#spooniewarrior

MOST RECENT

Yesterday, I woke up with a terrible migraine that lasted the entire day and would not seem to let up 🙇🏻‍♀️ Today, I woke up feeling much better and excited to take on some of the tasks I wasn’t able to finish yesterday! 🙌🏻
.
It truly is nice to not have to worry about waking up early and wondering if I’m going to feel good enough to make it into the office. More on all of this to come in my next blog post, so keep an eye out 😉
.
.
.
#coffee #coffeelover #coffeeblogger #caffeinequeen #caffeineplease #chronicillness #chronicpain #chronicpainwarrior #chronicdisease #chroniclife #rsdcrps #potssyndrome #eds #invisibleillness #mycoplasma #fibromyalgia #spoonie #spoonielife #spooniewarrior #spooniesupport #spoonielove #spoonieblogger #blogger #bloggerlife #bloggerstyle #vegan #glutenfreevegan #crueltyfree #veganeats #glutenfree

Good morning! Selfie with Mr. Spike… Thank the good Lord for Snapchat filters LOL it is way too early for selfies 😂😳😝 #mrspikethecat #goodmorning #spooniewarrior #snapchat

Have you signed up to my 7 day yoga for sleep challenge yet?
Yoga and calming your mind before bed has been proven to help you drift to sleep easier, sleep more soundly and sleep for longer.
So why not give it a go?
Sign up via my website
The challenge shall be sent directly to your inbox on the 29th July with lots of goodies! 💛 A night time journal to print off. 💛 30 minute yoga in bed yoga practice. 💛 A meditation to print off and keep!
I definitely notice the difference in my sleep when I don’t carry out yoga before bed to ease aches and release the days tension from my mind. I would love for you all the join in and see the difference too 💛
#breatheandbe #spooniewarrior #meditation #myalgicencephalomyelitis #millionsmissing #cfsme #cfswarrior #spoonieyoga #yogainbed #yogachallenge #spoonie #yogamybedandme

😂😂😂 me all the time. Trying to talk to me sometimes is like playing a decipher challenge

This is so me 😂

Hiphei! 17.7.2018 tuli kauan odotettu päätös. Kahden ja puolen vuoden taistelu. Wuhuuu!!! #cfsme #mecfs #thoracicoutletsyndrome #fibromyalgia #migraine #adenomyosis #chronicpain #spooniewarrior #spoonielife

⚔️Give Talyc Rancor some love, eh!🔥This is my main go-to Cosplay since it is a costume that is a part of the incredible Mandalorian Mercs Costume Club! I feel so empowered whenever I’m Rancor and wear her as often as my body allows it. ⚔️Rancor is going to get a lot of upgrades within the next couple of months - Upgrades that are a loooong time overdue. Since making OM (official member) with the Mandalorian Mercs back in 2014, the armor barely has had any changes done to it. In fact, I’m pretty sure the only things I have changed was the kama and loincloth - Other than that, it’s stayed pretty much the same.💗When I think about it, the armor lasting this long without ever having to make constant repairs is really a testament to how sturdy this whole kit truly is. I’ve never even broken any piece of armor in my 4+ years being Rancor!😱And that helmet! It’s stayed strong and true - Even the internal fan system. I’ve even DROPPED the helmet (accidentally) in 2017 at SWCO and the only things that broken were a couple of teeth - And they were easy to fix.⚔️But yeah, Rancor is going to get an overhaul of upgrades such as; the knees, gauntlets, shoulder bells, gloves/glove armor, hose (attaches on the back of the helmet for MMCC CRL requirements), vest, flightsuit and boots. Bit don’t worry!!! I am keeping extremely close to the original design and won’t stray from this bone encased badass of an Early Crusader Mandalorian!⚔️ ♦️Helmet co-designed and built by @theironforge. Armor handmade/sculpted/painted my me. Axe made by @rancorpitforge♦️ #mando #mandos #mandomerc #mandomercs #mandalorianmercs #mandalorianmerc #mandalorian #mandalorians #mandalorianarmor #mandalorianhelmet #starwars #starwarsfan #starwarsgeek #starwarsgirl #starwarscosplay #cosplay #cosplaying #cosplayer #cosplayers #cosplayersofinstagram #cosplayergirls #cosplaygirl #cosplaygirls #craftyourfandom #spooniecosplayer #spoonie #spoonielife #spooniewarrior

This is how I feel today! Some days are like this and that's OK. I have already gone through the million and one things that I want to do after work today but my body is telling me no! All I have to concentrate on today is existing and that's OK. Nothing I feel I need to do is so important that it can't wait. My health and healing can't wait and that's what needs to take priority. We all worry about having time to do things as the great @zeenathypnotherapy once told me; there is always time. Somehow these things get done. We just need to relax, go with it and what will be will be. Don't waste energy on worrying about things that you can't change! 😊

#cfsme #chronicillnessawareness #chronicfatiguesyndrome #chronicillnesswarrior #chronicillness #tired #spoon #spooniewarrior #selfcare #selflove #relax #mindful #meditation #invisibleillness #invisibleillnessawareness #butyoudontlooksick #bed #stressaway #motivationalquotes #anxiety #mentalhealth #love #metime

When your favorite nurse (and the ONLY nurse ever who can get blood without wounding you) wasn’t scheduled to do your blood draw.💉
.
The phlebotomist gave it a valiant try - but my veins are very small and move around a lot - or so I’ve been told.
.
She was eventually able to tap the only vein available and get a tube of blood, but not before having to move the needle back and fourth in my arm for quite a while.
.
The bruise actually extends out beyond what is visible here, and it has been making my arm and fingers feel a little *off* when I try to type.
.
Lesson learned. I’ll be sure to ask for my BRNF (Best RN Forever) next time.
.
Also, I think that first sentence is the most #Spoonie thing I’ve ever said. Who else out here in the #SpoonieCommunity has a “Favorite Nurse”? 💉💉💉

Changing the way you think about things is immensely powerful. Don't believe me - go try it for yourself!⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
-⠀⠀⠀⠀⠀⠀⠀⠀⠀
Sent via @planoly #planoly#fibrowarrior #fibromyalgia #fibro #chronicfatiguesyndrome #chronicfatigue #spoonies #spoonielife #spoonieproblems #hashimoto #hashimotos #hashimotosdisease #autoimmune #autoimmunity #flareup #invisibleillness #sickandtired #sickandtiredofbeingsickandtired #sickandtiredofbeingsick #spoonie #spoons #fms #invisibleillness #spooniewarrior #depressionandanxiety #fatasses #fatty #fattygirl #fibromyalgiaawareness #chronicpain #chronicfatiguesyndrome

Don’t worry about the end goal being too big or scary. Just let yourself dream and then take one little step at a time.
#goals #babysteps #onestepatatime #lifegoal #intentions #notjustsurviving

Do you ever feel like a wash of yourself? Like you used up all your mojo and you’re just left with this empty shell-thing? I’m having one of those days. I’m fine, but after a couple days dealing with very intense pharmaceutical withdrawal symptoms from fibromyalgia meds I feel like a mere echo of me... Eeee. (Heh.)

I’m hopefully replacing the pills with THCA, a cannabinoid from the cannabis plant. It’s non-psychoactive and is especially good for nerve pain, which is perfect for all-day fibro medicating. A couple of coworkers who also fight chronic pain/illness swear by it, I’m hoping it’ll have long-term healing effects as well as taking the edge of the pain, as it is already. Yay for cannabis! (And also for popcorn.) G’nighty night 😘

Chronic illness can be discouraging in times. I'm grateful I don't have to dredge up my own hope.
#spooniewarrior #hashimotos #chronicfatigue #adrenalfatigue

It was quite an eventful evening... and or course it had to be my middle finger 😉

I started preparing my dinner at 4:00 as usual and about 5 minutes later my mom hears a yelp/gasp and knows something must be going on.
I was cutting a cantaloupe and had slipped and cut my middle finger full force. When she came into the kitchen I was standing over the sink and pinching off the blood to my finger.
After she saw it and it was bleeding all over (I let go so she could see it) she drove me over to urgent care.
Usually there is a really long wait but it was almost empty tonight.
I got in, got weights, my blood pressure and all that stuff. (I must say places should have a cuff between baby and the typical adult one because that one makes my arm have bruises - this time it looks like an ❗️) The doctor came in and looked at it We informed her of my EDS and she said she had never heard of it.
She left to get stuff to clean it out (and I think she looked EDS up, which I really appreciate because usually doctors who you are going to see only once don’t know what it is and don’t even take the time to look). When she started cleaning the blood started rushing out and I got a bit faint so I laid down before I fainted 👍. After the cleaning she tried pressure for a few minutes to stop the bleeding but there was no change.
She then grade a numbing agent which is also a type of vasoconstrictor in hope that it would stop the bleeding so it could be stitched.
When she came back after a few minutes the vasoconstriction had slowed the bleeding but not stoped it. She said that it was okay because she she didn’t want to stitch it because of keloid scaring.
So then she used steri strips reinforced by glue to close it up. And now no water on that finger for at least 8 days or until the strips fall off. (Typically I think it is 4-6 days but she said 8 to allow it to heal - this and the steri and glue instead of stitches makes me thing she quickly researched it)

Tomorrow is GI and Infectious Disease so 🤞that tomorrow we find a plan for my fever and my stomach.

Most Popular Instagram Hashtags