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#sscd

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This, but I know what I’m doing @__harryyardley #sscd

Together we strong #SSCD'16 #SSC-DU

This is my view every morning on the way to the bus. πŸ’• #SSCD

Lawrance Chung presenting @uclahealth @dgsomucla research on #sscd at the #nasbs2017 #nasbs17 #nasbs meeting

Baby steps to recovery. #SSCD I pray to be home by thanksgiving πŸ˜‡ #life goals

So proud of our #Dancer #ShowtimeNationals #SSCD

First day of School's Tour! #sscd #dance #tour

Taking some steps back with the therapy already as its making me too sick. Balance test showed two of my balance canals in my right ear are damaged so this all has to be done really carefully and slowly ... brain and balance dr tomorrow ✌🏼️#gettingbethbetter #rehabilitation #sscd #vestibulartherapy #masseyeandear

look mom no hands #sscd #nc #lovehearteyeemoji

MOST RECENT

After an intense yoga reflecting on life it’s self this quote came really helped me channel my frustrations. #yoga #dancer #scottishschoolofcontemporarydance #sscd #quotes #quotesaboutlife #feelings #frustration

The many faces of @rmfshred and @jarrettwalser - they are just as versatile with their acting as they are with their incredible musicianship...click the link in my bio and watch the official music video of "Magic" on YouTube to see them both in action! #magic #newmusicvideo #greenscreen #greenscreenmagic #bandmates #costumes #sscd

My very goofy physical therapy photo from this morning. Always blame the photog 😊 Great session today, my therapist is excellent!!! Although most of the therapy is mental exercises I leave exhausted as if I ran a marathon. #defeatdizziness #sscd #scd #sscdawareness #physicaltherapy #vertigo #dizzy #vestibular #vestibulardisorder #health #VEDA #superiorsemicircularcanaldehiscence #medical #fashion #film #documentary #migraine #photography #ambassador #awareness #strength #smile #workout

*Link in bio* Last month I had brain surgery for a rare vestibular disorder called SSCD. Please help me sign this petition to help bring better awareness to vestibular disorders in the medical field. Vestibular function is severely overlooked in the medical field. It was a 4 yr battle of being misdiagnosed. Thank you for signing and please share this petition if you can. πŸ’› #defeatdizziness #sscd #scd #sscdawareness #physicaltherapy #vertigo #dizzy #vestibular #vestibulardisorder #health #music #superiorsemicircularcanaldehiscence #medical #fashion #film #documentary #migraine #photography #ambassador #awareness #strength #smile

Had an awesome time training with @heidihildersleylyle , @shanegodlimanpole and @polephoenix last weekend! Also my first time visiting @westendpole πŸ˜€

Haven't trained pole in ages - forgot how much it hurts! Black Sun split is horrific πŸ˜‚

#scottishpoledancers #polefitness #poledancersofinstagram #poledancing #poledancersofig #invertedaberdeen #inverted #contemporary #contemporarydance #scottishschoolofcontemporarydance #sscd #dance #shoulderstand #menofpole

Physical therapy practice at home. Objective is to keep my eyes focused steady on a letter my son was holding while Matt moved my head. Not easy to do. #defeatdizziness #sscd #scd #sscdawareness #physicaltherapy #vertigo #dizzy #vestibular #vestibulardisorder #health #VEDA #superiorsemicircularcanaldehiscence #medical #fashion #film #documentary #migraine #photography #ambassador #awareness #strength #smile #brainsurgery

Baby steps to recovery. #SSCD I pray to be home by thanksgiving πŸ˜‡ #life goals

Could it be that I've mastered the art of juggling a deck of cards? Or is this just another magic trick gone terribly wrong? Not sure? Click the link in my bio and watch the official music video of "Magic" to see for yourself! #newmusicvideo #magic #magicmusicvideo #superstitious #sscd #softrock

Physical Therapy failed when I went out in public for once and made the waitress change our seat 3 times because of over-stimulation. I need to invest in professional ear plugs to drown out the noise of people constantly talking which left me really dizzy. #defeatdizziness #sscd #scd #sscdawareness #physicaltherapy #vertigo #dizzy #vestibular #vestibulardisorder #health #VEDA #superiorsemicircularcanaldehiscence #medical #fashion #film #documentary #migraine #photography #ambassador #awareness #strength #smile #brainsurgery

I don't think people realize how bad I can get with my speech and cognition. I have had worst days where I just don't bother talking because What I want to say does not come out. #sscd #scd #sscdawareness #vestibular #vestibulardisorders #brain #vertigo #defeatdizziness #photographer #film #document #physicaltherapy #surgery #tgif #fashion #migraine

What's that up in the sky? Is it a bird? Is it a plane? No! It's my brand new album! What's it doing up in the sky you ask? Good question. Either way, it's making a clean landing this Saturday, November 11th, along with the newest MAGIC music video, directed by @adamchinoy of @greengeckofilms - Keep a lookout! In the meantime, click the link in my bio to see the promo video! #sscd #schoolyard #sidewalkchalk #chalkdust #daydreams #newmusicvideo #magicmusicvideo #newalbum #conceptalbum #artatitsfinest

Severe exhaustion is a common symptom of SSCD and other vestibular disorders. Your brain is constantly working overtime, full-time hours in a mater of minutes in people with vestibular disorders in order to keep you balanced and help you maintain your center of gravity. After 10 to 15 minutes of over stimulation whether it's walking or being around loud busy places, I'm ready to fall over and I can't even think straight anymore or answer simple questions . #sscd #scd #physicaltherapy #pt #vertigo #dizzy #barf #3am #vestibular #vestibulardisorder #health #superiorsemicircularcanaldehiscence #defeatdizziness #medical #fashion #film #document #exhausted #migraine

3am morning talks and worried about my PT. My vomiting reflex is really sensitive and awfully afraid to barf in public. Love how I slur my speech sometimes, another common symptom. Also when I can't sleep it is easier for me to sit up because staying in a lay down position after sleeping all night makes the entire room spin and makes me really sick. #sscd #scd #physicaltherapy #pt #vertigo #dizzy #barf #3am #vestibular #vestibulardisorder #health #superiorsemicircularcanaldehiscence #defeatdizziness #medical #fashion #film #document #migraine

Getting acclimated to my brain surgery at home and taking daily walks was not enough. I will need professional physical therapy for at least two months in rehab. My brain has not learned to rebalance itself. The older you are the longer it takes the brain to re function properly. The best way I can describe to people who do not understand SSCD is that i have symptoms of minor brain damage, even though I don't have brain damage. it takes the brain a while to relearn balance. It's a long road and in no way an easy recovery. #sscd #sscdawareness #scd #vestibular #vestibulardisorders #physicaltherapy #rehab #rehabilitation #recovery #brain #drunk #dizziness #vertigo

One of the most beautiful songs dedicated to the beautiful people who have been my amazing caregivers. I'm sorry I have made your lives a bit more difficult but you have been by my side through and through. Love you all for being there for me and making me laugh when I was down #wildflowers #tompetty #sea #nature #quotes #song #music #loveyou #caregiver #sscd #sscdawareness #vestibular #vestibulardisorders #awareness #lyrics #musician #guitar #photography #andrearamirezmaciolek

Not long now till this piece gets put on stage πŸ’ƒπŸΌ #SSCD #Dance #Duet #Dancer #StudioTime #Rehearsals #21stCentury

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