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#superventriculartachycardia

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Thanks to Jehovah we hope life will be better for our Mandy. #motherhood #tenderness #SuperVentricularTachycardia #WolffParkinsonWhiteSyndrome

Sitting by my painting. The perfect one painting for me... with heart issues. Getting ready to eat a steak...enjoy what you can, we only get one life. #mitralvalveprolapse #superventriculartachycardia #prematureventricularcontractions

Happy Thanksgiving!!! I have so much to be thankful for this year. My family who is always by my side. My friends who make me laugh when I'm down. The air in my lungs and the beating of my heart as I continue on my journey with my health. The greatest man who has ever walked into my life. Life isn't perfect but I am a lucky girl and I love you all❤ On a side note...like most Potsies I deal with GI issues but I am happy to say I ate that ENTIRE plate of food. I had bacon wrapped turkey, mashed potatoes, sweet potatoes, green beans, asparagus, stuffing with gravy, and a dinner roll!!! I may have gained 20lbs in the process but it really was a big deal for me to be able to eat the entire meal. And lord was it good😍🦃 #happythanksgiving #iamthankful #familyandfriends #healthandhappiness #boyfriend #turkeyday #baconwrappedturkey #mashedpotatoes #sweetpotatos #greenbeans #asparagus #stuffing #dinnerroll #keepsmiling #anxiety #powerport #spoonie #invisibleillness #avnrt #potsie #heartproblems #staystrong #chronicillness #dysautonomia #tachycardia #spooniestrong #inappropriatesinustachycardia #superventriculartachycardia #posturalorthostatictachycardiasyndrome #ectopicatrialtachycardia

Hey guys!!!! So yesterday I was supposed to update but had a pretty rubbish day yesterday, I hadn’t been feeling great all day, I’d woken up in no pain at all just extreme tiredness, I could get up and everything just haven’t felt that tired in a long time. The day went pretty fast but feeling generally unwell, went out with my best friend which was so lovely!!! I got home and before I got in the bath I felt really poorly so I put myself on the monitor and my oxygen saturations were normal at 97% but my HR was up at 131bpm. I got in the bath and when I got out I felt so much worse so I was lying on the bed for about ten minutes before I decided to put myself back on the monitor, my oxygen saturations were at 91% and my heart rate was between 110-120bpm. I felt rubbish. Obviously when your oxygen dips, your body finds it difficult to cope with normal tasks like breathing. It seemed to go back up after some time to 94% which was better. I had some dinner (tea) and my hr went all the way up to 250. I tried different fingers, on my toes (to put the probe on) it was staying between 230-250bpm I was struggling with tiredness. To make sure that the reading was correct I felt my pulse and it was faster than any pulse I’ve ever felt. At this point, I probably should’ve gone to A&E but I knew some of the options to try and get the heart rate down, one was an external massage on my neck (sometimes it helps bring the carotid pulse down, it’s the pulses on either side of your neck) it worked for me, I massaged it for 1 minute 30 seconds or something like that and I managed to get it down to 130bpm which still wasn’t amazing but it made me feel much better but I was so tired. Again, it wasn’t a Great day but thank you for your guys’ messages, it means a lot.
Sorry for this negative post but I’m feeling much better today! Have a lovely day❤️
Jess Xx
#superventriculartachycardia

When your heart rate goes to 159 bpm when your just relaxing ... 😔😔 uncomfortable is a understatement ... #svt #superventriculartachycardia

Being admitted due to SVT and surgery in the morning. Not how I wanted my week to go. #superventriculartachycardia #cardiacablation #wakemed

Our amazing little CEO was diagnosed with #svt super ventricular tachycardia at the age of 6. She is now 9 and going in for a heart procedure to prevent any future problems. Please find her link on the American Heart organization under Kind Kidz for Addison to make a donation!! She is trying to raise $1000 to raise awareness before her procedure! #addisonsallheart #heartdisease #superventriculartachycardia

Remember your own #heart this #valentinesday you only get one ❤️ so be good to it each and every day . #healthbeforewealth #superventriculartachycardia #ablation #1 #healthiswealth #hearthealth #love #valentines #heartproblems #priorities

MOST RECENT

Happy Thanksgiving!!! I have so much to be thankful for this year. My family who is always by my side. My friends who make me laugh when I'm down. The air in my lungs and the beating of my heart as I continue on my journey with my health. The greatest man who has ever walked into my life. Life isn't perfect but I am a lucky girl and I love you all❤ On a side note...like most Potsies I deal with GI issues but I am happy to say I ate that ENTIRE plate of food. I had bacon wrapped turkey, mashed potatoes, sweet potatoes, green beans, asparagus, stuffing with gravy, and a dinner roll!!! I may have gained 20lbs in the process but it really was a big deal for me to be able to eat the entire meal. And lord was it good😍🦃 #happythanksgiving #iamthankful #familyandfriends #healthandhappiness #boyfriend #turkeyday #baconwrappedturkey #mashedpotatoes #sweetpotatos #greenbeans #asparagus #stuffing #dinnerroll #keepsmiling #anxiety #powerport #spoonie #invisibleillness #avnrt #potsie #heartproblems #staystrong #chronicillness #dysautonomia #tachycardia #spooniestrong #inappropriatesinustachycardia #superventriculartachycardia #posturalorthostatictachycardiasyndrome #ectopicatrialtachycardia

Day 2 at the emergency vet with #whitedogzoey this time for 24hr follow up blood work and lab results #sickpup #doggypills #superventriculartachycardia #autoimmunedisease #poorzoebug

Hey guys!!!! So yesterday I was supposed to update but had a pretty rubbish day yesterday, I hadn’t been feeling great all day, I’d woken up in no pain at all just extreme tiredness, I could get up and everything just haven’t felt that tired in a long time. The day went pretty fast but feeling generally unwell, went out with my best friend which was so lovely!!! I got home and before I got in the bath I felt really poorly so I put myself on the monitor and my oxygen saturations were normal at 97% but my HR was up at 131bpm. I got in the bath and when I got out I felt so much worse so I was lying on the bed for about ten minutes before I decided to put myself back on the monitor, my oxygen saturations were at 91% and my heart rate was between 110-120bpm. I felt rubbish. Obviously when your oxygen dips, your body finds it difficult to cope with normal tasks like breathing. It seemed to go back up after some time to 94% which was better. I had some dinner (tea) and my hr went all the way up to 250. I tried different fingers, on my toes (to put the probe on) it was staying between 230-250bpm I was struggling with tiredness. To make sure that the reading was correct I felt my pulse and it was faster than any pulse I’ve ever felt. At this point, I probably should’ve gone to A&E but I knew some of the options to try and get the heart rate down, one was an external massage on my neck (sometimes it helps bring the carotid pulse down, it’s the pulses on either side of your neck) it worked for me, I massaged it for 1 minute 30 seconds or something like that and I managed to get it down to 130bpm which still wasn’t amazing but it made me feel much better but I was so tired. Again, it wasn’t a Great day but thank you for your guys’ messages, it means a lot.
Sorry for this negative post but I’m feeling much better today! Have a lovely day❤️
Jess Xx
#superventriculartachycardia

I've seen some others in the chronic illness community doing this, so I wanted to do one of my own.

When most people hear that someone is sick, they think of someone stuck in bed with a bad cold, or the flu, and that after some rest and OTC meds, they will go back to feeling normal soon.

Though that is true, there is still a lot of ignorance surounding chronic illnesses. In my experience, when an someone unfamiliar with chronic illness hears that someone has one, they think that after a few trips to the doctor, diet and exercise changes, and some natural remedies, that the person will be feeling better, and just have an off/bad day every now and then. Oh, how I wish it were that simple... Another part of the ignorance that comes with chronic illnesses is that nearly all of them are also considered invisible illnesses, meaning you can't physically see by looking at a person that something is wrong.

When I post about being in the hospital for days, weeks, or even months, and upload pictures with tubes and wires and medical devices all over me, more people then do seem to get it. They send love and constantly check in, to see how I'm doing. But, once I am back home, and post pictures of me smiling, enjoying outside, visiting friends and family, etc. they assume that things are much better, and most lose contact, or comment on how great I look, and say that they're glad that I'm better.

Yes, if I'm not in the hospital, then I am not having some severe, medical crisis, but I am not, nor will I ever be "better". These illnesses are for life. Rather if I'm in the ICU, or goofing around with my nephews, I am affected by my illnesses every waking second of every day. I have not felt okay in years. Every action that I do comes with a price. My life expectancy gets a shorter estimate every few months. Most doctors won't see me, because I'm too severe for them. No amount of upbeat looking pictures will change that.
Some days are decent. Most days are bad. Some days are complete shit. What I choose to post on social media does not give a 100% acurate description of what is going on with my body, mind, and life. Only I truly know what I experience.

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