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Olly’s second 5K is in the books ! This afternoon, I participated in my campus’s annual 5K with a couple of girls in my program. It was my second time attending, since I missed it last year after I had to withdraw from school post-hospitalization. Even though I couldn’t run it, I still had fun walking the course on a sunny fall day and spending time with people I typically only see in the classroom ! (Shoutout to Victoria and Melissa for being my last-place buddies !) I did manage to run the last few yards in as well, but due to a pretty bad headache and a heart rate of 144bpm this morning, I knew I shouldn’t push it. But I did it ! I will continue to prove that a diagnosis will not stop me from doing the things that I love, even if it means at a slightly less-intense level. Though I’m hoping that my next 5K can be more of a run than a walk ! #mollyollyostomy #ileostomy #ostomy #chronicillness #invisibleillness #spoonie #nocolonstillrollin #ittakesguts #girlswithguts #chronicallymotivated #ostomates #stoma #POTS #posturalorthostatictachycardiasyndrome #dysautonomia #EDS #EhlersDanlosSyndrome

It’s not easy to grasp the concept of permanence. After all, we are rarely faced with situations that are truly permanent. Moving to a different city to start a new job, for example, may feel like a permanent transition, even though things could eventually change. Or, after getting a bad haircut, you may feel like you’ll be stuck with it forever, no matter how many times you tell yourself that your hair will grow back. (We’ve all been there.)
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On November 1st, 2017, however, I was faced with the outcome of my first-ever real permanent decision, by having surgery to create an irreversible ileostomy. Since then, I’ve often had people ask me, “It’s temporary, right?” It’s a reasonable assumption to make, since a large percentage of ostomies are temporary, such as those needed in emergency situations, or those that are created in the multi-step process of getting a J-pouch.
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In my case, my surgeon explained that, because of my specific underlying GI issues (mainly chronic constipation), if she were to ever attempt a reversal, my bowels would likely burst, which could be fatal. So, a temporary ostomy was out of the question. Fortunately, back when I realized that an ileostomy was a serious possibility, I had already believed that it would be permanent, so I have accepted its permanent nature for several months. I’m not going to lie, though: It is a strange feeling looking down at my abdomen and knowing that my intestine will be sticking out for the rest of my life. I remember one moment when I was in the hospital the day after surgery in which I got emotional seeing my abdomen and realizing that I will no longer have my stoma-less belly back. I soon took comfort, however, in the knowledge that getting Stella (my stoma 😄) was the best decision for me, and that it will improve the quality of my life.
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So, Stella’s here to stay! 😉
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#ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #dysautonomia #orthostatichypotension #pots #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrome

“Chris, she’s not going to make it.”
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Those were the last few words that my primary care doctor spoke to my dad before my parents rushed me to The Johns Hopkins Hospital for the very first time in August 2016. I had severe Ulcerative Colitis and an unresponsive case of C. Diff. both attacking my colon. I was weak, not eating or drinking, not sleeping, running to the restroom 40 times a day at least, dehydrated, anemic, and struggling to even walk without passing out. My primary care doctor had urged my parents to take me out of state for help because my condition was so critical and there was nothing the doctors here could do. When we arrived at the Johns Hopkins ER, I was in terrible condition and admitted immediately. That was the beginning of my journey at Johns Hopkins where, little did I know, I would spent many weeks and go through 4 major surgeries over the course of the next year.
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I remember asking my mom many times, “what did I do wrong?” Somehow I felt like it was my fault that I got sick. I felt like it was my fault that we were incurring thousands and thousands of dollars in medical bills. I blamed myself for all of it. But a little over a year later, I have come to understand that my illness is not my fault. No one asks to be sick. No one asks to wake up one day chronically ill and have their life completely change.
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If someone had told me 2 years ago that doctors would be telling my parents that I was not going to make it or that my little sister would be waking up my parents in the middle of the night crying and saying “I’m afraid we’re going to lose Kristen,” I would have never believed them. But I survived, even when all of the odds were stacked against me. I learned to walk again. I learned to adjust and adapt to my new body. I learned to grieve and accept the things that my illness took away from me. Most importantly, I learned that I am so much stronger than I could have ever imagined.
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It turns out that the wind that blew me off my expected course in life is the same wind that has led me down the most challenging, beautiful course to where I am meant to be and WHO I am meant to be. Trust your journey and never give up ☀️

Surprised I didn't wake up on the ceiling the amount of wind in there!! #stoma #ileostomy #windy

Apologies in advance for having my bum out 🙊😂BUT!! I am one happy lady!! I have new skin forming around my Pyoderma!! It's looking so much better I am so pleased with the results of the Pico Vac treatment! It just proves that rest is vital to enable our bodies to heal and recover. I still have a long way to go but these are promising signs 🙏💜
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#ulcerativecolitis #colitis #ostomate #ostomybag #ostomy #ileostomy #ileostomybag #ibdwarrior #ibd #crohnie #chronicillness #chronicpain #spoonie #instagood #instadaily #vsco #iphone #stoma #ibdbeauty #bodypositive

It only took 4 hours, but I’m finally getting some fluids. 😅 I hate taking up a bed in the ED when I’m just dehydrated. Hopefully I won’t be here long. 😬
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#spoonie #spooniefamily #IBD #IBDfamily #ulcerativecolitis #crohns #nocolonstillrollin #chronicpain #chronicillness #invisibleillness #dehydration #autoimmunedisease #ileostomy #stoma #ostomy #surgery #girlswithguts #chronicallymotivated

👳🏾‍♀️:「究竟 #stoma造口人 幾時有得睇?」
👨🏻‍🏫 @kithung :「我點知姐?」 #stoma #造口人

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Ja das wünsche ich allen 💕💕I wish all people, who have always had to fight their lives, that they are finally rewarded and allowed to rest💕 💕#morbuscrohn #ced #crohnsdiseasewarrior #colitisulcerosa #stoma #stomach #healthy #morbuscrohnisteinarschloch #fight #fighter #goforit #lovelife #go #stronggirl #fightstrong #followme 💕💕

I know guys another mirror selfie but honestly I love it when you can’t even tell I have a ileostomy!!


Not that i don’t love Todd. (Well love/hate) But it’s great to feel normal every now and then!😍🙌🏽 #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomyawareness #whatbag #chronicillness #chronicmigraines #hiddenillness #invisibleillness #stoma #loveyourself #bodypositivity #positivevibes #selfie #celfiè #mirrorselfie #mirrorpic

Random post i know but this honestly helps!


If you guys need help sleeping or even relaxing a night, try this! It’s perfect and smells amazing!🙌🏽😴#ileostomy #ileostomyawareness #ostomy #ostomyawareness #ostomybag #chronicillness #chronicmigraines #hiddenillness #invisibleillness #stoma #loveyourself #positivevibes #bodypower #Lush #lushcosmetics #lushsleepy #lushsleepybodylotion #bedtime

@Regranned from @lisettejo - Piggy twerking!! 🐖🐖🐖🐖🐖#Repost @cuteanimalsco
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Sound on 🔊😂😂🐖
Follow @babyanimalsco #cuteanimalsco
Please send me credit dm #Tiffieldtwins2 #regrann #billy2 #ileostomy #barbiebutt #crohns #stoma #panprotocolectomy #barbiebutt

Repost of @crohns_colitis_life for this completely accurate picture at #autoimmunedisease
Just when you’ve tackled one problem... another pops into its place because .... “Aren’t you proud of me?”

I love that I can message my surgeon's nurse to ask questions. She always helps eliminate my fears.
The pain is real with my skin being irritated!! Holy cow! A late glass of wine and Netflix to dull the pain! 😜😬💪🏼 #ostomy #ostomate #colectomy #jpouch #ibd #chronicdisease #ileostomy #gutitout #nocolonstillrollin #gutless #recovery #chronic #UC #UlcerativeColitis #stoma #ostomyawareness #storiesofgutlessglory #girlswithguts

What is a stoma, how is it made? Now you know! Fun STOMA FACTS below! .
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1) This picture make me uncomfortable too.
2) Looking at the real thing makes me even more uncomfortable...still.
3) There are no nerve endings in a stoma. That means the actual stoma doesn't hurt, but you better believe the surrounding skin hurts!
4) The stoma looks like and feels like the gums inside of your mouth!
5) All output out of this is a surprise. No idea when it's coming or what's coming. You can guarantee the moment you start eating, it will start working.
6) Currently Instagraming to put off a bag change.
7)This little buddy freaks me out to no end but has given me an abundance of life. I'm thankful and now I'm a productive human again! It's crazy what you can accomplish when you feel GOOD! .
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#ostomy #ostomate #colectomy #jpouch #ibd #chronicdisease #ileostomy #gutitout #nocolonstillrollin #gutless #recovery #chronic #UC #UlcerativeColitis #stoma #ostomyawareness #storiesofgutlessglory #girlswithguts

I have been cooking something up since James had his last surgery for his permanent ileostomy. 🙂 if you have checked out my website, then you have an idea of what this could be. If you haven’t, I want to announce my new collection that is starting to roll out and will be available for purchase on Friday! 🙂 “No Colon Still Rollin’” is a common phrase among the IBD community. It is funny and inspiring that so many are able to keep Rollin’ when it would be easy to give up. This is 18G Copper with Hand Engraving.

I have noticed that there aren’t a lot of options out there for IBD awareness, so I was inspired to create a line of jewelry (including keychains) that would help fight the stigma with these diseases and bring awareness to these. With each sale, I am putting part of the proceeds to research. Many people suffer from these diseases in silence and deserve to have more answers.
If you would like to purchase something, let me know! 🙂 I know this is the first piece, but there are going to be some fun, literal and quirky things coming- not just purple ribbon things! And please please PLEASE share this entire post! 🙂 I have made it public!
www.HandiworkByMeredith.com

Thank you from me and the gutless! 😉





#crohns #crohns #crohnsdisease #ulcerativecolitis #colitis #ibd #ibdjewelry #ibdawareness #ibdorknownasinflammatoryboweldisease #spoonie #spoonielife #nospoonsonlyknives #badass #nocolonstillrollin #gutless #ostomy #ostomate #ileostomy #stoma

Day 1 of 12 week full body transformation, bit late to start for summer as its already arrived but never to late to start for myself. .
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#bodytransformation #fitnessgoals #ibd #ostomyfitness #fitgoals #onedayatatime #nocolonstillrollin #ostomate #stoma #insideoutlet #doingitforme #ileostomy #12weektransformation #fullbodyworkout

Music for bedtime 🤣🤣😍😍
@Regranned from @liftedmemer - I️ love this !!!!! 😂😂😂 #Tiffieldtwins2 #regrann #billy2 #ileostomy #barbiebutt #crohns #stoma #panprotocolectomy #barbiebutt

Olly’s second 5K is in the books ! This afternoon, I participated in my campus’s annual 5K with a couple of girls in my program. It was my second time attending, since I missed it last year after I had to withdraw from school post-hospitalization. Even though I couldn’t run it, I still had fun walking the course on a sunny fall day and spending time with people I typically only see in the classroom ! (Shoutout to Victoria and Melissa for being my last-place buddies !) I did manage to run the last few yards in as well, but due to a pretty bad headache and a heart rate of 144bpm this morning, I knew I shouldn’t push it. But I did it ! I will continue to prove that a diagnosis will not stop me from doing the things that I love, even if it means at a slightly less-intense level. Though I’m hoping that my next 5K can be more of a run than a walk ! #mollyollyostomy #ileostomy #ostomy #chronicillness #invisibleillness #spoonie #nocolonstillrollin #ittakesguts #girlswithguts #chronicallymotivated #ostomates #stoma #POTS #posturalorthostatictachycardiasyndrome #dysautonomia #EDS #EhlersDanlosSyndrome

I'm having a love/hate relationship with the idea of the holidays this year. Don't get my wrong, I love them....but last year this time is when everything took a turn for the worse. I know that this was all part of my journey and I'm better and stronger because of it....but I lost a year of my life to this disease. .
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Last year this time I was on vacation with my boyfriend, making Christmas plans with friends and family, and although I was suffering silently with UC, I felt like I had hope. Within a week, I was in the hospital, my meds stopped working, the words "surgery" starting floating around people's lips and the kicker...my boyfriend of three years unexpectedly (at least to me) moved out the day I came home from the hospital. To say that was an intense season was an understatement.
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I know I am immensely better then I was last year, but it's hard to comprehend that it's already the holidays again and I lost an entire year to an ugly disease!
I am prepared to make this the best year yet to make up for the crappy one last year! ❤️🎄 #lifechangessoquickly #enjoytheamazing #toaststoanewyear

She’s alive! Ever notice when you are laying down your bag has small but rapid movements? #thethingsthatkeepmeentertained .
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#illeostomy #stoma #ostomy #ostomate #ostomyawareness #ibd #ibdwarrior #girlswithguts #nocolonstillrollin #ulcerativecolitis #warrior #spoonie

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