#spooniestrong

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Heartbroken to hear about the news of Emily Janelle.
After almost 2 years of being cancer free, yesterday they learned that Emily relapsed with brain cancer.
Emily was one of the first kids BH ever sent a blanket to, this picture (swipe to see) was taken over 2 years ago.
Please keep this amazing girl and her family in your thoughts and prayers as they embark on this journey once more.πŸŽ—β€οΈ

Hey! πŸŒŸπŸ‘‹ I'm feeling so much happier than I have been in... months. New antidepressants are working βœ… pain finally being managed by an amazing pain specialist βœ… vascular illness under control and not flaring βœ… - I feel like I have room to finally ~breathe~ and take stock of the things around me, my world can expand outwards again. It's a roller coaster, chronic illness 🎒 and it's still not easy, and I'm still sick and probably always will be. But I'm going to enjoy this up for as long as it lasts! Shoutout to all my chronic illness warriors - you're amazingly strong human beings. Keep fighting!!! πŸ’ͺπŸ’ͺπŸ’ͺ

When you've got a few hours between prejudging and finals, but you still have other goals! Working on my final paper for grad school at a nearby coffee shop in full stage glam πŸ˜‚
Not feeling as confident about how I look today. Holding onto a lot of water. But there was one thing I could control. And that was to freaking pose my ass off! I walked onto that stage like I knew the Pro card was mine.
We'll see how it goes tonight. Either way I'm using these feelings as fuel for my improvement season. Next time I step on stage, there is going to be no doubt first place is mine πŸ’ͺ🏼

I often feel uneasy about posting photos of myself and it's especially strong with this one. Why? Because I look so well. That might sound strange to some of you, but it feels very vulnerable when you're sick but often look so healthy. Taking these photos I was having typical Babesia hot flushes and chills, I felt like I was going to throw up, my hands were numb and I was dealing with nerve pain. I'm not telling you this for sympathy. These aren't unusual things for me to experience and I'm very used to dealing with all my hidden symptoms. I am not my illness and I have always refused to be defined by it. I am a twenty-something year old creative, photo lover, glass half full girl who used to study fashion. I like to use this space to hopefully make someones day a little brighter. Unfortunately so many people just like me feel judged and are unfortunately judged by how they look or what they post. We can be seen as too young or too pretty to be sick, if you smile it means what's going on inside can't be that bad. Post highlights from your life and suddenly it's all perfect, surely if you post that way you can't be that sick? These aren't everyones views as I know from the kindness so many of you show me but they are opinions of some. Society has taught us a twisted view on what sick looks like. Unfortunately sickness never discriminates against those with pretty faces, the young or those blessed with infectious smiles. #butyoudontlooksick is the most damaging statement I have heard multiple times since I've been ill which is why I'm determined to challenge people's views of what illness looks like. ✌🏻

Super glamorous shot from physical therapy yesterday πŸ™ƒ My PT is very happy with my progress - I've regained most of my range of motion (not particularly difficult thanks to EDS) and am off prescription painkillers πŸŽ‰ Most exciting of all, I'm cleared to drive starting Monday! Recovery is work, a fact I continually have to remind myself of, so I'm going to continue taking care of my body as best I can πŸ’ͺ🏼 #choosehappiness #recovery

She was thrilled that he knew "bang" (play dead). She also said I was her favorite of the day hee. Hero loved her.
#servicedogsofinstagram #servicedog #dogsofinstagram #disabled #spooniestrong #sickgirl #pots #hemiplegicmigraine #mobilitydog #gastroparesis #GP #potsie #disneyland @disney

Good Morning, Spoonies!!! What's everyone up to today?

Sneak peek πŸ’βœ¨πŸ‘€ #AWEcontemporary #AWEveryday

A #spoonie #flashbackfriday photo I never used during the last #YogawithSpoonies challenge I co-hostedπŸ’™πŸ₯„#yogainbed rules😜#beautyintransition πŸ‘Hope you join @tattooedyogimama @sleepysantosha @born2breathe @apomerbeatriz @thegoodspoonielife and myself Sept 1st - 7th for the next roundπŸ₯„πŸ’™#YogaWithSpoonies2 πŸ₯„πŸ’™Its the #YogaChallenge for everyBODYπŸ₯„We have @blueridgehemp sponsoring some #blueridgenation loveπŸ’™And @yeskis4king will be turning one lucky #spoonieyogi into ArtπŸ˜œπŸ™πŸΌπŸ’™Along with some special goodies from @mudramuttzdoga @born2breathe & @sleepysantosha πŸ₯„πŸ˜ŠIt's going to be a yummy challenge indeedπŸ₯„πŸ’™See flyer for details on joining usπŸ₯„Much Love & SpoonsπŸ₯„πŸ™πŸΌπŸ˜Š#yoga #septemberyogachallenge #igyogachallenge #igyogafam #spooniesupport #spooniesunite #spooniefamily #spooniesisters #yogaforall #yogaforeverybody #yogachallenges #fbf #spooniestrong #chronicillness #chronicillnesswarrior

MOST RECENT

🎳 Me at the Footprints Across the World "strike out stigma" bowling event 🎳 I'm a Footprints Ambassador!!! 🎳 in total we raised $300 for Maryvale Mental Health tonight 🎳 @footprintsacrosstheworldx #charity #ambassador #footprintsacrosstheworld #bowling #spoonie #spoonieprincess #spooniestrong #chroniclungdisease #ptsdsurvivor #ptsdrecovery #servicedoghandler #bowlingalley

When you hear "17 fell!" and you realize...I'M 17 (room 817)...I'M the patient...I'M the fall risk...I'M legit unable to walk on my own right now. Reality about all of this begins to set in all over again...
#iwillsurvive #iwillsurvivethis #flareup #autoimmunedisorder #myelopathy #chronicillness #chronicpain #inthehospital #butyoudontlooksick #fall #spoonie #spooniestrong #overcomer #zebrastrong #onedayatatime

Sorry for being kinda inactive, my brother is moving out and we are helping so its been busy!
Health wise, i feel like im going back to 2010πŸ˜‚. I got another sinus infection my PCP gave us antibiotics and the next day we called back because i got alot worse so he prescribed steroids (I typically need both to get rid of a sinus infection) after 5 days i was still getting worse so we went to urgent care and they changed the antibiotics another 5 days later i was still sick so my PCP changed the antibiotics again and i have a MRI on Friday. I've been on these antibiotics for 3 days and dont feel much better. PCP recommend a ENT but all my ENT's said they did their job (2 sinus surgeries in the past) so im going back to my Pulmonologist who deals with a lot CF patients next month. He was able to help when i was young, luckily my asthma is still at bay with thisπŸ‘πŸ½
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#sinus #sick #spoonie #spooniestrong #tmnt #red #love #strong #brave #bebrave #chronicillness #spoons #illness #pain #awareness

Help meeeeeee 😫

Yo Insta. I didn't forget about you or my 365. I took a tiny break. Lots of things going on and stress. My chronic illness has become a priority, amongst a lot of job stuff (both of them). But I will catch up everything I missed! Promise. :) working on myself. Slowly. .
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#girlswithpiercings #girlswithtattoos #girlswithfibro #legitpiercings #septumout #septum #lebret #chesttattoo #fibro #fibromyalgia #gastroparesis #chronicillnesswarrior #chronicillness #spoonie #spooniestrong #naturalhair #curlyhair #curlyhairdontcare #messyhairdontcare #selfcare #mentalhealth

When you've got a few hours between prejudging and finals, but you still have other goals! Working on my final paper for grad school at a nearby coffee shop in full stage glam πŸ˜‚
Not feeling as confident about how I look today. Holding onto a lot of water. But there was one thing I could control. And that was to freaking pose my ass off! I walked onto that stage like I knew the Pro card was mine.
We'll see how it goes tonight. Either way I'm using these feelings as fuel for my improvement season. Next time I step on stage, there is going to be no doubt first place is mine πŸ’ͺ🏼

Ready to leave for the Footprints Across the World Charity Bowling event ❀️#spooniestrong #spoonieprincess #chronicillness #chroniclungdisease #servicedoghandler #ptsdrecovery #ptsdsurvivor #ptsd #spoonie #needmorespoons

It's a high pain day but I'm determined to go make the Footprints Across the World Charity bowling night a success.... to make a long story short I'm wearing a knee brace and trying to make it less noticeable by hiding it under my kitty socks 🐱#spoonie #spoonieprobs #spoonieprincess #spooniestrong #kneebrace #anklebrace #kneesocks #cute #chronicillness #chroniclungdisease

Sometimes a decision to walk at Walmart instead of using the scooter leaves your body a mess for the next few days..... Despite the angry mast cells I was still able to take my meds (almost) on time, finish all of my work for the first week of classes, and text some friends! It's really hard struggling with both chronic illness flares and depression to look at the positive side of things but I'm hoping that sharing the little things I'm proud of with a kinda silly boomerang will help. Just trying another way to #buildaladder #dowhatyouthinkyoucantdoβ€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”β€”
#chronicillness #mentalillness #invisibleillness #mastcelldisease #mastcellactivationdisorder #mastcellactivationsyndrome #idiopathicintercranialhypertension #intercranialhypertension #pseudotumorcerebri #chronicmigraine #chronicfatigue #raredisease #disability #spoonie #spoonieproblems #spooniestrong #mentalhealthawareness #invisibleillnessawareness #rarediseaseawareness

I hope everyone tried to say 'bubbles' in an angry way. If you haven't I highly recommend it. You can't help but laugh. .
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#pma #selfcare #lol #makeup #makeuplook #makeuplover #muotd #beauty #wigs #distraction #getloud #bopo #bodyacceptance #effyourbeautystandards #bodypositive #choker #redlipstick #torontomua #spooniestrong #fibrowarrior #dressup

There's something green on my plate!!!!! I haven't had veggies in months and months, so this makes me so happy! Half a chicken breast, 1/4 cup rice and one baby marrow steamed to a pulp πŸ‘πŸ» it's been a very tough day, but I'm trying my best #IBS #undiagnosed #chronicallyill #chronicillness #chronicpain #diet #recovery #invisibleillness #dinner #food #spoonie #spooniestrong #spoonielife

Wishing you all a wonderful day!

Sneak peek πŸ’βœ¨πŸ‘€ #AWEcontemporary #AWEveryday

I have a few more metal ring splints ordered but my finger joints are all sporadically causing me problems so I also have athletic finger tape to help hold them in place. Looking...weird.

#spoonie #spooniestrong #heds #eds #edsringsplints #ringsplints #edszebra #ehlersdanlossyndrome #ehlersdanlos #hypermobilityeds #hypermobility #hypermobileeds #hypermobileehlersdanlos

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