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#spoonieroadtrip

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Total hours driven today and total milage over the last 11 days. It's been an epic draining and wonderful time. Now if only I could sleep for a week and not have to prepare for open studios.
#spoonieroadtrip #longjourney #roadtrip #lotsofmiles #exhaustedbuthappy #wellworthit #adventures

A little Mt. Shasta for you on this Wednesday afternoon! Making our way to Oregon, then on to Washington...road trippin'! #mtshasta #mountains #volcanoe #beautiful #godscreation #amazing #roadtrip #roadtrippin #california #oregon #washington #spoonieroadtrip #spoonie #exhaustiongoaway #prayersplease #travelingmercies

Saturday's Child Works Hard To Live With Myalgic Encephalomyelitis - Castle Hill was our last stop before we took the car back. I walked around the peak barefoot and savoured the feel of the earth beneath my feet. Savoured the kisses, the smell, the effect it had on me because I knew what was coming next. I knew the payback would be unbearable, and it is. I'm fighting multiple infections, I can barely move. Everything hurts more than I can talk about, and this will last longer than the week that caused it. It was completely worth it. I could never regret this magical week and I will always have so much gratitude for the people who helped make it happen. πŸ’œπŸ’›πŸ’šπŸ’™πŸ’Ÿ
#PBandLsWeekOfFun #SpoonieRoadTrip #Spoonie #SpoonieLife #ME #CFS #MyalgicEncephalomyelitis #Fibromyalgia #MyHeartBelongsToYorkshire #CastleHill #ChronicIllness #Payback #ChronicallyIll #WorthIt #SceneryPorn #EarthChildAtHeart #NatureIsLife #Barefoot #Happy #Warrior #MEWarrior

Wednesday's Child Is Full Of Woe - Super poorly, stress of leaving the house was getting to me, the weather was bad. So we drank Starbucks and drove around the Yorkshire countryside. It was spectacular. πŸŒ²πŸŒ³πŸ€πŸŒ°πŸƒ #Yorkshire #PBandLsWeekOfFun #SpoonieRoadTrip #Spoonie #SpoonieLife #ME #CFS #MyalgicEncephalomyelitis #Fibromyalgia #SceneryPorn #MyHeartBelongsToYorkshire #Starbucks #NatureIsLife

MOST RECENT

Total hours driven today and total milage over the last 11 days. It's been an epic draining and wonderful time. Now if only I could sleep for a week and not have to prepare for open studios.
#spoonieroadtrip #longjourney #roadtrip #lotsofmiles #exhaustedbuthappy #wellworthit #adventures

Can't wait for Thursday's #vbyverybloggies17. My first award show! πŸ₯‚ Going to cheer on my big sis and pal, @westcorkfit. Theme is #movieicons and I'm going inspired by Charlie Chaplin. Got the bowler hat sorted anyway just need to make my moustache on a stick! Everyone cross your fingers that my health will be good for the next few days as I have a wedding to attend as well at the weekend! 🀞

#blogawards #charliechaplin #disabilityblogger #mysisterisafinalist #superproud #spoonieroadtrip #spooniemom #ehlersdanlossyndrome #POTS #posturalorthostatictachycardiasyndrome #AutonomicMediatedSyncope #orthostaticintolerance #dublin #ireland

A little Mt. Shasta for you on this Wednesday afternoon! Making our way to Oregon, then on to Washington...road trippin'! #mtshasta #mountains #volcanoe #beautiful #godscreation #amazing #roadtrip #roadtrippin #california #oregon #washington #spoonieroadtrip #spoonie #exhaustiongoaway #prayersplease #travelingmercies

Poe-ka Dot socks from @outofprint and #Ravenclaw hat for luck, purse over-packed just in case, paperwork and cardiac data on disc readied...#AnneSexton my buddy for distraction...finally heading to the hospital for the #POTS/#dysautonomia testing. Proper diagnosis and treatment could really improve my quality of life! Send me good vibes. #carlahufstedler #beyourownheroine #EDS #EDSiii #hypermobility #POTS #fibro #fibromyalgia #zebra #zebrastrength #spoonie #zebraroadtrip #spoonieroadtrip #spooniediagnosis #diagnosis #carla #happysocks #edgarallanpoe #poe #horror πŸ’œ

Saturday's Child Works Hard To Live With Myalgic Encephalomyelitis - Castle Hill was our last stop before we took the car back. I walked around the peak barefoot and savoured the feel of the earth beneath my feet. Savoured the kisses, the smell, the effect it had on me because I knew what was coming next. I knew the payback would be unbearable, and it is. I'm fighting multiple infections, I can barely move. Everything hurts more than I can talk about, and this will last longer than the week that caused it. It was completely worth it. I could never regret this magical week and I will always have so much gratitude for the people who helped make it happen. πŸ’œπŸ’›πŸ’šπŸ’™πŸ’Ÿ
#PBandLsWeekOfFun #SpoonieRoadTrip #Spoonie #SpoonieLife #ME #CFS #MyalgicEncephalomyelitis #Fibromyalgia #MyHeartBelongsToYorkshire #CastleHill #ChronicIllness #Payback #ChronicallyIll #WorthIt #SceneryPorn #EarthChildAtHeart #NatureIsLife #Barefoot #Happy #Warrior #MEWarrior

Thursday's Child Has Far Too Much Fun - Xscape for snow cones, arcade games, and jurassic mini golf (of which I totally won). πŸŒ‹πŸŠπŸŽ°πŸŽ―β›³ #PBandLsWeekOfFun #BeanSqueadAndPotatoHead #Xscape #Arcade #StrongMen #VictorianEntertainment #Spoonie #SpoonieRoadTrip #SpoonieLife #ME #CFS #MyalgicEncephalomyelitis #Fibromyalgia #MyHeartBelongsToYorkshire #PlusSize #FatBabe #Curves #Hourglass #BodyPos #BodyPositivity #EffYourBeautyStandards

Wednesday's Child Is Full Of Woe - Super poorly, stress of leaving the house was getting to me, the weather was bad. So we drank Starbucks and drove around the Yorkshire countryside. It was spectacular. πŸŒ²πŸŒ³πŸ€πŸŒ°πŸƒ #Yorkshire #PBandLsWeekOfFun #SpoonieRoadTrip #Spoonie #SpoonieLife #ME #CFS #MyalgicEncephalomyelitis #Fibromyalgia #SceneryPorn #MyHeartBelongsToYorkshire #Starbucks #NatureIsLife

Tuesday's Child Is Full Of Grace - Tropical World in Leeds to be attacked by butterflies and coo over the teeny tiny Meerkats. πŸŒ΄πŸπŸ πŸ’ #Meerkats #TropicalWorld #Butterflies #Monkey #Spoonie #SpoonieLife #ME #CFS #MyalgicEncephalomyelitis #Fibromyalgia #SceneryPorn #MyHeartBelongsToYorkshire #PBandLsWeekOfFun #SpoonieRoadTrip #NatureIsLife #Leeds #AnimalsOfInstagram

Monday's Child Is Fair Of Face - We picked up the car and then took a super scenic route (super, super scenic. I'm pretty sure we were off-road at one point) to a pub that has a good gluten free selection. It was awesome and terrifying.πŸ¦πŸ‘πŸŒ²πŸŒ³ #Yorkshire #PBandLsWeekOfFun #Coeliac #SpoonieRoadTrip #Spoonie #SpoonieLife #ME #CFS #MyalgicEncephalomyelitis #Fibromyalgia #SpoonieSunday #BoothwoodInn #SceneryPorn #MyHeartBelongsToYorkshire #NatureIsLife

Time for lunch @emie_xoxo_! πŸ”πŸŸπŸΉ #sonic #drivein #roadtrip #spoonie #spoonieroadtrip

Made it to our destination eventually...my cousin's house in Reading! Time for some family-time and a BBQ/braai! #SpoonieRoadTrip

I even need a little snooze to get me through. #SpoonieRoadTrip

Poor hubby has to do all the driving. #SpoonieRoadTrip

Travelling isn't easy when you have M.E, so even a 2-hour car trip means I need to lie down for most of the journey. #SpoonieRoadTrip

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