#sixtyfiveapparel

MOST RECENT

Went camping ⛺️ in the best place I’ve camped in so far. Middle of no where in the ⛰ mountains and no one else in sight. Also best views for a hike as well at above 11,000 feet. That camp spot is not easy to get to though, you definitely need a vehicle that is good at off roading and a driver who knows their shit. My brother’s friend brought us to this amazing spot that will be very hard to top 🙌🏻🏔. .
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#lungstoryshort #cysticfibrosis #cfawareness #cf #65roses #lxv #sixtyfiveapparel #doublelungtransplant #posttransplant #adventureisoutthere #optoutside #camping #epicview #adventurefreaks #hikeitout #colorado #jamespeakwilderness #clearcreekcounty

This is a shout out to all the amazing CF spouses and significant others. We CFers know how hard and how much you guys go through and we want to thank you all. Going through this journey with someone makes a world of a difference. I know I couldn't do it without my amazingly kind and loving wife @ksuestroop. We ♥️ you all.
Thank you @breathe4salty for the pic and sharing your journey. #saltysquad .
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www.sixtyfiveapparel.com
#cysticfibrosis #cfspouse #sixtyfiveapparel

Loving this flow from @polefly class today! ✨✨

Fun fact! I had surgery yesterday! 14 years ago I had a stent placed in my left lung to keep an airway open that had completely swelled shut. The stent was suppose to be a temporary fix but it worked so well we stuck with it, or I should say it stuck with me haha Yesterday I was suppose to get it replaced (it would have been my 4th stent because I broke or shifted a few others 🙈) but when they removed it my airway decided it was going to show off and stay open! That means my lung has gotten stronger!! My doctor made the call for me to remain stentless *for right now* to see how I do and so I celebrated today with lyra (drs approval) and new leggings from @sixtyfiveapparel whoop whoop! 💃🏻

#lyra #lyralove #lyralife #lyrahoop #lyraflow #aeriallyra #aerialhoop #aerialhooptricks #happyplace #polefly #cysticfibrosis #cysticfibrosisfitness #aerialfitness #aerialist #sixtyfiveapparel

I can relate to Alex on so many levels. It took me 26 yrs to realize that going through this CF journey alone was going to drive me to my breaking point. I kept it to myself for so long because i feared being looked at differently, being told I couldn't, or being pited upon. I was wrong. The reactions, love and support I've gotten from the people I've told have been beyond what I expected. Don't go through life alone. We are not designed to do so.
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Wise words from @alexlikens "Cystic fibrosis, is something I’ve lived with my whole life, and unfortunately will always have to live with. It’s something I have always kept to myself, and only told my closest friends and family. I did this because I never wanted sympathy and I never wanted to be treated differently, and I still don’t want that. The other day I found a really cool apparel company @sixtyfiveapparel, and their message is to spread awareness through their clothing, get more people asking about CF. CF is a disease that majority of people have no idea even exists, but it is a very serious thing and unfortunately takes a lot of lives at a really young age. I’ve been blessed enough to have parents that have ALWAYS put my health first. They always made sure I had my hundreds of medicines I have to take, and most importantly that I did them. They have single handily kept me healthy and I will forever be grateful for them. The only thing I ask is for people to read up on this disease, learn this disease, and help us find a cure for it."
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www.sixtyfiveapparel.com
#CysticFibrosis #65Roses #CF #LXV #SixtyFiveApparel #CFawareness

Salty squad 🖤

Happy Father’s Day!!! Went on hike at a sculpture park today in NH with my dad. It was a lot steeper than I expected 😒 but still fun regardless 😊. A lot of different trails intertwining with each other and got a little “lost”. So lucky to have a second chance at life to spend Father’s Day with my dad! Thankful for my donor♻️💜. Hope everyone is enjoying the day!! 😄👌🏼💙.
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#lungstoryshort #cysticfibrosis #cfawareness #posttransplant #doublelungtransplant #newlungs #lxv #sixtyfiveapparel #fathersday #hike #optoutside #happyfathersday

This is why we wake up and do what we do every single day. So future generations like @emmieellis_santana @freddysantana will not have to face the struggles and battles we had to. We are so close to a cure and we can all be apart of it. 💪♥️ #saltysquad .
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https://sixtyfiveapparel.com/collections/infant-tops/products/infant-tee-1
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#cysticfibrosis #sixtyfiveapparel

Yesterday's evening ride...first ride in two weeks after surgery and i was quickly reminded why i enjoy the ride. Thankful i can do it and grateful for my donors. My voice has returned and feeling better by the day. Keep pushing forward. Life is a beautiful ride. ♻🚴🙌🏽
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#lifeisabeautifulride #trekbicycle #cyclegoals #bontrager #cyclelife #supacaz #thankful #whenindoubtpedalitout #shutuplegs #keepsmiling #organdonation #donatelife #livelifegivelife #lungs #sixtyfiveapparel #cysticfibrosis #cysticfibrosisawareness #bronchiectasis #diabetesfighter #doublelungtransplant #transplantlife #justbreathe #neverquit #keeppushingforward #blessed

#Repost We recently learned that Carmine is truly made for greatness! He is a very special little boy. At two weeks old, he was diagnosed with Cystic Fibrosis - a very rare genetic disease - but has been doing AMAZING ever since! We hesitated to share this personal news, but decided to share when we realized that our story could help raise awareness and provide comfort to other parents who receive a similar diagnosis. May was Cystic Fibrosis awareness month, and we hope that our post helps educate and possibly brings some optimism to other families dealing with CF. For our journey so far, check out our latest blog post (link in bio) and for more information on CF, visit @cf_foundation ♥️ #cysticfibrosis #cffoundation #cysticfibrosisawareness #cf #cfawareness #sixtyfiveroses #sixtyfiveapparel #mystrongboy #iamcarmineanthony #salty #WeAreFremily

As a CFer, what are some things we get accustomed to that other people would otherwise find unusual or frustrating.
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Mine would be the looks or comments I get when coughing at the gym. Buff Guy: "Why are you in the gym when you're sick? You're gonna get us sick." Me: "No, no, I am in the gym so I don't get sick."
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At first it was hurtful and embarrassing but as soon as I learned I'm not doing this for anyone but myself. I began to live my life, in every aspect, fullfillingly without worrying about what others thought.
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Thank you @lifeofroses_ for the love and support. Hope you're doing well and staying healthy. 👍😊♥️
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#cysticfibrosis #saltysquad #sixtyfiveapparel

❤️Respost by @emmieellis_santana ・・・
•New Blog Post•
We recently learned that Carmine is truly made for greatness! He is a very special little boy. At two weeks old, he was diagnosed with Cystic Fibrosis - a very rare genetic disease - but has been doing AMAZING ever since! We hesitated to share this personal news, but decided to share when we realized that our story could help raise awareness and provide comfort to other parents who receive a similar diagnosis. May was Cystic Fibrosis awareness month, and we hope that our post helps educate and possibly brings some optimism to other families dealing with CF. For our journey so far, check out our latest blog post (link in bio) and for more information on CF, visit @cf_foundation ♥️ #cysticfibrosis #cffoundation #cysticfibrosisawareness #cf #cfawareness #sixtyfiveroses #sixtyfiveapparel #mystrongboy #iamcarmineanthony #salty #WeAreFremily

•New Blog Post•
We recently learned that Carmine is truly made for greatness! He is a very special little boy. At two weeks old, he was diagnosed with Cystic Fibrosis - a very rare genetic disease - but has been doing AMAZING ever since! We hesitated to share this personal news, but decided to share when we realized that our story could help raise awareness and provide comfort to other parents who receive a similar diagnosis. May was Cystic Fibrosis awareness month, and we hope that our post helps educate and possibly brings some optimism to other families dealing with CF. For our journey so far, check out our latest blog post (link in bio) and for more information on CF, visit @cf_foundation ♥️ #cysticfibrosis #cffoundation #cysticfibrosisawareness #cf #cfawareness #sixtyfiveroses #sixtyfiveapparel #mystrongboy #iamcarmineanthony #salty #WeAreFremily

Woohoo it’s FRIDAY! Taylor and I went to the @denverzoo and it was one of the highlights of our stay in Denver🦒 Seeing so many different animals that we never knew of and it was nice to see the touristy side of things. You can check out the Zoo for yourself! Just click the link in our bio🦍
#rvlife #fulltimerv #rvliving #rv #travel #traveling #wanderlust #explore #denverzoo #zoo #dailyvlog #vlogger #travelvlog #cysticfibrosis #cysticfibrosisawareness #cflife #sixtyfiveapparel

She got her leggings today from Sixty Five Apparel! #sixtyfiveapparel #cooldesign

By far one of the best things you can do to be proactive about your health is staying active! Whatever that might be, walking, running, weight lifting, sports, etc. I know each person's limits will vary but as long as you keep moving you're doing yourself and lungs a huge favor. Don't let doctors define your limits. Prove them wrong.
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Everytime I fall off the workout bandwagon I not only feel it physically but mentally. It's crazy what working out does to your mind and body. It gives you a sense of achievement, purpose, and well being. .
Due to me not having access to a gym anymore I've decided to kick off my workout routine with the 100 push up challenge. 100 push ups everyday for a month. 50 in the morning, 50 at night. The first week was the worst. I could barely get through them. I'm now on week three and have bumped up my reps to 150 push ups everyday. I feel better about myself and it's only been 2.5 weeks! I know I'm doing myself a favor physically but the mental benefits almost out weight everything. .
I will be posting a progress video on @meetthestroops YouTube once the challenge is over. I have low expectations on any physical changes but I am excited to see the before and after!
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So do yourself a favor and break the prediterminded statistics doctors, medicine and society has set upon us. Start and work your way up. The hardest part is getting through the first week!
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@the.salty.cf.artisan thank you for the picture and showing us how it's done! Stay strong and healthy! .
www.sixtyfiveapparel.com #cysticfibrosis #sixtyfiveapparel #saltisgoodforthesoul

My name is Megan (@the.salty.cf.artisan ), and I was diagnosed with Cystic Fibrosis at 5 years old. Late, I know, for CF, but I hadn’t had many lung issues as a child. Shortly after, I was thrown into the thick of the CF regimen, started on enzymes, the vest, and on nebulizers. But what I also started on, was sports. Whether or not my parents knew the positive impact that would have on my health, I don’t know. But I became my CF doctor’s “star patient,” contributing my good health to how active I kept myself. I played softball, I played lacrosse, I ran track, I swam. You name it, I did it.
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My good health and awesome sports regimen stayed true through high school, as I became more independent with my health and lifestyle choices. Playing varsity sports 6 days a week, 3 seasons a year kept me healthy and out of the hospital, and for that I am fortunate. Many people didn’t even know I had CF, or what was really involved in my day-to-day life to keep myself healthy, unless they were close friends and I let them into that part of my life.
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When I went away to college, that was the first time I found myself fully responsible for my health. I struggled, going up and down (for my standards), adding in new meds, but eventually finding my stride with ultimate frisbee and longer-distance runs. .
But this past year, at 26 years old, I finally had to face the reality of the hospital, as I have now completed 2 sets of IVs since November, treating the MAC infection I’ve had in my lungs since early in college. As much as I try to control my own outcome, fighting hard with treatments and exercise, there are days I have to remind myself that I am not capable of controlling everything. I can continue to fight hard, and that’s what is in my control.
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What I have also found to be in my control, is fundraising to find........read the rest of Megan's story on our blog or click the link on our bio. .
https://sixtyfiveapparel.com/blogs/the-fighters-chronicles/the-fighters-chronicles-megan-barlow
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#cysticfibrosis #thefighterschronicles #sixtyfiveapparel

Check out our new "Nothing But Nebs" collection! We love the new pattern and it looks great on our new items! What do you guys think? .
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https://sixtyfiveapparel.com/collections/nothin-but-nebs?page=1
#cysticfibrosis #sixtyfiveapparel #nothinbutnebs

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