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#rettsyndrome

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Notre petite cocotte prend des forces. MERCI ...au personnel soignant #hopitalpierreboucher #superinfirmieresetinfirmiers #rettsyndrome #notrepetitange #beaucoupdamour

Our deputies had a wonderful time helping bring awareness to Rett Syndrome yesterday at an event in Spring Hill. Kids were able to try on all of our SERT gear and check out a patrol Tahoe! #RettSyndrome

Заплыв 🏊🏼‍♀️ Как же София любит бассейн ❤️ Прям душа радуется ☺️ #самыесчастливыедевочки #мамаидочка #маминадевочка #особеннаядевочка #синдромретта #солнечныйангел #rettsyndrome

Day 51: We are so blessed to have the ability to hike up here and be in the presence of these beautiful mountains. To take a break and breath in this mountain air and views its humbling and empowering. So glad God created these mountains to climb and look at. To look at peaks possibly no man has summited in somewhere so remote is an amazing experience. #hikeforjulie #pacificcresttrail #pct #pctig #pct2017 #trekthepct #rettsyndrome #rei1440project #optoutside #sierranevada

Bryggehygge med frøkna i går ettermiddag 🎶☄🌞😘 #bryggehygge #solitønsberg #nyterdesmågleder #rettmom #rettgirl #rettsyndrome #rettsyndrom #livsglede

This weekend #teamsparkle is tackling #ragnar4rett. They will be running 189 miles on behalf of 189 girls. I participated in the Virtual 5K to help raise money to find a cure for #rettsyndrome. #untilshecan #gp2c

💕 Super Siblings of The Day!! 💕 Let's show some love and support to our special needs and special siblings of the day!! @tracyfelix5 Show Love!!!! 🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹
Tag Your Special Needs Siblings at #specialneedssiblings so we can see and feature you!!! We Love Our Super Sibs!! 👏👍😍 Thank You For Being Apart of such a wonderful community!!
🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹
#specialneedssiblings #specialneedsparents #specialneedssister #specialneedsmoms #specialneedsdads #specialneedsbrothers #specialneedsfamilies #support #epilepsy #autism #downsyndrome #brothers #family #congenitalheartdefect #disability #disorder #dwarfism #wheelchair #therapy #sensory #sisters #lupus #lyme #criduchat #angelmansyndrome #rettsyndrome #adhd #mitochondrialdisease #chargesyndrome

Lovely night with great company @jowilsontv and @emilyward88 raising money and awareness for #cureforDylan & #rettsyndrome. Getting closer to that cure 🤞🏻! Thanks to @makeupclaire and @shanihodge for getting me ready for it x

Beautiful story. We are honored, @special_needs_mama! #Repost @special_needs_mama ・・・
Huge shout out to the @phoenixzoo ❤️ My daughter, Oaklynn, has Rett syndrome. She is non verbal and non ambulatory. She can not control her hands. She was with her school at the zoo today and her nurse had her off to the side, looking at the stingrays. A worker saw her in her wheelchair and offered for Oaklynn to get her feet in the water to touch the stingray with her feet. She called the stingray keeper over. She got in the water and helped Oaklynn be able to touch the stingrays and participate like the rest of the kids. Tears fill my eyes as I see the smiles in both their faces. So grateful for amazing people at the zoo who went out of their way to make my sweet daughter feel included. I hope the workers somehow see this post and know they made her parents very happy. Thank you!! 💕 #inclusion #phoenixzoo #rettsyndrome #specialneeds

MOST RECENT

My #boy is still improving even though some days (like #today) the stereotypical hand movements are dang dominating but he's still trying to eat by himself... I'm giving him the fork with a #banana slice on but it is really amazing seeing him taking the fork and holding it until I take it again. Yesterday Tobias even handed the fork back to me. So this is the thing about #rettsyndrome - every day is all about 'training' the same skills so seeing development is truly worth the work... #love #specialneedskids #mommylife #fruit #instavideo #summerbreak #everydaylife ❤️💙

Hmm well okay that was a shortlived #victory... Tobias just woke up and is screaming of anger... I seriously don't get why he can't just sleep in his own bed. I get that doctors say that #rettsyndrome #children have big trouble falling asleep and staying asleep BUT come on... why oh why? And what's up with my boy's huge temper? I want my own bed for myself and I want sleep! Is that really so selfish of me? I will fight this insomnia and Tobias has to be in his own bed... lol and no I'm not ignoring his screaming but I will keep telling him that he has to fall asleep in his own bed... #mommylife #difficult #love #keepfighting

Yes I am that kind of #mom hahahaha finally got my #boy to not only sleep in his own bed but also got him to #sleep while I was reading aloud #harrypotter - Tobias has periods where he only wants to sleep in my bed and he only wants to fall asleep while watching #cartoons but that has to end. I #love my boy and he can sleep in my bed BUT NOT every night because we don't sleep good enough like that and I need my own space... #sorrybutnotsorry #rettsyndrome #son #love #keepfighting

💕 Super Siblings of The Day!! 💕 Let's show some love and support to our special needs and special siblings of the day!! @mamabearbex Show Love!!!! 🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹
Tag Your Special Needs Siblings at #specialneedssiblings so we can see and feature you!!! We Love Our Super Sibs!! 👏👍😍 Thank You For Being Apart of such a wonderful community!!
🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹
#specialneedssiblings #specialneedsparents #specialneedssister #specialneedsmoms #specialneedsdads #specialneedsbrothers #specialneedsfamilies #support #epilepsy #autism #downsyndrome #brothers #family #congenitalheartdefect #disability #disorder #dwarfism #wheelchair #therapy #sensory #sisters #lupus #lyme #criduchat #angelmansyndrome #rettsyndrome #adhd #mitochondrialdisease #chargesyndrome

Bryggehygge med frøkna i går ettermiddag 🎶☄🌞😘 #bryggehygge #solitønsberg #nyterdesmågleder #rettmom #rettgirl #rettsyndrome #rettsyndrom #livsglede

Our deputies had a wonderful time helping bring awareness to Rett Syndrome yesterday at an event in Spring Hill. Kids were able to try on all of our SERT gear and check out a patrol Tahoe! #RettSyndrome

Speaks for itself really! It's easy to look around the world and feel #helpless, but you're not. #rettsyndrome is reversible. #getinvolved #bethechange #thetimeisnow

No Grinch here....#universalstudios offers the BEST accommodations for children with #specialneeds. #inclusion #makeadifference #autism #rettsyndrome #florida #drsuess #accomodation

💕 Super Siblings of The Day!! 💕 Let's show some love and support to our special needs and special siblings of the day!! @raising_a_superhero Show Love!!!! 🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹
Tag Your Special Needs Siblings at #specialneedssiblings so we can see and feature you!!! We Love Our Super Sibs!! 👏👍😍 Thank You For Being Apart of such a wonderful community!!
🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹🔹
#specialneedssiblings #specialneedsparents #specialneedssister #specialneedsmoms #specialneedsdads #specialneedsbrothers #specialneedsfamilies #support #epilepsy #autism #downsyndrome #brothers #family #congenitalheartdefect #disability #disorder #dwarfism #wheelchair #therapy #sensory #sisters #lupus #lyme #criduchat #angelmansyndrome #rettsyndrome #adhd #mitochondrialdisease #chargesyndrome

4 years ago today we were in #Utah presenting our scrappy little #rettsyndrome charity (Cure Rett) to the worlds biggest #Rett #charity (IRSF) and the rest is history (or infamy, depending). But I met amazing people, learned important lessons about #friendship, visited #sundance, #photographed many Rett girls, met the scientists and doctors on the frontlines and @br00kesn0w took my photos // swipe through for photos ↩️ #charitywork #rettgirl #curerett #provo #midway #zermatt

Il mood modalità fenicottero è cambiato in mood modalità @bambinizone 🏡 ❤️con la visione della mia amata amica Peppa Pig 🐷🐽Фламинговое настроение сменилось на бамбинизоновое лето 🏡❤️ совместный просмотр любимой Пеппы 🐽🐷 #люблюжизнь #победимреттсиндром #победимретт #flamingo #reverserett #reverserettsyndrome #rettsyndrome #lovethissummer #ihatethisrettsyndrome #rettsyndromeawarenesseveryday #rettsyndromeawareness #девочкискрасивымиглазами #peppa_pig

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