#spooniemommy

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Lupus rash today. Malar rash and other bumpy lesions. Ouch!!!! I don't see my Derm for 3.5 weeks and even then it's been almost 7 years (this August) so I've tried it all. Oh man, I would love my flawless skin back and my super long hair. Pity party moment. #lupusrash #lupussucks #lupushairloss #lupusflare #lupus #spooniemommy #spoonie #realitycheck

@car_doc760 and I are going to be mommy and daddy! Can't wait to meet our little one! #cvidmommy #spooniemommy #andbabymakesthree #makingafamily #beautifulbabyontheway #specialdelivery

Mother Earth ๐ŸŒŽ Relief Bombs on their way to rescue you! Just drop one of these beauties into your ๐Ÿ›€๐Ÿป bathtub, sit back, watch it fizz releasing colors and essential ๐Ÿ’ฆ oils! Who else loves a hot bath when you're in a flare up?? ๐Ÿ’œ #mothersday #justformama #pamperyourself #metime #mommytime #holistichealth #detoxbath #flareup. #invisibleillnessfamily #handmadewithlove #spooniemommy

Picked up my big boy from school!! He had such an AMAZING DAY! His teacher said he was VERY GOOD, had no issues at all, was a very good listener and played wonderfully with his classmates. He competed his work on a timely manner and with little direction or help! I'm one #PROUDMOMMY! #myson #mylove #firstdayofschool #TK #mybooboobear #school #firstday #lastborn #endomommy #spooniemommy I'm glowing with pride for my baby boy!

I never realized how much I've missed just our normal routine. #chronicillnessawareness #messyreality #raisingboys #spooniemommy

Mom life. Rocking Ollie while he falls asleep listening to Shrek 3. He has learned how to sit on my lap and lay his head on my chest so I don't have to depend on my arms and hands to hold him. I love having my baby close to me, especially on pain days. #spoonie #spoonieforlife #ra #autoimmune #autoimmunedisease #rheumatoidarthritis #spooniemommy #momlife #blackandwhite

Today I've been recalling my visit with my son, remembering every detail and using those memories as band aids on my heart.

I've never experience the level of anguish, agony, and just raw pain from every area of my life.

I'm choosing to be positive as my symptoms get worse. I just go with grace into my day and choose to move through every moment with love, gratitude and as much humor as I can muster in the insanity that is my life right now.

So, please, I ask those of my connections; friends, acquaintances, family, and "network marketers", to choose to pray for me, send me loving and positive thoughts, good vibes as well as Love and Light.

Because it's really, really difficult to be a single parent that's struggling with an unknown cause for my fatigue, pain, hormonal & emotional imbalances...for years without finding the tubular fibroid in my right breast.

So, I'm releasing all of the negativity associated with my life struggles that people made me feel like were due to irresponsibility, a lack of self-discipline, or a lack of morals in my behavior with my personal life, or a lack of education.

I am delightfully, unashamedly me, and I love and accept myself.

#Namastรฉ
#soultribe #shawnee #estoo #Ancestors #spoonie #spooniemommy #7monthsInFosterCare #SingleParentProblems #singleparent #tigerlady #tigerofbohemia #bohemian #grounded #centered #love #light #peace #gratitude #easternshawneeofoklahoma

Part of dinner tonight, arugula on the bottom, tomato, fresh mozzarella, avocado and basil with olive oil. The mozzarella was "best by" yesterday so I ate all of the rest! lol I hate wasting food. Yummy. #plantbasedeating #heirloomtomatoes #avocado #californiagirl #spooniemommy

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Lupus rash today. Malar rash and other bumpy lesions. Ouch!!!! I don't see my Derm for 3.5 weeks and even then it's been almost 7 years (this August) so I've tried it all. Oh man, I would love my flawless skin back and my super long hair. Pity party moment. #lupusrash #lupussucks #lupushairloss #lupusflare #lupus #spooniemommy #spoonie #realitycheck

Potatoes, mushrooms, roasted bell peppers, scallions. Had about 1/4 and topped with a poached egg, ate it too fast to snap a pic! The rest is tomorrow's breakfast. #breakfastfordinner #plantbasedeating #iloveeggs #californiagirl #spooniemommy #ilovemushrooms

Part of dinner tonight, arugula on the bottom, tomato, fresh mozzarella, avocado and basil with olive oil. The mozzarella was "best by" yesterday so I ate all of the rest! lol I hate wasting food. Yummy. #plantbasedeating #heirloomtomatoes #avocado #californiagirl #spooniemommy

Me today..mocktail night means hanging out next to each other and doing our own thing with one ear open hahaha #momsandsons #mocktail #ilovemyson #lupuslife #spoonie #spoonielife #spooniemommy #lupusflare #ms #hemochromatosis #lupussucks #greenhairdontcare #newteenager

One more #TBT my son and I in Napa 2008, he was only 4 years old!! Oh how my baby boy has grown up, he's only and inch shorter than me now! #singlemom #momsandsons #napavalley #happymemory #spooniemommy #boysarethebest #ilovemyson

The big little had his kindergarten ceremony today! They sang a couple songs and it made me cry. ๐Ÿ˜ข Would time please slow down? I'm so proud of him! #boymom #sahm #kindergarten #ontofirstgrade #6yearsold #soproud #momlife #kindergartengraduation #spooniemommy #spoonie #familytime #familyfirst #love #mother

My momma and I. #NYGpicaday Day 14 Mother. ๐Ÿ’ž๐Ÿ’ž She is my rock. She keeps me going and picks me up when I'm low. She watches my boys and answers my calls at 4am when I'm dying of pain. She's wiped my tears and pushed me to be the person I am today. She's my best friend and biggest supporter. Love you Mom! #mothersday #spoonie #spoonielife #spooniemommy #mom #sahm #boymom #thankful #bestgrandmaever #smile #love #lucky #familyfirst #chronicillness #chronicpain #invisibleillness

Spent tonight in the emergency room... they gave me a shot of pain medicine and sent me home. I'm SO lucky to have good doctors at the local ER who know my history and show me the utmost respect every visit. It took many years and a laundry list of diagnoses to get to this point. Never lose hope. Today I wanted to give up. I wanted to just be done. To stop hurting. To stop the doctor visits. The blood draws. The Pills. The Procedures. The Surgeries. The heartache. Then I looked at my boys and realized that I have SO much to live for. I have SO much to fight for. #neverlosehope #hope #faith #recurrentpancreatitis #chronicpain #chronicillnessandparenting #parenting #spoonie #spooniemommy #spoonielife #sphincterofoddidysfunction #sod #papillarystenosis #primarybiliarycholangitis #mixedconnectivetissuedisease #mctd #autoimmunewarrior #autoimmune #motivate #staypositive #positivevibes #positivity #depression #anxiety #ptsd #emergencyroom #powerport #centralline #invisibleillness #butyoudontlooksick

A boy and his dog... waiting for Daddy to come home from work yesterday... since becoming a #sahm it's these little moments that I live for. I missed so much when I was working. Becoming #disabled has been a blessing in disguise. #staypositive #littlethings #loveyourfamily #marcustheweinerdog #daschundsofinstagram #weinerdog #littledog #miniweinerdog #boyandhisdog #spoonie #momlife #raisingboys #autoimmune #autoimmunewarrior #autoimmunemom #spooniemommy

Autoimmune Awareness month. I have mixed connective tissue disease. I take weekly methotrexate injections, plaquenil and daily prednisone to try to stop the attack on my body. #reallife #autoimmuneawareness #mixedconnectivetissuedisease #mctd #mctdawareness #mctdwarrior #inflammatoryspondyloarthropathy #inflammatoryarthritis #tenosynovitis #handswelling #jointpain #autoimmune #spoonie #spooniemommy

March is Autoimmune Awareness month. Primary biliary cholangitis was my first diagnosis that lead to all my other autoimmune issues. It took about 4 years to finally be diagnosed and put on medications that actually help. The typical autoimmune patient waits more than 5 years for diagnosis and many doctors have no idea how to treat or even recognize complex autoimmune diseases. #raiseawareness #autoimmune #autoimmunediseaseawareness #autoimmunewarrior #autoimmnemom #primarybiliarycholangitis #primarybiliarycirrhosis #pbc #autoimmuneliverdisease #mixedconnectivetissuedisease #mctd #sjogrens #inflammatoryspondyloarthropathy #inflammatoryarthritis #methotrexate #methotrexateinjections #plaquenil #prednisone #dailyprednisone #spoonie #spooniemommy #weneedacure

When Mom builds you the best blanket fort ever and you're not amused with your little brother's shenanigans.... #angryface #brothers #siblings #sickday #boyswillbeboys #raisingboys #momlife #sahm #mom #mommyblogger #spoonie #spooniemommy

Anyone else dislike this question? Only a spoonie would understand how awkward this question can be... I'm having a #fine day... as in... ugh. That's how I'm feeling. I took a shower last night and clumps and clumps and clumps and clumps of hair fell out. I have bald spots. I cried. My husband hugged me and gave me encouraging words today. He said he didn't care about my hair. He cares about ME and keeping ME going. I love him SO much! #imfine #ihatethis #seriously #spoonielife #depression #anxiety #hairloss #lowdosechemo #methotrexate #ursodiol #medsideeffects #baldandbeautiful #chronicillnessandmarriage #marriage #throughsicknessandhealth #husband #besthusbandever #mommyssick #sahm #mommyblogger #spoonie #spooniemommy #autoimmune #mctd #mixedconnectivetissuedisease

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