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#progeria

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S T O P listen up please 🙏 This is LUKE. A beautiful little boy with a sad story. Luke suffers from so called #progeria. A medical disorder with a life expectancy of about 12-13 years max. Children afflicted with progeria age much faster, lose body fat and hair within the first two years. Time is running for Luke! His biggest dream is: a normal childhood. His family is doing everything to make sure he smiles everyday in his short life, like in this cute video. I met Luke only a few weeks ago and fell in love with this adorable little boy. But his family needs help in any case. So please #supportluke !!! @lukes_dad78 Share this! Donate! Help!
THANK YOU ❤️❤️❤️❤️❤️❤️

If I had known this was going to be the last picture, I would have taken another, I should have been in the pic, I would have held you close and never let you go. I miss you so much it hurts. Please keep watching over us, until we meet again...I love you my beautiful baby boy 💙 #doitfordevin #progeria #bestsonever

You’ve been there to support Kaylee and her family by walking or running in past Kaylee’s Courses (Kaylee gives a big cheer at the 2011 walk, right). You’ve watched her grow into a popular musical.ly star with millions of fans. And through it all, PRF has helped Kaylee - and many other children with Progeria worldwide – participate in clinical drug trials that give her a longer, healthier life.
Donate today at www.onepossible.org to help fund Kaylee in the new, 2-drug trial that starts next month. Thanks to a generous match challenge from the Carl C. and Marie Jo Anderson Foundation, your gift will be doubled!
Kaylee is turning 14 in July and just finished the 8th grade. She is on a dance team and hip hop is her favorite. Kaylee is natural born performer - just ask her 3 million musical.ly fans!
Progeria clinical drug trials are the best hope to treat and cure Kaylee and all children with Progeria. Thank you for your investment in the cure! www.onepossible.org
#progeria #kayleehalko #musical.ly #onepossible #hiphop

🇩🇪Ab zum Spielplatz 🇺🇸Going to the Playground #supportluke #progeria #fun #scream

It's Rare Disease Day. I am so blessed to be able to spend my time on this planet, surrounded by some of the most special children and adolescents in this world. One of them is Gamze (16) from Turkey. She has one of the rarest conditions in the world. Progeria is a genetic disorder that effects very few children. They are born aging 8 times faster than the average human, due to an abnormal protein mutation in their DNA. This abnormal protein is referred to as Progerin. The word Progeria comes from the Greek words "pro", meaning "before" or "premature", and "gēras", meaning "old age". Do you know anyone with a rare disease? #RareDiseaseDay #Progeria #FamilyForLife #FamilyIsEverything Photo by: @technicuz

" When Luke turned one, he wasn't gaining any weight and he lost his hair. After a year of doctors appointments and testing, we found out he had a genetic mutation called Progeria.
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We felt the world would end. Having Progeria is a 1:8 million chance. We thought, "why our son?"
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People with Progeria live between 2-20 years old, and that's the only thing we really know.
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Now we try to make everyday a special one for Luke, because nobody knows how much time we've got with him."

Best friend / angel. I miss you dearly ❤️ you will always be in my heart! @jamiemadley you are amazing ! Today is going to be hard but just know you have people praying for you and people who are there for and loved Devin❤️ #progeria #devin #loveyou #best #friend

UN POCO DE LO QUE HEMOS VIVIDO EN ESTE AÑO MAGYYYYUU FELIZ CUMPLEAÑOS TE AMO....... QUE DIOS TE BENDIGA
#amigosporsiempre #like4like #cali #progeria #mis16años

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Darf ich vorstellen... Luke! Der kleine Sonnenschein hat Progerie. Eine Krankheit, die einen Menschen viel zu schnell altern lässt... (siehe Wikipedia)
Die Tatsache ist schrecklich und unbegreiflich... Ich wünsche mir, dass Luke ganz ganz ganz viele tolle Sachen erlebt und seine Familie durch sein tägliches Lächeln gestärkt wird!
Ich bitte euch, schaut euch seine Seite an @lukes_dad78 und folgt ihm!!!! Und spendet, wenn ihr könnt!
@lukes_dad78

@lukes_dad78

#progerie #progeria #luke #sonnenschein #kämpfer #kinderlächeln #instagram #berlin #Brandenburg #Köln #dresden #thüringen #sachsen #bayern #badenwürttemberg #mecklenburgvorpommern #schleswigholstein #hamburg #hessen #nordrheinwestfalen #niedersachsen #bremen #gemeinsamdurchinsta #gemeinsam #gemeinsamsindwirstark #herzfürkinder #herzensangelegenheit #familie #helfen

You’ve been there to support Kaylee and her family by walking or running in past Kaylee’s Courses (Kaylee gives a big cheer at the 2011 walk, right). You’ve watched her grow into a popular musical.ly star with millions of fans. And through it all, PRF has helped Kaylee - and many other children with Progeria worldwide – participate in clinical drug trials that give her a longer, healthier life.
Donate today at www.onepossible.org to help fund Kaylee in the new, 2-drug trial that starts next month. Thanks to a generous match challenge from the Carl C. and Marie Jo Anderson Foundation, your gift will be doubled!
Kaylee is turning 14 in July and just finished the 8th grade. She is on a dance team and hip hop is her favorite. Kaylee is natural born performer - just ask her 3 million musical.ly fans!
Progeria clinical drug trials are the best hope to treat and cure Kaylee and all children with Progeria. Thank you for your investment in the cure! www.onepossible.org
#progeria #kayleehalko #musical.ly #onepossible #hiphop

Nada se crea, nada se destruye, todo se transforma

Segunda semana con los lentes rotos. Ayer encontré la receta que pedí en marzo. Se viene el fachonemeryenci 😎

#instalacroix #instalike #poetry #poesiaerestu #instasantiago #instagram #muerte #gentedeforme #human #defect #deformance #deformed #progeria #humanplague #holocaust #kill #the #dreams #nomuerto #zombie #capitalism #walkingdead #zorrón #malhecho #lentes #2.0

Aqui Les Dejo Una Foto Mia
#soñadoras #progeria

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