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I am not feeling great today - working full time & travelling with my job really takes it out of me as I live with a neurological condition. Today I want to crawl back into bed but I have a full day of meetings so don't have that option - my hair is greasy, my face pale and I don't have the energy to do anything about either so guess I have to suck it up, put on my brace face, and make sure that I slay today regardless! #truth #honest #spoonie #spoonieblog #spoonieblogger

Just eating my way through London 🐷 strawberries and banana covered with dark, milk, and white chocolate and topped with marshmallows and chopped nuts

The first page is all filled up! I'm not feeling super productive today in terms of writing the post I wanted to work on so I'm going to spend today looking through these blogs!!! ♡♡♡ Is your chronic illness blog on the list?

#chronicillness #spoonie #bloggers #spoonieblogger #spoonieblog

It’s been a long time, but here’s a new blog post. It’s lengthy & I may have cried in Starbucks while writing this. 😔 It’s the post that’s needed to happen, but I haven’t wanted to relive it. Today, I finally did it. However, I didn’t go back & edit as I barely was able to get it written. I hope you enjoy it & receive blessings from reading it. ❤️ Link in my bio of simply go to your browser & head to www.byashleydawn.com & click on the blog link. ☕️

This makes me sad. Anyone else use Bloglovin? Let me know so we can follow each other! There’s a new post up right now, and another coming at 4pm! .
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#blogger #bblogger #lblogger #femaleblogger #newblogger #blog #girlblogger #blog #bloglovin #mentalhealth #mhblog #anxiety #depression #ibd #colitis #crohns #ibdblog #spoonieblog #spoonie #chronicillness

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It’s been a long time, but here’s a new blog post. It’s lengthy & I may have cried in Starbucks while writing this. 😔 It’s the post that’s needed to happen, but I haven’t wanted to relive it. Today, I finally did it. However, I didn’t go back & edit as I barely was able to get it written. I hope you enjoy it & receive blessings from reading it. ❤️ Link in my bio of simply go to your browser & head to www.byashleydawn.com & click on the blog link. ☕️

UPDATE 🎄⛄️:Today I went to Children’s Hospital of Los Angles to attend the Rheumatic Diseases Support Group Christmas Party/ End of the year party 2017 ⭐️. Such a great time seeing familiar faces of people there to support one another through one simple bond we all been affected by a autoimmune disease. It’s been amazing watching these support groups in LA of California grow so much these past years. 13 years ago this year these support groups began ! When I was first diagnosed I didn’t know anyone even remotely my age with a similar illness . Having community is SO important ! Especially when it’s children and young teens , and young adults . In those years you’re already going through a lot of changes & to top it off you go through this life changing events. To feel and know you aren’t alone in the world with what you are going through and what you feel is so important ! So proud to be a Veteran Patient at CHLA . Now at 23 years old I’m someone that these young teens and kids can look up to to what is ahead and for newly diagnosed patients just a small light of hope that others have made it out ok ! You can do it ! Had a blast seeing Adam from Lupus LA as always a dear friend and supporter of these events and spreading awareness ! Thank you to Jen from The Arthritis Foundation 💙. Seeing Phill Lewis (Mr.Moseby) as a great celebrity supporter and bringing awareness to these diseases ! #LupusBlog #Lupus #SLE #SystemicLupus #SystemicLupusErythematosus #LupusSupport #LupusLife #LupusProblems #LupusSisters #LupusWarrior #LupusAdvocate #LupusAwareness #LupusPain #Lupie #LupieLife #LupiePain #LupieSupport #LupieWarrior #Spoonie #SpoonieBlog #SpoonieSupport #SpoonieProblems #Spoonies #InvisibleDisease #AutoimmuneDisease #LupusLA

I'm resting today and spending it curled up, watching Peaky Blinders, trying to catch up. I have another cold so I woke up feeling extra poopy today. I hope it goes soon because I've got a lot going on next week and don't need the extra poopiness! .
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#blog #blogger #chronicallyill #chronicillnessblogger #chronicallyillblogger #chronicillnessblog #chronically illblog #newblogger #lifestyle #chronicallyilllifestyle #chronicillnesslifestyle #spoonie #spoonielife #spoonielifestyle #spoonieblog #m.e #pots #eds #hashimotos #migraines #chronic #cfs #fibro #potsie #raynauds #hypothyroidism #alopecia #wheechair #dancingintherain

This class makes me wish I went to school for fashion design instead of business administration
#college #collegelife #fashiondesign #business #businessadministration #collegekid #bblogger #fashionblogger #fashionblog #collegeblog #spoonie #spoonieblog #collegegirl

We had mulled wine tonight 🍷 Christmas has officially arrived in the Cupcake household!

I'm finding the run up a little stressful. I have such limited energy & health, but there's suddenly so much that needs doing! Be it shopping, wrapping or social events. 🎁 But I've arrived at Christmas Day *so* unwell for 3 years running, I'm determined it won't happen again this year!

What are your tips for making it through December unscathed?
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#christmas #xmas #christmascountdown #christmas2017 #christmastree #mulledwine #fairylights #festive #hygge #spoonie #fibromyalgia #fibro #cfsme #mecfs #CFS #pwme #chronicillness #chronicpain #chroniclife #spoonieproblems #spoonieblog #spooniebloggers #fibrobloggers #Leedsbloggers #livethelittlethings #flashesofdelight #thehappynow #petitejoys #livecolorfully #katiecupcakelifewithme

Well well well looks who's teaming up again!👀 LOVE working with these girls! We have another collaboration coming up and are now working on a blog! Pop over Wordpress and find us at "vesuk" we will be blogging about more than just make up there's a tonne of things can't wait to get my first post written up! &I whilst I'm at it go check out these two beautiful ladies! @mumsandmakeup & @sophie_pang_ you'll love them as much as I do just after one visit!💕 #bloggers #bloggerstyle #bloggerlife #beautyaccountfollowtrain #beautyaddict #beautyaccount #makeupjunkie #mue #mua #friendshipgoals #life #singlemom #healthproblems #spoonieblog #spoonielife #spoonie #makeupaddicts #girlswhowrite

Day number five of the #spooniechristmaschallenge - favourite hydration. Wine counts, right?

I think we make a pretty cute team of bloggers👀🙈 go check us out on Wordpress @ "VES UK" we are doing all things beauty, skin care, single parenting, health, mental health, additional needs, chronic illnesses and so much more! Also don't forget to follow them both @mumsandmakeup @simplisticworldbeauty #dreamteam #blogger #beautyblogger #bloggerteam #makeup #makeuplook #followforfollow #beautyfollowtrain #makeupaccount #instablogger #bloggergram #makeupobsessed #makeupblogger #wordpressblog #beautifulgirls #makeupgoals #makeuplife #mue #aspiringmua #goals #spoonieblog #spoonie

This makes me sad. Anyone else use Bloglovin? Let me know so we can follow each other! There’s a new post up right now, and another coming at 4pm! .
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#blogger #bblogger #lblogger #femaleblogger #newblogger #blog #girlblogger #blog #bloglovin #mentalhealth #mhblog #anxiety #depression #ibd #colitis #crohns #ibdblog #spoonieblog #spoonie #chronicillness

I finally saw the new (ish) Leeds train station entrance for the first time yesterday! Can you tell I don't get out much? 😂 it's been open ages!

But anyway, my point is - HOW PRETTY IS IT?!! I love the lighting so much. 🌈 I still miss the (very) old days of the undercover market but this is definitely lovely to look at! Who remembers the old market?
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#leeds #leedsstation #leedstrainstation #granarywharf #darkarches #leedsispretty #leedsbloggers #leedsblogger #yorkshire #Yorkshirebloggers #Yorkshireblogger #northernbloggers #rainbowlight #rainbow #purple #leedshistory #architecture #livethelittlethings #flashesofdelight #thehappynow #petitejoys #livecolorfully #bbloggers #spoonie #chronicillness #fibromyalgia #fibro #cfs #spoonieblog #katiecupcakelifewithme

I have been working so hard on this, and would love some feedback. Please take a look at my page: http://www.porphyriaandme.weebly.com ❤️
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#website #blog #blogger #chronicillness #chronicpain #invisibleillness #spoonie #spoonieblog #porphyria #love #hardwork #share #care #nurseforchange #nursepatient #instagram #weebly #weeblyblog #community

Dead tired from a crappy week last week and I've got another busy week ahead. I'm so looking forward to these new meds I'm starting to help my POTS, probably more excited that I should be 😂 for now, have a tired, pouty selfie fron the car, waiting on the fam 😎
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#blog #blogger #chronicallyill #chronicillnessblogger #chronicallyillblogger #chronicillnessblog #chronically illblog #newblogger #lifestyle #chronicallyilllifestyle #chronicillnesslifestyle #spoonie #spoonielife #spoonielifestyle #spoonieblog #m.e #pots #eds #hashimotos #migraines #chronic #cfs #fibro #potsie #raynauds #hypothyroidism #alopecia #wheechair #dancingintherain

we’re playing Santa around here and packing up lots of gifts to send to my niece in Ohio 🎄
I’ve been supporting my friends with small businesses and I am so happy with the products I have received. This lunchbox and pocket are from Thirty-One Gifts and the kid’s bath products are from Arbonne.
this season when you’re shopping, think small first! when you support an independent business owner, you’re feeding a family, paying for sports and arts education, and empowering someone you love to achieve their dreams! 🛍🛍🛍

Our Christmas tree is up already 😁 I'm way too excited for Christmas this year, I'm predicting yet another sleepless Christmas eve, 17 and all 😉
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I'm trying to stay together this week although I must admit I'm fairly stressed as far as things go. Hopefully next week will be clearer. 🙂 How is everyone? I'd love to get in touch with more of you 😊 so feel free to message me! -
#blog #blogger #chronicallyill #chronicillnessblogger #chronicallyillblogger #chronicillnessblog #chronically illblog #newblogger #lifestyle #chronicallyilllifestyle #chronicillnesslifestyle #spoonie #spoonielife #spoonielifestyle #spoonieblog #m.e #pots #eds #hashimotos #migraines #chronic #cfs #fibro #potsie #raynauds #hypothyroidism #alopecia #wheechair #dancingintherain

In celebration of me rambling a lot and posting 900 photos I thought I would do a lil intro thing.
I’m Laura (dur) and I’m a proud spoonie 🥄 I have Ehlers-Danlos Syndrome, fibro, reactive arthritis and various mental health conditions. And other stuff. The list seems to be getting longer. The past few years have been tough as I’ve become more unwell and sometimes I feel like I’m missing out on a normal life. But I’m still standing. I’ve met some amazing people who have become close friends. Things can be tough and they are likely to get tougher and I’m learning that my experiences are helping others. If nothing else, I’m grateful for that.

Because I’m behind on The #spooniechristmaschallenge, I’m posting day 3 today too - international disabled people’s day, what do you want people to know?

I want people to know that not every person with an impairment/chronic illness/disability LOOKS sick. My condition affects my stomach and funnily enough, I don’t walk around with mine on show so you can’t see how “messed up” it is. You can’t see the pain I’m in, the nausea I’m experiencing, the dizziness, the fatigue or any other symptom other than bloating. And even then, I’ll probably have a top on that’ll hide it fairly well. Unless you’ve been told I have gastroparesis, you wouldn’t guess. On the outside, I look “normal” and well. So, here’s a life lesson - be kind to everyone you meet, because you never know who’s fighting a battle that you know nothing about. Just because someone seems fine on the outside, doesn’t mean they’re ok on the inside too. Fighting a daily battle with your own body is exhausting. I’m not lazy, I’m ill. I’m not starving myself, I’m just having a flare and I’m feeling sick. I’m not being a pig, I’m just able to eat today so I’m making the most of it because IM STARRRRRRVING! I am chronically ill and I think I’m pretty strong. 💪🏽

Day 2 of The #spooniechristmaschallenge - I don’t think any “cures” people have recommended have been weird as such, just idiotic. People who pass comments like “have you just tried eating?”, “praying helps”, “If you ate more frequently or healthier that’d help”. None of these people are medical professionals and as far as I know, they’re not qualified to offer me “cures”. Gastroparesis has no cure. It’s barely even treatable. It’s a mystery! And when people tell me to “eat healthier”, it’s more frustrating because it’s those healthy foods which make gastroparesis worse for so many people. So while we’re eating our 13th Big Mac of the week, it’s probably because it’s the only thing we can stomach that week. And I know some people do genuinely mean well, but honestly, if there was anything I could do to make life a bit easier, I’d have already been doing it, my doctor would recommend it. In the meantime, just be supportive and let me moan about looking 5 months pregnant and feeling sick despite not having any bun in my oven.

I’m a little bit late for this challenge but I’m going to join in anyway!
Day 1 - The condition I have been diagnosed with is Gastroparesis. This means that my stomach doesn’t work properly because it is paralysed and this causes me to have so many horrible symptoms! It usually affects those who are over 35 but I’ve had this since I was 16, yet they only put a name to it in November ‘16. And for the time being, my condition is somewhat managed and I have more good days than bad. But I could wake up in the morning and have skipped to one of the lesser manageable stages. Here’s hoping it doesn’t happen for a long time. 🤞🏽

Sunday afternoon viewing ✨ The Go Betweens : Right Here ✨ ABC iview ✨ 😍 If you're in Australia you've got until January 4 to watch this documentary about this great Queensland band 💋
#thegobetweens #gobetweens #righthere #brisbanebands #sundayviewing #arthritis #rheumatoidarthritis #chronicillness #autoimmune #autoimmunedisease #spoonie #spoonieblogger #spoonieblog #lifestyleblogger #perthblogger #perthblog #australianmusic #queenslandmusic #musician #robertforster #grantmclennan

// So much has happened in the past two months. We've lost three people we love so much, and my health has plummeted in so many ways. You have had to call 911 on me twice, and you've been with me for every single one of the twenty-five days I've spent hospitalized. You've carried me when my wheelchair couldn't go places. You've picked me up when I've fallen, and you have caught me when I've fainted. You've kept me safe while I've seized, cleaned up vomit without a second thought, and held my hand through blood draws, scans, and feeding tube placements. You even bought me fluffy pillowsss (inside joke 🙈)...all while running your own successful business and trying to take care of yourself. I am in complete awe of how much you do for me without any expectation of service in return. You have the most beautiful servant's heart. You care for me so well...far better than you think you do. No matter how big something seems to me when I ask it and no matter how gross or scary a situation is, you jump into action to help whenever I need something. You do so much for me...so much more than I could summarize here. But most of all, far above any of these examples, you refuse to let me give up hope that there will be better days ahead. For that and for you, I am eternally thankful, grateful, and blessed. You are the Jim to my Pam, and I love you so much. ❤️ //

The first Mito Stories blog is up on our website now '6 Tips for Planning a Holiday with a Chronic Illness': https://mitomerch.com/blogs/mito-stories

Get in contact with us if you'd like to add to the blog!

Looking for something to read this dinner time? Why not head on over to my blog and catch up on my latest posts? Link in bio ✨

Lately I can't get enough of this song. It always amazes me when I can find a song that so perfectly describes what I'm feeling. Sometimes music is the only thing that can get us through the hardships in life. It will always understand and never judge. My newest blog post will explain why I've needed music so badly. .
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#linkinmybio #pushingon #musicneverfails #musicismyhigh #shakeitoutshakeitout #florenceandthemachine #altpopmusic #timewillhealme #musichealsthesoul #itsokaytonotbeokay #spoonieblog #chronicillnessblogger

Only two more days till summer - I took my first dip of the season a couple of days ago ⛱ Just looking at the beautiful Indian Ocean makes me feel relaxed 😌
#perthbeaches #portbeach #perthisok #perthgram #beachesoftheworld #indianocean #beachlife #summer #summerinperth #arthritis #ra #rheumatoidarthritis #chronicillness #autoimmune #autoimmunedisease #spoonie #spoonieblogger #spoonieblog #spoonielife #lifewithra #chroniclife #lifestyleblogger #perthblogger #perthblog
By the way that’s not me in the pic😉

#mood
Grrrrr Instagram algorithm 😠
Sorry if I don’t click ❤️on your photos - I probably haven’t seen them. I keep seeing the same photos over and over even if I saw them 5 days ago ☹️
#instagram #arthritis #rheumatoidarthritis #ra #chronicillness #chronicillnessblogger #autoimmune #autoimmunedisease #spoonie #spoonieblog #spoonieblogger #lifestyleblogger #perthblogger #perthblog #janerussell #vintageglamour #oldhollywood

Sometimes I forget that I’m ill (ha if only, I’m reminded daily) but when I was given a print out of all my meds, I was really shocked. This is what it takes to keep me functioning, even then it’s questionable. This is what it takes to help my body do the things that most people take for granted.
#ehlersdanlossyndrome #ehlersdanlos #fibromyalgia #reactivearthritis #spoonie #spoonielife #spooniesquad #spooniesunite #spooniediaries #pain #chronicpain #chronicillness #chronicallyfabulous #lifeafterdiagnosis #laurasspooniediaries #hospital #hospitallife #hospitalappointment #badnews #defeated #linkinbio #blog #blogpost #blogger #bloggerlife #lblogger #lbloggers #spoonieblogger #spoonieblog

Just shared a #ChronicLoveClub quote over on @visibleillness 💗 Wanting to make the account somewhere full of resources for chronically ill people & their friends to help people become more accepting of the invisible illness all around us 🌠🌙xx ~
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#spoonie #chronicillness #invisibleillness #sickchick #mecfs #meawareness #eds #hypermobility #chronicpain #love #selfie #community #spoonieblog

As we're thinking about how to #MakeHappinessAccessible, this seems a perfect time to mention @Chronicloveclub. The account is half smile-worthy quotes that give you a virtual shoulder to lean on (and lots of "That's me!! They understand!" Moments) and half photos of club members who have decided to share their stories. All you have to do is follow to join the #ChronicLoveClub 🌙🐇🦄 ~
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#spoonie #chronicillness #invisibleillness #sickchick #mecfs #meawareness #eds #hypermobility #chronicpain #pastel #quote #sea #spoonieblog #relatable #party #teenblog

Know your worth. Remove all of the negativity from your life. Focus on the good. Focus on the positive. Do whatever makes you smile because this life is way too short to be anything less than happy. ✨

// "But God, when You choose to leave mountains unmovable, oh, give me the strength to be able to sing, 'it is well with my soul.' I know You're able, and I know You can save through the fire with Your mighty hand, but even if You don't, my hope is You alone." {MercyMe} //

I miss my beautiful orange roses! 🌺 Next time I make it out somewhere, I'm definitely treating myself to some more flowers.

Laying low a bit today, after having my (medical) botox for my jaw yesterday. The hospital trip wore me out and I'm in a lot of pain ☹ How are you doing? Let me know!
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#rose #roses #orangeroses #orange #flowers #nature #bbloggers #beauty #lbloggers #spoonie #fibromyalgia #fibro #CFS #ME #tmj #chronicillness #chronicpain #chroniclife #spoonies #spoonielife #spoonieblog #spooniebloggers #fibrobloggers #leedsbloggers #livethelittlethings #flashesofdelight #thehappynow #petitejoys #livecolorfully #katiecupcakelifewithme

5 Tips For Quick And Stress Free Photoshoots featuring lots of photos like this one, post up on my blog now! 💜 Written with us creative spoonies in mind but suitable for anyone looking to cut down on stress and time on a fun photo shoot! Let me know if you like any of the photos or tips! ~
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#spoonie #chronicillness #invisibleillness #sickchick #mecfs #meawareness #eds #hypermobility #chronicpain #photoshoot #modelling #wildflowers #meadow #whimsical #photography #nature #photographyblog #spoonieblog

It's been a year in the making, yet it still looks pretty terrible at this point, but I have my very own website domain! As of this moment, there aren't any new blog posts (yet), but there are some links to some old ones. I'd love it if y'all would go check out what little bit I have and give me some feedback on what you think! The actual "blog" page literally has had no editing at this point. I just inserted the links. There's much to be desired, in my opinion, on the whole site currently, but I digress.
Y'all tell me what you think! You can comment here OR use the contact page on my website! 😊

www.byashleydawn.com

Hi, hi! Today's mail call brought body butter from @unwindbandb in #coconutmango. First off thank you guys I entered your give aways multiple times because I really really wanted to try this lol.
Its handmade by the owner and smells amazing. So tropical and fruity without being artificially sweet. Its made with my go to coconut oil as well as shea butter olive, almond, and jojoba oils. Its got a great consistency and reminds me of actual amish made butter. Very hydrating which being a spoonie in the winter will come in handy. It leaves a tiny sheen on the skin when applied but its more a dewy look than greasy. Scent has lasting power and this thing is massive great gift amount.
Also guys the amazing creators gave me a coupon code to share with you use HELINOFTROY for 10% off. I dont get a percentage don't worry. But if you're like me discounts are a girls best friend.
This was not sponsored its my honest review of a product i won through a giveaway I was not asked nor under any obligations to post this or any other reviews. My only compensation has been the free product I won through a brand giveaway that made no followup requirements i just want to share some love and tell you folks about a product i genuinely like. Plus thank them for being generous enough to give away products to their followers.
#bathandbody #handmadelove #handmadeisbetter #handmadeshop #product #handmadecosmetics #bodybuttercream #bathandbodyrituals #handmadegoods #handmadesoaps #handmade #productreviews #handmadewithlove #bodybutter #handmadegifts #bathandbodycare #handmadesoap #blog #bodybutters #products #beautyreview #beautyblogger #lgbtblog #lgbtblogger #spoonieblogger #spoonieblog

It's Gonna take me a few days to actually catch you guys up on what happened in life but I want to share it.Thank you so much to all the people who responded to my last post.Means the world to me.Ive been so isolated and it's been really hard.Anyway finally got the highest dose of oral #ketamine In this form.This has been the ONE thing to take away my #depression -meds never worked for me but ketamine has let me be more of myself and able to express myself to people without fear.Thats a huge deal for me.Of course I still have depression and pain but ever since I began doing my #ketamineinfusions (only had two 3-day infusions)My extremely high pain levels dropped overall.Right now It's been 3 weeks since my infusion and I feel myself returning to how I was ️Before ketamine but the beginning of December I'll be going back!Ketamine is supposed to reset your brain pretty much and while it's given me lots of relief it's also caused tons of new pains.Double edged sword for me.Im officially doing #ketamineinfusion for my pain management along with other meds...am also looking for a therapist to help me be able to function in life when it's not evolving around my pain every day-this is a new and unexpected chapter of My life.I finally feel some kind of hope in life.Also thinking about starting a blog up again and talking about health stuff-ESPECIALLY the ketamine cause there's SO many important things about that process that are hard to sum up in a IG post.Does that seem interesting to any of my fellow #spoonies ?Just want to help encourage people trying ketamine BECAUSE of the whole double edged sword...lots of people give up too fast and there's not much about ketamine out there even.Still in the #ketaminepioneer process.Anywho Lemme know what you guys think!

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