#spooniestrength

MOST RECENT

@melliemel784 here sharing a #waybackwednesday with you all from October 2017. Who trains outside in the middle of a cold October night? Someone suffering from an exacerbation in a hot gym (check the SWEAT! 😭🤣). I work with my trainer @buildingbeasts and he's always quick on his toes to help set me up for success in those types of situations. Just because I'm overheated, just because shit gets hard, just because I'm having pseudo flare its never an excuse for me to call it quits and go home. It just means I have to adapt. Go outside, cool off, but dont dare quit. Get the work done. 30 lbs down since then and grip a WHOLE lot stronger from this way of adapting.
#POWERLIFTINGSPOONIES #mswarrior
Repost @buildingbeasts (@get_repost)
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Fucking beast. Excuse my French. Hit two sets of 185x12 on the trap bar prior to this. Today was one of my best days as a trainer ever. Thank you everyone. @melliemel784
@apollongym
#fitness #fitnessmotivation #workout #exercise #fitfamily #gymmotivation #workoutmotivation #beast #beastmode #spooniestrength
#powerlifting #multiplesclerosis #chronicillness #spoonie #spooniefitness #spooniewarrior #spooniecommunity #autoimmune #chronicpain #autoimmunedisease #POTS #lymedisease #lupus #crohnsdisease #EDS #fibro #kidneydisease

Always give 100% of what you're capable of and you will have zero regrets. I don't care if you're not the strongest, the most athletic, or the most ripped person in the gym. Ask yourself, are you the hardest worker? If the answer is yes then you're doing it right. Continue working towards your goals Refuse to be outworked.
#POWERLIFTINGSPOONIES
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#spoonie #spooniestrength #spooniecommunity #powerlifting #EDS #mswarrior #warrior #POTS #pcos #kidneydisease #chicksthatlift #chronicillness #chronicpain #lymedisease #lupus #multiplesclerosis #pcos #zebradisease #cancer #invisibledisease #gymmotivation #gym #fitness #spoonielife #spooniefitness #spooniewarrior #makingmsmybitch #squat #bench #deadlift #chronicpain

You know you’re a #spoonie when the first thing you pack for a mini 3-day getaway is a massive bag just for your meds...and lucky me I’m having a terrible #behcetsdisease flare up right now so got two more prescriptions from the Emergency Room tonight...I will divide these up - keep a couple of each in a pill case that stays on me and the rest in a bag at the hotel. Because as we all know, every spoonie has to keep a “just-in-case” bag at all times. What is one of your spoonie travel hacks/tips??
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#spooniestrength #spoonieproblems #spooniemom #autoimmunedisease #invisibleillness #chronicpain #chronicillness #cbd #ehlersdanlos #fibromyalgia #lupus #trigeminalneuralgia #travel #familytime

YES ~ it is exactly what we gain. STRENGTH & then some. Prayers you’re all faring as best as you can. I’m being pulverized with the heat & humidity & then the cold from the ac. No winning in my neck of the woods but thankfully I have my comfy blankets, my booties for my feet, my fan, my heating supplies & my cooling supplies but I couldn’t make it without my pain med helping to take some of the edge off of the mind blowing pain. It is our immense strength of ALL that we are that keeps us fighting our way thru all our Spoonie madness. Take care of you 💪😊 #this #gainingstrength #spooniestrength #thruourspooniemadness #sotrue #spoonie #autoimmuneillness #truth #spooniefamily #autoimmunedisease #mytruth #myspoonielife #spoonieknows #purpleness #chronicness #invisibleillness #chronicchaos #chronicpain #weneedcures #butyoudontlooksick #chronicillness #spoonielife #spoonietruth 💜

It’s been a minute!! Between flares, a massive work project, toddler wrangling and trying to keep myself going, I had to kinda put social media on hold. It sure ain’t powerlifting, but sometimes a quick yoga break while working is what the body needs. Please ignore the swelling in my face. My #behcetsdisease is in full flare mode...my mouth ulcers are hella bad and have actually caused an infection by my trigeminal nerve...so while my dentist and my doctor figure out a plan of attack so as not to trigger my #trigeminalneuralgia I’m just nursing it with steroids and pain meds...and yoga to take my mind off! #oc4 #teamkarina #teamboth #yoga #autoimmunedisease #invisibleillness #chronicillness #chronicpain #spoonie #spooniestrength #spooniemom #keepgoing

Quite frankly one of my heroes, @10bigcat10
Talking about how he got kicked down and used it as an opportunity to grow and rebuild. He is a true #mswarrior ! We will be rooting for you in your upcoming competitions sir! Who says you cant have a #chronicillness and be #StrongAF ? Just peep this guy!
#POWERLIFTINGSPOONIES
#Repost @10bigcat10 (@get_repost)
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It’s been a while. Well, after the worst birthday imaginable in late February, sleepless weeks following, a quite serious MS relapse through March and the first few weeks of April, and enduring a strep/staph infection in my lower left leg for the duration of May, I am beginning to show signs of becoming someone who is stronger than I’ve ever been.
This time has been some of the hardest weeks/months of my life. They have grounded me, taught me, changed me, and given me the opportunity to show and improve upon my character. Managing more stress than I have ever had, without feeling in my arms, torso and legs, I continued to push myself and tried to stay as focussed as I could on my personal and physical growth.
I then woke up one morning unable to put pressure on my left leg. I ended up in the hospital, given an IV and was loaded up with antibiotics. I stayed overnight in the hospital for a week, had multiple unfortunate side effects to 8 different antibiotics, walked out of the hospital earlier than recommended, and spent the next few weeks recovering at home. I was forced off of my feet for 19 days.
I was humbled when I returned to training mid-May. Weights I was moving for 10-15 reps previously were feeling like difficult singles and doubles.
Now, some parts of life seem to be looking up; my MS symptoms are more manageable, the infection has cleared my system so I am on to basic wound care, and my strength is coming back with a vengeance at a 12 pound lower body weight.
Loss, of all kinds, is painful. I will relentlessly work to be a better version of myself in an effort to have the best life I can lead, filled with the people who mean most to me. #gg
#apemanstrong @apemanstrong @teamforsaken
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#spoonie #spooniestrength #spooniecommunity #squat #strength #powerlifting #autoimmune #invisibledisease

Who says you need to feel the bar to grip it? Shout to to this fierce warrior! Stay grinding girl! 💪

#Repost @barbellsxmyelin (@get_repost)
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Silver lining: my hands are still numb and thats probably what its just gonna be from now on, but you can still grip a bar even if you cant feel it and then when the calluses bust open u wont even notice lol. ill call it a win. If u can feel ur hands ur a cop
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#cancersurvivor #cancer #multiplesclerosis #mswarrior #potssyndrome #diabetes #chronicillness #autoimmune #autoimmunedisease #warrior #strongerthanourexcuses #kidneydisease #fitfam #fitness #healthy #igfitness #bodybuilding #powerlifting #chicksthatlift #girlswhopowerlift #powerliftingwomen #strongisbeautiful #spooniestrength #spoonielife #spoonie #spooniefitness #powerliftingspoonies #POTS #butyoudontlooksick

Do you know what. I’d do ANYTHING for a boring and quiet life. Today my knees gave way (as they have developed a tendency to do since the bloody joint pain) under me and I fell down 10 stairs. I landed on my neck and back. I got to ride in ambulance to A&E and they even put their flashy lights which was super exciting and terrifying 🚑🚨after CT scans and tests thankfully my neck and back are fine. Just really bruised and some muscle damage. I have also been lucky enough to come away with two cracked ribs 🙄 so basically I’m going to be in a lot of pain for the next few days & weeks whilst my body and I recover from yet another crappy incident brought on by this sodding illness. The paramedics, doctors, nurses, students, porters and radiographers I encountered were bloody fabulous. And as always I am beyond thankful for the wonderful, incomparable NHS. 💕

Shocking and appalling service from @bookingcom today has left me to spend the night in a car park the night before my infusion.
I booked a hotel months ago to limit the stress as much as possible before my second #infleximab infusion. After speaking to the hotel owner of Langley Bed and Breakfast in Bristol weeks before they agreed if I pre-paid my friend and I would would be allowed late check in. Money was fully exchanged and an agreement for a key to be left for us was made. Upon arrival at the property there was no key. After numerous attempts to contact the owner were unsuccessful I tried calling booking.com who I had booked with to explain the situation. After being hung up on 4, that’s right 4 times I eventually got through to a manager who said the only option was for us to pay for another hotel upfront (which was upwards of £120) and that they would not commit to a refund of either amount. Now I don’t know about anyone else but I’m 3 days before payday. I woke part time because of my illness. I have a mortgage and bills to pay. I do not just have £120 lying around. I explained to the manager and staff I didn’t have any spare money to pay for an extra hotel as I had already paid for a bed for the night. Their response “there’s nothing they can do”. So. Not only am I incredibly sick. I’ve spent the night in a car desperately trying to find a SAFE and SECURE place to stay in Bristol for the night. I’m now faced with my second chemo treatment on no sleep and I have been completely let down.
It was explained multiple times to @bookingcom how poorly I am as well as the fact the we’re leaving two girls without a safe place to stay at 1am in the morning, in a city they hardly know and that returning home was not an option due to the reason of the visit being for medical treatment. The manager that was spoken to actually said if something were to happen to us we would “just have to call our local authorities”. Brilliant. I am absolutely amazed & baffled that a company thinks it acceptable to leave us in such a away.
@bookingcom I will not let this go. Your service was nothing short of appalling tonight. #booking.com

Other than the fact I have a masssiveeeee receding hair line now... (any tips on how to minimise this greatly appreciated) is there any reason I know have loads of these little buggers all over my head?! Is it #behcets or #infliximab related?! They hurt when I wash my hair and are really bloody annoying! Any insight massively appreciated #behcetshelp
#infleximab #remicade #RA #rhumatoidarthritis #behcets #behcetsdisease #behcetssyndrome #behcetsandme #behcetswarrior #flare #disabled #illness #autoimmune #autoimmunewarrior #autoimmunedisease #infleximabinfusion #spoonie #spooniestrength #spoonielife #spoonieproblems

Perception is fickle. I had a moment of realization while watching Comedians in Cars Getting Coffee. Dave Chappelle said he’s the youngest of 3. Jerry Seinfeld responded isn’t it funny how when someone tells you they are the youngest they immediately look younger to you. Had you said you were oldest you would have looked older to me.
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That’s so true! Which made me think about how we impact other’s perceptions of us by the words we use. I get told a lot that I have ‘the momma voice.’ I’m pretty straightforward when I speak. How do you think others perceive you?
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#tuesdaytransformation #perception #buildconfidence #yougotthisgirl #spooniestrong #spooniestrength #tuesdaystogether #invisibleillness #chronicillness

#Repost @victonation (@get_repost) Thank you for sharing! 💖
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As my pre-teen, Dharma, said, “When you’re contestant #1, you get to set the bar.” Boy! She was right!
My interview to become the next Miss Maryland is complete! I can full heartedly say that I have faith in the standout panel of judges and believe that they will choose the best candidate to fulfill this role, no matter whomever she be.
Many know that interview is my favorite part of the competition and, while 10 minutes always seems too short, I believe that I was able to convey my personality, passion, and platform to my fullest potential.
As I stood at that podium, the faces of children and patients I represent flew across my mind and their words came out of my mouth. I am here for them - for you.
I could not have made it this far without the support of my team across the world. THANK YOU for believing in me, helping to share my message about invisible disabilities, and for all that you do on a daily basis!
#ButYouDontLookSick #ChallengesOfInvisibleDisabilities #MakingInvisibleIllnessesVisible
#MissMaryland #MissAmerica #MissAlleganyCounty #ThereSheServes #ThereSheInterviews #ThereSheIs
#InvisibleIllness #ChronicIllness #RareDiseases #Spoonie #SpoonieStrength
#Educate #Advocate #Inspire #Empower

30 minutes at 5.0 speed, couple hundred calories burned atleast! Pretty knackered now though but hoovering has to be done! #spooniestrength #spoonieproblems #tryingtoloseweight #fibromyalgia #ic #interstitialcystitis #endometriosis #pcos #polycysticovariansyndrome #prostap3 #medicationweightgain

Happy Birthday to our wonderful NHS.
If I lived anywhere else in the world I would most certainly be blind and completely penniless and left desperately trying to retain my dignity.
I’m a part of many groups relating to my illness and treatment and one of the things that shocks me regularly is people in America battle daily to get the funding from their health care insurance to be able to have their treatment & infusions. It pains my heart that people going through such horrific illness also have to worry about where the money is going to come from which enables them to feel better.
Our incredible, indescribable (underfunded & underpaid) NHS and everyone who works for them provides so much hope and love.
It brings life, it heals and it finds cures. What an amazing thing to be able to take for granted.

For all those wondering if #brainfog is real. I can assure you it is. I’m not normally a complete idiot. However, today I’ve managed to burn my hands twice doing idiotic things, that if I was well I’d never do.
Breakfast; my brain decided to complete ignore that ovens which have been on for 1/2 an hour are generally very hot, I opened the oven door and just grabbed the tray... It was bloody hot and it bloody hurt!!! Dinner; after cooking spaghetti I literally used my hand to pick it out of a boiling pan. Why would I do that, I don’t know. What. An. Idiot.
Previous incidents also include forgetting why I’d gone to the bathroom. Forgetting my name and date of birth. Forgetting my PIN numbers. I’m very good at putting random items in the fridge, empty bowls, toilet rolls and today I found a pen?! Half the time these drugs & this disease have me a dribbling mess and the other half I don’t even know who I am and I’m not safe to be left alone 🙄
Life is certainly more interesting (and painful) now.

Yeah hun I know 🤷🏼‍♀️ ....

🦄🌸🧜🏻‍♀️HONESTY POST🦄🌸🧜🏻‍♀️ Yesterday morning vs this morning. I prayed yesterday would be my miracle cure, it wasn’t. In fact I’ve woke up worst than ever, shaking, full of pain and in full uveitis flare which is now noticeable and painful (this is new!!). However I have woke up with hope. I met a lady in clinic yesterday who said she started her treatment in the same state I was in. Wheelchair bound, reliant on sticks and in endless pain. However she was on her 5th infusion yesterday and walked in with no stick!!! It took her 3-4 infusions to see a difference and she still needs help with long distances and carries a stick with her as she tires easily. But. SHE WASN’T IN A CHAIR! Her pain is now manageable and she is slowly starting to lead a normal(ish) life. So theirs hope. There is light at the end of my tunnel. ✨🌈🌼 The one thing I’ve always promised myself when sharing my ‘journey’ is I would be honest on this account. I would use it to raise awareness and share my experiences openly. It’s so important to talk. Their is no point hiding or shying away from what’s happening. I’m connecting with people across the globe, sharing tips and coping strategies. My isolated little world when I was first diagnosed is slowly opening up around me and it’s lovely 🌸🌍🌸 #infleximab #remicade #RA #rhumatoidarthritis #behcets #behcetsdisease #behcetssyndrome #behcetsandme #behcetswarrior #flare #disabled #illness #autoimmune #autoimmunewarrior #autoimmunedisease #infleximabinfusion #spoonie #spooniestrength #spoonielife #spoonieproblems #chemo #infusionday #firstinfusion

It’s infusion day!! It’s a funny old thing being attached to these drugs, I can’t quite get my head around it. But here’s hoping it’s my miracle and greeting this next challenge with open arms and a smile. ✨🌷🌈 #infleximab #remicade #RA #rhumatoidarthritis #behcets #behcetsdisease #behcetssyndrome #behcetsandme #behcetswarrior #flare #disabled #illness #autoimmune #autoimmunewarrior #autoimmunedisease #infleximabinfusion #spoonie #spooniestrength #spoonielife #spoonieproblems #chemo #infusionday #firstinfusion

I just need to remind myself it’a not all bad all of the time. And if you surround yourself with the right people actually, sometimes you can make a shit situation funny.
Bristol. Single handedly the worst wheelchair friendly city I’ve ever seen. Cobbled streets hurt man!! It’s infusion day tomorrow. And I’m terrified, but until I have to deal with all the needles and chemo I’m going to laugh as much as I can.
#infleximab #remicade #RA #rhumatoidarthritis #behcets #behcetsdisease #behcetssyndrome #behcetsandme #behcetswarrior #flare #disabled #illness #autoimmune #autoimmunewarrior #autoimmunedisease #infleximabinfusion #spoonie #spooniestrength #spoonielife #spoonieproblems #bristol #infusionday #infusion #BRI #bristoleyeclinic

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