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#postherpeticneuralgia

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Of course my postherpetic neuralgia flares up in the last two weeks of uni 😑🔫 #phn #shingles #neuralgia #postherpeticneuralgia #chronicpain

I'll miss this tomorrow morning. I really wish I can attend. 😟😰🤒 #HH #LeadershipSpotlight #wishfulthinking #extendedleave #postherpeticneuralgia

A Long Day
My daughter took me to Newcastle today for an appointment with my Neurologist and future treatment for the autoimmune disease Myasthenia Gravis.
I was armed with my Android phone only so it was a good opportunity to experiment on the run and with my hand still at only about 50% idea he due to chronic pain.
It was a great day with great company! Scroll through for my day in photos.
#newcastle #roadtrip #myastheniagravis #postherpeticneuralgia

This is what I look like way too often--glassy eyes and red patches. I've been dealing with PHN for almost exactly two years now. The pain most days is probably on level with a headache. At least several days a week though, the pain is enough to interfere with life. I keep trying new things, hoping I'll come across that magic cure that will alleviate the pain forever, but until then, I just deal with it the best I can. #postherpeticneuralgia #nervepain #nervedamage #chronicpain #shingles

Almost three weeks...
Still have pain... but much better...
So I can have spare time for watching Korean drama...'Goblin'
#pain #postherpeticneuralgia #koreandrama #goblin

Let’s get something straight.
I have seen this advertisement every day.
Shingles can infect someone of ANY age and it can be anywhere on the body.
For some reason it is currently being singled to the over 65’s and only infecting “one side” which absolutely infuriates me because I was 22 when I got infected, twice, on two alternate sides of my body.
At the time my doctors didn’t even believe me because they had stuck by the theory that “only seniors get it”.
No.
Anyone with a weakened immunity can get it or from being exposed to the open blisters, and there is no support for you when you are left with nerve damage and chronic health issues.
Antivirals do NOT cure Shingles. They are “supposed” to prevent nerve damage from occurring.
If you had chicken pox you can still get Shingles. I did. Twice. Shingles is NOTHING like Chicken Pox. People who associate them clearly haven’t had it. Nerve pain is not a typical pain feeling. It is debilitating. It feels like your entire body is being carved from the inside with a serrated knife. The blisters burn, and the aftermath of my skin still burns.

There is not one doctor in Melbourne who solely specialises in Shingles cases, yet when I speak to people I am informed of how COMMON Shingles is in under 40’s. I have spoken to people who have had it multiple times, in multiple places which defeats the theory that you can only get it once.
The vaccination should be available for all ages, and in saying that, there should be readily available support for post Shingles patients who end up with chronic nerve pain and other ongoing health issues as a result of this virus.
I have to live for the rest of my life with nerve pain that can’t be aided.

I would have much rather gotten Shingles when I was 65. At least I would have had an honest chance at living.

#rantover #moreawareness #infectiousdiseases #postherpeticneuralgia #chronicillbess #shingles #supportchronicillnesses #shinglesawareness

This week is #invisibleillnessawareness and just because you can't see my illness doesn't mean it's not there.
This week share your stories and help make #invisibleillness visible.
#seeme #shareyourstory #migrainewarrior #ramseyhuntsyndrome #nervepain #postherpeticneuralgia

MOST RECENT

As many of you know - my living situation is a stressful mess at the moment. I am about to move houses for the fifth time tomorrow. So that combined with my muscle weakness and steroids, I am feeling disheartened today after having to cancel work. I am trying to remind myself that I just worked five (wonderful) consecutive days, and it is OKAY to put my hand up and say “hey I need a rest day”... and not feel guilty.
My body is not the same as someone else’s, so in order to protect my energy it is more than okay for me to take a step or two back and I wish the same for all of you feeling a similar way at the moment...
Tomorrow, (or maybe Saturday...) we get up and fight again.

#chronicillness #gastroparesis #postherpeticneuralgia #chronicpain #prednisolone #selfcare #keepgoing #bekindtoyourself #bekindtooneanotherboxes

This is what I look like way too often--glassy eyes and red patches. I've been dealing with PHN for almost exactly two years now. The pain most days is probably on level with a headache. At least several days a week though, the pain is enough to interfere with life. I keep trying new things, hoping I'll come across that magic cure that will alleviate the pain forever, but until then, I just deal with it the best I can. #postherpeticneuralgia #nervepain #nervedamage #chronicpain #shingles

I can walk around my house with a walker, if I'm bent over. I have a small house and I'm in tears by the time I'm in the room I meant to walk into. Leaving the house is so very painful. The car ride hurts. But I NEED to get out more. So, my wonderful and generous momma bought me this. She has her hands full with my daddy. But her heart is never too full to help those she loves. #blessed #chronicpain #postherpeticneuralgia #sciatica #baddiscsuck #ihurt #sotiredofpain #tellmesomethinggood

One of those painful days..
Dark, cool room works better than pain meds sometimes.. #trigeminalneuralgia #chronicfacepain #tnawareness #wishicouldjoininthefun
#ouch #wishthiswouldgoaway #suicidedisease #postherpeticneuralgia

Let’s get something straight.
I have seen this advertisement every day.
Shingles can infect someone of ANY age and it can be anywhere on the body.
For some reason it is currently being singled to the over 65’s and only infecting “one side” which absolutely infuriates me because I was 22 when I got infected, twice, on two alternate sides of my body.
At the time my doctors didn’t even believe me because they had stuck by the theory that “only seniors get it”.
No.
Anyone with a weakened immunity can get it or from being exposed to the open blisters, and there is no support for you when you are left with nerve damage and chronic health issues.
Antivirals do NOT cure Shingles. They are “supposed” to prevent nerve damage from occurring.
If you had chicken pox you can still get Shingles. I did. Twice. Shingles is NOTHING like Chicken Pox. People who associate them clearly haven’t had it. Nerve pain is not a typical pain feeling. It is debilitating. It feels like your entire body is being carved from the inside with a serrated knife. The blisters burn, and the aftermath of my skin still burns.

There is not one doctor in Melbourne who solely specialises in Shingles cases, yet when I speak to people I am informed of how COMMON Shingles is in under 40’s. I have spoken to people who have had it multiple times, in multiple places which defeats the theory that you can only get it once.
The vaccination should be available for all ages, and in saying that, there should be readily available support for post Shingles patients who end up with chronic nerve pain and other ongoing health issues as a result of this virus.
I have to live for the rest of my life with nerve pain that can’t be aided.

I would have much rather gotten Shingles when I was 65. At least I would have had an honest chance at living.

#rantover #moreawareness #infectiousdiseases #postherpeticneuralgia #chronicillbess #shingles #supportchronicillnesses #shinglesawareness

Face and brain pain is my favorite kinda pain baby! Did you know there were so many stupid nerves in your face that can hurt you for, like, NO REASON at all? Fuckers. I wonder if there’s any evidence of acupuncture helping with nerve pain? I highlighted my problem areas in painful red scribbles. #postherpeticneuralgia #shingles #migraine #mybrainhatesme #allupinmynerves

My beautiful crooked smirk! I'm just loving myself today, as I should everyday! So should you, give yourself some love today! #loveyourself #alwaykeepfighting #yourbeautiful #jcatbeauty #jcatflashmetalmetalicmattelip #postherpeticneuralgia #trigeminalneuralgia #nervedisorder #nervedisease #crookedsmile

Huge thanks and shout out to @hemptureofficial for being so awesome and sending me this big whopper of a sign.. YES its official I am a STOCKISTS of hempture's amazing CBD products, Ive had so much great feedback already from customers and clients...
#physicare #cbd #cbdoil #herbal #herbalmedicine #painrelief #antiinflamatory #natural #relief #shingles #postherpeticneuralgia #anxiety #stress #nostress

Of course my postherpetic neuralgia flares up in the last two weeks of uni 😑🔫 #phn #shingles #neuralgia #postherpeticneuralgia #chronicpain

October is #facialpainawareness Month.

I am a facial pain warrior and all month I will be raising awareness.
The Facial Pain Community, online and elsewhere, is comprised of many people with a wide range of diagnoses. The best known facial pain conditions are:

trigeminal neuralgia
geniculate neuralgia
glossopharyngeal neuralgia
anesthesia dolorosa/trigeminal deafferentation pain
cluster headache
paroxysmal hemicrania
SUNCT/SUNA

#facialpain #ramseyhuntsyndrome #postherpeticneuralgia #trigeminalneuralgia #geniculateneuralgia #glossopharyngealneuralgia #clusterheadache#paroxysmalhemicrania

October is fast approaching and along with it #facialpainawareness month. I'm getting ready to #wearteal and help spread awareness about Facial Pain. Does anyone else living with facial pain want to join me? Message me whomever wants to team up.
#facialpain #trigeminalneuralgia #ramseyhuntsyndrome #postherpeticneuralgia

This week is #invisibleillnessawareness and just because you can't see my illness doesn't mean it's not there.
This week share your stories and help make #invisibleillness visible.
#seeme #shareyourstory #migrainewarrior #ramseyhuntsyndrome #nervepain #postherpeticneuralgia

Postherpetik nevralji su çiçeği (herpes zoster) virüsünün neden olduğu zona hastalığının bir komplikasyonudur. Sinir liflerini ve deriyi etkiler, Zona döküntüsü iyileştikten sonra devam eden yanma şeklinde ağrı şeklinde görülür.
Etkin ilaç tedavisine rağmen ağrısı devam eden hastalara çeşitli girişimsel ağrı tedavisi yöntemleri uygulanabilir. İlgili sinir bölgesine uygulanan transforaminal epidural enjeksiyonlar bu yöntemlerin başlıcalarıdır. Bir diğer yöntem ise ağrı iletiminde rol oynayan sempatik sinirlerin blokajıdır. Postherpetic neuralgia is a complication of shingles, which is caused by the chickenpox (herpes zoster) virus. Postherpetic neuralgia affects nerve fibers and skin, causing burning pain that lasts long after the rash and blisters of shingles disappear.

Various interventional pain treatment modalities can be applied to the ongoing pain. Transforaminal epidural injections applied to the relevant nerve area are the mainstays of these methods. Another method is blockage of sympathetic nerves that play a role in pain transmission.

#zona #postherpetiknevralji #postherpeticneuralgia #shingles #pain #paintheraphy #agritedavisi #headaches #transforaminal #epiduralinjection #painmanagement

I've been walking around since surgery, and whilst I do feel pain, I swear that this is NOTHING in comparison to the nerve and stomach pain I have felt every day for three years.
I've only been taking paracetemol, and have really tried to push myself to move around every day.
I HAVE been enjoying a good rest and read in between walks 😉
If Endometriosis really is on the cards for me, then I will brave it as I have the other conditions. It is an honour to stand beside so many of my fellow Endometriosis Warriors and kick some more butt.
Whatever comes my way, I'll just have to adapt and continue to educate myself and spread awareness worldwide.

#chronicillness #gastroparesis #functionaldyspepsia #postherpeticneuralgia #endometriosis

Alright Team Kenzie, I need a favour! We need to send our strength and love to a very deserving young lady and her momma. Lindsay is my best friend and a fellow spoonie warrior. Her mom also suffers from the same disease that I do! They are amazing, independent women, but life just isn't fair sometimes. So if you have love and strength to spare, please direct it towards these ladies today. Thank you so much ❤️ #bestfriend #lovelyladies #myinspirations #trigeminalneuralgia #postherpeticneuralgia #fibromyalgia #spoonie

Always pushing the envelope. Always innovating. The Trusculpt 3D is already a standard in fat reduction. But will it help this gentleman who suffers from years of pain from post herpetic neuralgia? Stay tuned. #napervillebotox #hsuderm #trusculpt #radiofrequency #fatkiller #postherpeticneuralgia #innovation #fatreduction #oakbrook #naperville

This is my "post-herpetic neuralgia flare up is kicking my ass to where I could only go to one class today" make up. #shingles #postherpeticneuralgia #yesterdaysmakeup #makeuptouchup #makeup #blackheartbeauty #urbandecaycosmetics #starwars #starwarsonesie #homework #keepgoing #itcouldbeworse #vape #vapelife #altgirl #nrrrdgrrrl

Ohioans will now suffer because government officials feel the need to control their pain medication now.
So because some drug addicts who use heroin and choose to abuse medications legal or illegal those in constant chronic pain will now suffer even more.
Some how we no longer seem like a free society when governments start to control everything including patient and doctors relationships.

There are many other conditions that cause constant daily pain besides cancer.
https://www.google.com/amp/s/articles.cleveland.com/metro/index.ssf/2017/03/pain_prescription_limits_set.amp

#Wegohealth
#ChronicPain
#Spoonie
#JointReplacment
#BoneDisease
#Osteonecrosis
#AvascularNecrosis
#PostherpeticNeuralgia
#TrigeminalNeuralgia
#ComplexRegionalPainSyndrome
#Surgery
#PatientLeader
#Kasich
#Ohio
#AARP

It's been a while but I finally have a new post up on my blog! It's all about allodynia and some tips to help make life a little less painful for those suffering 👚🚿🛏 plus a little health update. Link on my bio 👍🏻
Thank you so much for the lovely comments on my last Instagram post! Your support means such a lot 💛💛💛

Vitamin B12 aka Cyanocobalamin 💊💉 You can find this guy in #fish #meat #poultry #eggs #milk and #fortifiedcereal .
It has shown effectiveness for #imerslundgrasbeck disease #perniciousanemia and of course #vitaminb12deficiency .
Likely works for #cyanidepoisoning and #hyperhomocysteinemia .
Encouraging data for #AMD and #postherpeticneuralgia .
#knowledgeispower #vitaminb12 #cyanocobalamin

New Shingles and Shingles Nerve Pain Blends have been added to the Lotions, Salves and Whipped Shea Butter formulas.⠀
Shingles Blend is for when you actively have Shingles, where Shingles Nerve Pain is for postherpetic neuralgia.⠀
#shingles #postherpeticneuralgia #essentialoils #aromatherapy #etsy #etsyshop #etsyseller #etsysellersofinstagram #etsystore

How about another #dermpicoftheday ⁉️ Here's shingles that started a few days ago and really hurts. He wasn't vaccinated, but since he's over 60yo, he should have been. I urged him to do so after we treat this.
The sooner it's treated, the less chance he has of having perpetual pain, aka #postherpeticneuralgia , which really isn't fun.
#zoster #herpeszoster #shingles #ouch #vaccinate #neuralgia #rolex #gmt #blnr

A Long Day
My daughter took me to Newcastle today for an appointment with my Neurologist and future treatment for the autoimmune disease Myasthenia Gravis.
I was armed with my Android phone only so it was a good opportunity to experiment on the run and with my hand still at only about 50% idea he due to chronic pain.
It was a great day with great company! Scroll through for my day in photos.
#newcastle #roadtrip #myastheniagravis #postherpeticneuralgia

On tough flare up days like today, I remind myself how far I have come. 6 weeks ago today while I was working full time in my dream job I was hit with the shingles virus, I was malnourished, riddled in blisters and pain, I couldn't move without assistance. My days and nights merged together after not sleeping at night for over 3 weeks. There was no comfortable position to sit or lay. This small virus changed my life almost instantly.. I'm still struggling with nerve pain, muscle loss and nausea but even on days like today there is no comparison to the beginning...💕 #postherpeticneuralgia #phn #goodbyeshingles #bodypositive #positivequotes #mindset

After having my hair plaited back for me everyday as I haven't been able to do my own hair I've actually fallen in love with this look🤷🏼‍♀️#plaits #love #hair #missinghairdressing #hairdresser #stylist #goodbyeshingles #phn #postherpeticneuralgia

#Reposting @official_claire_bear with @instarepost_app -- @jennykunard inspired this post. With her forgiveness challenge. There are days when I want to skip cardio and just go home. Then I think of that #postworkoutselfie. I often hear woman talk about " I ate this, I need to train this hard." Ladies, stop punishing yourself for what you eat. This week I ate Thai food, sashimi, shrimp, scallops and ceviche because #foodisfuel. Instead say "Train harder. Lift heavier. Run faster." Change your mind and watch your body change. #ocrtraining #eatcleantraindirty #nowhey #postherpeticneuralgia #shoulderworkout #obstaclecourseracing #teamironnation #eattogrow #obliques #girlswithabs #shoulderboulders

Cream sauce risotto... by myself 😭😭😭still have some pain on my shoulder and back but I have to cook and serve to myself for fighting with postherpetic neuralgia
#dinner #italianfood #risotto #creamsaucerisotto #postherpeticneuralgia

Almost three weeks...
Still have pain... but much better...
So I can have spare time for watching Korean drama...'Goblin'
#pain #postherpeticneuralgia #koreandrama #goblin

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