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#sdrsurgery

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Please say a quick prayer for our daughter Teddy as she embarks on her SDR journey today. She has inspired us every step along the way! We will be right along side of you for this wild ride. #sdrsurgery #toughgirlteddy #cpwarrior

Les om saken på nrk.no og del gjerne artikkelen videre <3

https://www.nrk.no/trondelag/kjemper-for-a-bli-kvitt-smertene_-men-legene-sier-nei-til-operasjon-1.13801199

#siljesdrfund #spreadtheword #makeawareness #nrk #sdrsurgery

Thank you all for the calls, texts, comments, prayers and positive vibes. Surgery went great and Teddy is recovering well!!!!....she’s a tough little cookie and we are looking forward to starting the rehab program here at @gillettechildrens #sdrsurgery #toughgirlteddy #peppapig

Recovery from his SDR surgery this morning. Now we start the journey to being a independent walker. I'm thankful for our family who has been here and by our side. Here's to the next 2 days of recovery and then 14 days of intense physical therapy. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #spasticdiplegia #joedimaggiochildrenshospital

These boys were SO excited to get their Dare to Climb shirts in support of cousin Noa! We had a race in honor of her this morning. (You have to check out all the pictures. 😉) We can't wait until the day you can join in the race, sweet girl!! 💚#noaswishtowalk #cerebralpalsy #sdrsurgery #teespring

Out for a Saturday night cruise #cpwarrior #sdrsurgery #teiganssdrjourney #week3

Rolled out of bed and thought of you @mikaelasjourneyofhope Been praying for you! You've got the sun #Son at your back! I've have good plans for you #saystheLord plans for prosperity! You have an army of support for you here at home! Love you and looking forward to see how God blesses your life! #sdrsurgery #cerebralpalsyawareness #godsgotthis

And I can't believe this girl will be 5 on Tuesday! She went from a 4 pound little baby who had a small chance chance of survival to a happy 5 year old pushing threw every day! She is the true meaning of brave. I wouldn't change our journey for anything. She will change the world some day. #cerebralpalsy #cpstrong #cpawareness #sdrsurgery #sdrchangeslives

MOST RECENT

https://www.nrk.no/trondelag/cp-rammede-silje-kunne-fatt-et-annet-liv-med-operasjon-1.13804565

Du kan støtte innsamlingsaksjonen via bidra.no:
fnd.uz/sdrfond

#siljesdrfund #sosialemedier #cerebralparese #kindness #molde #kindnessmatters #kleive #cpawareness #trondheim #chronicpainwarrior #sdrsurgery #nrktrøndelag #Trøndelag #allemonnerdrar #sammenforengodsak @benthoie @stortinget

My hope is for SDR- surgery that will give me a new and pain free start <3

https://gogetfunding.com/siljes-sdr-fund/

#siljesdrfund #chronicpainsurvivor #cerebralpalsy #allemonnerdrar #standtogether #bekind #cpawareness #sammenforengodsak #sdrsurgery

Les om saken på nrk.no og del gjerne artikkelen videre <3

https://www.nrk.no/trondelag/kjemper-for-a-bli-kvitt-smertene_-men-legene-sier-nei-til-operasjon-1.13801199

#siljesdrfund #spreadtheword #makeawareness #nrk #sdrsurgery

My biggest wish is a miracle!
Help us make it happen <3
https://gogetfunding.com/siljes-sdr-fund/ ,#siljesdrfund #fundraiser #cerebralpalsy #sdrsurgery #cronicpainwarrior #bettertogether #hope #christmaswish #makeithappen

Thank you all for the calls, texts, comments, prayers and positive vibes. Surgery went great and Teddy is recovering well!!!!....she’s a tough little cookie and we are looking forward to starting the rehab program here at @gillettechildrens #sdrsurgery #toughgirlteddy #peppapig

Come see the room for a great cause! Tickets now available. #insidetheroom #sdr #ultimateleafsfan #january31 #hockeyhistory #sdrsurgery #sdrsurgeryrehab

Please say a quick prayer for our daughter Teddy as she embarks on her SDR journey today. She has inspired us every step along the way! We will be right along side of you for this wild ride. #sdrsurgery #toughgirlteddy #cpwarrior

We can officially count down our days to discharge. We are getting out of here finally. We are being discharged Wednesday afternoon after all final therapies are completed. Then we start right away with more therapy in out patient #sdrsurgery #intensivetherapy #cerebralpalsy #cpwarrior #23days #selectivedorsalrhizotomy

Day 11/26 We are out exploring the hospitals to keep joey distracted from being in his stander. It helps stretch out his legs and back. He hates being in it but we have to do 3 hrs spread out during the day. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #spasticdiplegia #cpawarness #cpwarrior

One of the biggest accomplishments Joey has been able to do is sit Indian style. He was never able to get his legs to bend like this. Thank God I decided to do this surgery for my son. To some it's no big deal but to me it's a miracle. #selectivedorsalrhizotomy #sdrsurgery #cpwarrior #cerebralpalsy #spasticdiplegia

Day 5 post op. We were told we would be in hospital the next 3 weeks instead of the normal 2. But this morning he finally lifted him self up and got on all 4's. #selectivedorsalrhizotomy #sdrsurgery #5dayspostop #cerebralpalsy #cpawarness #cpwarrior #spasticdiplegia #thestruggleisreal #exhausted #headachefordays

Day 2 Joey ate breakfast (ice cream) only he would eat but it's something and he had to stay laying on his stomach but he fell asleep so that helps keeping him there. Docs have been in and out checking on him. The incision on his back is about 1.5inches long. I have a very pissed off child for sure. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #cpawarness #cpwarrior #spasticdiplegia #spasticity #day2 #emotionalmommy #singlemom #freakedout #stressedout https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

Recovery from his SDR surgery this morning. Now we start the journey to being a independent walker. I'm thankful for our family who has been here and by our side. Here's to the next 2 days of recovery and then 14 days of intense physical therapy. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #spasticdiplegia #joedimaggiochildrenshospital

It's surgery day. We are here, Joey doesn't seem to know what's going on. I'm freaking out. My anxiety is through the roof. I'm not sure if I'm mentally prepared for this. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #cpwarrior #cpawarness #spasticdiplegia #spasticity #joedimaggiochildrenshospital #singlemom #stressedout #anxiety #toddlersofinstagram #thestruggleisreal #freakedout https://www.gofundme.com/selective-dorsal-rhizotomy-surgery #singleparentincome #thestruggleisreal

My baby is walking 💚#cpwarrior #sdrsurgery #breakingbarriers

Teigan was up in the walker today and I finally managed a decent video without distracting him🎉 This kid blows me away! #quadspasticcp #dystonia #cpwarrior #thiskid #hydrocephalus #provingthemwrong #breakingbarriers #love #myson #mysuperhero #blessed #blessed #hydrowarrior #sdrsurgery #shrinershospital

The face of a beautiful lil human that I created. We have 4 days till surgery. I'm getting more and more freaked out at the fact of staying in the hospital for so long and the pain he will have. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery #sdrsurgery #selectivedorsalrhizotomy #cerebralpalsy #cpwarrior #cpawarness #spasticdiplegia #pvl #singleparentincome #singlemom #stressedout #mom #toddlersofinstagram #boymom

My friend is raising for her twin boys to have life changing surgery. If anyone is feeling generous please donate. As she says every penny counts and she's having to raise a massive amount of money for not 1 but 2 ops! Thanks in advance #nhs #surgery #fundraiser #fundraising #lifechanging #sdrsurgery #rehab #rehabilitation #donate #donation #donate #pleasehelp #pleasedonate

help us to make her dream come true
https://www.gofundme.com/SDRmiryana
#sdrchangeslives
#sdrsurgery
#supportmiryana

My heart hurts for everything my son has been through. No 3yr old deserves this. Our future is about to change with this surgery. Our goal is to be independently walking and standing in the near future. I can't wait to see what Joey does. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #cpawarness #cpwarrior #spasticdiplegia #spasticity #singlemom #singleparentincome #chd #congenitalheartdefectsucks #vsd #pda #heartwarrior

Cardiologist appointment today. We got cleared for surgery next week. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery #selectivedorsalrhizotomy #sdr #sdrsurgery #cerebralpalsy #cpawarness #cpwarrior #spasticdiplegia #spasticity #singlemom #momlife #heartwarrior #chd #congenitalheartdefectsucks #❤

Working on foot placement with the ladder today. Seriously, this kid blows me away. T doesn’t just fight against Quad-Spastic CP, he also has dystonia on his right side, but look at him go 💚

I'm excited that just maybe after this surgery that he will sleep so much better and the leg spasms will stop. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery #sdr #sdrsurgery #selectivedorsalrhizotomy #cerebralpalsy #cpkiddo #spasticdiplegia #cpwarrior #cpawarness #singlemom #1incomeearner #thestruggleisreal #struggling.

Working on balance and core strength. 14 days till surgery. 14 days till our whole world brings us new and exciting opportunities. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery click on my link learn some interesting things about my son. Any help or shares is greatly appreciated. #thestruggleisreal #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #cpkiddo #spasticdeplegia #singleparentlife #singlemomincome #stressedout #momofacpkid #freakedout

A little rest after #aquatherapy waiting for stretches...then he noticed me taking his picture 😝#cpwarrior #sdrsurgery #week4 #thiskid #withoutfail

Today Joey got his next level up walker. We pray that after his surgery he can walk all by himself.
https://www.gofundme.com/selective-dorsal-rhizotomy-surgery #selectivedorsalrhizotomy #sdrsurgery #sdr #cerebralpalsy #cpkiddo #spasticdeplegia #theellenshow #thestruggleisreal #singlemom #momofacpkid

Working on getting stronger and more confident. I still can’t believe he’s up and not hunched over a gait trainer. #cpwarrior #cpawareness #blessed #soproud #handicapthis #sdrsurgery

Out for a Saturday night cruise #cpwarrior #sdrsurgery #teiganssdrjourney #week3

This troublemaker keeps me on my toes. I can only imagine what it's going to be like once he starts walking. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery
#sdrsurgery #selectivedorsalrhizotomy #cpkiddo #cerebralpalsy #spasticdeplegia

https://www.gofundme.com/selective-dorsal-rhizotomy-surgery ............18 days till surgery. I'm getting more and more nervous. I'm getting little anxiety attacks when I think to much.. My hero, Joseph Scott I can't wait to see what great things you are going to do following this surgery. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy ##cpkiddo #spasticdeplegia #theellenshow #singleparentlife #cpmom #CHD #hearthero #VSD #PDA #portstlucie #fl #southflorida #toddlermom #toddlersofinstagram

This walker, it doesn’t look like anything special and for some families it isn’t. Some will never have to think of using it, some have children who’ve mastered it, but for T and our family its unexpected, brand new and the key to a whole new world, one we were told multiple times he’d never experience. Today, with tears streaming I watched him stand tall, support his weight, with PT lresting her hand on his right hip, and his beautiful, unscissored legs walked 25 feet!!! This child that some Drs dismissed at birth, this child who has diagnoses that make ignorant doctors expect very little from his life, this miracle gave them one big F you and walked under his own strength. **And No, I didn’t get any videos or pictures cause my phone was charging in our room 😭 I know, biggest mom fail ever!!**. #cpwarrior #quadspasticcp #cerebralpalsyawareness #PVL #dystonia #hydrocephalus #mysuperhero #blessed #handicapthis #breakingbarriers #sdrsurgery #smashingexpectations

My baby 3.5 yrs ago. When we had no diagnosis. Not very many worries no knowledge that anything was wrong. Now we must go through a life changing surgery. I will be out of work for 6 weeks and being in the hospital for 17+ days is going to be hard finance wise. If I can get everyone to share would be great. I can use all the prayers I can get for my little guy. Standing then walking independently is our goal. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #spasticdeplegia #cpmom #cpkiddo #theellenshow #singleparentlife #singlemom #strongereveryday #stressedout #helpus #nervous https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

We go through so much sadness and pain In our lives, but you are my everything. Through every surgery every doctor visit or hospital stay. We make it through everything together. You are stronger than most adults dealing with everyday struggle that you just don't understand yet. As you grow older more questions will be asked and all we can do is work through them together. Your life changing surgery is coming up in a few weeks and this will be our biggest hurdle yet. We have all mommies friends and family here to support you. You are the center of my universe and I COULDN'T ASK FOR MORE. #cerebralpalsy #cp #cpwarrior #selectivedorsalrhizotomy #sdrsurgery #spasticdeplegia #strongereveryday #singleparentlife #singlemom #theellenshow #thestruggleisreal #stressedout #nervous #goingcrazy https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

The out poor of support Joey and I are receiving is amazing. It's so much appreciated. Everything we have received means the world to us. We love every single one of you so much. Keep sharing my friends and family. Just sharing helps tremendously. ❤❤ #cerebralpalsy #spasticdeplegia #cpmom #cpwarrior #selectivedorsalrhizotomy #sdrsurgery #singleparentlife #thestruggleisreal #theellenshow #singlemom #toddlersofinstagram #toddlerboys https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

Jace’s SDR Journey has been set up to help raise funds for Jace to be able to have SDR surgery to help him walk independently.
#CerebralPalsy #Cerebralpalsyawareness #SDR #SDRSurgery #Helovesfootball #Myboy #Son #Hewillwalk #Donations #Just4Children #JacesSDRJourney #Wewillachievethis #Football #Charity

He's been doing this everyday since last week when he found out he can get into 4 point without collapsing 😃mostly in the mornings so I can't get picture, but I finally caught him after his afternoon rest😊#cpwarrior #sdrsurgery #takethatdystonia

The only guy in my life that matters to me. Go check out his medical history and help out a lil guy. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #cpwarrior #cpmom #spasticdeplegia #thestruggleisreal #theellenshow #singleparentlife #singlemom #life #walking @fifiandmo we are going through tough times too. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

I don't know how to explain why bad things happen in our country. Why people do bad things. All I can do is try to raise him to be the better man be respectful to others. #cpwarrior #cerebralpalsy #selectivedorsalrhizotomy #spasticdeplegia #sdrsurgery #myhero❤

The lil boy is my favorite person in this. World. #sdrsurgery #sdr #selectivedorsalrhizotomy #cerebralpalsy #cpwarrior #cpmom #spasticdeplegia #singleparentlife #singlemom #mylife Go check joeys bio and learn about his medical conditions and help us out while we have a long stay in the hospital stay. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

This little guys future is going to be much more better after this surgery. I pray that my lil boy can walk independently. #sdrsurgery #sdr #selectivedorsalrhizotomy #cerebralpalsy #cpwarrior #cpmom #spasticdeplegia #ellen #singleparentlife #singlemomlife

This lil guy is so special the thought of what our future is going to be like after the surgery is insane. #selectivedorsalrhizotomy #sdrsurgery #sdr #spasticdeplegia #cerebralpalsy #cpwarrior #momofacpkid #ellen #singleparentlife #singlemom #momlife #specialneedskid #https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

This surgery is going to change my sons life. The feeling I get when I think about Joey walking independently is indescribable. We have 5 weeks till surgery day. #selectivedorsalrhizotomy #sdrsurgery #cerebralpalsy #spasticdeplegia #cpwarrior #ellendegeneres #ellenshow #singleparentlife #singlemom #lifestruggles #lifeishard

Learn about this little guys medical history and help us out during our long hospital stay. #cerebralpalsy #cp #spasticdeplegia #selectivedorsalrhizotomy #sdrsurgery #cpmom #ellen #supermom #singleparentlife #singlemom #chd #cpwarrior https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

My boy. Please read his bio and read about his medical history https://www.gofundme.com/selective-dorsal-rhizotomy-surgery #cpwarrior #cerebralpalsy #sdr #sdrsurgery #selectivedorsalrhizotomy #spasticdeplegia #ellen #singlemom #cpmom #boymom #life

Help my baby out. #sdrsurgery #selectivedorsalrhizotomy #cerebralpalsy #spasticdeplegia #cpwarrior #strong #toddlerboys. https://www.gofundme.com/selective-dorsal-rhizotomy-surgery

https://www.gofundme.com/selective-dorsal-rhizotomy-surgery... help support Joey while his long stay in the hospital. #sdrsurgery #cerebralpalsy #spasticdeplegia

This kid has no clue about the road we are about to go down. But it's what's best for him. #sdrsurgery #cerebralpalsy #spasticdeplegia #cpwarrior #pray #ingodshands

🎶🎶There is only one better thing than music - and that's live music!! We are so EXCITED to announce that Kyle Morris will be singing your favourites at the Steps for James Ladies Lunch! Thank you so much Kyle🎶🎶

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