#superventriculartachycardia

MOST RECENT

Enjoy life while you can. It can be taken in a heart beat.
It was my father who taught me to value myself. He told me that I was uncommonly beautiful and that I was the most precious thing in his life. #superventriculartachycardia #survivor #daddysgirlforever #remembering #hearthero #4yearson

When you’re hating the way your body looks. I am not one of those women who constantly complains about parts for all of their body. I have loved the way I looked since day one and wanted nothing to do with change about my body. But this past year I keep losing weight and I look unhealthy and disgusting and not appealing. I just don’t know what else to do. This close up makes me feel comfortable. And I love this photo I took today .
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#chronicillness #invisibledisability #disability #disabled #pots #awareness #raredisease #chronicfatigue #zebrastrong #chronicpain #disabilityawareness #mayoclinic #panicattacks #superventriculartachycardia #svt #Neurocardiogenicsyncope #ncs #narcolepsy #cysticfibrosis #cf #lymesdisease #chronicillnesswarrior #spoonie #spoonielife #eds #mastcellactivationdisorder #mastcellactivationsyndrome #mcas #disorders #rarediseases

@freyliving @peterfreylife @thefreylife screen shot while I am having a horrible night. My wrists, knees and elbows are just insanely in pain. New thing happening in my life. And I can’t stop the tears so I am watching them on YT and screen shot this... made me smile for second forgetting the pain. .
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#chronicillness #invisibledisability #disability #disabled #pots #awareness #raredisease #chronicfatigue #zebrastrong #chronicpain #disabilityawareness #mayoclinic #panicattacks #superventriculartachycardia #svt #Neurocardiogenicsyncope #ncs #narcolepsy #cysticfibrosis #cf #lymesdisease #chronicillnesswarrior #spoonie #spoonielife #eds #mastcellactivationdisorder #mastcellactivationsyndrome #mcas #disorders #rarediseases

Follow up today after Gavin’s heart procedure and so chuffed he’s been given the thumbs up - all fixed! Thanks to Dr. Broadhurst for fixing my baby! #loveyournhs 👌🏼❤️#wolfparkinsonwhite #heartcondition #fixed #mended #normalagain #superventriculartachycardia #nomore

@happymailforfighterscard came in the mail... and I couldn’t stop smiling when I noticed that only the envelope but the cart on the outside and filled in the inside of stickers of my three favorite animals. I love animals more than life itself… Literally! I dedicate my life making sure animals live out their life happily. I love all animals but elephants and monkeys and pigs hold it close place in my heart so when I see my card filled with a dozen stickers based on those three animals I SMILE. Thank you .
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#chronicillness #invisibledisability #disability #disabled #pots #awareness #raredisease #chronicfatigue #zebrastrong #chronicpain #disabilityawareness #mayoclinic #panicattacks #superventriculartachycardia #svt #Neurocardiogenicsyncope #ncs #narcolepsy #cysticfibrosis #cf #lymesdisease #chronicillnesswarrior #spoonie #spoonielife #eds #mastcellactivationdisorder #mastcellactivationsyndrome #mcas #disorders #rarediseases

How cool is this? @vibedration Has A backpack for hydration… This is definitely something I need to put on my wish list! It’s perfectly compact to add Saline infusion but on the go. Never having to sit in bed or at home for four hours at a time but able to enjoy the day on the go. This is definitely a NEED for the chronically ill. .
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#chronicillness #invisibledisability #disability #disabled #pots #awareness #raredisease #chronicfatigue #zebrastrong #chronicpain #disabilityawareness #mayoclinic #panicattacks #superventriculartachycardia #svt #Neurocardiogenicsyncope #ncs #narcolepsy #cysticfibrosis #cf #lymesdisease #chronicillnesswarrior #spoonie #spoonielife #mastcellactivationdisorder #mastcellactivationsyndrome #mcas #disorders #rarediseases #vibedration

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