#spoonielife

MOST RECENT

Finally got around to some self-care pampering last night! Low energy means it's difficult to prioritise self-care, but it's so great when you do get around to it ☺️ what do you guys do for low energy self care?

Random pictures with an unrelated caption. [2nd pic, EDS GANG SIGN 🦓 3rd pic, my constantly subluxed & dislocated shoulder].. anyway..A reason, a season, a lifetime. But how do you decipher between them all? I’ve always been proud of my ability to adapt to change, but suddenly I’m a freaking mess. I seriously need a glass of wine or something lol 🤪😭✌🏼💙




#EncourageOthers
#spoonie #chroniclife #spoonielife #celebratelife #spoonies #dysautonomia #ehlersdanlossyndrome #eds #prolactinoma #PCOS #chronicovercomer #hope #inspire #POTS #disability #disabled #choosejoy #spoonie #cfs #myelgicencephalomyelitis #ME #pwme #igersstpete #huji #vsco

"These Ludacrise's are coming in nicely"
😂
Bed ridden all weekend so basically been 're binging #parksnrec from the beginning.
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#spoonie #spoonielife #tv #parksnrec #tomparksandrec #latinnameforplants #loveit #lol #parksandrecreation #funny #needsomecomedy

happy to call this (earth) home 🌈 #HappyEarthDay 🌎✨☘️

#100spoons #day36
Catch the nice moments of the day
Little ones, big ones
It doesnt matter
As long as you are able to floath on them
Like surving on a wave.
It will make you stronger
And gives you energy
Your soul needs it

Some days are harder then others to find the nice moments, but every little smile is always seen and appreciated!💞💞
What makes you smile?
#chronicalillawareness #crpsawareness #100dayproject #crps #rsd #pain #chronic #chronicillnessawareness #survivor #purple #flowers #flowerlover #spring #instadaily #instaflower #instamom #crpsmom #momsofinstagram #energy #soulsearvhing #spoonie #spoonielife #warriors #survivor #crpswarrior #smile

It's way too early to be up, but I'm wide awake and on my second #coffee ☕️ I'm gonna do some secret squirrelling for Bae until it's time for ootd and make up to be done, if I can be bothered lol 🤣 I have #littlespoons today (as you can see I've already got Betty heated) and so I'm gonna take it slow today..,,but I think I have #groceryshopping 🛒 today coz we didn't do it yesterday....not sure what I'm gonna get other than #upandgo and #yogurt coz I've still got all my food from last week.....#hmm 🤔🤷‍♀️...
Anyway, I hope you all have a good Monday ✌️


#spoonie #spoonielife #spooniewarrior #chronicpain #chronicpainsucks #chronicpainwarrior #chronicpainwarriorprincess


#keepsmilingkeepfighting

Hi Y’all. my name is Netti. I want to briefly introduce myself. I believe in alternatives to traditional medicine, and that NO doctor’s label will define my life.

Back from Colchester aching like mad...dehydrated...been drinking and peeing like mad! Glad I'm home now! And lookie fibrolizard was caught out! Lol awake mooching about! Then goes back to his fatigued self! Lol 🦎😣😂 #fibromyalgia #fibro #fibrowarrior #chronicpain #spoonie #spoonielife #depression #copd #anxiety #migraine #chronicillness

🐾Whoever said diamonds were a girl's best friend, never had a dog! 🐾
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As a stay at home spoonie my dog and my cat have been a huge part of my life and my healing! It feels good to have their unconditional love and to hang out with them during the day! Yes..sometimes my dog wants to take a selfie too! 😂
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#spoonie #spoonielife #ehlersdanlos #heds #hypermobility #zebralife #ehlersdanlossyndrome #chronicillness #chronicbackpain #herniateddisc #cervicalstenosis #invisibleillness #doilooksick #legalizemedicalmarijuana #medicalrefugee #petsarefamily #dogselfie #supersizedlapdog #servicedogwanttobe #risingzebra

I’m loving my new sliders! They are so S P A R K L Y!! So comfy and I picked them up from @sainsburys for £14 bargain! They change colour depending on what light you are in to, greens, golds, pinks, blues and purples! Sparkly happy Summer feet! ☀️😎⭐️ #sliders #summerfashion #summerfeet #glitter #sparklyshoes #summertime #thingsthatmakemesmile #mumslife #mumstyle #comfortandstyle #lookgoodfeelgood #spoonfulsofglitter #spooniemom #spoonielife #hospitalglam

This is what my dreams are made of 💁🏻‍♀️😂 please Siri? 💤

I left the hospital at some delirious hour this morning. Too numb from everything emotionally that has gone on, I laid in bed & stared at the ceiling for a solid 3 hours.
It was as if I couldn’t feel anything.
9am came and I got up to go to church.
Oh goodness. I sat on the edge of my seat in church today while tears poured down my face, hoping no one saw me, as they coated the pages of my Bible.
And I couldn’t stop. By Jesus’ divine planning, today they talked about suffering. About seeing the season you are in as a gift, and knowing that to God, it doesn’t go without purpose.
Over an hour after service and I’m here sitting in my car sobbing, overwhelmed at how good He is in light of how much I’ve complained or faltered.
I’m sharing this because the struggle is so real. And if you’re anything like me, you are in the middle of the storm, feeling like it’s ripping you to pieces. You’re sleep deprived, in pain, or simply tired of going through the motions.
Take heart, my friend. Have courage, because God is the God of every season. #chronicillness #spoonielife #butyoudontlooksick #mastocytosis #gastroparesis

For my mixies who are still on The Book of Faces, I made some #MCTD profile pic frames to raise awareness. 📸

#MCTD #MCTDawareness #MCTDsucks #mixedconnectivetissuedisease #mixie #raredisease #rheumatoidarthritis #RA #lupus #fibromyalgia #fuckchronicpain #chronicmigrainewithaura #depression #anxiety #invisibleillness #chronicpain #chronicallyill #chronicpainwarrior #onedamndayatatime #spoonie #spoonielife
🥄 💙💜 🥄 💙💜 🥄 💙💜🥄 💙💜 🥄 💙💜🥄 💙💜

Do you use yoga props (blocks, straps, bolsters, etc) when you practice? I need to get better at modifying poses & stretches to suit my body rather than trying to twist myself into impossible shapes. 🙃 Any recommendations for online classes, tools, or modifications are most welcome!

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