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#spooniewarrior

MOST RECENT

‼️A weekend reminder... when you rest you aren’t lazy! No no, when you rest you are giving your body chance to heal, it’s an investment. Everyone is praised and admired for their “busy behaviour”, but rarely so much for their ability to care for themselves, listen to their body and respect their limits. Don’t let that stop you in seeking healing, guilt free rest days because they are what’s important for your healing 💕💕 if you’d like a more permanent reminder you can now grab this postcard as part of the new care pack via link in bio 😊👍 #spoonievillage #healingdays #investinyourrest

I started this Instagram as a way to share pictures and stories of my wonderful boy, but also as a way to talk more about my illnesses. Although some of Impulse followers are friends and family, most are strangers that are part of the spoonie community. Where I have felt much more comfortable being honest about the daily struggles that comes with chronic illnesses I spent most of my life minimizing and hiding. The one illness I haven’t made public is my depression, because I feel the stigma around mental illness. But we need to end that stigma, mental illness is just like any other illness. So as scary as it feels to talk about, I’m going to.
I didn’t get out of bed today until 2pm. Not because of my #posturalorthostatictachycardiasyndrome or my #chronicfatiguesyndrome , but because of depression. I have been distraught over the latest mass shooting in FL. Last night I had a heartbreaking conversation with a family member who I truly love, about the power of faith vs action to stop these shootings. Today I couldn’t get out of bed 🛏. I couldn’t face the world in which we allow children to be murdered at school time and time again. I couldn’t face a Christian community that believes sending prayers is all they need to do. So I didn’t. I stayed in bed for hours. Finally got up and took this wonderful puppy for a walk in the snow ❄️, and I’m feeling better.
I’m not going to hide my depression any more. It’s just as big of a fight as my other illnesses. And the stigma needs to end around mental illness. #mentalillness #depression #servicedog #goldenretriever #spoonie #chronicillness #notalldisabilitiesarevisible #spooniewarrior #wedonthavetolivelikethis #wedonthavetodielikethis #christian #faith #dysautonomia #mentalhealthishealth #cfs #mecfs #wecandohardthings

Having a wonderful time at our Spoonie Collective Retreat at @zenomountainfarm! 📸: @amcrommett

Having a major life freak out about what i want to do with my life but plz enjoy this picture from the other night. Chronic illness can screw up life plans pretty badly but pretty sunsets and iced coffee seem to make things a lot better. Just tying to remind myself that it’s okay if i don’t have everything figured out by now 🙆🏼‍♀️
#Spoonie #ChronicIllness #InvisibleIllness #AutoImmune #Warrior #AntiPhospholipidSyndrome #UndifferentiatedConnectiveTissueDisease #GERD #POTS #OrthostaticHypotension #IST #MastCellActivationSyndrome #Raynauds #Potsie #Dysautonomia #Sick #DisabilityAwareness #StayStrong #SpoonieWarrior #SpoonieCommunity #SpooniesUnite #ButYouDontLookSick #Awareness #RareDisease #Advocate #LifeWithChronicIllness

On the set of The Dr Nandi Show. Talking about my health journey, cancer, and autoimmune disease. The show airs in September so be sure to tune in! #pinkfortitude #healthhero #spoonielife #spooniewarrior #cancerwarrior #fightwinsurvive #rockitlikearedhead #howtobearedhead #lightscameraaction

When my brain is this foggy I’m no so good with the elegant and coherent words. One sentence and 20 minutes later I bid you adieu as I crawl back into my cave.
Stay strong fellow spoonie as these are the times we need to rely upon our spoonie support network. Don’t be afraid to ask for help.
#spoonielife #spooniewarrior #spoonless #spooniesupporter #chronicillness #chronicpain #invisibleillness #chronicpancreatitis #pancreaticdivisum #jtube #feedingtube #fibromyalgia #fibrofighter #crankypanky

NEVER. This didn’t hit close to home. This hit home. My heart is with Parkland. ♡👼🏻🦅 #DouglasStrong

Adding silver leaf to my #ButterflyWingScalesNo47 Limited Edition Prints is always nerve wracking but also very satisfying (and sparkly!) #ButterflyWingScales #artvideo #ulyssesswallowtail #papilioulysses

He misses his brothers. I'm not sure how long to keep him separated while he heals. The operation was Wednesday and I was thinking he could go in with Odin on Monday? But not with the little ones because they're boisterous. Does anyone have any ideas? @rattie.love 🐀

#ratsofinstagram #ratsofig #rats #pets #petsofinstagram #petsofig #ratmum #loverats #ratlove #ratstagram #ratcommunity #ratagram #fancyrats #dumborat #rexrat
#spoonielife #spooniewarrior #spoonies #chronicillness #fibromyalgia #chronicfatigue #autoimmune #invisibleillness #multiplesclerosis #ms #spoonies #thingsthatmakemehappy
#petphoto #petphotography #petrat

Another moth Specimen! This one I made last year but he needed something more. So I added these copper leaf stars! 💚 #peridromeorbicularis #mothspecimenartwork #mothsofborneo

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