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#spooniestrength

MOST RECENT

Plus side to having some jacked up ribs is I’m working muscle groups I’ve kinda let fall by the wayside. Today I worked shoulders as they have me feeling very little strain on my ribs...and I got those babies POPPING. Now I’m at work and my bra straps are hanging on for dear life, lol.
#barbellsquad #gwpl #liftlikeagrrrl #shoulderworkout #traps #spooniestrength #spoonie #ehlersdanlos #lupus #behcets #fibro #gotspoons #chronicpain #chronicillness #powerlifting #powerliftingchicks #momswholift #upliftandliftheavy #effyourfitspo

With M.E. after your body excerts itself by doing something that takes alot of your strength like going on holiday or to school or maybe being stressed out it does something called payback. It has a proper name but most people with it call it payback. Its hard to explain but basically your body needs to recover and get back to where you were. Everyone is individual who suffers from ME but when I have payback I get extremely fatigue, dizzy spells more often, stomach pain after eating meals, achey and stiff joints and pumping headaches amongst other things. I get these symptoms day to day anyway but with payback there severity increases. I found a link to a girl called Jess' blog who explains it much better (http://jesscfs.blogspot.co.uk/2013/05/payback.html?m=1) My body is in payback after the Paramore Concert so the next few weeks or months will be very chilled for me. Todays #sianiesyearofhappiness eventhough it seems small was painting my nails and making a hot chocolate to celebrate hitting my first milestone, 100 followers!!!! Thank you to everyone who is following me and joined in on the campaign so far, I'm so glad I'm able to raise awareness for invisible illnesses (mental and physical) this today made me really happy. Ending my day today snuggled in my very comfy dressing gown! Don't forget to post what makes you happy whether it's big or small, I'd love to see!!!!!!!

Yesterdays #sianiesyearofhappiness was one of the most amazing experiences, I went and saw my favourite band Paramore play live at Birmingham arena which was so surreal and such an amazing thing to be able to accomplish. My night was just spectacular and I couldn't have wished for a better way to start 2018. The first picture shows that somewhere there is always a positive, I suffer badly with heat intolerance so when I interally or outwardly get hot my cheeks turn a bright red along with other symptoms sometimes. Before the concert my cheeks came up and even though me and my Mum could have made that a massive negative we didn't. We laughed about how I looked like I was in Titanic with my windswept hair because I had to sit in front of the fan to keep cool #alwayslookforpositives

Sorry for the lack of posts. Between jaw surgery, work, Family and now THREE dislocated ribs (thanks #ehlersdanlossyndrome) I’ve been a bit short on spoons. But every day that I wake up is another day I’ve won. And you did, too. You got this ✌🏼💜🥄💪🏼
#spooniestrength #spoonie #spooniemom #gotspoons #health #grrrlarmy #momswholift #powerlifting #powerliftingchicks #lupus #behcets #fibro #trigeminalneuralgia #chronicpain #chronicillness #yougotthis

Thank goodness for my stubborn heart. This has been a difficult week where it would have been easy to fall into a puddle of self pity. Thankfully I was born with a stubborn heart which has always believed that positivity and a good attitude can help a situation be a little sweeter. I am so grateful for my support system who made this week possible. There is so much more to get through yet but no one can say I didn't fight like hell to overcome this disease. #jmstormquotes #jmstorm #favoritequote #wordsmith #wordsofwisdom #lemtrada #lemtradajourney #lemmie #imofficiallyalemmienow #chronicillnessfighter #chronicillnessawareness #chronicillness #invisibledisease #invisibleillness #invisibleillnessawarness #spoonie #spoonielife #spooniestrong #spooniestrength #multiplesclerosis #multiplesclerosisawareness #multiplesclerosiswarrior #imafighter #thankyousomuch #ibelieveinmagic #itsokaytohurtjustdontgiveup #iamapreexisitingcondition #iamwhataninvisibleillnesslookslike

You don't have to be "healthy" to be amazing 😉💪🏻 Source: unknown
#spoonie #spooniestrength #quote #inspiration #strong #motivation #disability #illness #chronicallyill #invisibleillness #servicedog

for the 9th January's #sianiesyearofhappiness I had my first lesson back in school. Because of my M.E. I'm not able to go to a mainstream so tutors who teach me subjects come to my home. I managed to have a lesson of 20 minutes which I'm happy about, it's the little things! For tea this evening I helped Mum make a lovely Cottage pie, I love cooking but haven't done it often recently so it was great to start again. It tasted yummy and the cheese topping was the best! Finishing my day chilling on the sofa before bed watching YouTube on the telly.

When the whole reason you had to have your jaw re-built was because too much prednisone ate away your bones, but now inflammation at the surgical sites isn’t allowing it to heal they put you on...more prednisone. This is a perfect example of the never ending cycle of #autoimmunedisease and #chronicillness. For now I’m still on a liquid diet so obviously not eating enough to lift heavy. I’ve been occupying time by doing light #dumbbellworkout each day until I have enough nourishment to get through a day. Stay strong spoonies!! ✌🏼💜🥄💪🏼
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#spooniestrength #spoonie #spooniemom #momswholift #powerlifting #powerliftingchicks #liftlikeagrrrl #grrrlarmy #notyourcompetition #effyourfitspo #prednisoneproblems #chronicpain #behcets #lupus #fibro #ehlersdanlos #trigeminalneuralgia

Had to have my entire jaw (upper and lower) grafted on Friday. So much bone loss due to years of #Prednisone was the probable cause. So it’s been soft foods and liquids. I made this brown rice and bean stew yesterday but I wasn’t quite ready for the “food” in it but it’s going down tonight! Probably my favorite recipe from Vegan Under Pressure! I added some vegan cheese and hot sauce because duh, lol. I cannot WAIT until I can CHEW though!

😂 just love these adorable cartoons by #catanacomics We push thru so much with our Spoonieness that I really forget how strong we are to even be able to do that. We have migraines, bladder pain & issues, stomach pain & issues, blood pressure issues, food sensitivities, noise sensitivities, excruciating & debilitating pain, muscle weakness, bone pain, etc., etc., etc... & we just get ourselves up & we go & deal with things even when we are at our absolute worse, should've stayed in bed or gone to the ER, state. We are just simply freakin' strong & amazing. My hat off to all my incredible #spooniefamily#this #sofunny #sotrue #spooniestrength #youareamazing #mytruth #myspoonielife #spoonie #myspooniejourney #chronicillness #chronicpain #chronicfatigue #truth #purpleness #invisibleillness 💜🌻🌷

I hope your New Years plans are more glamorous than post operative recovery but no matter what they are I hope 2018 brings you joy and spoons!

How is it every year I forget how busy Christmas is?! I seem to be balancing precariously between summoning energy to see people and sleeping. My pain has also flared badly and I have had to up my painkillers again 😕 I love this time of year but my body doesn’t at all 😣 Who else is struggling through the festive season? Sending spoons and gentle hugs 🦄💗🥄 #spoonie #spoonielife #spooniecommunity #spooniechristmas #christmasstruggles #festiveseason #chronicpain #painmanagement #painkillers #fibromyalgia #myalgicencephalomyelitis #chronicfatiguesyndrome #autoimmunedisease #chronicfatigue #CFS #ME #pushingthrough #outofspoons #noenergy #needanap #sleepfordays #spooniestrength #spoonielife #spooniesisters #invisibleillness #raiseawareness #hiddendisability #sickchick #spooniexmas2017

Surgery tomorrow. Kinda freaking out.
2018 goal: go a whole year without being operated on. Let’s do this!
#spooniestrength #spoonie #chronicpain #chronicillness #grrrlarmy #outofspoons #gettingnervous #prednisone #behcets #lupus #ehlersdanlos #fibro #gotspoons #chronicmigraine #trigeminalneuralgia

#Repost @fibromom11 (@get_repost)
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💓 if you get it, I know most of you relate.
Oh the life of a Spoonie... I admire those of you that choose to keep your head up when your able, I know how hard it can be to choose to find the positive when its so much easier to be negative.. Even when I know you have every right to be mad, you didn't choose this but here you are kickn ass ..even when you feel your losing,your winning. You are a warrior 👊 😘
#FIBROMOM #spoonielife #spooniepenpals #spooniepower #spooniestruggles #spooniestrength #chronicillnessdoesntdiscriminate #butyoudontlooksick #invisible #mentalhealth #mentalillness #spoonieyoutuber #positivequotes #reallife

💓 if you get it, I know most of you relate.
Oh the life of a Spoonie... I admire those of you that choose to keep your head up when your able, I know how hard it can be to choose to find the positive when its so much easier to be negative.. Even when I know you have every right to be mad, you didn't choose this but here you are kickn ass ..even when you feel your losing,your winning. You are a warrior 👊 😘
#FIBROMOM #spoonielife #spooniepenpals #spooniepower #spooniestruggles #spooniestrength #chronicillnessdoesntdiscriminate #butyoudontlooksick #invisible #mentalhealth #mentalillness #spoonieyoutuber #positivequotes #reallife

Merry Christmas one and all! It’s been a fun morning but this girl just didn’t want to postpone leg day!!! Squat it out!!
#spooniestrength #spoonie #chronicpain #chronicillness #powerliftingchicks #powerlifting #girlswhopowerlift #liftlikeagrrrl #legdaybitches #effyourfitspo #notyourcompetition #gwpl #christmasworkout #momswholift

Merry Christmas from our family to yours! May your joy and spoons be plentiful in the New Year ❤️

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