#stoma

MOST RECENT

I have woken up to my stoma hurting and my skin so itchy I had to take my bag off to scratch it.. it’s so sore and dry. I only use adhesive remover spray and warm water to clean my stoma and skin, I’ve just tried the barrier spray I used to use which seems to have eased the itchiness but it’s been driving me mad the past few days. Anyone have any suggestions for dry and itchy peristomal skin? #ostomy #stoma #ileostomy #itchystoma

I may not be size 8 or a size 10 anymore due to my restrictive diet but I am proud of how strong I am and how much my body has been through. I have to give myself a break and stop beating myself up over my weight ! My health is definately more important than a number on the scales so embrace the curves girl 👙! And enjoy that I can no longer fit Barbara and Brenda into my smaller bras ha ha 👀 #curvygirl #curves #loveyourcurves #loveyourbody #holiday #bikinibody #stoma #ileostomy #ostomy #ulcerativecolitis #ibd #nocolonstillrollin #strength #warrior #keepfighting #survivor

Unglaublich. Heute ist das alles schon fünf Monate her...aber ich bin froh, dass ich das Stoma habe! Mittlerweile bin ich recht entspannt damit und ich hatte in den letzten vier Monaten auch keine Unfälle mehr. Ich kann so viel unternehmen und dafür bin ich dankbar. #stoma #ostomate #ostomy #ostomybag #ostomyblogger #morbuscrohn #ced #crohnsdisease #ibd #instagood #instalike #happybirthday #birthday #bagchange #goodmorning #followme

Hello warm weather!!🌞

⭐️Fun Facts Friday⭐️

1️⃣ I loved Lisa Frank when i was a kid.🦄-I grew up in the 90s so I’m not sure if everyone remembers Lisa Frank but I was obsessed with it!! I had everything from tee shirts to school supplies.

2️⃣ I hate driving.🚘- It’s not that I’m a bad driver i just honestly hate driving. I also didn’t get my licenses until after I was 18.🤣

3️⃣ I had to finish my senior year of high school at home.🎓-I graduated on time but the last semester of high school I had to do at home because we couldn’t get my migraines under control. Which sucked because not only did I miss a lot of end of the year things, I also lost a lot of friends. But I truly believe in the end it made me a better person.

4️⃣ I don’t like chick flicks.🙅🏼‍♀️-So I’m not a chick flicks kinda of girl. I don’t even like the notebook. Which is everyone’s favorite movie, I feel like! Lol I’m more of a action, Syfy, superhero movie kinda girl.

5️⃣ I miss cartoons from the 90s.📼-If you grew up in the 90s than you know cartoons and even tv shows were 100xs betters! Nickelodeon and Cartoon Network were my all time favorite channels!

I really hope you guys enjoy fun facts Fridays! Lol I truly love doing them because it gives your guys the chance to learn more about me than just my illness! Thank you so much for following my journey. It means the world to me.❤️
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#ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #selfie #celfiè #snapchat #nocolonstillrollin #ittakesguts #getyourbellyout #ostomyawareness #funfactsfriday #spoonie #chronicallymotivated #ibdsuperheroes #loveyourstoma

#Sayonara today is my last day with this miserable little friend, for hopefully quite a long while. The next step in my treatment is surgery to remove part of my colon. My new friends will be #stoma and#ostomybag also, some cool stuff I put in my kid’s bathroom. Did you know sayonara is Japanese? I didn’t until just now.

I have master key to disabled toilets in Europe, I use my disabled card for seats in a train, discounts while traveling, but the look I get!!
The worst is at work: you look so happy.... it is my job, I work at a hotel. I love my job, but as soon as I leave I am so exhausted I sleep. When I am in pain I sweat trying to hide it. You cannot always SEE how “disabled” one is... but I usually LOVE to see those looks on people’s faces and am not shy about my story!!
My dream is to help others through their battle, hope to succeed! I am a fighter, life is worth it!!! 💪🙏😇💕 .
@ericastraveling .

#crohnsdisease #crohns #crohnswarrior #flaws #ileostomy #ostomy #motivation #motivationalquotes #instadaily #ulcerativecolitis #spoonie #healthylifestyle #ibd #ibdawareness #disease #health #invisibleillness #stoma #chronicillness #perfectlyimperfect #fighter #strong #cancer #cancersurvivor #blessed #life #nevergiveup #icandoit #awareness #inspire

When I had to start thinking about having to wear a bag I thought it would be some ghastly huge thing that looked and felt hideous. I forget it's there sometimes now and you can't tell me you can tell in this picture! #whatbag #ibdwarrior #barbiebum #nocolonstillrollin #ileostomy #stoma #coloplast #ostomate #proctocolectomy #frankeethestoma #ulcerativecolitis #invisbleillness
#happyhighpantsforlife #ibd #spoonie

What in the world is going on here ?? One of the traditions at my college is the ringing of the Wren Bell - the bell that is in the oldest academic building still in use in the US ! Every year on the last day of classes, seniors line up for their turn to ring the bell to signify the end of their time at the College. Last year, I didn’t ring the bell even though I was a senior. In dealing with my medical issues all spring, I didn’t feel like I could celebrate finishing my degree. But this year is a different story - even though it’s not the last day of classes (graduate students get to ring the bell a week early !), I finally got the chance to participate in the tradition. It doesn’t seem like a big deal, but for me, it symbolized my fight through everything life has thrown at me over the last eighteen months, and getting to celebrate the tremendous accomplishments I’ve had while figuring out life with Olly and my other chronic health struggles. So I rang that bell nice and loud - it’s time to celebrate how far I’ve come and how far I’ll go !

Happy Fun Facts Friday from the lovely Tori and me! 🎉 It was nice having some best friend time today over coffee at Starbucks. 😊 Anyways, here are today’s fun facts!
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1️⃣ I learned the hard way not to shake kombucha. I once failed to read the bottle’s warning and shook it, and the drink went EVERYWHERE in the kitchen! Oops...
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2️⃣ Once, while in Burlington, VT, my uncle and I made an obligatory Ben & Jerry’s stop. As we left with our ice cream, mine started to melt everywhere, but he had used up all of the napkins we took... so I walked around the city with chocolate all over my face and hands like a toddler.
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3️⃣ I once unknowingly walked around in public for an entire day with my hair in a bun (if you can even call it that) that looked like Mary Sanderson’s (from Hocus Pocus). My friend pointed it out to me while we were Skyping!
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4️⃣ I’m terrible at following movie plots. I’m quite notorious for frequently saying, “Wait, I don’t get it...”
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5️⃣ I am so clumsy that, while living in the Netherlands back in 2014, I had a couple of embarrassing bike accidents: I once crashed my bike into a traffic light pole, and another time into a curb that I didn’t see in the night, which resulted in a VERY scraped knee!
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#funfactsfriday #ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #asthma #dysautonomia #orthostatichypotension #pots #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrome

Happy bag change day! And happy Friday! And happy holidaze! (If you’re in to that!) So, taking this date as an opportunity to have an honest discussion... there has been a lot of recent talk of how CBD and THC have amazing medical benefits for many things such as epilepsy, Parkinson’s, cancer pain management, anxiety, and even Crohn’s and Colitis just to name a few! CBD oil has definitely become a fad as of late, and just a friendly reminder that what is right for someone may be right for you too, but it also may not be right for you, and that’s OK! What is MOST important is to LISTEN TO YOUR BODY and you do YOU! Also keep in mind CBD oil has all the therapeutic and medicinal effects without getting you high! That being said has anyone used CBD oil to help them with their Crohn’s or Colitis symptoms? I have not tried it but I am very curious! Please feel free to share your thoughts or experiences! 💜💜💜 .
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#ibd #ibdawareness #ibdwarrior #crohns #crohnsdisease #cdiff #ileostomy #permanentileostomy #ostomy #ostomate #ostomyawareness #chronicillness #chronicpain #invisibleillness #stoma #meatballthestoma #proctocolectomy #barbiebutt #mcv #vcu #richmond #rva #life #livinglife #lovinglife #nocolonstillrollin

The other night I had a bag leak at 2am and while I was in the bathroom cleaning up, Kevin got up and changed the sheets without even asking or telling me. He just did it to make a difficult moment easier for me. That’s love.
Note: I didn’t take this photo when this happened, this is just a random photo of Luna on our bed. Also- Luna was not helpful when Kevin was making the bed. She was the opposite of helpful. #truthbomb
#crohns #colitis #crohnsdisease #ostomy #colostomy #stoma #ostomate #chronicillness #blackcat #cat #lunagram

A question for fellow #ostomates Today I had contrast dye put through my stoma so thEy could get a picture of how my bowel sits inside. First thing he said was I’m full of rocks (okay fair enough my consistency keeps going rock hard then soft) but have you found afterwards that you have constant output for an hour or so and then your just full of air? Or is it just me. Thank you 😊
#spoonie #colostomy #ostomy #stoma #xray #hospital #contrast

Stoma Tip: Currently my skin is playing up due to the heat and I am usually very fortunate to not suffer massively with stoma problems. I am happy with all of my stoma appliances and they work well for me most of the time ... however at the moment due to raw skin my stoma nurse advised that I used #flamazine which seems to be doing the trick. Always go and visit your stoma nurse / team at a local hospital should / when you have problems as they usually have the magic creams and tips on how to sort things out. #stoma #stomatips #ileostomy #colostomy #bagforlife #breakingthetabooonpoo #stomastigma #magiccream #flamazine #stomahelp #rawskincare #stomaskincare #inflammatoryboweldisease #IBDtips #ulcerativecolitis #crohnsdisease #stomanurse

Is it gas, liquid or solid 😱

First time I have woken to a completely filled bag lol. No leaks tho yay.
The stoma powder has def worked wonders and the skin around Robin is looking way more healthy now. Fingers crossed things stay that way for awhile 🤞🏻 For the record if you guessed liquid you were correct.

#ostomy #ostomate #ostomybag #colostomy #stoma #rectalulcerdisease #rectalulcers #RUS #coeliac #coeliacdisease #CD #gettingwell #igotthis #chronicillness #kiwi #NZ #newzealand #wellington #lowerhutt #poop #postop #baglife #feelingbetter #noleak #coloplast #sensuramio #stomapowder

Took pre-workout but I felt like I was about to faint instead of the energetic rush 🤔 maybe I should stick to half a scoop or more carbs for breakfast. I still feel that weird tingly sensation all over my body 😅 Any ways, I wish my legs looked like his all day #goals

What are you working out today?

#Factoidfriday: Emma shedding some light on the surgeries associated with IBD.
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#Repost @emma_uc_warrior (@get_repost)
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For those who don't understand the surgery I have had this will help understand it. I had from my appendix to my anus removed. I have a perineal wound around 5 or so cms that is abit troublesome with it's healing. Which is a common concern with this type of surgery. If it doesn't heal I'm in some strife. This wound takes months to heal. My home care nurses and my husband Ben are amazing and when we have a hiccup they are right there to sort it and reassure me.
My surgery is called a #proctocolectomy and I reference #barbiebum a lot as that is what I have now. No bum hole. Humorous I guess but a relief to be honest. It is sewed up as I no longer have those organs.
My small intestine still works and is what creates my #stoma Frankee. They pull it through, turn it inside out and stitch it to my belly. Sounds kind of narley hey. But it doesn't hurt. Like it's numb and is pretty cool to watch really.
It is crazy to think I fought so hard to not have this done and that having an #ileostomy was the worst thing in the entire world and really, it's not. It's really not.
#ibdwarrior #ostomate #colitis #crohns #ibdawareness #ulcerativecolitis #crohnsdisease #health #colitisawareness #chronicillness #community #surgery #bodybuilding #ibd #awareness #wellness #gym #support #olympiclifting #fitness #crossfit #fit #squat #fitness #lifting

Sitting in the waiting room on a high pain day⚡️🔥when the doctor is running 30+ minutes behind. I swear there needs to be recliners (where the back moves) in waiting rooms!

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