#rettsyndrome

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Notre petite cocotte prend des forces. MERCI ...au personnel soignant #hopitalpierreboucher #superinfirmieresetinfirmiers #rettsyndrome #notrepetitange #beaucoupdamour

We love our super hero 💜 #rettsyndrome #TeamAlli

Lovely night with great company @jowilsontv and @emilyward88 raising money and awareness for #cureforDylan & #rettsyndrome. Getting closer to that cure 🤞🏻! Thanks to @makeupclaire and @shanihodge for getting me ready for it x

This weekend #teamsparkle is tackling #ragnar4rett. They will be running 189 miles on behalf of 189 girls. I participated in the Virtual 5K to help raise money to find a cure for #rettsyndrome. #untilshecan #gp2c

I never told him to kiss her for the picture, I just managed to snap the camera at the exact right moment, as he kissed her simply because he adores her. 💕
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I am grateful every single day I chose to have babies with someone as kind and giving as @gregjolsen. I get a lot of the credit here when it comes to parenting Ev, but anyone who knows us personally, knows that Greg is the real hero behind the scenes. I couldn't do even one week of this gig without him - he is the actual wind beneath my wings. 🙌🏼
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Do you have someone in your life like that? I hope you do. Xo

OMG ! WE DID IT! Mom and I not only Won the #thanksmom #chopped episode against amazing competition but we also raised money and awareness for #rettsyndrome and I couldn't be happier. #thanksmom!!!!!

Today's adventure with Jaelyn and Adam! #bff #friends #atlhousewivesgno #rettsyndrome #rettgirl

Tjej som är väldigt nöjd med sin nya hängmatta med tak 😍☀️❤️
#rettsyndrome #cornelia #soldyrkare

Thanks again to everyone at Monash Health for helping me fight another nasty chest infection. Boy am I feeling better! 💞 #giuliatravels #rettsyndrome #onthemend

MOST RECENT

Когда такой шёл-шёл... И приустал 😂😎
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хорошо, что #лето
#любовькприроде #люблюлето #недошел #rettsyndrome #solarangel

I love ❤️ Young Living so much. As a stay at home mum caring for a disabled adult child this company has given me so much. Self worth, friendships, financial freedom. All these items cost me $9.90 and that was for the postage. The items were all free! Thanks @younglivingeoau and @younglivingeo #sliceofheavenessentialoils #younglivingessentialoils #seedtoseal #number1 #mytribe #legacy #culture #sharingiscaring #reiki #rettsyndrome #lifeisgood #empowerment #selfworth #financialfreedom

So excited to be able to finally try Ningxia Nitro and also the Animal Scents Ointment for Koopa!! #sliceofheavenessentialoils #younglivingessentialoils #seedtoseal #number1 #mytribe #legacy #culture #sharingiscaring #reiki #rettsyndrome #lifeisgood #ningxianitro #animalscents

My BFF the Parcel man had been!! One from USA 🇺🇸 and one from Australia 🇦🇺 !! Squeeee!!! #sliceofheavenessentialoils #younglivingessentialoils #seedtoseal #number1 #mytribe #legacy #culture #sharingiscaring #reiki #rettsyndrome #lifeisgood #essentialrewards #freebies

Primeras cositas para preparar nuestra escapada al congreso CDKL5 a Roma... Cositas chulas que me ha traído mi sister de Tedi!! #cdkl5 #cdkl5insiemeversolacura #cdkl5girl #cdkl5spain #cdkl5conference #conferencecdkl5 #cdkl5italy #rettsyndrome

Hundreds turned out to Out Run Rett Saturday in New Suffolk, including Team Elladoodle. Ella Rogers’ family participated in the 5K event to support her in her fight against Rett Syndrome #outrunrett #newsuffolk #rettsyndrome #southoldtown #northfork #longisland #newyork 📸 photo by Elizabeth Wagner @candyland.photography

After sitting at the cold, rainy and windy state track meet all weekend, it felt good to get out and enjoy this beautiful day. It's a good way to start the week. #nevermissamonday #untilshecan #teamgp2c #rettsyndrome #skirtsports #skirtsportsambassador

Join us at @newcrossin on 3rd June for a Rett Syndrome #reverseretts charity gig with our friends @thebracknall and others. FB for tickets. #gig #newcrossinn #london #charity #rettsyndrome #thebracknall

Ciara waiting to go in to surgery at #alderheychildrenshospital
As long as she has a film to watch she takes it all in her stride. It's Mum and Dad that are on the edge! 💗💗
#rettsyndrome #keepfighting #daddysgirl #nevergiveup #reverserett #changeispossible

From our walk last week! It was such a beautiful day and there was a little waterfall. It was so peaceful😊 .
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#rettsyndrome #asthma #gtube #jtube #tubie #seizures #epilepsy #scoliosis #spinalfusion #baclofenpump #iwk #portacath #nonverbal #wheelchair #specialneeds #spasticity #trach #tracheostomy

If we continue to live in a 'victim' state because of tough things that have happened in our past, then we leave no room for wonderful things to enter because we attract what we focus on.

Focus on how you want to feel, not on how you dont want to feel :) Mums Reborn.
Empowering Mums.
#mumsreborn #rettsyndrome #rett #rettsyndromemum #specialneeds #specialneedsmum #mum #mom #mother #motherhood #child #children #rolemodel #mums #moms

After months of hard work and perseverance a huge congratulations goes out to Jan Wayland on successfully obtaining Métier Medical’s approval by the NDIS (National Disability Insurance Scheme) as a registered provider for both NSW & VIC for our Mollii Suit.

This offers the potential for participants to apply for the Mollii Suit and Greg Donelly’s Occupational Therapists assessments as part of their NDIS management plan through the NDIA (National Disability Insurance Agency).👏

In days gone by for me to leave home for a few days meant at least two suitcases!! Here is the result where your love for shoes changes to a love for Young Living Essential Oils!! #sliceofheavenessentialoils #younglivingessentialoils #seedtoseal #number1 #mytribe #legacy #culture #sharingiscaring #reiki #rettsyndrome #lifeisgood #oilsaresmallerthanshoes

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