I almost never talk about illnesses on social media for business but after everything I've been through and continue to go through, I'm going to speak out. I hope it helps someone to stand up for themselves.
Three years ago I was very healthy and active until getting bronchitis from someone in a plane took me down. Since then I've been in so much pain I wouldn't wish it in anyone. I've been to 20 doctors in 3 years and misdiagnosed a lot. A LOT! I've developed so many allergies I can't absorb nutrition well.
I'm never without some form of burning/itching dermatitis. Trouble is no one knows what it is. It's been biopsies as contact dermatitis but I'm not touching anything, I'm always covered in lotions, I'm not eating any allergens. The only thing we know for sure is hormones playing a number one part. That's it.
I've been on steroids, antibiotics, chemo type drugs like cyclosporine and methotrexate. They caused my kidneys to start failing so they lowered the side to almost nothing. I'm taking supplements, done Autoimmune diets, detoxes, probiotics. Doctors have treated me like I'm crazy or try to help for a bit only to have then all say "I give up. All I can do now is try to keep you comfortable."
That's it? That's all? The best I can hope for is severe burning and itching and that's my life? Yes but maybe studies will come up or a new drug. Well WOW! Even cancer patients get more help than that.
With each new doctor I lose a little more hope, a lot more respect for the medical field. I've spent countless hours in the ER only to be treated like I was interrupting their day or I was crazy. Honey if you've never had these skin conditions you can't possibly know how bad this hurts.
I'm tired, my nerves are shot, I'm tired of trying to find food I can have, clothes that I can wear, sheets I can sleep on, never seeing people but doctors and I'm just plain broken in spirit.
When you have autoimmune issues and medical people treat you as a number or a kickback on some drug or study they're doing, stand up and say NO! No, I will not be your lab rat. No I will not let you treat me this way. Do your own research, get alternative care. Don't give up!!! 💗💗