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Sorry I've been so silent! 🙈 My girl has had a lot going on. New treatments, perfecting old treatments, and getting ready to (hopefully) resume school in the Spring. 📚 Most recently her feeding tube has become kinked, which means she can no longer run her nutrition. It will be replaced within the next few days, and until then I'll be offering all the support she may need. ❤ Being a service dog means I perform specific tasks to mitigate her disabilities, but I also lift her spirits when she's having a hard time. Together, we will figure this out! 💪🐾
*To keep up with our adventures, check out our daily vlogs (link in bio). 🎬
27 Months
#Dog #ServiceDogInTraining #ServiceDog #WorkingDog #DogTraining #DogsOfInstagram #Cute #GoldenRetriever #Puppy #Instapuppy #PuppyLove #InvisibleIllness #ChronicIllness #Spoonie #Disability #Asthma #Allergies #Anaphylaxis #ActuallyAutistic #Narcolepsy #Migraine #Dysautonomia #POTS #EhlersDanlosSyndrome #Gastroparesis #Fatigue #ChronicPain #Instagood

Good news and bad news. 📰 Good news? After some rest, I bounced back from this most recent round of IVIG quite quickly! Bad news? After two separate ER visits, we found my feeding tube is badly kinked. 😫 I cannot run my feeds which means no nutrition. It will have to be replaced within the next few days. The alarming thing is that this is the second kink I've gotten, so it could be an ongoing problem. 😥 On top of all that there has been a slew of other frustrations. But, one thing at a time! Yesterday was exceedingly stressful, and yes, there were tears. I needed that moment of raw emotion, and now I'm able to keep moving forward. I may need to slow down, but I'm still going in the right direction. 💪
*To join us on the craziness, watch today's vlog (link in bio). #IVIG #FeedingTube #StayPositive #Strength #Blessed #SpreadAwareness #Advocate #ActuallyAutistic #Asthma #Allergies #Narcolepsy #Migraine #Dysautonomia #POTS #EhlersDanlosSyndrome #Gastroparesis #Immunodeficiency #ChronicPain #Spoonie #ChronicIllness #InvisibleIllness #Disability #ServiceDog #Puppy #Dog

🌴Happy Hump-Day Peeps🌴 Kennt ihr schon die tollen Trinkflaschen von @dolibottles 🤗☀️? Sie sind aus Glas, so dass das pure Geschmackserlebnis all eurer Lieblingsgetränke erhalten bleibt. Trotzdem sind sie sicher geschützt durch die tolle Silikonhülle, die es in vielen verschiedenen Designs gibt 😻 ich habe mich für die Tropica entschieden, weil sie mich so wunderbar an Sommer und Urlaub erinnert 🤗🌴🌊 Die Flasche eignet sich übrigens sowohl für Kalt- als auch Warmgetränke und wird in einer superschönen Geschenkbox geliefert ☺️ schaut mal auf deren Insta Page vorbei 🙌🏼 Mit dem Code 👉🏼 svenja10 👈🏼 bekommt ihr zusätzlich 10% auf eure Bestellung in den nächsten 2 Wochen 💗 Ich wünsche euch einen tollen Abend 💋💋#kisses .
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#dolibottles #dolitropica #stayglassy *werbung

Wide bowl, wide angle. This was about 8lbs of clay stretched to about 18" in diameter. Excuse the mess around me in the studio. Take the time today to make something beautiful, be risky, and try something new! Music by @victorwooten - The Lesson.

Cloudy Days ⛅️

" ᴮᴱᴵᴺᴳ ᴬ ᶜᴬᴺᴰᴸᴱ ᴵˢ ᴺᴼᵀ ᴱᴬˢᵞ; ᴵᴺ ᴼᴿᴰᴱᴿ ᵀᴼ ᴳᴵᵛᴱ ᴸᴵᴳᴴᵀ ᴼᴺᴱ ᴹᵁˢᵀ ᶠᴵᴿˢᵀ ᴮᵁᴿᴺ"
ᴿᵁᴹᴵ
#newproductsarecoming #sooninshop #candleholder #candlestick #recyclingwood #vintage #pots #pricklyurn #urns #scandinaviandesign #interior #lovewarriors #lw

A true work of art, thanks to pl4nts_ 🌿🍃 👍
━━━━━━━━━━━━━━━━━━━ We making of the elegant and colorful hygienic plastic flower pots for in the your job centers, hotels, greenhouses or gardens.. 🇬🇧
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İş yerlerinizde, seralarınızda veya bahçelerinizde bulunan çiçekler için zarif ve renkli hijyenik plastik saksılar üretiyoruz.. 🇹🇷 ━━━━━━━━━━━━━━━━━━━ WE BAHAR POLIMER (@baharpolimer) SAKSIDA BAHAR ŞENLİĞİ.. THE SPRING FESTIVAL FOR FLOWER POTS.. ━━━━━━━━━━━━━━━━━━━ WHAT WE DO? - NE YAPARIZ?
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✔️ PRODUCTION POTS - ÜRETİM SAKSILARI
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✔️ PE SAPLING RAISING BAGS (PLASTIC) - PE FİDAN YETİŞTİRME TORBALARI (POŞET)
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✔️ SAPLING RAISING BAGS WITH AND WITHOUT BELLOWS - KÖRÜKLÜ VE KÖRÜKSÜZ FİDAN POŞETLERİ
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✔️ NYLON CANVAS - NAYLON BRANDA
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✔️ GREENHOUSE NYLONS - SERA NAYLONU
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✔️ GROUND COVERS - YER ÖRTÜLERİ
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✔️ SHADOWING COVERS - GÖLGELEME ÖRTÜSÜ
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AND MUCH MORE.. - VE DAHA FAZLASI.. ━━━━━━━━━━━━━━━━━━━ TELEPHONE: +90 (212) 485 91 95
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FAX: +90 (212) 485 91 96
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GSM: (+90) 532 260 42 15 ━━━━━━━━━━━━━━━━━━━ PRODUCTION AND STORE ADDRESS - ÜRETİM VE MAĞAZA ADRESİ
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İkitelli Organize Sanayi Bölgesi (OSB), Mutfakçılar Sanayi Sitesi (MUTSAN), M2 Blok, No: 44 - Başakşehir / İstanbul / Turkey ━━━━━━━━━━━━━━━━━━━ #pot #pots #flower #flowers #garden #gardens #gardenhouse #photooftheday #plantsofinstagram #nature #flowerpot #plantstagram #plantslover #plant #plants #flowerstagram #plastic #hotel #hotels #plantlife #plastik #kova #bucket #houseplants #instagood #flowerpots #livingwithplants #houseplantsofinstagram #indoorplants #plantgoals

About a week ago I loned some of my ceramic pieces for a workshop FirstWeEat that was held by a photographer and stilyst @evakosmasflores ... Every day I am amazed by photos they share from the workshop... such an inspiring and creative work they have done! I am more than happy that my pots were part of that and I'll ask girls if they don't mind sharing some of their photos here with you... #pottery #pots #ceramics #contemporaryceramics #ceramiclove #ceramiclife #pinchpots #pinching #handmade #stoneware #cups #plates #foodstyling #profesionalphotography #photography #workshop #firstweeat #CRTtakeover #cremerging

It was super super pretty outside today, so I sat outside for a little while. Struggling with mcad lately and migraines but I’m pulling through🥄❤️🥄💕
#chronicillness #pots #mastcellactivationdisorder #tubie #spoonie #ngtube #vogmask #feedingtube

MOST RECENT

So one fun thing is that my bowels are getting super quiet. And I have no drive to eat. Wouldn't just add motility meds but just increase benefiber. I think I need more then just that. Please don't go down the gastroparesis rabbit hole next. #gastroparesis #heds #ehlersdanlossyndrome #pots #tachycardia

ZERO drugs are FDA approved for POTS. The medications I am on are only approved because they treat a general symptom, like tachycardia or low blood pressure. There is a medication out there that many people with POTS have had success with, but I can’t get it because my insurance won’t cover a medication for off label use. This is why research is so important. There could be so many effective treatments that already exist or could be easily made/found, but because dysautonomia isn’t researched people can’t access it. And the fact that 85% of POTS patients are female definitely plays a role in why it takes so long to diagnose. Women patients are way less likely to be taken seriously (sadly, having a man in the room with you actually increases your quality of care). I had POTS for years, and the worst of it for a year, before I got a diagnosis. Doctors kept trying to say that because I’m a thin woman, the only possible explanation for my heart rate was an eating disorder. I had a doctor that discharged me from the ER despite the fact that the alarm on my heart monitor kept going off saying both extreme tachycardia and v-tach. When he came in to tell me I had to go home, I broke down in tears. When he questioned me I tried to explain that this is my heart and something is wrong. I was terrified to home with no answers. But he insisted that the real reason I was crying was because I was “coming to terms with [my] eating disorder”. I finally traveled 90 miles to find an autonomic specialist and that was the first time I received adequate care. It really shouldn’t be that difficult for people. Especially considering that not a lot of people can afford to keep going to doctors searching for an answer, and that POTS can either make you unable to work whatsoever or at least make full time work not possible. It’s even more ridiculous to realize that this can be tested for and diagnosed in just ten minutes. The problem is, there’s still a lot of doctors out there who have never even heard of it. This is why awareness matters. Photo courtesy of @dysautonomiaintl

"I enjoy collecting pots, they make me pretty happy I guess." This is Grainger, he's a Shif, a race of aliens known for their ability to fit into tight spaces and for their tendency to collect things. They're a bit like hermit crabs seeing as the things they collect they usually live in.
Grainger is an extremely intelligent being and has a love for clay jars and pots.
#inktoberday18 inktober2017 #inktober #eldiabla #ink #drawing #art #jars #pots #markers #pens

Snapchat filters are fav! Especially when I’m not feeling 100% (which is basically always). Be on the lookout for my re-launch of Have Heating Pad + Will Travel tomorrow!! It’s going to be very much improved👊🏻👊🏻 what is your fav Snapchat filter??.
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#chronicillness #chronicpain #invisibleillness #butyoudontlooksick #spoonie #spoonieselfie #selfie #snapfilter #blog #blogger #sick #autoimmunedisease #hashimotos #pots #dysautonomia #spoonielife #undiagnosed #haveheatingpadwilltravel

-Beautiful Jungle- Liberace once said "Too much of a good thing is wonderful" that being said my greenhouse is just about filled for the season. Moved my clivia and geraniums in today. Still have a little room left, I could fit a little more! #greenhouse #gardening #flowers #flowerpower #plants #succulents #clivia #geranium #rareplants #horticulture #terracotta #clay #pottery #handmade #pots #orchids #cacti #cbwhomeandgarden #nofilter

Wheel throwing class in action!

I put that window on a plate. •

Playing with layer and pattern.
#clay #ceramics #pottery #pots #windows #handbuilding

It's really the little things that are the big things, am I right? If you are someone who loves a chronically ill person and wants to support them...know that even socks in the mail do it for us! FO REAL. Just the reminder that someone out there is thinking of us, and knows our struggle is real: it's empowering and healing in so many ways! Our social lives can be non-existent and our ailments often leave us bedbound or unable to attend events and social gatherings. But we still miss you!! We still miss going out, hanging out, phone convos, our friends and everything that went along with them...and it's wonderful to know that they miss and are thinking of us, too! It's the little things... #lavenderandlyme #healingfromlyme #chroniclyme #neurolyme #neuroborreliosis #lymie #lymelife #lymewarrior #latestagelyme #lymedontkillmyvibe #spoonie #spoonielife #spooniestrong #chronicallyill #chronicpain #sickandtired #butyoudontlooksick #bartonella #babesia #pots #posturalorthostatictachychardiasyndrome #potsie #mthfr #msids #gastroparesis #dysautonomia

It's invisible illness week. EDS is not just the physical disability but the illness behind it. Chronic fatigue, chronic pain, POTS, vascular issues... and that's just the start. #rarediseases #zebrastrong #EDS #chronicillness #chronicpain #chronicfatigue #pots #seizures #WeAreStrong #SendLove #educateyourself

Cleaned up the studio space to make room for some more pots!
Unloading the soda kiln tomorrow right after @zachtate_artist artists talk and demo!!! Looking forward to it! #l
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#pots #pottery #ceramics #clay #art #craft #handmade #studio #lights #wip #folk #livefolk #liveauthentic

Thoughts and prayers going out for this one tonight.
#eds #POTS #invisibledisability #crps #dysautonomia #gastroparesis

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