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#systemicexertionintolerancedisease

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Spoonie find of the day πŸ€—
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Thanks to my mom for spotting this on our little shopping trip.
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Yes, I said shopping trip, I went shopping, without my walker. Feeling like a damn champ today πŸ’ͺ
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Wishing you all sweet dreams 😴
#fibromyalgia #fibro #systemicexertionintolerancedisease #seid #chronicfatiguesyndrome #cfs #chronicdailyheadache #migraine #chronicmigraine #interstitialcystitis #chronicillness #chronicfatigue #chronicpain #invisibleillness #butyoudontlooksick #spoonie

Kai and I seem to have a tradition starting with our sunday naps. He'll talk my ear off while i watch my shows and share an apple. Yet slowly but surely every time we drift off to sleep together.. and Casey cought me sleeping again lol, i love that he takes pictures of meπŸ˜™ #nappingbuddy #ilovenaps #relaxingsundays #sundayfunday #tradition #kidsaresocutesometimes #Caseylovesangie #systemicexertionintolerancedisease #alwayssleepy 😴😴😏

I got a bike 🚲😁 ( it’s been over 10 years since I’ve owned one). I’ve been finding it hard to find ways to get out with the kids without it impacting my chronic fatigue. But I decided bike riding was worth a try. We had a blast this morning, riding to a park and back. #cfs #cfswillnotbeatme #systemicexertionintolerancedisease

May 12th is International M.E Awareness Day, so @hayley_eszti and I have filmed a video for you explaining the illness and why awareness is so important. It's going live on my channel at 11am tomorrow - can't wait to hear what you think! πŸ’™

I know it's small...but zoom in πŸ” because this is IMPORTANT‼️Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME) or systemic exertion intolerance disease (SEID) is very real...and it's not your typical flu feeling. ▢️ Symptoms include: several fatigue, muscle pain, impaired memory or mental concentration, insomnia, postexertion malaise >24hrs that is not improved by bed rest.
This is a tough disease/syndrome to diagnosis and is one of exclusion. An estimated 84-91% of people have not even been diagnosed yet, so true prevalance is unknown. ▢️Avg age onset of 33 but has had patients younger than 10 and older than 70 and tends to affect more women than men. ⚠️if any of these sound like you please seek medical care and then your local PT to help manage the symptoms and still keep you active, because it is possible!

#getpt1st #themoreyouknow #chronicfatiguesyndrome #chronicfatigue #cfs #myalgicencephalomyelitis #me #systemicexertionintolerancedisease #seid #Physicaltherapy #bodymechpt

I made a lovely friend a few weeks ago, and she surprised me by sending me a mug! I checked out her pottery studio, and she does amazing work! (Even been featured in Martha Stewart's magazine!) I'm so honored she thought of me, and I christened it with some lovely decaf coffee (kind of a no-no for me, since Lyme and CFS/ME and caffeine do not mix well). I think it's my favorite mug ever! She has a website and an Etsy store, both under the name Summer Hollow Pottery. πŸ’œπŸ’œπŸ’œ

This outfit was entirely thrifted. The top is actually a dress, but it's crazy short, so I tuniced it up.
I left the house today to go to therapy. Joe had to drive me. I've been panicking for 2 days over going. I made it, though. My therapist showed me another great strategy for getting to the bottom of my agoraphobia. My case is weird and difficult to treat. I'm not scared of people or of having a panic attack in public. For most, those are the typical stressors. I am scared of drifting off to sleep while driving. But why am I scared to leave, even with Joe? This is some kind of invisible, blanket anxiety, different than generalized anxiety, because I rarely worry over anything specific. It's a fog. I have to figure this out. For my sanity's sake. We know I do too much self criticizing, and believe that may be somehow related. I'll be exploring this much further.
I leave the house tomorrow, too, to go see Lucinda Williams. I bought the tickets. I'm the one who's obsessed with both her and with attending concerts. But I'm freaking-out already. Wish me all the luck. I missed seeing the Shins over this crap; I can't miss Lucinda.#spoonies #invisibleillness #chronicfatigue #agoraphobia #cfs #systemicexertionintolerancedisease #anxiety

The stupid part about chronic fatigue is that I can do something active (like overhaul my back garden) and it could be days until the full impact hits. My body has nothing left in the tank today in a way it’s hard to explain, because before I’d had CFS I’d never felt it, so knowing what words to use is tricky. I came to collect the washing and instead sit and look at my veggies growing... for half an hour.
I know it’s self inflicted. But sometimes I just want to say f-you to CFS. I loved cleaning things up. I felt alive. I felt like my old self. But now I pay the price.
It’s a different life I live now. Sometimes I manage it well with a sense of acceptance and balance. Others... not so much.

#cfs #systemicexertionintolerancedisease

MOST RECENT

πŸ’•β˜•β˜•β˜•πŸ’• I love me some #bulletproofcoffee
I brew a cup of dark roast coffee, put a tsp of ghee and coconut oil in it, a splash of my favorite almond milk ever and whip it up! #califia
#califiafarms is the best... no gluten, no soy, no dairy, no carageenan... 😍😍😍
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#β˜• #coffee #coffeeandcannibis #fibromyalgia #mecfs #endometriosis #420 #whole30 #degenerativediscdisease #ednos #chronicillness #chronicfatigue #chroniclife #depression #pain #sickgirlsclubΒ #mentalhealth #millionsmissing #mecfs #guiltypleasures #systemicexertionintolerancedisease #myalgicencephalomyelitis #ayurveda #ghee #coconutoil

Remember Cat’s Cradle? Remember the couple on the plane, I think they were diplomats, whom the narrator described, according to Vonnegut’s fictional religion, as duprasses? He defined a Love that was so intense, the couple’s ties became impossible to sever, even by their children. I’ve read the book twice, and both times, that scene on the plane has been the one to stick with me most. I know why. It’s because I’ve somehow found mine. I didn’t try, he was an old friend and we happened to fall In love. But, he’s it. My duprass. Do you know how difficult I worry it must be to love someone who’s constantly physically ill? Or who struggles so much with mental illness? I’m reassured regularly that all of those things are trite in comparison to how vast, yet deep our love is. When you have your duprass, no external hardships can break you. One typically dies within a week of each other. Yes, it’s a fictional word, but it means something in real-world practice. People who claim you don’t β€œlearn” from reading fiction must be so jaded, they’re blind to those of us who live a storybook life. Joe and I live more of a modern fairy tale, one wrought with health and financial struggles. But with the same dreamy air as Sleeping Beauty and Cinderella, we trudge through together, seeking out those diamonds, those moments of joy in life. For 15+ years now, he’s been mine, and each year, I somehow find that I love him more. (So, how many posts am I going to write about my Jostepa? As many as I please!!!) #duprass #kurtvonnegut #kurtvonnegutjr #catscradle #truelove #depersonalizationdisorder #majordepressivedisorder #classicliterature #depression #fibromyalgia #cfs #cfsme #chronicfatiguesyndrome #systemicexertionintolerancedisease #anxietydisorder #agoraphobia #ptsd #gad #generalizedanxietydisorder #fairytale #merrychristmasyafilthyanimal

Spoonie find of the day πŸ€—
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Thanks to my mom for spotting this on our little shopping trip.
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Yes, I said shopping trip, I went shopping, without my walker. Feeling like a damn champ today πŸ’ͺ
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Wishing you all sweet dreams 😴
#fibromyalgia #fibro #systemicexertionintolerancedisease #seid #chronicfatiguesyndrome #cfs #chronicdailyheadache #migraine #chronicmigraine #interstitialcystitis #chronicillness #chronicfatigue #chronicpain #invisibleillness #butyoudontlooksick #spoonie

✨The Chronic Illness Slayer✨ Back at it again!! πŸ’πŸ½β€β™€οΈπŸ’‰πŸ’• Exciting new things coming soon!! βœ¨πŸ’–βœ¨ @thechronicillnessslayer
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#SlayingChronicIllness #ChronicIllness #InvisibleIllness #CrohnsDisease #Gastroparesis #InterstitialCystitis #Fibromyalgia #CRPS #SystemicExertionIntoleranceDisease #ChronicPain #ChronicFatigueSyndrome #JTube #Tubie #Spoonie #ChronicIllnessLife #SickGirlDiaries

Dance, dance, dance... πŸ’ƒπŸ½πŸŽΆπŸ’• :) #ShowPeopleThatYouCare. πŸ’– #BeATrueFriend. πŸ’ #SupportOthers. πŸ’ž #SpreadLove. πŸ’“ #ReachOutIfYouKnowSomeoneIsStruggling. πŸ’— #SmallActsOfKindnessCanMakeABigDifferenceβ£οΈπŸ˜πŸ’–βœ¨πŸ’•πŸ™ŒπŸ»πŸ’•βœ¨πŸ’– #YouNeverKnowWhatSomeoneElseIsGoingThrough. #YouMayThinkYouKnow, #ButYouHaveNoIdea. #Dancer πŸ’– #DancerWhoCares πŸ’– #Survivorina
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#SlayingChronicIllness #ChronicIllness #InvisibleIllness #CrohnsDisease #Gastroparesis #InterstitialCystitis #Fibromyalgia #CRPS #SystemicExertionIntoleranceDisease #ChronicPain #ChronicFatigueSyndrome #JTube #Tubie #Spoonie #ChronicIllnessLife #SickGirlDiaries

Finally finished putting the finishing touches on my #BetseyJohnson #DanceBag! πŸ’ƒπŸ½πŸ‘›πŸ’–πŸŽ€πŸ¦„πŸ’‹πŸ’•πŸ‘―πŸ’–βœ¨ #Survivorina #Dancer
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#SlayingChronicIllness #ChronicIllness #InvisibleIllness #CrohnsDisease #Gastroparesis #InterstitialCystitis #Fibromyalgia #CRPS #SystemicExertionIntoleranceDisease #ChronicPain #ChronicFatigueSyndrome #JTube #Tubie #Spoonie #ChronicIllnessLife #SickGirlDiaries

Behold-my granny chair! πŸ˜‚πŸ˜‚Swoon over my Mona Lisa socks! And giggle at Twinkle, the world’s cuddliest kitty! FYI, My heating pad is my third favorite possession (I’m just a smidgy more fond of my record player and headphones). Hee. I don’t have much to report. I’ve been stupid sick πŸ€•. I did eek out a couple Christmas cards. I’ve now used cuss words in two of my cards. I’m a Christmas bad-ass πŸ˜‚ Or something is weirdly wrong with me. Anyway, I’m hoping to have them all in the mail by the 15th, but I write so many, I may not make my deadline. I feel better enough today to make this a sewing day. I’m artistically constructing stockings for my overtaxed sister and her fam. (They may be more kid craft worthy than true Art. I may be full-of-it). Ida, my sister, loves to sew far more than I do, but she’s running a business, completely remodeling a house, raising her toddler, and oh, she’s pregnant 😍 She’s a little too busy this year πŸ˜‚πŸ˜‚ I love to live vicariously through her. I’d like to say I was as motivated and energetic as she is, before I got sick, but who am I kidding. She’s one-of-a-kind. I was always a busy body...but I followed the rule: stop by 9:00 and relax! That seems sooo long ago. I guess it was. I’ve had fibro for 11 years now, and CFS/ME for about 6. What can you do? πŸ˜‚ I love you @sleepygorilla, so much ❀️❀️ #depersonalizationdisorder #majordepressivedisorder #depression #anxiety #anxietydisorder #agoraphobia #gad #generalizedanxietydisorder #ptsd #fibromyalgia #cfs #cfsme #chronicfatiguesyndrome #systemicexertionintolerancedisease #coolsocks #sisterlove

Merry 8th day of Christmas! Am I feeling oh so merry and bright? Yes! Am I also feeling pukey and near death-I mean awful? You know it! Almost too sick to type. I love that I can be so sick and still laugh. Just a little cool tidbit about me πŸ˜‚. I’m in a conundrum, though. I ordered my MIL this Buddha statue. It’s so much more β€œme” than I had expected it to be; I want to keep it. Bad. This happens too often; I buy people things that I would want (and hopefully the recipient will like too). Joe usually makes me give the gifts away. Ha! But I frequently beg, and this time, I think the statue may have won him over ❀️ Unrelated: Thank you so much for suggesting people I can follow whom also suffer from Depersonalization Disorder. I’m not finding many. I think, of all my illnesses, it’s the only one that isn’t extremely common. The agoraphobia wasn’t either, I guess. (Now I’m rambling. Forgive me, I’m sick). #merrychristmas #happyholidays #selfishgiftgiver #buddhalove #depersonalizationdisorder #majordepressivedisorder #depression #ptsd #agoraphobia #generalizedanxietydisorder #gad #anxiety #fibromyalgia #chronicfatiguesyndrome #cfs #cfsme #systemicexertionintolerancedisease #buddhastatue #hindubuddha

πŸŽ„Spoonie Christmas Challenge
#justaspoonful πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„
🎁 25 questions 25 days 🎁
4. What is your guilty pleasure?
#β˜• #coffee
There is nothing like a good cup of coffee. I'm careful by only having one cup a day but I LOVE coffee! β˜•
& French fries (anything w/potatoes really) 🍟
& documentaries πŸŽ₯
& musicals 🎭
& John Green books πŸ“š
& listening to 90s music πŸ’Ώ
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5. What is your favorite hydration? (I'm doubling up bc I forgot yesterday)
I would say coffee but that's not hydrating... lol probably just water or hot lemon water πŸ‹πŸ‹πŸ‹
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#fibromyalgia #mecfs #endometriosis #degenerativediscdisease #majordepressivedisorder #adhd #ocd #anxiety #ibs #hypothyroidism #arthritis #ednos #adrenalfatigue #chronicillness #chronicfatigue #chroniclife #depression #pain #sickgirlsclubΒ #mentalhealth #millionsmissing #mecfs #guiltypleasures #systemicexertionintolerancedisease #myalgicencephalomyelitis #christmas

[OneDay] One day I want to be a powerful influential figure and help out people who are ill. One day I will get up in the morning without pain & laugh about the terrible times I had. One day I won’t wake up swollen. One day I’ll find the help I need medically. One day I hope I can help bridge Ethics & food processing/manufacturing/agriculture to be healthy for our human bodies. One day I hope to raise awareness about chronic invisible illness. One day will come. Today I may feel tired and exhausted. Today I fight to start my day. Today I take endless vitamins and warm up for hours for a few hours of class and studying. Today I smile despite my weight gain/health. Today I look at my eye bags and minor swelling & say β€œI got you girl” . Today let me tell you... I’m with you if you’re secretly in pain. Today I put forward effort to study Philosophy so I can sharpen my wit and intellect so that one day... I can hold your hand... when you’re going through what I am going through Today. Someday I will help your one day, today, and tomorrow. I know what it’s like to hope for your One day. #chronicfatigue #systemicexertionintolerancedisease #immunology #immunocompromise #hiddendiseases #smile #hope #warrior #believeme #neveralone #healthspo #oneday #loveyourself #nevergiveup #cfwarrior #selflove #autoimmune #healthnut #philosophyoflife #believeinyou #cfqueen #chronicpain #hiddenillness #youdontlooksick #fuckyou #pushforward #falldown8getup9 #fightforit #wordsofaffirmation #writersofinstagram

🌹Spoonie Christmas Challenge
#justaspoonful πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„
🎁 25 questions 25 days 🎁
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3. What do you want people to know?
That no matter what you might think I am always trying my hardest. I am exhausted & in pain 24/7/365. I wish I could do more. I miss my old life. My old energy. I grieve myself everyday! πŸ˜”
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With that being said... it's like a rollercoaster with many ups and downs but I still have hope... πŸŽ’πŸ’•
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#fibromyalgia #chronicillness #chronicfatigue #chroniclife #depressionΒ  #fibromyalgiawarrior #pain #mindfulness #sickgirlsclubΒ #fatigue #mentalhealth #millionsmissing #heart #ahimsaΒ #majordepressivedisorder #degenerativediscdisease #tiredaf #postexertionalmalaise #mecfs #grief #systemicexertionintolerancedisease #endometriosis #limitations #woundedhealer #myalgicencephalomyelitis #fuckfibro

πŸŽ„Spoonie Christmas Challenge
#justaspoonful πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„
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🎁 25 questions 25 days 🎁
2. What's the craziest cure someone has offered you?
Hmmmm lets see... Eat more nuts πŸ˜‚
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Which is stupid because I drink almond milk everyday... I eat raw cashews often, one of my favorite treats is organic dark chocolate covered almonds etc. I eat incredibly healthy and am an ayurvedic nutritionist. Nutrition helps a lot but eating more almonds isn't going to cure my fibromyalgia, chronic fatigue, endometriosis etc. Let's #getreal πŸ˜’
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#fibromyalgia #chronicillness #chronicfatigue #chroniclife #depressionΒ  #fibromyalgiawarrior #pain #mindfulness #sickgirlsclubΒ #fatigue #mentalhealth #millionsmissing #hurting #ahimsaΒ #majordepressivedisorder #degenerativediscdisease #tiredaf #postexertionalmalaise #mecfs #systemicexertionintolerancedisease #endometriosis #limitations #woundedhealer #myalgicencephalomyelitis #ayurveda #nuts #fuckyou #fuckfibro

πŸŽ„Spoonie Christmas Challenge
#justaspoonful πŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„
🎁 25 questions 25 days 🎁
1.What illnesses do you suffer with? πŸ”ΉοΈFibromyalgiaπŸ”ΉοΈ
πŸ”ΉοΈME/CFSπŸ”ΉοΈ
πŸ”ΉοΈEndometriosisπŸ”ΉοΈ
πŸ”ΉοΈDegenerative Disc DiseaseπŸ”ΉοΈ
πŸ”ΉοΈMTHFRπŸ”ΉοΈ
πŸ”ΉοΈMajor Depressive DisorderπŸ”ΉοΈ
πŸ”ΉοΈADHDπŸ”ΉοΈ
πŸ”ΉοΈOCDπŸ”ΉοΈ
πŸ”ΉοΈChronic AnxietyπŸ”ΉοΈ
πŸ”ΉοΈGERDπŸ”ΉοΈ
πŸ”ΉοΈIBSπŸ”ΉοΈ
πŸ”ΉοΈHypothyroidismπŸ”ΉοΈ
πŸ”ΉοΈPrecancerous colon polypsπŸ”ΉοΈ
πŸ”ΉοΈArthritis of the jointsπŸ”ΉοΈ
πŸ”ΉοΈEDNOS
πŸ”ΉοΈAdrenal FatigueπŸ”ΉοΈ
πŸ”ΉοΈScoliosisπŸ”ΉοΈ
I think that's it... 😣
#didimisssomething πŸ˜’
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#fibromyalgia #mecfs #endometriosis #degenerativediscdisease #mthfr #majordepressivedisorder #adhd #ocd #anxiety #gerd #ibs #hypothyroidism #colonpolyps #arthritis #ednos #adrenalfatigue
#chronicillness #chronicfatigue #chroniclife #depression #pain #sickgirlsclubΒ #mentalhealth #millionsmissing #mecfs #scoliosis #systemicexertionintolerancedisease #myalgicencephalomyelitis #christmas

Merry first day of Christmas. πŸŽ„β˜ƒοΈThere are actually 25 days, not 12! I’m voluntarily listening to The Carpenters 🎢 Jingle 🎢 their hearts out. I don’t foresee this willingness to hear β€œit”, Christmas β€œmusic,” lasting more than a week πŸ˜‚ Doesn’t my dead tree look so beautiful, full of birds, now that it’s leafless branches match the season. Too bad I hate it. Hate it and all its β€œlean toward my houseness.” Know what I love, though? Going places! Today is Day 4 of not being agoraphobic, and I have big plans. First, a solo trip to the store for supplies, then I’m heading out to my farm (a 30 minute highway drive!) for 3 days. I plan on kicking some Christmas craft butt. And there will be lots of sittin around πŸ˜‚πŸ˜‰. And naps. Don’t let me forget those! You’ll (sporadically) get to see all the photos I’ll take ❀️!!! And I’ll hike up to see my moo-cows. Saffron swears she heard one birthing two weeks ago, so I’ll go check (I think she heard horny coyotes, but what do I know 🀣). #agoraphobia #bravewoman #christmastime #spoonie #spoonies #gad #generalizedanxietydisorder #majordepressivedisorder #depression #fibromyalgia #seid #systemicexertionintolerancedisease #chronicfatiguesyndrome #cfs #cfsme #thecarpenters #birds #mentalillness #chronicillness #farmgirl #rurallife #recovering

πŸ™ƒπŸ‘πŸ–€ So I did this the other day.
I love yoga so much... but I never expected it to cause me the pain it does. I taught a gentle yoga class on Monday and played around with my own practice after and I'm definitely recovering. Today my hips and shoulders feel like Barbie doll joints (what my bestie calls her fibro joints... pretty accurate). It's that feeling of such deep soreness, that body part feels disconnected and strange and everytime you use the body part it feels like it needs to pop back into place.
I know a lot of people would assume I'm ok because I can do things physically that the average non-yogi can't do but I used to have my own practice everyday (give or take here and there... this yogi ain't perfect). I was the unusually active crazy person who loved to exercise. I taught 7 yoga classes a week on top of doing my own practice and all the other exercise I did. I loved every second of it. I found release, spiritual connection and gratitude. I had excessive amounts of energy... almost enough to burn. I found time for everything including eating healthy and sleeping well. I now teach much much less and even a gentle class leaves me sore for days... but I know even when I'm in pain that this yoga class still in its own little way helped me. It always does. Yoga helps me to meet my body where it is and to accept myself and the world around me. Even if my practice becomes small and my recovery is excruciating some form of #yoga will always be in my life.
#bedridden today! πŸ›ŒπŸ˜©πŸ˜πŸ˜£ #dontjudgeabookbyitscover πŸ“š #tellyourtruth
#educateyourself #fibroproblems #mecfs 😷
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Facts: Just because I can do yoga on occasion does not mean it doesn't hurt to walk. 😨
Just because I did something yesterday does not mean I am capable of it today. #truth πŸ˜‘
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How does your illness effect your exercise? .
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#millionsmissing #spoonie #spoonielife #chronicpainΒ  #invisibleillness #chronicillness #chronicfatigue #depressionΒ  #fibromyalgiawarrior #mindfulness #mentalhealth #ahimsa #endowarrior #majordepressivedisorder #degenerativediscdisease #ayurveda #postexertionalmalaise #systemicexertionintolerancedisease #limitations #empath #yogagirl #yogaposes

One photo illustrates via my face what a very ill #seid patient looks like on a day she can’t tell the flu from a flare. One’s not even of me. Now-you figure out which is which! Go! #chronicfatiguesyndrome #systemicexertionintolerancedisease #cfs #cfsme #spoonie #spoonies

I decided this morning that I no longer have agoraphobia. I’m done. It’s gone. I’m still scared to drive when fatigued, but anyone would be. And I’m still scared to drive in the city, but everyone is. I’m NOT agoraphobic any more! To prove it, I drove my daughter to therapy 25 minutes away on the highway, during rush hour. No panic, no nodding off, just a normal ol’ drive. πŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺπŸ’ͺ#agoraphobia #mentalillness #mentalhealth #stubborn #strongwoman #spoonie #spoonies #cfs #cfsme #chronicfatiguesyndrome #systemicexertionintolerancedisease #fibromyalgia #majordepressivedisorder #gad #generalizedanxietydisorder #dissociativedisorder

πŸ˜•πŸ–€πŸŒ« So true... lately this is what every day feels like. I have to put the pieces together and I wonder how coherent I seem to anyone around me... I feel lost in my own life. I hope this horrible #brainfog passes. It seems to be happening more often as time goes on. Even when I #showup I feel like I'm not totally there.
#fibrofog 😩 I wish all of the spoonies so many spoonsπŸ₯„πŸ₯„πŸ₯„πŸ₯„πŸ₯„ Gentle hugs πŸ€—πŸ’• How bad is your brain/fibro fog?
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#spoonie #spoonielife #disability #chronicpainΒ  #invisibleillness #chronicillness #chronicfatigue #chroniclife #depressionΒ  #fibromyalgiawarrior #pain #mindfulness #sickgirlsclubΒ #fatigue #mentalhealth #millionsmissing #ahimsa #autoimmuneΒ #majordepressivedisorder #degenerativediscdisease #postexertionalmalaise #mecfs #trauma #systemicexertionintolerancedisease #limitations #empath #woundedhealer

πŸ¦πŸ–€ This is how it feels for me to go from being a healthy active person to chronically ill. A bird who once knew how to fly to the highest heights and remembers that feeling but can never do it again... #sigh 😧
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#grief #spoonie #spoonielife #writer #disability #chronicpainΒ  #invisibleillness #chronicillness #chronicfatigue #chroniclife #depressionΒ  #fibromyalgiawarrior #sickgirlsclubΒ #fatigue #mentalhealth #millionsmissing #honest #fibromyalgiasucksΒ #majordepressivedisorder #degenerativediscdisease #ocd #adhd #ednos #mecfs #trauma #systemicexertionintolerancedisease #limitations #empath #writersofig

πŸ’™πŸ˜’ #truth #negativespoons
Today was a wonderful day but I definitely was #runningonempty all day... I got to see my family and that means the world to me. (Even though I had to sneak away for a power nap) πŸ˜ͺ
I have so many things to be thankful for...
My family, friends, girlfriend, spoonie community, hope, love, faith, gratitude, knowledge, good books, food, literature, art, music, great films, cozy blankets, yoga etc. πŸ’•
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What are you thankful for? .
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#mecfs #invisibleillness #chronicillness #fibromyalgiaΒ  #majordepressivedisorder #endometriosis #chronicpain #chronicfatigue #chroniclife #spoonie #spoonielife #fibromyalgiawarrior #pain #mindfulness #healingΒ  #wellness #mentalhealth #postexertionalmalaise #autoimmune #systemicexertionintolerancedisease #empath #endowarrior #insomnia #exhausted #tiredaf #slothspeed #slowloris

πŸ€”πŸ˜Œ Everyday I have to tell myself that although this pain affects every single godforsaken aspect of my life... that God & the universe may have a different plan for me. I see pieces of the puzzle and he sees the entire thing... we may not be aware of how the picture will look but in the end all of the pieces are together exactly where they are supposed to be. .
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I just have to have patience and wait for the new paths to emerge... πŸ˜πŸ˜‘πŸ˜
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#takemetochurch #godblessyou #puzzlepieces #isaiah #biblequotes #chronicpain #fibromyalgia #invisibleillness #chronicillness #chronicfatigue #chroniclife #depressionΒ #spoonie #spoonielife #fibromyalgiawarrior #pain #mindfulness #sickgirlsclub #mentalhealth #millionsmissingΒ  #myalgicencephalomyelitisΒ #majordepressivedisorder #endometriosis #degenerativediscdisease #postexertionalmalaise #mecfs #trauma #systemicexertionintolerancedisease #letgoletgod #giveittogod

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