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I am SOOOOOO NOT a beauty guru, but thanks to YouTube I manage! I love learning new things. Remember?! Bombshells in Bed are life long learners! 🤓📚💋❤💥💣💋 #beautytips #tutorials #invisibleillness #bombshellinbed #lifelonglearning #makeuptutorial #MAKEUP #bombshellinbedthefacebookgroup #chronicillness #spooniecommunity #spoonielife #spoonie #selflove #beautyinbed #chronicpain #healingjourney #autoimmune #loveyourself #grouplinkinbio #linkinbio

Just a little reminder today that you are more than your diagnosis ❤️ sometimes we forget that there’s actually a person under all that disease or illness. Even recently, I noticed that one of my coworkers, instead of asking how I was, asked how I was feeling. I’m feeling a bit hurt, actually. I deserve the same stale small talk as everyone else 😂😂 luckily, I have a community of peers on Cing that I can rant to! 😂 Have a great day everybody and don’t forget that if you’re feeling misunderstood, confused or belittled by your illness, you can come #findyourtribe at www.cingeducation.com!
#fibromyalgia #chronic #chronicillness #sick #powerful #beautiful #brilliant #brave #chronicallyill #chronicdisease #spoonie #spoonielife #spooniecommunity #raredisease #endometriosis #autoimmunedisease #lupus #lymedisease #asthma #diabetes

Repost from @littlemiss_corporate

#Repost @seetheuniverse_ ・・・
My lovey @spooniebookboxes came yesterday!! I can’t wait to start reading! If you do not know who/what Spooniebookboxes Are please go and follow them they are incredible and deserve more recognition!

Ok I have piriton-ed and covered my entire body with calamine cream - fingers crossed for a better night! ( Only swipe 👈🏼if you’re ready to see lots of hives)
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#urticaria #myalgicencephalomyelitis #chronicfatigue #chronicillness #invisibleillness #notsoinvisibletoday #meawareness #invisibleillnessawareness #spoonie #spooniecommunity #spoonielife #soooooitchy #calamine #antihistamine

Update time from today's appointment - first step is to have a Chest CT scan to rule out once and for all that's there's nothing wrong with my lungs/chest. This is due to costocondritis
- Sulfazazine has now be completely ruled out and methotrexate is now becoming an option again to treat my conditon as my rehumotlogist does want to try anything else because of my age and it is meant to be a high rated treatment. - I was given information about new treatments. This include anti-TNF treatment. My rheumotogist over the following weeks is going to look at the best treatment plan for my current conditon. - I had a full examination of all my joints and it was decided that while I'm not on any medication for the management of conditon and the constant cold conditon to have a steroid injection.
- I had my injection in my left leg. I've had it done before but the nurse today was useless. He was overly cautious and this hurt me more as he was wiggling the injection in slowly rather then just injecting it quickly. The sight of the injection is currently really bruised which is to be expected. Just got to keep an eye on it. - My rheumotogist believe I have a condition which is called 'SAPHO' she knows little about it so is going to do some research and so am I. She believes my costocondritis is linked to this and the sapho is linked to my arthritis. - I had the most blood taken today, then I've ever had before. I had 7 viles taken for various things. This includes checking that it is okay for me to go back on to methotrexate and screening my blood ready for the possibility of trying the new treatments. It took the flabontomist 2 attempts which isn't too bad considering its took 5 times before. But I have got a lovely bruise and two injection holes - but I'm used to it all by now. - for the future I have to wait for a CT appointment, and wait for the new changes at my next nurse appointment. Hopefully my CT will have been done by then so there's no delay of me starting methotrexate again. But if this isn't the case then I will start it and if something comes back then it can be stopped.
Continued in the comments...

#truthbomb right here! This could be so many things! What are some ways that you #nourish your #body, #mind, #soul? I’m the #firsttoadmitit that this is an area where I am lacking most definitely. However, I am working on it! I have established a #morningroutine where I enjoy catching up on my #youtube subscriptions, #instagramaccounts I follow, #emails, #journal, all while enjoying a delicious cup of #coffee. It’s my #metime. I love the mornings. 🌸🌞🍄🌵#nourishtoflourish #selflove #selfcare #pamperyourself #spooniecommunity #spooniefamily

Heating pads ❤ makes my winter go smootly! Also I have heating blanket.. What makes your winter easier? And is there some heating products I dont already have.. 😍😍✌
#spoonielife #spooniestrong #spoonieproblems #chronicdiseasefighter #chronicillnesswarrior #chroniceverything #eds #edsgirls #chroniceverything #spoonie #spoonies #spooniecommunity #heatingpads #heatingproducts #heat #cozyteddy #risebag #heatingslippers #loveit #imperfectthewayim #loveyouguys #beokaythere

We got this! Stay strong!

Off I went...this was BEFORE the endoscopy. Afterwards I was a bit of an embarrassing vomiting mess. Although i did it without sedation and they said i did really really well! 💪💪Like as soon as they took it out I threw up. Oops. 😳 Still no real answers, a few things it could be thrown about- but as my GP kindly forgot to inform me not to take my blood thinners before the test, they could not take any biopsies so I have to have it repeated. #sickchicksstillstarving. Marvellous. Off to bed with a hot water bottle now. Night night folks. ❤😪💜👑👓💩 #endoscopy #sickchickgetsslim #ckd #kidneydiseaseawareness #aps #inspirationalpage #chronicillnesswarrior #autoimmuneillness #autoimmunedisease #lupus #fibromyalgia #antiphospholipidsyndrome #endometriosis #butyoudontlooksick #healthblogger #spoonieblogger #spoonie #wellnessblogger #invisibleillnessawareness #chronicillnesswarrior #spoonie #spooniecommunity #spoonielife #invisibleillness

I’ve been getting more “public” about my battle with chronic pain. I usually hide and I want to show that you don’t have to. People can see you without the mask! So many of you responded to my pain pic that I want to share more. Show you’re not alone and ... you CAN power through. You’ve got this! I’ve got this.
I’m on week three of a flare that has set off sciatica going into my foot. I cannot put any pressure on the foot at all and I’m favoring my other leg and foot too much ... so they’re unhappy and I’m reduced to crawling a lot to spare it. This ... is just me trying to get from the kitchen to den after making a cup of tea on my knees. Look... I DID IT!!! The end of the video cut off but I made it. 😁. So simple but so huge. #poweringthrough #ivegotthis #youvegotthis #fchronicpain #chronicpain #chronicpainwarrior #chronicpainsucks #spoonie #spooniecommunity #spoonielife #spoonies #dayinthelifeofchronicpain #invisibleillness #invisibleillnessawareness #chronicpainawareness #jennsheelen #jennsheelenpodcast

Well I sure deserved my dinner tonight! 40 minutes full body workout 😥 the hardest one yet. I absolutely hated most of it. Especially the crunches. I actually called in my man to cheerlead me through those. But it feels so good now! 💪
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There is always a moment in the #hasfit workout that @coachkozak says: "This is the part of the workout where you have to think about what motivates you!" And I always panic. What the hell motivates me to do this uncomfortable, sweaty workout thats gonna hurt me tomorrow? So I just think: "Cause I aint no quitter." 💪
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But when I think about it later, I remember what really motivates me. Because I can do it. Because just 7 months ago and the two years before that, I was in bed hurting because of illness and missed opportunities. That's why I'm doing this: because I'm beating that stupid illness one workout, plantbased meal and walk with the dog at a time.
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Don't take your health for granted guys. It's gone before you know it. And you need to work damn hard to get some of it back.
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📷 @letscookvegan

I love this #community. I have found so much #support amongst the #spooniecommunity and #spooniefamily here on #instagram. Since I created my account I have made some #dearfriends whom have helped me get through some very dark times. I want to fill my life with more people like them. I want to support those around me and help them get through their dark moments. If you #needsupport know I am #hereforyou #always! If I can #helpyou in any way please #reachout. I can’t promise to fix your problems, but I can be there by your side, cheering you on during them. Whether we know each other or not, it doesn’t matter. I am here. So much love, and gentle hugs. 🦋Lizzie🦋

♡ sometimes it’s enough to simply go to bed with a smile on my face - a hug from my dog - & the hope of no nightmares tonight. As today was a good day. I feel lucky quite lucky. My pelvis is not so happy but i am so it doesn’t matter. Sweetest dreams loves 😌✌🏼wishing you all a bright tomo.........
#livinghappyinapainfullife #chanelmylittlewarriorbuddy

Bedding @adairs blush pink velvet cover

Day 20 - Humility

I remember doing a course for one of the chronic conditions I have, when a leader the left the room momentarily. When gone, a fellow 'student' began ranting "what does she know?" "Who does she think she is?" "She doesn't know anything about my health conditions!" "I'm never going to get better, I've accepted that + it is pointless me being here, there is nothing for me to learn that I don't already know!" The sad thing was, she didn't leave. She kept coming, smiling at the tutor + appearing to listen at times but when the tutor was gone, she'd rant about how she really knew better. This really made an impression upon me. How often do I respond to advice like this? Even if only secretly in my mind. There is a degree to which we know our bodies + our health best but I don't think we should ever shut ourselves off from the wisdom or insights that others can give if we are open to learning.

Humility is esteeming someone higher than ourselves. It's lifting someone higher, higher than our pride, our own knowledge, experiences, age or social status. Humility is saying "I'm willing to listen." It's being open to the possibility that we don't know all there is to know + better still, we get things wrong from time to time.
It is easy to become entrenched in your pain. So much so, you don't allow anyone in. You may have had doctors or specialists belittle or dismiss you. You may have had bad experiences with authority figures that has caused you to shy away or be aggressively protective against anyone telling you what to do. I get it, I do. But if we aren't willing to be open, we are shut off to SO much that could help us.

I set myself a goal last year to "listen to my elders" by that I mean, I wanted to humble myself + learn from others, in particular, those older + more experienced than myself. In our society where leaders are often corrupt + hypocrisy is found in most organisations, the temptation to go solo is strong. The truth is, if we could do it all ourselves, why are we are in mess we are in so often? It's because we need help + deep down we know it. Humility is asking for help, rather than suffering alone. Humility heals + helps me.🌻

Day 20 - Humility

I remember doing a course for one of the chronic conditions I have, when a leader the left the room momentarily. When gone, a fellow 'student' began ranting "what does she know?" "Who does she think she is?" "She doesn't know anything about my health conditions!" "I'm never going to get better, I've accepted that + it is pointless me being here, there is nothing for me to learn that I don't already know!" The sad thing was, she didn't leave. She kept coming, smiling at the tutor + appearing to listen at times but when the tutor was gone, she'd rant about how she really knew better. This really made an impression upon me. How often do I respond to advice like this? Even if only secretly in my mind. There is a degree to which we know our bodies + our health best but I don't think we should ever shut ourselves off from the wisdom or insights that others can give if we are open to learning.

Humility is esteeming someone higher than ourselves. It's lifting someone higher, higher than our pride, our own knowledge, experiences, age or social status. Humility is saying "I'm willing to listen." It's being open to the possibility that we don't know all there is to know + better still, we get things wrong from time to time.
It is easy to become entrenched in your pain. So much so, you don't allow anyone in. You may have had doctors or specialists belittle or dismiss you. You may have had bad experiences with authority figures that has caused you to shy away or be aggressively protective against anyone telling you what to do. I get it, I do. But if we aren't willing to be open, we are shut off to SO much that could help us.

I set myself a goal last year to "listen to my elders" by that I mean, I wanted to humble myself + learn from others, in particular, those older + more experienced than myself. In our society where leaders are often corrupt + hypocrisy is found in most organisations, the temptation to go solo is strong. The truth is, if we could do it all ourselves, why are we are in mess we are in so often? It's because we need help + deep down we know it. Humility is asking for help, rather than suffering alone. Humility heals + helps me.🌻

Day 4 in #sickchicks7daychallenge #heaingbymemories7daychallenge is "sea swimming with dolphins on our honeymoon in Mexico" This was just a brautigul day. The best day of our honeymoon. We chose an eco friendly natural place where you swam in the sea with them. Oh it was gorgeous. But physically very hard going on my body treading water for so long in deep water. I'm really proud I did this. Then we spent the afternoon lazing in hammocks on a gorgeous tropical island. Ahhhh bliss. I was not nearly so advanced in my illness as I am now when I did this but I was still sick so it just goes to show you can do anything you put your mind to really.. Now I am off to get ready for my camera swallowing trick..see you on the flip side! 🤣😘👑👓💜 #sickchicks7daychallenge #sickchicks7daychallenge #sickchickgetsslim #inspirationalpage #thisismyyear #ckd #kidneydiseaseawareness #aps #chronicillnesswarrior #chronicillness #disability #disabledandcute #autoimmuneillness #autoimmunedisease #lupus #fibromyalgia #antiphospholipidsyndrome #endometriosis #butyoudontlooksick #healthblogger #spoonieblogger #spoonie #spoonielife #spooniecommunity #invisibleillnessawareness

Looking out the window at these wood pigeons perched up high, watching the world below!

Second day at work.. yeeep I got the job. My mom is somehow my boss also 😄😄 but everything is going smoothly ☺✌. Waking up at mornings isnt my thing but today wasnt as bad as yesterday 🤣 I feel like sleepwalking and quite happy that I can work. It makes mt day that Im not laying at home all day.
#working #atwork #pinkhair #selfie #spoonieselfie #spoonielife #update #mylife #spooniecommunity #spoonie #spoonies #spooniesister #chroniceverything #eds #edsgirls #chronicdiseasefighter #chronicillnesswarrior #ehlersdanlossyndrome #ehlersdanlosgrrrls #fuckyouimawesome

Post 1/2Haven't been able to sleep much the last couple months in particular for me to actually be awoken in the middle of the night by pain but happened today and today ALREADY really sucks cause Yesterday we drove 5 hours to get to San Antonio for my FIRST 4-day #KetamineInfusions which was a huge deal for me-dr kept saying all his 4-day patients get the best success and last time the ketamine barely helped at all.Made me depressed and barely helped my pain...so got to see the dr after a long drive that took up most of the day only to find out that they decided to cancel all the infusions for Tuesday Beacause the forecast predicts there being ice on the road(and I've been in texas for over 2 1/2 years-have experienced a lot more ice/snow here and know it's not crazy uncommon and yet no one takes any precautions for this type of thing and so unlike states that get real winter they shut down Everything for icy roads. Like you'd think they'd realize it's probably something they should learn to cope with loke all these other states-but nope! They don't.So now Im back to 3 days and the dr didn't even listen to my concerns and complaints about my last #ketamineinfusion -I KNOW Im used to what I get but he won't make my dose higher.So pissed at drs not actually listening to me.I don't have any other route to go with treatment-Ketamine is the only thing I can do at this point to cope with being alive and the freakin' dr who knows Im used to the dose Im getting and who knows I had to be put back on vicodin(which fights against #ketamine working)this month because my insurance randomly stopped covering my nucenta which is a big deal in and of itself which has been devastating isn't wanting to help me.And now I have a whole long day to waste in a hotel room just praying that my other three days don't get canceled because of stupid weather. :( I really needed 4-days at the very least since he didn't change anything😢#depression#spooniecommunity#spoonie#crps#ketaminecrps#ketamineforpain#ketamineforchronicpain#depressed#chronicallyill#painmanagement#edstype3#crpssucks#lifesucks#ketaminetherapy#ketaminepioneer#ketamineismedicine#ketamineinfusiontherapy#needrelief

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