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Just a quick note before I resume art posts...My health declined a lot in 2017 and still haven't been able to get my Lyme/mold/immune treatment off the ground because my veins are terrible and IVs have been a monumental challenge. On Monday around 9am I'm having surgery to get a semi-permanent port implanted in my chest for IV access. I'm particularly squeamish about ports because my mom had a botched one during her cancer treatment and it was HORRENDOUS. But I clearly can't continue the trajectory I'm on, so I have to toss this procedure on the "terrified but did it anyway" pile.

If you have a moment, I'd appreciate any good vibes, prayers, crossed fingers...ritual heart-healing dances...whatever! Thanks so much. ❀️❀️❀️
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#surgery #lymewarrior #lymeawareness #lymedisease #lymediseaseawareness #lymelife #lyme #lymesucks #lymefighter
#chronicillnesslife #lymedisease #spooniecommunity #chronicillness #spoonies #chronicillnessfighter #chronicillnesssucks #spooniesupport #sickgirlsclub #chronicillnessawareness #lymeawareness #spooniestrong #chronicillnesswarrior #spoonie #chronicillnessproblems #spoonielife

'Cleanse' Β©. So sorry darlings but so my mood right now. My #fibro is out of control accompanied with my new found arthritis and I just want to scream as loud as I can. What do you do, especially all #spoonies when you're so depressed? I'm just so down, and my #insomnia doesn't help, just intensifies everything. If the body doesn't rest, it can't heal. #SpoonieLife can really fucking suck. Tonight is #LightUpNight in #Pittsburgh , the official beginning of the holiday season, streets, sidewalks, everything packed, I can hear and see them out my windows. Hundreds of thousands of people come from all over to attend this festive evening, yet it's right outside my door, and I'm too sick to go out. I want to be walking through Market Square right now with my husband, drinking hot chocolate, holding hands, falling on my ass ice skating around the Christmas tree, the shit you see in commercials, but i can't, and I'm not, and I'm pissed. This isn't for pity's sake my dears, you know that, but I don't hide the bad things in my life from you, not every day is a love poem, days like today are fucking lonely. So I just wrote this on behalf of every #Spoonie out there who feels this way, you are so beautiful and brave and strong, and the one thing's that's certain, is we just need to be here for each other!!!! I'm sending you all of my love, and virtual spoons to help you heal! I love all you guys to death, happy weekend!!!! #DeannasDarlings β›„πŸŽ„πŸŽ… β„πŸ’‹β„πŸŽ…πŸŽ„β›„
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Background Art: Deanna Rizzo Β©
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πŸ‘‰Follow @deannarizzosthoughts for poetry, inspiration, and love, in a NO HATE community of expression! β™₯πŸŽƒβ™₯
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#deannarizzo #authors #deannarizzosthoughts #poets #writers #darkness #poemporn #chaos #fibrowarrior #fibro #pittsburghart #yinzer #darkpoetry #womenwriters #writings #poetsofinstagram #depression #poetsociety #poetscommunity #mythoughts #spoonieproblems

CHARGIE OF THE DAY
Here's Elizabeth Lee's story.
After about a week of being in so much pain I couldn't walk I decided it was time for the doctor.
That was a year ago. I walked out after being read my blood test results for a diagnosis KNOWING my life was never going to be the same as it was.
Upon receiving my rheumatoid arthritis diagnosis my specialist diagnosed me with three other things as, one being ANOTHER autoimmune disease. You can imagine the amount joy this brought me...
I didn't do anything to contract this autoimmune disease. It just simply happens to people sometimes even children.
One huge treatment they use is chemotherapy.
So no, it isn't just used for cancer.
There are days where just rolling over in bed or getting up to grab a water for my meds is just excruciatingly painful... These days seem to be more frequent than not.
(Cont in comments below)

Something you can never have enough of is friends. Unfortunately for a chronic girl they are hard to come by and hold onto. Either they don’t understand your disease or they expect too much from you and both are huge energy drains.
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What’s so great about the online communities we are in, is the empathy. I know it can be daunting at first, trying to find a friend online, and not everyone understands empathy. But all it really takes is a bit of compassion on your part, commenting on their posts on a regular basis and soon you’ll find a connection with someone who gets you.
Take your time when commenting, write an essay if you want, don’t waste your time online dropping just πŸ™ŒπŸ»πŸ€£πŸ’©β­οΈ emojis. No one responds to these, not really. Use your words, connect.
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A future friend is just waiting for you to comment.
#endoeducation

My surgery went well and I get to go home today πŸ’•πŸ’• #spoonies #endowarrior #endometriosisawareness #endosisters #chronicpain #sickgirlsclub

MOST RECENT

No pills. Wake up at 11.30 pm... just not getting enough air through my one open nostril. It sucks. Being awake. Not breathing.

I've totally run out of my pills, Intestaclear. So its Day Zero Intestaclear (all gone). Day 6 since starch. πŸ’• Wow! I slept! Normally! Until a wake up at 6, and then a snooze until 7! Back to normal sleep. No waking up at 4 am wide awake! REM 22%. DEEP 13%. Can't say I felt particularly awake, (difficult to get up!) fuzzy eyes too. But I certainly slept! πŸ’“ Sun. Steam room. Intermittent Fasting. (One meal a day). No rice. (Cause I need to breathe.) πŸ’– Some throat mucus today. And strange heart palpitations after the steam. (Am sure it's from sweating so much last couple of days.) I spray on some magnesium oil; no idea of it will make my throat close but... πŸ’– Big time bloated. Unstick my tight hip muscles with some stretches and exercises.

If you have Lyme, does the common cold take you longer than average to recover from?
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#lyme #lymedisease #spoonies #lymeawareness

πŸπŸƒπŸ‚πŸ˜Š πŸ‚πŸƒπŸ
I puffy-heart Sundays in Autumn! I get to work a lil magic in the kitchen 🍳 & then watch my @Patriots work their magic on the field 🏈. Thankfully my body cooperated today.
For dinner I made Chili & a small batch of Bisquick Drop Biscuits. For dessert I baked Ghirardelli Brownies 🍫 that I'll use later to make Brownie Ice Cream Sundaes 🍨. As per usuaI, I was rocking my gameday gear although, while I was cooking, I also wore my pink apron (because: hello?!...have you met me?! 😜 #Grace)
And on that note, I'm signing off the interwebz to avoid Walking Dead spoilers & to jump in the shower while I still have #Spoons πŸ₯„ left. G'nite Tweeps πŸŒœβ­πŸŒ›
~Boo πŸ‘»
#ImNotAChefButICanCook 🍳
#FindingTheHappy 😊 #LemonsLemonade πŸ‹ #PatriotsGirlForLife 🏈 #Spoonies πŸ₯„ #SpoonieLife

I can't help posting another picture of the mighty #DogJonSnow. He has no time for my shiz. He thinks I should be writing. I adore that face. #dogsofig #dogsofinstagram #writersifinstagram #writerslifeforme #amwriting #amediting #urbanfantasynovels #urbanfantasy #fantasy #fantasybooks #specfic #spoonies #spoonielife #lupus

Gosh....someone was jealous that i was having another birthday cake and had the front passenger seat in the car.....whoop whoop. Thanks to @karris_thevegankind @tait01 ,my nephew and hilarious wee niece i had so much laughter and giggles all day and all my troubles blew away. Lived in the moment...now all spoons depleted, but worth it x

Does anyone else feel like they aren’t good at being sick? I don’t know if that makes sense but I’ve been sick for over 14 years, over half my life, and I feel like I still haven’t gotten the hang of pacing, creating boundaries, keeping track of all symptoms, putting my health first, knowing when too much is too much... I just want to be normal so much that I haven’t learnt how to be good at being sick. Is that crazy? πŸ™ƒβ˜ΊοΈπŸ§
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#fatigue #chronicillness #fibromyalgia #fibro #fibromyalgiawarrior #fm #fms #cfs #me #mecfs #cfsme #warrior #fighter #sick #sick😷 #sickandtired #tired #alwaystired #fatigued #spoonie #spoonielife #spoonies #faith #hope #love #randomthoughts #questions

I don’t remember a day I didn’t suffer from mental illness. Most of my childhood I had yet to find a name for it, but it made itself right at home as far back as my memory goes. I have never known what it feels like to have a neurotypical brain. I have imagined it, but it always seemed out of reach for me.
How would my world be different if I didn’t suffer from mental illness? Whether it be a life lived without any mental illness at all, or just a few years of freedom... what is that like?

What decisions might I have changed? Would I be in a similar situation at all? Who could I have been? I’ll never know, of course.

I still can’t help but wonder how it feels. Can anyone describe this?

Hi all. Guess who's been too occupied with other things to post πŸ™‹. Also, who's getting to see her life-long hero in two weeks time πŸ™‹. I hit a pretty low low a couple of weeks ago. Doing better now. I realized I need to do something with my pastry chef training again. I'm not sure how yet but it should all work out. We (me and my mum) are heading back to the UK in two weeks time so very excited and stressed. It's going to be fun though. We'll spend a couple of days in Birmingham (yes, that's Peaky Blinder 😍 country, anyone else watch the show? ) before driving down to Cornwall to soak in as much vitamin sea as I can. We're renting a holiday home in both areas, that just makes it so much easier. Before then I've got paintings to finish and photograph, organize a place to stay for the final couple of days of our trip, all sorts of stressy things as well as the regular 'going on holiday with a chronic illness' things. I am looking forward to it though. You'll just see a bit less of me while I prep. See you all soon πŸ‘‹

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