Alhumdulillah, another good visit in the books for baby girl. Dr. Russo (GI Specialist) would be happiest with us maintaining status quo for at least the next couple of months allowing for a complete safe recovery from chylous effusions. We will continue to work with her dietician by that time to begin transitioning Arya back to regular diet iA. He once again reiterated that this phase of Arya's recovery and therapy will be a true marathon... which only Arya will determine the pace for.
Ms. Independent has been working on putting on her SMOs by herself and even agreed to treat the chapped lips 🙌🙌🙌 On the flip side, really hoping she continues to tolerate increased rates on feeds so she can get some freedom and ease... she's managed to pop her g button out 3x within the last 24hrs 😱😱🤦♀️ #saymashallah #LifePostFontan #halfthehearttwicethefight #slownsteady #gtubeproblems #tubielife #blessedwiththebest