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#spooniestrong

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It's such a ruff life with golden retrievers...πŸ˜‰πŸ˜‚ Percie and some of her siblings/half-siblings had a little pool party today! It was awesome to see some of her littermates all grown up and also some of @truemagic_goldenretrievers other pups. SWIPE⏩to see more pics and a video of pure happiness 🌞 [first pic, l to r: Bourbon (Harborview Fancy x Audit), Wrigley (True Magic Diamond x Sanmann's Archie), Rookie and Percie (True Magic Diamond x Harborview Clooney.) 2nd pic; Harlow, Rookie, P, Bourbon, Wrigley. 3rd: video of dogs in pool, P jumps in to get ball. 4th: Rookie and PP, all grown up!]

Please keep our sweet friend Aliyah in your prayers.
She just had her heart cath done yesterday and they are back in the ER tonight.
Her next big heart surgery is July 10, the Fontan. β€’
We only have 4 more items left on our Amazon Wishlist for her HeartPack, please help purchase an item if you can. Link is in our bio. ❀️
(Pick the shipping address with the name McKenna Rodriguez) β€’
http://a.co/a1bD4M4

Thank you @crazycrohnie for being so open and honest about your journey with chronic illness. By sharing your story, you give hope and strength to others -- that's something we can get behind! πŸ’ͺ🏽
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"I've had such a busy 24 hours. Yesterday morning I had a endoscopy which was looking good, they don't think I have Gastroduodenal which is great but my docs have not got the full results yet. Then in the afternoon I got a small bowel MRI which wasn't as good, its shows I have active angry Crohns with lots of dilation, thickening and general blurgh-ness. So the plan was to start the new biological treatment this week as there's nothing else they can do to treat my Crohns but me being me has developed sepsis from my central line. So I'm on triple therapy antibiotics for 7-10 days and the line came out yesterday. But now that means I can't start the treatment for my Crohns till that's all cleared so until that's gone I can't do anything for my Crohns which sucks and leaves me feeling so vulnerable because of how quickly my Crohns can become out of control. Today though I went down to theatre and had a Hickman line placed so that makes things a lil easier. But anything that could have went wrong has went wrong. The staff have been amazing though and so supportive and surprised at how complicated I'm and how I don't follow the textbooks or the norm πŸ˜‚ Try 10 years of this! I've gotta keep positive though, once I've kicked this sepsis butt I can start this new treatment and hopefully finally get some rest πŸ’ͺπŸ»πŸ’œ"
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#crohns #crohnsdisease #crohnie #chronicillness #ibd #inflammatoryboweldisease #invisibleillness #ileostomy #stoma #surgery #autoimmunedisease #hospital #chronicillnesswarrior #chronicillnessawareness #crohnsawareness #spoonie #spoonielife #spooniestrong #shareyourstory

I've been on prep since March, but this is the first check-in photo I've shared. Why? Because just like every other woman I'm insecure. I constantly think I'm not good enough to compete in bodybuilding.
But when I sent this photo to my coach, for the first time ever, I thought "damn, i might actually be getting there." 7 more weeks to go!

THIS JUST IN... I'm going to be interviewed live on air tomorrow on Channel 9 Australia's morning show, 'Today'... presumably in the news segment.
I'll be speaking about my impending journey to America to seek medicinal cannabis to treat severe neuropathic pain & how, despite it now being legal in Australia, myself & many other patients are finding it impossible to gain access to this medicine.
How did I even get here? πŸ€”
I've never appeared on TV before, I'm usually the one BEHIND the camera asking OTHER people to do the things.
Wish me luck you guys. 😬🀞
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#ChronicPain #Dysautonomia #ChronicallyIll #Spoonie #ChronicIllness #Spoonies #SpoonieLife #POTS #SpoonieStrong #SpoonieProblems #SpooniespSupport #SpreadAwareness #Fibromyalgia #FibroWarrior #InvisibleIllness #EhlersDanlosSyndrome #EDS #Disabled #InvisibleDisability #EhlersDanlos #CFS #ChronicFatigue #InvisibleIllnessFighter #RareDisease #RareIllness #RareDiseases #InvisibleDisease #ChronicallyFabulous #ChronicallyAwesome

My name is DW. I haven't eaten meat or had any dairy in over a year. I have chronic illness and an autoimmune disease. I am not just surviving, I am THRIVING, y'all. You can too. Drop any questions below. 🀘🏼✨

Tell me this isn't the life - I won't believe you β›° #choosehappiness #ilovecharlottesville

i have so much gratitude today.
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#ehlersdanlossyndrome #vascularehlersdanlos #spooniestrong

Hello hi I've been a very sick bean but I'm hoping that soon I will be a less-sick bean. The last 2 weeks I've been in hospital and doubled my antidepressants and my anxiety has subsequently been through the roof and I've slept for most of most days but look at me here being cute after going on a slow short walk around the block πŸ’ͺπŸ’• having a chronic illness is bullshit but I'm still here and still kicking 🌟 most of this outfit is #thrifted

MOST RECENT

Are any of my instagram friends on Steam? DM me! Props if you use Discord too!
Gaming is one of my BIGGEST coping mechanisms for not only my chronic pain but also my mental illnesses. Sadly my gaming PC has died and I have an alright laptop. I may not be able to play as hard as I did before but I found other types of games I really enjoy that don't take up too much energy. Right now I'm on RPGs, pixel graphic adventure/strategy, and city builders. Since those are all my laptop can handle. .
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FOOD:
#vegan
FIBROMYALGIA:
#fibromyalgia #chronicpain #chronicfatigue #autoimmunedisease #disabled #disability #spoonie #spoonielife #spooniestrong #spoonieblogger #chronicpainwarrior #chronicillness #chronicallyill #invisibleillness #endometriosis
MENTAL HEALTH:
#depression #ptsd #bipolar #anxiety #mentalillness #mentalhealth
EXTRA:
#nonbinary #tourettes #tourettessyndrome #copingmechanism #gaming #steam #gamer #PC

I got to see Brooklyn again today and met another Brooklyn (@brooklynsbattle) with Sydney! We also went and saw Roxanne for a visit! ( @roxanne.brk )πŸ’—πŸŽ—

I've been on prep since March, but this is the first check-in photo I've shared. Why? Because just like every other woman I'm insecure. I constantly think I'm not good enough to compete in bodybuilding.
But when I sent this photo to my coach, for the first time ever, I thought "damn, i might actually be getting there." 7 more weeks to go!

ENG aka Nerve Conduction Test today. This is the third test I've had in the past few years. This one hurt like crazy!!! At one point the needle in my upper arm caused a strong spasm that made tears run down my cheeks. 😭 Each needle site is inflamed and painful. I should have rescheduled the test when I realized I was in a nasty flare. Thankfully the test shows that my carpal tunnel is still severe and I should probably have the surgery to correct it. I just keep putting it off because it's not as important as the other things I need... sigh. #spoonielife #spoonieproblems #cantaffordtobethissick #brokenbody #nerveconductionstudy #spooniestrong #ouch #icepacksfordays #myskinhurts #fibromyalgia #peoplehopetribe

I drove on the highway for the first time today AND I had a job interview! I was totally nervous but I think I did okay, we shall see πŸ€—πŸ€— #choosinghappiness #choosehappiness #bodypositive #bopo #cheesin

Smoothie bowls are kinda my thing right now. πŸ’πŸΌ #nobig I love them because they are quick to prepare and I can pack ALL the nutrients in. The more nutrients, the more energy I have. And I need energy because I'm a spoonie that wears many hats- teacher, health coach, cheerleader, runner, stepmom, babysitter, tutor, friend, girlfriend. I don't let fibromyalgia hold me back!!β €
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Smoothie base:β €
πŸ’™ 1 cup almond milkβ €
πŸ’™ 1/2 cup cauliflower riceβ €
πŸ’™ 1/2 cup blueberriesβ €
πŸ’™ 1 Tablespoon hemp seedsβ €
πŸ’™ 1 Tablespoon peanut butterβ €
πŸ’™ 1 scoop vanilla @usanainc protein powderβ €
-β €
-β €
I topped mine with more blueberries, granola, hemp seeds, peanut butter, coconut, dried cranberries, and a sprinkling of @usanainc probiotics. 😊
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#eattherainbow #primaryfood #iinhealthcoach #usanalifestyle #lusciouslifedesign #lusciousliving #fibrowarrior #spooniestrong #smoothiebowl #smoothie #energyboost #superfood #proteinpowder #probiotics #phytonutrients #antiinflammatorydiet

So...I'm still feeling the effects of the big move and I'm finding it hard to keep up with everything that I was doing prior to moving. Everything just seems pretty overwhelming, and I'm finding it hard to keep up with the runnings of the support group, my daily walks, eating well, contacting friends, just most things on top of my health tbh! Trying to remind myself that I'm coming out the other side of months of stress and pushing myself physically and mentally and right now I need to focus on day by day, my health, and prioritise what absolutely needs doing and deadlines for doing things. I know I'll get back into the swing of things soon, and I'll find my own new pace in my new town, but for now I'm feeling exhausted, in massive pain and a bit broken. (And that's okay and completely normal and it will get easier to handle)
Saying all that, here's a photo from the weekend where I managed to put on a full face of makeup and go to a local fair with some of james' family for a couple of hours.

Things that have been helping:
β€’ Headspace/mindfulness in everything I do β€’ Yoga in the back yard every morning after breakfast β€’ Compassion for myself and everyone around me β€’ Podcasts/Netflix β€’ My loved ones πŸ’œ

Sending everyone love, and hope you're all doing as well as possible!✨
#spoonie #spoonielife #spooniestrong #spooniesisters #spooniecommunity #chronicpain #chronicillness #fms #fibromyalgia #fibrowarrior #connectivetissuedisease #butyoudontlooksick #sickgirl #sickgirlproblems #invisibleillness #invisibledisability #becomingvisible #disability #selflove #selfcare #selfsoothing #selfcompassion #mindfulness #mindfulliving #headspace #mentalhealth

Shepherds pie was a fan favorite at my house growing up 😊 it's a comfort food when I'm not feeling good now. This vegan shepherd's pie is fabulous (even though I accidentally used vanilla almond milk in the potatoes πŸ˜‚)

Oh my god.. i am so incredibly lucky to be part of such an amazing, kind, loving and caring community of #endosisters πŸ˜πŸŽ—πŸ’› I cant even believe the response from my last post!! Like im totally overwhelmed, my eyes have been welling up with tears non stop reading comments and your journeys, i appreciate every single one of you (50 and counting) who left a comment or who DMd me, your support means so much and its brightened up a really shitty day! Im so thankful and grateful for all of you strong amazing women coz i honestly dont know where id be without you all πŸ’›πŸ’›πŸ’› I now know im not alone, there are so many of us have been dismissed and treated so badly, its just not fucking fair 😑 and frankly im pissed coz none of us deserve this! Every single woman ive spoken to has all said the exact same thing about being treated unfairly, dismissed, being made to feel like were crazy or drug seekers when in reality all we want is some compassion and relief πŸ˜• its fucking heartbreaking to know just how many of you have been in the same situation as i was today coz none of us should ever EVER have to go through that πŸ˜žπŸ’” totally unacceptable, when are these docs gonna take notice of us?! πŸ˜’πŸ˜‘ Pain wise its eased up a little due to the massive amount of meds i took πŸ˜• i feel very feverish, weak and just horrible but at least it has eased up πŸ˜… ill go to see my gp tomorrow with my mam and hopefully we can get some proper treatment sorted out πŸŽ—

Lots of love and hugs πŸ˜˜πŸŽ—πŸ’› im here for any of you who need to talk, my DMs are always open πŸ˜‹β€ #endometriosisawareness #endometriosis #endostrong #endowarrior #fightlikeagirl #adhesions #migraines #interstitialcystitis #eupd #gastritis #fibromyalgia #borderlinepersonalitydisorder #mentallyill #weareallison #chronicpain #chronicillness #chronicfatigue #chronicpainwarrior #pelvicpain #spoonie #spooniestrong #sickandtired #invisibleillness #butyoudontlooksick #sickgirl #borderlinepersonality #mentalillnessawareness #chronicpelvicpain

Starting a new YouTube series of wheelchair adventures! Breaking the stigma of wheelchair users, enjoying the freedom that my chair gives me, and vlogging bits and pieces of my new day. Here we are on a little evening st(roll) at the beach. Shout out to dad for being an A+ wheelchair wheeler, as always ✌ link to video and my channel in bio!!
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#spoonie #spoonielife #spooniestrong #chronicillness #chronicpain #myalgicencephalomyelitis #mentalillness #mentalhealth #recovery #chronicfatigue #wheelchair

One day it will be bearable
You might wake up one day with a little less pain than the day before
A little better pain management, A medication that works,
A diet that suits you,
Or an exercise routine that's actually tolerable.
It may be a subtle change,
You may not even notice at first
But a step in the right direction is a step worth taking to live a bearable day! #objectsinmirrorarecloserthantheyappear #honestawareness #bearable #awareness #stayingstrong #invisibleillness #chronicillness #illness #inspiration #spoonie #spooniestrong #pots #posturalorthostatictachychardiasyndrome #mastcelldisease #migraines #kidneydisease #fibromyalgia #chronicpain #chronicfatiguesyndrome #restlesslegsyndrome #crohns #irritablebowelsyndrome #inpain #stillstrong #yougotthis #live

After weeks of travel and adventure πŸ’“βœˆοΈ filled with late nights and early mornings, sometimes a quiet night of hotel cable and corner store beer with my travel cuddle buddy- πŸ’•πŸ˜ is what the spoon gods ordered. Best part, it's made complete with a Vegan pizza (There's a place here that delivers!!!!!!Right to the room!!!! With 'cheese' and 'burger' crumbles!!!! I'm still in shock!!!!)- fellow Vegans will understand how rare it is to find amazing pizza easily and at your door in less than 30 minutes. It's basically a miracle. πŸ»πŸ•πŸ•πŸ•πŸ™#blessed [#datenightin #pizza #pizzaslut #vegansofig #veganshare #veganpizza #hotellife #vegantips #veganstruggles #thisiswhatveganseat #thisiswhatveganslooklike #adventures #travel #spooniestrong #spoonie #selfcare #lupusawareness #lupussucks #spoonievegan #wandering #instabeer #elephantlover #veganjunkfood #vegangirl #veganthings #spoonday #savingspoonsforlater #savingspoons #bestofvegan ]

*volume* The 23 year old physical therapy assistant that works with me always makes me smile. πŸ’œThey are all so upbeat & optimistic. It is healing to my soul. #physicaltherapy #pt #osteoarthritis #fibromyalgia #spooniestrong #motivation #spoonie #spoonies #spoonielife #healing #nourishmentformysoul #fibromyalgiawarrior #chronicpain #chronicpainwarrior

l'habit ne fait pas le moine... It is not possible to judge things by external appearances alone; you can't judge a book by its cover.

#ChooseJoy because when treatments work celebration can feel scary. Because laughter isn't always the best medicine, but it is sometimes the only medicine without side effects. Because time spent with friends and family is precious no matter where you are (even the infusion center). #itsthelittlethings that can change you from "patient" to "patience" and "hopeless" to "hopeful." Let's celebrate every second; every minute, every laugh, tear, and triumph, of every day.

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