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MOST RECENT

Workflow weekend...always rewarding giving back and knowing you're helping the kids. Hoping I can get outside and get some miles later. Bringing some CF awareness anyway I can. Have a blessed weekend amigos. 🏨🔬🚴💜♼
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#lablife #scrublife #weekendwork #bloodbanker #cyclelife #justwanttoridemybike #enjoymywork #sixtyfiveapparel #vampireslikeus #cysticfibrosisawareness #cysticfibrosis #sixtyfiveroses #doublelungtransplant #justbreathe #blessed

Staying warm in style this winter 🌬❄️ #sixtyfiveapparel #awareness #feelinggoodtoday #stayawayflu #winterblues

I really wish I had recent riding pics, but my wife rocking my jersey makes me feel a bit better
#fcf
#sixtyfiveapparel
#sixtyfiveroses
#65roses
#cfirl

Tminus 115 minutes until Brady destroys these Steelers. Leggo #patriots #thegoat #brady #sixtyfiveapparel #fantasyfb #gronkisback #fucf #fightlikeaboss #justbreathechris

We are OUT! No more hospital for us thank goodness🙌 Taylor has been sent home on antibiotics for another week. He is feeling so much better and we appreciate everyone who has prayed and kept us in their thoughts. #cysticfibrosis #sixtyfiveapparel #rvlife #rvliving #meetthestroops #travelingthecountry

Making sure I represent my cause wherever I go. Boston was a struggle for my lungs, breathing in the cold air. It sort of makes them feel like they're overworked or fiery. I can't explain it unless you know what overworked lungs feel like. It's a slow burning. Stairs are the devil, so I take the elevator, and cold air is the "hot iron" down your throat. But I have been feeling pretty healthy recently.....since my month long stout of sickness in October. I'm lucky to be able to travel as much as I have in my lifetime. Boston was really fun. But now I am home and need to rest my lungs before the holiday chaos arrives. | i actually got asked about what my hat meant in an elevator of the #ISGM, so I explained to her that "LXV" is Roman numerals for 65, which is sort of a colloquial way of saying "Cystic Fibrosis" (65 roses). She knew a little bit about my disease, and proceeded to tell me how blessed I am to be this healthy. I agreed with her and thanked her. My hat continues to spread awareness of this #invisibleillness #LXV #65 #65roses #CFstrong #cysticfibrosis #sixtyfiveapparel #boston #freezingcold #imfromflorida

This stay has been the toughest stay I've ever had, emotionally and physically. I went 5 days on antibiotics that gave me such bad migraines and nausea I couldnt eat or sleep. I was suppose to go home yesterday but due to me seeming sicker then when I arrived the docs wanted me to stay so they could change up my antibiotics and get me stable. I can stick through some headaches for a few days if it means the antibiotics are doing there job and going to make me feel better in the long run. But yesterday I found out that my inflammation and white blood cell count were all elevated compared to when I came in. Knowing I've have been going through this for nothing. That broke me down. I didn't realize how well I had it until this week. I didn't realize how useless and miserable it is to have a migraine. It made me realize how much I truly take for granted and how much I have to be thankful for.
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But after changing up my antibiotics yesterday. I was able to get a full night's sleep for the first time since I got here. I didn't wake up nauseous after my tube feeds. From this mornings labs my white blood cell count and inflammation has already come down so things are looking up!
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Thank you all for your support and kind words helping me through this. I will continue keeping you updated. We are still trying to get home today or tomorrow!
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#cysticfibrosis #saltysquad #sixtyfiveapparel

Thank you @sixtyfiveapparel ! I love this Cystic Fibrosis shirt so much!! Why get a normal shirt when you can get a Tshirt with the name of all your struggles??? #sixtyfiveapparel #cf #cfstrong #65roses

Trying to smile our way through this hospital stay. We know that God is in control and we will be out of here soon!
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#cysticfibrosis #cf #livingwithcf #breatheeasy #lungdisease #sixtyfiveroses #sixtyfiveapparel #admitted #cfcouple #saltysquad #rvlife #rv #meetthestroops #travel #traveltrailer

#Repost @sixtyfiveapparel
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The past few days have been a roller coaster. Nauseated and migraines for 3 solid days. Bad enough that I can’t cough. In turn making me feel even worse. Seems like my side effects of antibiotics are worse then ever. Anybody else experience this? But I’m blessed to have such a wonderful women by my side through all this. Almost halfway done with my course. Just gotta get through the next week. #ainteasybeingwheezy #sixtyfiveapparel #cysticfibrosis

The past few days have been a roller coaster. Nauseated and migraines for 3 solid days. Bad enough that I can’t cough. In turn making me feel even worse. Seems like my side effects of antibiotics are worse then ever. Anybody else experience this? But I’m blessed to have such a wonderful women by my side through all this. Almost halfway done with my course. Just gotta get through the next week. #ainteasybeingwheezy #sixtyfiveapparel #cysticfibrosis

Really missing it right now, soon I will see you again.
#cysticfibrosis
#65roses
#sixtyfiveapparel

LXV. - I have a lot of people ask the meaning. LXV is the Roman numeral for 65. That number has it's significants due to the Sixty Five Roses story which dates back to 1965 when a young boy mispronounced cystic fibrosis as sixty five roses. @dan_antivist #saltysquad .
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#cysticfibrosis #sixtyfiveapparel

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