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#superzola

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Feeding Zola has been one of the toughest parts of our #CHD #NICU journey. We have teamed up with @prolacta_bioscience on this #sponsoredpost to spread awareness on the importance of a 100% human breast-milk diet, including 100% human milk-based fortifiers for #preemie #NICU and #CHD babies. My wife @cortneyeats has also written a blog post with her top 8 tips for breastfeeding a #CHD #NICU baby. See link in my bio! Let me know what you think in the comments below! #sponsored #chdbaby #nicudad #nicumom #humanmilk #prolacta #prolactabioscience

My feeding journey with Zola has been an emotional roller coaster, but it has finally taken a positive turn. I have teamed up with @prolacta_bioscience on this #sponsoredpost to spread awareness on the importance of a 100% human breast-milk diet, including 100% human milk-based fortifiers for #preemie #NICU and #CHD babies. I’m featuring 8 tips for breastfeeding a #CHD #NICU baby on my blog. See link in my bio! What is your best breastfeeding tip? Do you have questions about Zola's feeding journey or breastfeeding a #CHD baby? Let me know in the comments below! #sponsored #chdbaby #nicumom #humanmilk #prolacta #prolactabioscience #superzola

My beautiful baby is 5 months old today! I can't believe how fast it's gone by. It's also felt incredibly slow πŸ˜… Zola is so joyful, she is sweet, but has a sassy side too. She loves eating her hands, screaming like a dinosaur, and being held. She's just so easy, even when she's upset she's calms so fast. I can't imagine my life without her. Shes a living miracle and each milestone is a victory for her! πŸ’• #5monthsold #superzola

Zola is 5 months old today! We've had lots of ups and downs in her short life but it's been mostly good! That smile never gets old! #superzola

We are starting over in every way. Zola will be weaned off the heart lung machine which is scary, but necessary for progress. She will then need her chest closed which carries another set of risks. Her breathing tube will also need to be taken out and she will need to relearn how to breathe on her own... again. This all has to happen while weaning her medications that control her blood pressures, hypertension and pain. She has to be on pain medication so she isn't miserable, but alert enough to breathe on her own. Then we need to re-wean her off oxygen all over again. The good thing is the doctors know how she generally reacts to medications and how far she can be pushed. It aches to know that going home was almost in our grasp and now we are so far away from it. Now we are about to go through the roller coaster all over again. We are hoping for the best of course,but having had a brush with death, we are also scared out of our minds. Zola is so fragile, yet resilient. She has gone through so much in such a short amount of time and I'm so grateful to witness her strength. I'm so grateful for the miracles we been able to witness. The miracles of a freaking heart-lung machine?! How grateful I am for the man that invented the heart lung machine! Thank you Dr. Robert Bartlett! I'm grateful for the team of people who saved her life and performed CPR. Another miracle! 33 mins of chest compressions before being put on life support blows my mind. I'm so grateful they kept her heart beating. The miracle of prayer and community support we've felt from family and friends, acquaintances, and even strangers. Knowing the reach that Zola has had on so many people is incredible. Expressing our gratitude is impossible, saying thank you feels redundant and doesn't do it justice, but because words are all I have, we are immensely thankful for everyone who has reached out to us, sent messages, texts and calls. I'm really terrible at responding, but I see them and just know I'm so grateful for taking your time to think of us. I'm grateful for all the love we've felt, the meals we been given, gifts and donations to our go fund me. We are so blessed! #superzola

Zola had a good night last night! Her stats are all good and progressing nicely. The recovery is what the doctors call our "marathon" taking it one day and sometimes one hour at a time as they try to wean her off the ventilator, adjust pain medications, as fluid and swelling go down, etc. She is such a trooper! ❀️ #superzola #hlhs

Her facial expressions! 😍😍😍 I love her so much! She needed a little oxygen last night, so have kept the nasal cannula on. She hasn't needed it much, just intermittently. 😊 #superzola

Today has been our best day so far!! It was so good for Zola and for my mama heart. We hit a HUGE milestone of getting her chest closed! This was big deal for her heart and lungs and she has adjusted beautifully! She also got her catheter taken out which is a good sign that the doctors trust her to pee on her own. Then she opened her eyes for the first time since birth!! It was so amazing to see her beautiful eyes. When she was looking at us Jeff said, "Hi Zola! We're your parents!!" We are trying to make sure she doesn't forget us through all these nice drugs she's on. πŸ˜‰ but the best thing of all is that I GOT TO HOLD HER!!! I got to spend two hours studying every tiny feature of her face and talking to her. I'm sure I could have held her all night long. Squeeze your babies tight tonight! It was so hard letting her go. I'm hoping this becomes a regular part of our day. I know Jeff is hoping it's his turn tomorrow! 🀞🏼 Zola is seriously my hero. She is going through so much and I know her little soul is so strong and she is fighting to live through this huge obstacle. I'm so grateful to have her as my daughter! #superzola #hlhs

So many emotions in such a short amount of time. Last night I finally got to hold my sweet Zola for the first time since she was born. This morning we held her again before she was taken to her first open heart surgery. She's only about 32 hours old and already the strongest person I know. #hlhs #superzola

MOST RECENT

Thank you Cortney for sharing your feeding journey with Zola and spreading awareness about a 100% human milk diet for #preemies and #CHD babies!....... @cortneyeats My feeding journey with Zola has been an emotional roller coaster, but it has finally taken a positive turn. I have teamed up with @prolacta_bioscience on this #sponsoredpost to spread awareness on the importance of a 100% human breast-milk diet, including 100% human milk-based fortifiers for #preemie #NICUand #CHD babies. I’m featuring 8 tips for breastfeeding a #CHD #NICU baby on my blog. See link in my bio! What is your best breastfeeding tip? Do you have questions about Zola's feeding journey or breastfeeding a #CHD baby? Let me know in the comments below! #sponsored#chdbaby #nicumom #humanmilk#prolacta #prolactabioscience #superzola

Feeding Zola has been one of the toughest parts of our #CHD #NICU journey. We have teamed up with @prolacta_bioscience on this #sponsoredpost to spread awareness on the importance of a 100% human breast-milk diet, including 100% human milk-based fortifiers for #preemie #NICU and #CHD babies. My wife @cortneyeats has also written a blog post with her top 8 tips for breastfeeding a #CHD #NICU baby. See link in my bio! Let me know what you think in the comments below! #sponsored #chdbaby #nicudad #nicumom #humanmilk #prolacta #prolactabioscience

My feeding journey with Zola has been an emotional roller coaster, but it has finally taken a positive turn. I have teamed up with @prolacta_bioscience on this #sponsoredpost to spread awareness on the importance of a 100% human breast-milk diet, including 100% human milk-based fortifiers for #preemie #NICU and #CHD babies. I’m featuring 8 tips for breastfeeding a #CHD #NICU baby on my blog. See link in my bio! What is your best breastfeeding tip? Do you have questions about Zola's feeding journey or breastfeeding a #CHD baby? Let me know in the comments below! #sponsored #chdbaby #nicumom #humanmilk #prolacta #prolactabioscience #superzola

My beautiful baby is 5 months old today! I can't believe how fast it's gone by. It's also felt incredibly slow πŸ˜… Zola is so joyful, she is sweet, but has a sassy side too. She loves eating her hands, screaming like a dinosaur, and being held. She's just so easy, even when she's upset she's calms so fast. I can't imagine my life without her. Shes a living miracle and each milestone is a victory for her! πŸ’• #5monthsold #superzola

Zola is 5 months old today! We've had lots of ups and downs in her short life but it's been mostly good! That smile never gets old! #superzola

Best way to end a really great night with my awesome friends @missalyssa90 and @cortneyeats ... snuggles from #superzola This little one is truly so special in every way! I love her πŸ’• #hlhs #heartwarrior #heartbaby #chdawareness

For any of you that didn't already see @cortneyeats post yesterday, #superzola finally got to go home! A super basic procedure turned into a stressful 8 day stay in the hospital, and a weekend trip back to California for me, but we're just glad she's fine now! Thanks to everyone for all the love and support!

WE ARE HEADED HOME! 😁😁😁 happy happy day!! After 8 long days and lots of stress, we are free! Zola scared us quite a bit, but I'm grateful for how quickly she was cared for!Zola is leaving the hospital with two new medications and I'm leaving not wearing underwear πŸ˜³πŸ˜‚πŸ˜… (if you watched my story you know all about Zola's πŸ’© explosion) we are both so happy!! Cheers to an uneventful weekend! πŸ™ŒπŸΌπŸ˜ŠπŸ˜Š #superzola #comando #illpackextraundiesnexttime

Can't wait for these girls to be reunited! Grey asks about Zola everyday and she loves giving her "kisses" through FaceTime. Zola always recognizes Grey's face and anytime Zola fusses Grey will immediately start singing and Zola calms down. So grateful for technology that allows us to still be "together" despite being 2.500 miles apart. #greygiven #superzola #adventuresofgandz

Zola is my good thing right now and I've been forcing myself not to think about anything else. Which is extremely difficult because I like to have a plan. ALL of our plans have changed and they keep changing. I know this will pass, I know I will get to where I want to be, but for now I'll hold Zola, talk you guys on Instagram, and FaceTime my family. It's really tough letting things go so I'm gonna let myself be sad for a little bit and then choose to be happy after that. Thanks for all the love everyone! You are all amazing souls. Zola is lucky to have such an amazing community supporting her. She is doing great! Just waiting for the blood test to be in the right range. ❀️ #superzola

Never failing challenge of the pistol squat or rather an attempt and warrior three. Both work in progress at this point. Working on getting my strength and balance back without being frustrated. I get my inspiration from @jeff_given daughter Zola. She is a true fighter with a warrior spirit of million people. Her smile is so contagious. Born with a heart defect and by grace of a God and abundant love of her family is an inspiration to all of us. They also have a go find me campaign set up so if you can help please do. Any amount is greatly appreciated. By the way when you see #superzola smile just one time you will now exactly what I am talking about. She will melt your heart and brighten your day. And if she can smile so infectious after two open heart surgeries and she is not even one year old, I think we all can find at least one thing we can be grateful for today. **************
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This beautiful little girl #Superzola and my daughter give me life.. ❀️ I've been following her story and let me tell you guys she's one strong happy baby but she also has strong parents right next to her. Sometimes I'd cry becus how strong she is it's amazing! My daughter and I will forever keep her in our prayers! ❀️ and we are all here for you!

Lesson number one learned from Zola: Even when life kinda sucks and doesn't go as planned, keep smiling! #superzola

Zola is doing great! They are just figuring out a specific blood test that has to be at a good level for her lovenox shots. So as soon as her levels come back in the right range we can go home! I don't really have any expectations anymore πŸ€·πŸΌβ€β™€οΈother than that Zola's been getting lots of rest and I'm catching up on school work I haven't done πŸ™†πŸΌ @jeff_given made it safely back to Hawaii and I facetimed with Grey, she's so entertaining πŸ˜‚ I miss her like crazy! Wishing time would speed up so we can be all together again. #ilovemyfamily #superzola #greygiven

I saw this picture and immediately started tearing up then I read the story about this strong & inspiring little baby & I had no choice but to turn those tears into a humongous smile. The majority of this generation is fascinated & inspired by a lot of materialistic things. I'm simply inspired by being happy & having LIFE because in 1999, I almost lost mine. I'm thankful for each day I wake up & I know I'm one of the most blessed individuals in this World knowing how I came up & how all the odds were against me. Believe & you can make it happen too! Zola, you're a true inspiration. Keep fighting & I'll keep cheering for ya. Tell your parents they're an inspiration to me as well. From one of your biggest fans, Franzen Wong... #SuperZola #GodIsGreat

Excited to be heading home to Hawaii and to my sweet Grey girl. Super sad to be leaving @cortneyeats and #superzola I know we'll all be back together soon enough! #greygiven

😍😍😍 Last day with these two! We decided Zola is solid enough for me to fly back to Hawaii. It was stressful but I'm super glad I was able to come and be here with my girls! #superzola @cortneyeats @jeff_given

Despite a minor freak out last night that included throwing up and getting super sweaty, she is still getting better! They are ready to move her to the step down unit (if there's a room open) and just want to keep an eye on her for a couple more days before we can go home. We're so grateful for all the love and prayers we've received! #superzola

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