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#pancytopeniaawareness

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Even though I don't feel the best today and the day has been physically and emotionally draining, I remember that God has a bigger plan than I can even imagine and that everything happens for a reason. Today might not have been the best, but tomorrow is a new day. I'm fighting a rare and fatal disease. What's your super power? #TeamKristin #NeverGivesUp #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #FightForTheRedAndWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #NEGU #LetGo #LetGod #NeverGiveUp

Friends,
I wanted to give everyone an update as to what is going on. Today I had to go to the ambulatory treatment center because my kidney function was not good and it was the beginning of kidney failure. The same meds that are supposed to keep me alive are destroying my kidneys. We are trying to remain positive and optimistic and we realize things can always be worse. Please lift my family and I up in your thoughts and prayers as we try to piece together the next steps to take. Thank you for all of your kind words of encouragements, your prayers and all of your sweet comments. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #Strength #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #LetGo #LetGod #BlessedBeyondMeasure #WhatsYourSuperpower? #RareDisease #TeamKristin
I'm fighting a rare and fatal disease. What's your superpower?

Friends,
I am still at MD Anderson due to getting paeudomembranous colitis caused by the C Diff bacteria. I am still experiencing quite a bit of pain and nausea. Due to my counts being low, I am getting another unit of blood. Please continue to keep me in your prayers and that the vancomycin starts to help my pain get better. Thank you all for all of the love and prayers. God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LetGo #LetGod #TeamKristin

Unexpected hospital stay! Oh well it's all for the well being of my son! #itpwarrior #pancytopenia #pancytopeniaawareness

Friends,
I am still at MD Anderson due to getting paeudomembranous colitis caused by the C Diff bacteria. I am still experiencing quite a bit of pain and nausea. Due to my counts being low, I am getting another unit of blood. Please continue to keep me in your prayers and that the vancomycin starts to help my pain get better. Thank you all for all of the love and prayers. God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LetGo #LetGod #TeamKristin

So, today I was admitted to MD Anderson for being neutropenic and for having another infection in my stomach. Shortly after I arrived to my room, I turned on the TV in my room and music started playing on the TV. The song that started playing was Tears in Heaven by Eric Clapton. The last time I heard this song was at my brother's funeral. If that's not a sign from my brother telling, me that he's with me, then I'm not sure what is. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedandWhite #PaintingTheWorldRedAndWhite #Survivor #Fighter #ThisOnesAFighter #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Strength #DyingToLive #FightingLikeAGirl #TeamKristin #SignsFromHeaven #FamilyIsForever #ABrothersLoveNeverDies

Today we meet with the transplant physician for the third and final time. Last time we saw this physician he said that he cannot do anything more to help me. We wanted to give him one more chance before we have to move to Maryland to get a second opinion and a bone marrow transplant from Dr. Young. I ask for prayers today that I am able to stay strong through this doctor's judgment. I ask that you guys pray that he listens to the words we are saying and accepts my abnormal levels that are in front of him. Please pray that he opens his heart and is welling to help me get better. Please pray that he helps me to get my life back and to feel like a normal 23 year old again. Additionally, Please cover my family in prayers as we try to piece together the next steps in my journey. Thank you and God bless you all! #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedandWhite #ThisOnesAFighter #FightingLikeAGirl #Fighter #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #TeamKristin I'm fighting a rare and fatal illness. What's your Superpower?

I got admitted to MD Anderson last night because I had a high fever and severe neutropenia and a critically high potassium level. My white blood cells were 0.9 this morning and my neutrophils are close to zero. I also am getting another blood transfusion today too; every single one that I need is just another awful reminder that this disease is kicking my butt! Please keep my family and I in your prayers. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedandWhite #Strength #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Fighter #FightingLikeAGirl #ThisOnesAFighter #DyingToLive #TeamKristin

MOST RECENT

We found out some of the results of my bone marrow aspiration today. Unfortunately, they were not as good as we were hoping. They were lower than they were the last time, meaning the disease has progressed. Please keep my family and I in your prayers. I'm fighting a rare and fatal disease. What's your superpower? #AplasticAnemiaSucks #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #FightForTheRedAndWhite #RedAndWhite #PaintingTheWorldRedAndWhite #RareDisease #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButIAmNotGivingUpWithoutAFight #LetGo #LetGod #GodsGotThis #TeamKristin

Even though I don't feel the best today and the day has been physically and emotionally draining, I remember that God has a bigger plan than I can even imagine and that everything happens for a reason. Today might not have been the best, but tomorrow is a new day. I'm fighting a rare and fatal disease. What's your super power? #TeamKristin #NeverGivesUp #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #FightForTheRedAndWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #NEGU #LetGo #LetGod #NeverGiveUp

Friends,

I wanted to give everyone an update on what had been going on with my health. So, I went to another physician that believes I might have another genetic disease wrecking havoc along with the Aplastic Anemia that is causing additional issues. He also said that my Aplastic Anemia has worsened and they think it could have morphed into MDS which is a form of leukemia. They are going to do additional testing and another bone marrow biopsy to try to figure out what is going on! Please pray that it doesn't progress. Please pray that it's not cancer and that whatever is going on is mild. Please keep my family and I in your prayers during this difficult time. Thank you and God bless you all!
#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedAndWhite #PaintingTheWorldRedAndWhite #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #TeamKristin

Hey Friends,
One of the many joys of having Aplastic Anemia! Infusing Magnesium for the next five hours through my PICC line!
My last post was obviously misleading. I still have Aplastic Anemia and it has actually progressed further. MD Anderson defines a survivor by saying 'you became a survivor the day you were diagnosed.' Thank you for your sweet words and prayers!!
#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #PaintingTheWorldRedAndWhite #RedAndWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #RareDisease #IAmRare #GodsGotThis #LetGo #LetGod #iBelieve #Psalm7326 #DyingToLive #TeamKristin

I'm getting my sixth PICC line in two years placed tonight because the other one is infected. You would think I would be used to it by now, but I get anxious because it is a painful procedure. Please pray that it is a quick, easy and painless procedure and that the bacteria from the other PICC hasn't infiltrated into my blood. Please pray for negative blood cultures as well! One thing is certain Houston, you are looking beautiful tonight. Even after 27+ Hospitalizations, this view never gets old!! #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedAndWhite #PaintingTheWorldRedAndWhite #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #TeamKristin

Hey Everyone,
I'm currently back at M.D. Anderson. They are admitting me to get IV Antibiotics because I have high fevers, vomiting and abdominal pain. This is my third time this month having to be hospitalized. I feel absolutely awful. Please keep my family and I in your prayers. Thank you and God bless you all! #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedAndWhite #PaintingTheWorldRedAndWhite #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #TeamKristin

Friends,
I am still at MD Anderson due to getting paeudomembranous colitis caused by the C Diff bacteria. I am still experiencing quite a bit of pain and nausea. Due to my counts being low, I am getting another unit of blood. Please continue to keep me in your prayers and that the vancomycin starts to help my pain get better. Thank you all for all of the love and prayers. God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LetGo #LetGod #TeamKristin

Friends,
I am still at MD Anderson due to getting paeudomembranous colitis caused by the C Diff bacteria. I am still experiencing quite a bit of pain and nausea. Due to my counts being low, I am getting another unit of blood. Please continue to keep me in your prayers and that the vancomycin starts to help my pain get better. Thank you all for all of the love and prayers. God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LetGo #LetGod #TeamKristin

Friends,
I know I tend to sound like a broken record, but I need your help again. Today, I woke up feeling better than I have in a long time. Well, I guess my body decided I was having too much fun because I am getting admitted for IV Antibiotics for neutropenic colitis again. I ask prayers specifically for pain control. I have had so many infections in my colon and because of that, the pain is absolutely excruciating. To make matters worse, Victor and I were supposed to move to Houston on Thursday. Now my husband has to move everything all by himself while trying to juggle our businesses, my health and being my full time caretaker. As cheesy as this sounds, many people have asked me what they can do to help; well, here is your answer. If anyone is available at all (even just 30 minutes) either Wednesday or Thursday to help us pack and move, we would forever be indebted. Thank you and God bless you all!
#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #Survivor #Fighter #ThisOneIsAFighter #FightingLikeAGirl #LetGo #LetGod #IBelieve #InMiracles #DyingToLive #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButIAmNotGivingUpWithoutAFight #TeamKristin

Unexpected hospital stay! Oh well it's all for the well being of my son! #itpwarrior #pancytopenia #pancytopeniaawareness

Hey Everyone! I have important news to tell you all! IM GETTING A DIVORCE.. from my IV pole that is! My counts are still critically low, but after two weeks in the hospital I'm finally going HOME! :) #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGo #LetGod #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

I am a little discouraged today as my counts have dropped down into the severely low levels. The doctors are not helping me and neither are the daily neupogen shots. When I am cooped up in the hospital for so long I have to constantly remind myself that God has a bigger plan for me far beyond my understanding! Everything happens for a reason. I truly believe that if the doctors cannot heal me then God will. Please keep me in your prayers. I haven't felt the warmth of the sun on my face or the breeze in my hair in two weeks. I just want to go home. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #IHateWhenDoctorsDontListenToYouOrReviewYourChart #IfGodBringsYouToIt #ThenHeWillBringYouThroughIt #PaintingTheWorldRedAndWhite #RedAndWhite #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGo #LetGod #DyingToLive #IBelieve#Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

I wanted to give everyone an update as to what is going on. I came to MD Anderson a couple of days ago with a high fever, abdominal pain, nausea and a sore throat. My counts are very low right now as well. Well, my immune system likes to do big things (Go big or go home, right?). Yesterday, they did a CT Scan and it turns out that I have both pneumonia and neutropenic colitis again. The last time I became sick with this combination of infections I went into Septic shock and was fighting for my life in the ICU and had a month long stay at MD Anderson. As you all know, I have had pretty much every bacteria that you can get and due to recurring infections the bacteria is resistant to many antibiotics. I am currently in a lot of pain and feeling very fatigued and weak. Please pray for my medical team and that we find the perfect antibiotic combo to fight this. Please pray for my family as they have to watch me go through this. Lastly, please pray that I get through this quickly and easily with minimal complications. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #GoBigOrGoHome #MyImmuneSystemHatesMe #AplasticAnemiaProblems #PaintingTheWorldRedAndWhite #RedandWhite #Fighter #Survivor #ThisOnesAFighter #FightingLikeAGirl #GodsGotThis #LetGo #LetGod #Perseverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #TeamKristin

I'm getting admitted into MD Anderson because of low counts and a high fever (Netropenic fever) to get IV Fluids and IV Antibiotics. Please pray that they are able to find the cause and that I will start to feel better soon! Thank you and God bless you all! #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedandWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Strength #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGoLetGod #DyingToLive #TeamKristin

Today we meet with the transplant physician for the third and final time. Last time we saw this physician he said that he cannot do anything more to help me. We wanted to give him one more chance before we have to move to Maryland to get a second opinion and a bone marrow transplant from Dr. Young. I ask for prayers today that I am able to stay strong through this doctor's judgment. I ask that you guys pray that he listens to the words we are saying and accepts my abnormal levels that are in front of him. Please pray that he opens his heart and is welling to help me get better. Please pray that he helps me to get my life back and to feel like a normal 23 year old again. Additionally, Please cover my family in prayers as we try to piece together the next steps in my journey. Thank you and God bless you all! #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedandWhite #ThisOnesAFighter #FightingLikeAGirl #Fighter #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #TeamKristin I'm fighting a rare and fatal illness. What's your Superpower?

Friends,
I wanted to give everyone an update as to what is going on. Today I had to go to the ambulatory treatment center because my kidney function was not good and it was the beginning of kidney failure. The same meds that are supposed to keep me alive are destroying my kidneys. We are trying to remain positive and optimistic and we realize things can always be worse. Please lift my family and I up in your thoughts and prayers as we try to piece together the next steps to take. Thank you for all of your kind words of encouragements, your prayers and all of your sweet comments. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #Strength #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #LetGo #LetGod #BlessedBeyondMeasure #WhatsYourSuperpower? #RareDisease #TeamKristin
I'm fighting a rare and fatal disease. What's your superpower?

I got admitted to MD Anderson last night because I had a high fever and severe neutropenia and a critically high potassium level. My white blood cells were 0.9 this morning and my neutrophils are close to zero. I also am getting another blood transfusion today too; every single one that I need is just another awful reminder that this disease is kicking my butt! Please keep my family and I in your prayers. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedandWhite #Strength #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Fighter #FightingLikeAGirl #ThisOnesAFighter #DyingToLive #TeamKristin

I don't know how I got so lucky to experience this twice, but I am so sick of selfish jerks parking in the handicap space in front of my appt when they are NOT handicapped. If only they knew how lucky they are to be able to walk and not be permanently disabled at just 23 years old with a disease that will likely kill me. If youve ever parked illegally in a handicapped space. I encourage you to Try thinking about people besides just yourself and to be grateful for your good health. #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #Survivor #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

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