#parkinsons

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UP THE ANTE? Chronic pain is an absolute mother fucker. Two steps forward, five steps back, three steps forward aaaand you're back to where you began. In the last 12 months I've reduced my opioid pain medication to such a low dose, that without CBD oil to help, I cannot function.
My nervous system is going haywire & I feel that I've ridden it out as long as I can... I need to increase them again.
It feels like SUCH a failure.
I feel like a failure.
But wait... I am consciously countering that feeling with the logic that I am doing the exact OPPOSITE of failing my body.
I am recognizing what my body needs to be in less severe pain, and therefore under less stress.
I'm not allowing my stubbornness or ego to get in the way of looking after myself.
If you have to up your meds, so be it.
Don't beat yourself up, take care of yourself... your poor body has enough stacked against it as it is.
Remember that nothing is permanent & neither is this.
I'll get the dose back down when I've got access to the right medicine & a plan put in place to carry the load that this chronic pain exerts.
Have you ever had to increase your medications & felt like your progress was free falling backwards?
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#Ehlersdanlossyndrome #invisibledisability #cyclicvomitingsyndrome #panicdisorder#dyslexia #tourettes #epilepsy #fibromyalgia#gastroparesis #hashimotos #interstitialcystitis#mastcellactivation #mcas #cysticfibrosis#mitochondrialdisease #parkinsons #sjögrens #narcolepsy#invisibleillness #sjorgrenssyndrome#peripheralneuropathy #asthma #congenitalheartdisease#musculardystrophy #chronicfatiguesyndrome #autism#addisonsdisease #gravesdisease

The summer edition of "In Your Corner" magazine is hot off the presses and will be delivered in the next few weeks! "In Your Corner" is a FREE, quarterly, full-color, 32 page magazine, published by Rock Steady Boxing, Inc. as a resource and encouragement to families fighting back against Parkinson’s disease throughout the world.
Have you subscribed yet? --> https://rocksteadyboxing.org/about/in-your-corner/

#fightback #parkinsons #inthiscornerhope #rocksteadyboxing
P.S. Chelsea's shirt can be found in our awesome online store (free shipping starts June 2!) https://shop.spreadshirt.com/rocksteadyboxing/

Bob's gearing up for another ride. On June 10 we'll be participating in the Tour de Fox, a ride for Parkinson's research. Join the race and ride with us!

Dad and Le Car. Miss you everyday R.I.P.

"The lived experience" Speaking at the 2016 World Parkinson Congress ✨
#AndyMcDowell #Parkinsons

As the temperatures ☀️ are on the rise this week (unsually in the 🇬🇧) Remember to stay cool and hydrated this #weekend. Why not follow Bartie's 🐶 example and treat you and your #family 👨‍👩‍👧‍👧 to an🍦#Parkinsons #Summer

My Dad has #parkinsons and lives in a separate state from me sometimes I don't get to see him for YEARS , he has little to no dexterity in his limbs and especially his fingers (he was in my life growing up and him and my mom stayed together until we graduated) so I still get happy when he calls me because I will go months without talking to him and whenever I visit him he is EXTREMELY SPOILED I do EVERYTHING for him lmao , even when people tell me not to, but he wants it and because I know nobody else is doing it for him and I know he likes it lol... my mom would be more spoiled too if she let me do more for her #onlygirlsyndrome

Stop ... and imagine a world where daughters have each other's backs - no matter what. Profound. Meaningful. We get each other, Girls. It's amazing the immediate understanding and connection women share when the "plight of the daughter" conversation happens. Join us today! #daughters #daughtersunite #daughterhood #connection #meaning #network #community #friendship #alzheimers #dementia #parkinsons #healthcare #caregivers #caregiver #daughtersrock

MOST RECENT

Out at Fatheads! #beer #parkinsons #datenight

I'm really struggling right now. The people around me, even the ones that supposedly care the most about me, choose to make me feel like I chose this chronic illness life for myself. I didn't. I didn't cause it. I can't change it and neither can they. It's hard to feel like such a burden. These are the days that I need Jesus the most. I'm clinging to Him. And weeping in His arms. I'm so thankful that He understands when nobody else does. I know some of you have went through or are currently going through this same thing. It sucks. I love you and I understand.




#ADD #ADHD #cyclicvomitingsyndrome #panicdisorder #dyslexia #tourettes #epilepsy #fibromyalgia #gastroparesis #hashimotos #interstitialcystitis #mastcellactivation #mcas #cysticfibrosis #mitochondrialdisease #parkinsons #sjögrens #narcolepsy #peoplehopetribe #sjorgrenssyndrome #peripheralneuropathy #asthma #congenitalheartdisease #musculardystrophy #chronicfatiguesyndrome #autism #addisonsdisease #gravesdisease

The banner is up for our June 3rd screening at St Viator - 515p in the Parish hall, right after mass. #boysofsummer, #fathersday, #baseball, #parkinsons

Dad and Le Car. Miss you everyday R.I.P.

1.Green tea contains bioactive compounds that improve health.

2. Compounds in green tea can improve brain function and make you smarter.

3. Green tea increases fat burning and improves physical performance.

4. Antioxidants in green tea may lower your risk of various types of cancer.
5. Green tea may protect your brain in old age, lowering your risk of alzheimer's and parkinson's.

6. Green tea can kill bacteria, which improves dental health and lower your risk of infection.
7. Green tea may lower your risk of type II diabetes.

8. Green tea may reduce your risk of cardiovascular disease.

9. Green tea can help you lose weight and lower your risk of becoming obese.

10. Green tea may decrease your risk of dying and help you live longer. 😌❤️ #greenteadetox#greentea#detox#loveyourbody#heathybody#heathy#greens#health#smarter#fatburning#fightcancer#cancer#physicalperformance#antioxidants#alzheimers#parkinsons#killbacteria#diabetes

Um estudo recente da Clínica Mayo diz que parkinsonianos vivem em média um ano a menos que quem não tem a doença, enquanto pessoas com a Demência com Corpos de Lewy, outra doença neurodegenerativa comum em idosos, podem viver quatro anos menos se a tiverem combinada ao Parkinson 😱 Em média, pacientes com essas doenças vivem dois anos a menos que a população em geral; porém, no caso dos parkinsonianos com atrofias múltiplas, a expectativa média de vida cai em seis anos 😔 Saiba mais na página do Dr. Nilton Lara no Facebook! (Link na bio)

We had the best day with these big hearted, kind, giving, talented and compassionate volunteer support group leaders! Wrapping up our final of three leader training/networking meetings in the region this Spring. #volunteering #luckyus #supportgroup #parkinsons #weknowthebestpeople

My latest #vlog about my #journey from full time work to being #medically #retired following #parkinsons #diagnosis https://youtu.be/zkw2km_ErgE #parkinsonsdisease #disability

Head to Healing Campaign...Day 🐘
••••
ABOUT THIS CAMPAIGN

Healing for survivors of sexual assault is non-linear, it's messy, it's emotional, it brings you in "different directions"-and yet, it is so worth embarking on the process.
Help support "The Joyful Heart Foundation" as they continue to create and fund retreats for survivors of sexual assault by participating in the "Head to Healing" t-shirt campaign. Not only are you financially supporting The Joyful Heart Foundation by making a purchase, but by sporting the shirt-you are also sending a message to survivors that they are not alone.🙏 @joyful_heart_foundation #joyfulheartfoundation
•••• @inversionjunkieapparel #handstand365_2017
#365daysofhandstands ..
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#loveyourbody #yogini #motivated #happygirl #fitspo #fitspiration #igyogachallenge #yogachallenge #aloyoga #spiritualgangster #lululemon #fitnessjourney #fitgirlsdoitbetter #healthspo #healthkick #bodypositive #healthmovement #fitnessmovement #abs #instacute #fitnessgoals #yogamom #yogamama #inversion #inversions #yogaforacause

Bob's gearing up for another ride. On June 10 we'll be participating in the Tour de Fox, a ride for Parkinson's research. Join the race and ride with us!

CAPABLE, BRAVE & SIGNIFICANT YOU... You're all of these things. Ok?
Capable you. The word itself means 'able to take in'. I may be disABLEd, but I sure as shit am capABLE.
Brave you. Being brave isn't the absence of fear, it's feeling the fear... but doing it anyway. Whatever the 'it' may be. Living with a chronic illness takes bravery every damn day (day in, day out). Don't go underestimating that. It's a feat in itself. 💪🏻
Significant you. You are loved, you are important & you matter. Now before you accuse me of regurgitating trope-filled, self help book, pull quotes (I got them off Pinterest like any self respecting Insta-blogger, K?)... I actually mean this stuff for realsies. 💙
No one is you & that is your power. If you're a way off feeling this way about yourself, fake it until you make it. 👌🏻👍🏻
Self care & self love, especially through chronic pain & illness isn't some one off thing... it is a daily exercise. And I'm here to make sure you do your self-love-squats & your positivity-push-ups.
Now drop & gimme 20! 😜 .
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#diabetes #fatigue #pots #dysautonomia #multiplesclerosis #ulcerativecolitis#arthritis #rheumatoidarthritis #chronicpain #lyme#lymedisease #ibs #ibd #lupus #autoimmunedisease#fibromyalgia #endometriosis #ptsd #pcos #migraines#ehlersdanlossyndrome #crohns #depression #anxiety#chronicillness #stress #spoonie #invisibleillness

Thank you to everyone who came together for the Pull for #Parkinsons #Charity #UltimateTournament! This tournament for high school students took place in #SurreyBC and raised a whopping $3,100 for PSBC programs, services, research and advocacy. 📷: @nkolakovic #ThankYou #CommunitySupport #UltimateFrisbee

Well good afternoon my lost souls. I know you all have had your #naturalmedicine today to help give you that wonderfully needed boost to improve your quality of life and relieve your symptoms from whatever illness you maybe living with. I definitely know R1pp3r and his clients have had there's today.
If your in the Vancouver area and are looking for some amazing medicine and even better people. Head on down to @sunrisewellnessfoundation4.0 and ask for Robin, Walter or Max, three of the most wonderful people I have met. When you get down there tell them R1pp3r sent ya. You never know you may just leave with a nice little treat. Until we meet again.
Rest In Pieces
#independentartist #independentfilm #independentdocumentary #independentadvocate #dispensary #cbd #cbdoil #medicalcannabis #medicalmarijuana #painfreeliving #seizurefree #qualityoflife #autism #epilepsy #parkinsons #anxiety #depression #celiacdisease #add #adhd #ptsd #multiplesclerosis #r1pp3rshouse #m1k3ther1pp3r #vancouver #yyc #yeg #ywg #yyz
Photos 2-4: @5string_al
Mask: @madmaskman75

In just ONE WEEK Anastasia Djakov is making her #glorious return to the #dcgurlyshow Stage at @bierbarondc when DCGS Presents: #FundraiseTheRoof For #Parkinsons. If there's one thing this #Soviet #siren knows, it's how to bring down the #bourgeois..... but also how to PARTAAAYYY! Let Comrade Nastya seduce you with Russian #sensuality, and maybe some pornographic #propaganda!
#burlesque #charitease #fundraiser #charity #sexy #stepmotherrussia #giveback #nationalparkinsonsfoundation

Happy Friday, friends! Today for #BHSM fact number 26, we thought it would be fun to take a step back and talk about the SLP scope of practice. The image contains just a few of the many diagnoses #slp can work with! Who knows some other diagnoses that we treat? #LA #losangeles #dtla #beverlyhills #hollywood #studiocity #noho #weho #belair #glendale #shermanoaks #pasadena #aphasia #apraxia #dysarthria #braininjury #parkinsons #voice #language #speech #aac #multiplesclerosis #alsawareness #autism #stuttering #downsyndrome #cleftstrong #dementia @ashaweb

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