#spooniestrong

MOST RECENT

We tried @hellofresh for the first time tonight and the Creamy Dill Chicken was amaaaaaazing! My favorite part was that my husband cooked it up easy peasy and even made it look fancy ๐Ÿ˜ But also it tasted like a healthy version of Chick-fil-A chicken with extra pickles, my personal favorite ๐Ÿคค๐Ÿคค๐Ÿคค Looking forward to trying out the other two recipes we got this week!

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Working on a new art piece tonight ๐Ÿ–Œ๐Ÿ–‹
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P.S. DID YOU KNOW only 5% of Americans are naturally blonde? I literally just found that out. That's crazy! My parents were right again that I should just have loved my #naturalhaircolor a long time ago, but I will never regret all of the mermaid colors I experimented with for years! ๐Ÿ˜‹๐ŸŒˆ

My first IV since I got my port. So frustrating that the nurse gave me an IV because it was โ€œeasier.โ€ Itโ€™s in such a precarious spot too, so Iโ€™m generally crabby about it, but trying to make the best about being here again. Thankful that Iโ€™m able to have access to a healthcare system that many in the world do not. So Iโ€™m grateful even though today isnโ€™t the best of days. .
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#iv #hospital #hospitallife #ivparty #somuchforwinewednesday #stupidivspot #spoonie #spoonielife #spooniestrong #chronicillness

So I guess My Infusion + Burnout from The Last Week + Stress of Studying for my Calc and Bio Exams + Yesterday's TB test = Full Body Hives.
I thought they were stress hives at first, but as more popped up I realized I must be reacting to my TB test. Explains why my hives flared up yesterday. No reaction at the injection site, though. ๐Ÿ˜‚

I've never reacted to a TB test before and I just had one last year while I was first on Benlysta. Body, why you gotta start adding new things you're sensitive to?! ๐Ÿ˜ฅ

I stayed home from school today to rest, but still feel like I've had a full day. I'm ready to go back to sleep.

Ever think about what you would tell younger you if you had the chance?
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I would tell myself you are loved so much more than you realize, your worth isnโ€™t defined by the size of your jeans, your health is more important than the space you take up, and that even through it all, I was stronger than I believed.
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What would you tell yourself if you had the chance?
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#BetaClub #YouAreLoved #LetterToMyself #EffYourBeautyStandards #EmbraceYourself

All sweaty from a nice cardio workout.
๐Ÿ’œDepression is a mysterious disease. As much as we don't want to admit defeat, sometimes that is the only way to push ourselves to be better. Been battling a horrible fibro storm, which included depression. Depression doesn't leave, you have to work around it. My rheumatologist reminded me yesterday that the only way to feel better like I was, was to add in my workouts again. So today I REALLLY didn't want to BUT I DID it!!!๐Ÿ’œ #fibromyalgiawarrior #fighter #strong #fibronails #neverquit #depressionsucks #kickbutt #diet #workout #hearthealthy #bodystrong #onceyoudoit #feelbetter #elfyournails #strongersoon #spooniestrong #beamotivation #depressionwarrior #painwarrior #nevergiveup

What do you mean I can't play with plastic bags?! ๐Ÿ˜พ

๐ŸŒปThank You Warriors for Your Support! Youโ€™ve Helped me Fight Through these Battles with Your Beautiful Comments, Private Messages & Support for #LiveWithGuts Autoimmune Disease Foundation. ๐Ÿ‘Š๐Ÿผ๐Ÿ’œ๐Ÿ‘Š๐Ÿผ I Appreciate All My Warriors!!! Letโ€™s Keep Building Up Awareness, & Shine a Brighter Light on our Community of Spoonies ๐Ÿฅ„๐Ÿ’œ๐Ÿ™๐Ÿผ #LiveWithGuts ๐Ÿ‘Š๐ŸผOrder Bands Here ๐Ÿ“ฒโžก๏ธhttps://www.etsy.com/shop/LiveWithGuts? #LiveWithGuts #Warrior #spooniewarrior #warriorwednesday #Vibes #AutoimmuneAwareness #AutoimmuneDisease #AutoimmuneDisorder #autoimmuneillness #autoimmunewarrior #autoimmunediseases #autoimmunewellness #SpooniesUnite #Advocate #chronicillness #Spoonies #chronicillnesswarrior #Support #invisibleillness #Blessed #invisibledisease #invisibleillnessawareness #PutOnPurple #Bands #Latina #SpoonieStrong #ThankYou #Vibes #๐Ÿ’œ #๐Ÿ‘Š๐Ÿผ ๐Ÿ“ท: @livewithguts1

YAS!! Just got my new @bearmattress set up on my brand new #adjustablebed base (an #amazon classic๐Ÿ˜‰) It feels soooooo #squishy ๐Ÿค— As a #zebrawarrior #spoonie I'm looking forward to #sleeping without a coil stabbing me in the hip or kidney๐Ÿ˜ฑ as I've been sleeping on a #futon with a used mattress for 4 years! If you want a #bearmattress of your own, visit the link in my bio! I'll be posting #updates on how I'm sleeping as well. .
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#chiarimalformation #ehlersdanlossyndrome #zebrastrong #SMAS #chronicpain #comfy #spooniestrong #eds #chiari #chiarian #chiariawareness #chiaristrong #chiariwarrior #chiarilife #spooniewarrior #spooniefamily #spoonielife #spoonieproblems #ehlersdanlos
http://772bearmattress.refr.cc/brendas

Yeah ...I drew that. Me the girl with NO artistic ability....well drawing wise...eyeliner is a little bit different from flowersโ™ฅ

Day 10 of #21daysofbellydance with @thebellydancebundle ๐Ÿ’ƒ

For me to be able to dance, there has to be so many things in place. By the time I get to dance, I am exhausted. ๐Ÿ’™

The floor has to be clean.
My son has to be occupied or his dad watching him.
Phones have to be charged and working.
Pain at manageable levels.
Energy at manageable levels.
Temperature inside the house has to be a level that won't make me go into dehydration quickly or worsen my symptoms.
I have to have eaten something but not too close to dance time, or my sugars drop.
The right song on for mood or healing practice.... because I didn't have Spotify Premium until last night ๐Ÿ˜… so I could not press repeat to redo the moves or recall the song/artist name.
If one thing goes bump, then it throws everything off course and takes the fun out of it or ends up making me more anxious, which is one of the things dance helps me with. Makes it redundant. Things would be much simpler if I had a dedicated space for dance, but that is just not doable at the moment. I still make it work though. Dance heals me in so many ways, I owe it to myself to seek my medicine. ๐Ÿ’š

There are always obstacles in the way. But if something makes you happy, gives you passion, and you love it, nothing will stop you. ๐Ÿงก ๐ŸŽต T'bel Solo by Nour Eddine Fatty
#dancepractice #dancetherapy #movementmedicine #dancechallenge #bellydancing #shimmy #bellydancer #bellydance #donthatetheshake #mentalhealth #selfcare #healing #spoonie #spoonieproblems #spooniestrong #chronicpain #invisibleillness #medicine #obstacles #keepgoing #yougotthis #danza #baila

The American Migraine Foundation works tirelessly to support migraine research and provide patient-centered programs to close treatment gaps. Learn more about AMF's commitment to patients with migraine at the link in bio.

So I'm doing this routine with higher frequency but less volume and my body doesn't seem to mind which is a freaking miracle!!!!

Dudes I'm so fckn serious ๐ŸŒธ
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Have you noticed how most people treat life like it's primarily about decay, about heading back to the dirt...? ๐ŸŒฑ I DON'T feel that way after my 17 + years of suffering from severe rheumatoid arthritis. ๐Ÿšซ The way I see it, we are all flowers constantly seeking to bloom, only desiring to blossom, but always forgetting how or even that it is possible at all ๐Ÿค”๐Ÿ’ฅ๐ŸŒป
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BUT IT IS POSSIBLE ๐Ÿ˜ฝ I promise to do my best to share what I've learned along the way, because I'm becoming the example of healing that I always sought out to witness ๐Ÿ’ชโ˜บ๐Ÿฆ‹๐Ÿ’•
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๐Ÿค— I think this is going to be the name of one of my first books. ๐Ÿ“š
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P.S. Fuck MLMs or anything of the like, my healing and speaking about it is not a welcome mat for your sales or spam so ๐Ÿ‘‰๐Ÿค๐Ÿ—ฃ๐Ÿšซ
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๐Ÿ’œ๐Ÿ˜๐Ÿ’ƒ๐Ÿ›๐Ÿฆ‹๐ŸŒž๐Ÿ’œ

News flash! Cannabis has LOTS of health benefits! I know you're ready to feel better! ๐Ÿค”๐ŸŒฑ๐Ÿค—

The world is not made for people with disabilities. There have been huge steps in the right direction over the past few decades, but generally speaking, the world isnโ€™t made for us. The education system is based on the ability to hear, see, and comprehend material, then recall that information to determine if you are learning it. Stores and restaurants are designed for ambulatory individuals, often without room for mobility aids or medical devices. And society as a whole still stigmatizes and discriminates against people with disabilities
As Iโ€™ve relied on my wheelchair in public more often, Iโ€™ve noticed that societyโ€™s stigmas on people with disabilities has created internalized ableism within myself. I put unrealistic and unreasonable expectations on myself to interact (socially and physically) in the conventional ways that society says I should. I apologize for my wheelchair or service dog taking up more space. I apologize for dropping things or bumping into clothing racks. I apologize for needing accommodations at school and work. But, Iโ€™m not shameful or worth any less, simply because I need more help or I take up a bit more space than the average person
Iโ€™m un-learning that my needs are less valid. Iโ€™m un-learning that my body is shameful just because it works or looks differently. Iโ€™m learning that I donโ€™t have to conform to societyโ€™s expectations just because my abilities are different. Iโ€™m learning to live unapologetically in my body
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ID: picture of Natalie sitting in her wheelchair. She is wearing a red and white stripped shirt with black pants. She is in a dressing room with white walls and a blue seat behind her.

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