegsyndrome #periodiclimbmovementdisorder

Don’t miss it August 24, 2018 @crimeandpunishmentdoc A Documentary on NYPD Quotas, an eye opener for those who don’t know about it and reality we should acknowledge. Sometimes we ask ourselves well isn’t there enough crime to respond to that like the July,
14, 2018 noise complaint call shouldn’t turn into another Eric Garner incident? The video is posted. Well chokeholds, unnecessary aggression, taunting, violence, and police brutality stems from chasing arrests to fulfill quotas. That’s why the notion of community policing is not a reality. Why isn’t the Police Department working with Community to stem Police Aggressions, brutality, and such? Watch the I-Team Documentary. #Systemic #Systemicweapon #systemicOppression #SystemicDisease #systemicconstellation #systemicracism #systemiccoaching #systemicexertionintolerancedisease #systemiclupus #systemiclupuserythematosus #systemicsclerosis #systemicscleroderma #systemicthinking #systemic #bilingualteam #bilingualteachers #welovewhatwedo #coworkers #rheumatoidarthritis #chronicillness #autoimmune #chronicillnesswarriors #spreadawareness #tips #heartlove #heart #medical #medicine #doctor #heartdoctor

I really like this one. It shows that you can be both at the same time. Compared to other resellers, I work so little. And the work I have done this past week has been rewarded with exhaustion. I’m back to sleeping 12 hours a night, when 7 hours had been sufficient for so long. I’m neglecting self-care. All that obnoxious stuff that comes with mental illness. I’m not trapped in this mental state; there are still things I can do to improve so I’m going to make it my priority to implement them. Rarely am I envious of other people, which I consider such a gift. I’m happy for people who can do more. But getting down on yourself for your own limitations is something I’m great at. It’s not productive. I need to work with what my fatigue allows, not fight it. Because the fatigue always wins. That’s why it’s so important for me to consider myself amazing for what I can currently do. This is not forever; this is just for now. Let’s celebrate what we can do right now! 😊 Don’t push. Because it’ll push back. Accept and celebrate your current capabilities! 😘

Normal people live in their bodies. Those of us with chronic fatigue live in the shadow of our body while trying to make our physical body work! #cfslivinghorizontalinaverticalworld

Dealing with a chronic illness is not only a physical challenge, but also a mental one! #cfslivinghorizontalinaverticalworld

Living with an invisible illness is hard. To the outside world, we look normal. I had a strange experience recently because I hurt my shoulder and had to wear a sling. Complete strangers were so nice and helpful to me while I was out doing some short errands. I always had the glass doors to stores held open for me. It was a nice treat. What everyone does not realize is those doors are always so heavy for me to open every day of my life with chronic fatigue! 📷 2012 Michael Cavanaugh #cfslivinghorizontalinaverticalworld

Good morning gorgeous 🌞🙋🏻‍♀️👸🏻🧜🏻‍♀️🧞‍♀️🧚🏻‍♀️🙋🏻‍♀️ 🌺
Today I can do... As I lay here and think I can’t, I remind myself that I can 🙌🏻 Clear your mind of can’t🙌🏻 #youcandoit #getupandgo #systemicexertionintolerancedisease #didntsleepwell #getonwiththeday #motivation #cheerupbuttercup

Before and during my #treatments. 💃🏽💖💕🌸💕💖✨ Working hard on getting my balance back - but my feeding tube (that I’ve had ever since it was first surgically placed in my stomach 10 years ago; and I have another replacement surgery for it coming up soon because it needs to be switched out with a new one every so often), and the swelling that I have all throughout my body, both make it feel like heavy bricks are pulling me down and it’s extremely painful. Especially as I have a really painful and pretty severe feeding tube site infection currently too. Even just standing up straight is a huge struggle. And then to balance on one leg in passé at the same time too (and for forever while my sweet Mommy tries to take a picture lol) - well, it’s a lot more difficult than it looks. And I have often done it much better, but some days are worse than others as far as my pain and energy levels go, and I did it to the best of my ability on the day these pictures were taken. And even though it’s far from the best that I can often do - it’s still a huge improvement from where I was last year - when I was struggling to even just sit up straight without my legs shaking non-stop. So I may have a long way to go - but I’m getting there!! I’ll be posting more dance progress pictures soon - and I’m working on some hula and Tahitian dances that I’m going to be posting soon also!! 💃🏽💖💕🌸💕💖✨ #AlwaysADancer #SickGirlLife #Dancer #Ballet #Survivorina ✨💖✨
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#SlayingChronicIllness #ChronicIllnessSlayerDiaries #ChronicIllnessSlayerStrong #ChronicIllness #InvisibleIllness #Dancer #Singer #Actress #Advocate #SpreadingAwareness #CrohnsDisease #Gastroparesis #InterstitialCystitis #Fibromyalgia #CRPS #SystemicExertionIntoleranceDisease #ChronicPain #ChronicFatigueSyndrome #FeedingTube #JTube #Tubie #Spoonie #ChronicIllnessLife #SickGirlDiaries
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Spag bol with zucchini noodles. Getting pretty used to being grain free now. #cfsrecovery #cfshealth #paleo #systemicexertionintolerancedisease

My new fav go to when I’m short on time and super hungry. Super slaw bought packaged from the supermarket and homemade mayo. #cfsrecovery #cfshealth #paleo #guthealingprotocol #systemicexertionintolerancedisease

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