#pancytopeniaawareness

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I'm getting admitted into MD Anderson because of low counts and a high fever (Netropenic fever) to get IV Fluids and IV Antibiotics. Please pray that they are able to find the cause and that I will start to feel better soon! Thank you and God bless you all! #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedandWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Strength #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGoLetGod #DyingToLive #TeamKristin

Friends,
I wanted to give everyone an update as to what is going on. Today I had to go to the ambulatory treatment center because my kidney function was not good and it was the beginning of kidney failure. The same meds that are supposed to keep me alive are destroying my kidneys. We are trying to remain positive and optimistic and we realize things can always be worse. Please lift my family and I up in your thoughts and prayers as we try to piece together the next steps to take. Thank you for all of your kind words of encouragements, your prayers and all of your sweet comments. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #Strength #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #LetGo #LetGod #BlessedBeyondMeasure #WhatsYourSuperpower? #RareDisease #TeamKristin
I'm fighting a rare and fatal disease. What's your superpower?

Today we meet with the transplant physician for the third and final time. Last time we saw this physician he said that he cannot do anything more to help me. We wanted to give him one more chance before we have to move to Maryland to get a second opinion and a bone marrow transplant from Dr. Young. I ask for prayers today that I am able to stay strong through this doctor's judgment. I ask that you guys pray that he listens to the words we are saying and accepts my abnormal levels that are in front of him. Please pray that he opens his heart and is welling to help me get better. Please pray that he helps me to get my life back and to feel like a normal 23 year old again. Additionally, Please cover my family in prayers as we try to piece together the next steps in my journey. Thank you and God bless you all! #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedandWhite #ThisOnesAFighter #FightingLikeAGirl #Fighter #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #TeamKristin I'm fighting a rare and fatal illness. What's your Superpower?

So, today I was admitted to MD Anderson for being neutropenic and for having another infection in my stomach. Shortly after I arrived to my room, I turned on the TV in my room and music started playing on the TV. The song that started playing was Tears in Heaven by Eric Clapton. The last time I heard this song was at my brother's funeral. If that's not a sign from my brother telling, me that he's with me, then I'm not sure what is. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedandWhite #PaintingTheWorldRedAndWhite #Survivor #Fighter #ThisOnesAFighter #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Strength #DyingToLive #FightingLikeAGirl #TeamKristin #SignsFromHeaven #FamilyIsForever #ABrothersLoveNeverDies

Hey Everyone! I have important news to tell you all! IM GETTING A DIVORCE.. from my IV pole that is! My counts are still critically low, but after two weeks in the hospital I'm finally going HOME! :) #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGo #LetGod #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

I got admitted to MD Anderson last night because I had a high fever and severe neutropenia and a critically high potassium level. My white blood cells were 0.9 this morning and my neutrophils are close to zero. I also am getting another blood transfusion today too; every single one that I need is just another awful reminder that this disease is kicking my butt! Please keep my family and I in your prayers. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedandWhite #Strength #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Fighter #FightingLikeAGirl #ThisOnesAFighter #DyingToLive #TeamKristin

I don't know how I got so lucky to experience this twice, but I am so sick of selfish jerks parking in the handicap space in front of my appt when they are NOT handicapped. If only they knew how lucky they are to be able to walk and not be permanently disabled at just 23 years old with a disease that will likely kill me. If youve ever parked illegally in a handicapped space. I encourage you to Try thinking about people besides just yourself and to be grateful for your good health. #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #Survivor #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

20 months ago when I first got sick and was going into septic shock, my organs began to shut down and I was rushed to the ICU at MD Anderson. After being so close to death, you begin to see the world in a different light. While my peers rush through their lives, taking everything for granted and not valuing anything that they have; I look at the world through adversity filled eyes, eyes that have held back a lot of tears and a lot of pain. When you have a near death experience and a fatal illness, you live each day like your last, you live your life with happiness, laughter and a lot of smiles. You spend a lot of time with the people you love and you truly see the beauty and the good in everything and everyone. Although, I desperately would love to be healthy, I am thankful for my journey through this illness. It has made me grow and mature, it killed the sinner in me and sucked the venom out of my life. Although, I have been hospitalized 17 times in the last 20 months, I am grateful for the fight and I am even more grateful to be alive. Until you've stared death in the eye, you truly cannot appreciate all of the beauty in this world. Thank you God for another beautiful day on this earth. Thank you for all of your prayers and support. I believe in the power of prayer. I believe in God. I believe in family. I believe in miracles. Blessed be the name of the lord! Thank you for all of your support. God bless you all. I am fighting a rare and fatal illness. What is your superpower? #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #LivingEachDayLikeMyLast #RedAndWhite #PaintingTheWorldRedAndWhite #Survivor #Fighter #Strength #FightingLikeAGirl #ThisOnesAFighter #DyingToLive #LetGoLetGod #BlessedBeyondMeasure #SecondChances #ThePowerOfPrayer #ADayInTheLifeOfAplasticAnemia #MyJourneyThroughAplasticAnemia #WhatIsYourSuperPower? #IBelieve #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFIGHT #TeamKristin

MOST RECENT

Hey Everyone! I have important news to tell you all! IM GETTING A DIVORCE.. from my IV pole that is! My counts are still critically low, but after two weeks in the hospital I'm finally going HOME! :) #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGo #LetGod #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

I am a little discouraged today as my counts have dropped down into the severely low levels. The doctors are not helping me and neither are the daily neupogen shots. When I am cooped up in the hospital for so long I have to constantly remind myself that God has a bigger plan for me far beyond my understanding! Everything happens for a reason. I truly believe that if the doctors cannot heal me then God will. Please keep me in your prayers. I haven't felt the warmth of the sun on my face or the breeze in my hair in two weeks. I just want to go home. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #IHateWhenDoctorsDontListenToYouOrReviewYourChart #IfGodBringsYouToIt #ThenHeWillBringYouThroughIt #PaintingTheWorldRedAndWhite #RedAndWhite #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGo #LetGod #DyingToLive #IBelieve#Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

I wanted to give everyone an update as to what is going on. I came to MD Anderson a couple of days ago with a high fever, abdominal pain, nausea and a sore throat. My counts are very low right now as well. Well, my immune system likes to do big things (Go big or go home, right?). Yesterday, they did a CT Scan and it turns out that I have both pneumonia and neutropenic colitis again. The last time I became sick with this combination of infections I went into Septic shock and was fighting for my life in the ICU and had a month long stay at MD Anderson. As you all know, I have had pretty much every bacteria that you can get and due to recurring infections the bacteria is resistant to many antibiotics. I am currently in a lot of pain and feeling very fatigued and weak. Please pray for my medical team and that we find the perfect antibiotic combo to fight this. Please pray for my family as they have to watch me go through this. Lastly, please pray that I get through this quickly and easily with minimal complications. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #GoBigOrGoHome #MyImmuneSystemHatesMe #AplasticAnemiaProblems #PaintingTheWorldRedAndWhite #RedandWhite #Fighter #Survivor #ThisOnesAFighter #FightingLikeAGirl #GodsGotThis #LetGo #LetGod #Perseverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #TeamKristin

Today we meet with the transplant physician for the third and final time. Last time we saw this physician he said that he cannot do anything more to help me. We wanted to give him one more chance before we have to move to Maryland to get a second opinion and a bone marrow transplant from Dr. Young. I ask for prayers today that I am able to stay strong through this doctor's judgment. I ask that you guys pray that he listens to the words we are saying and accepts my abnormal levels that are in front of him. Please pray that he opens his heart and is welling to help me get better. Please pray that he helps me to get my life back and to feel like a normal 23 year old again. Additionally, Please cover my family in prayers as we try to piece together the next steps in my journey. Thank you and God bless you all! #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedandWhite #ThisOnesAFighter #FightingLikeAGirl #Fighter #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #TeamKristin I'm fighting a rare and fatal illness. What's your Superpower?

Friends,
I wanted to give everyone an update as to what is going on. Today I had to go to the ambulatory treatment center because my kidney function was not good and it was the beginning of kidney failure. The same meds that are supposed to keep me alive are destroying my kidneys. We are trying to remain positive and optimistic and we realize things can always be worse. Please lift my family and I up in your thoughts and prayers as we try to piece together the next steps to take. Thank you for all of your kind words of encouragements, your prayers and all of your sweet comments. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #Strength #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #LetGo #LetGod #BlessedBeyondMeasure #WhatsYourSuperpower? #RareDisease #TeamKristin
I'm fighting a rare and fatal disease. What's your superpower?

I got admitted to MD Anderson last night because I had a high fever and severe neutropenia and a critically high potassium level. My white blood cells were 0.9 this morning and my neutrophils are close to zero. I also am getting another blood transfusion today too; every single one that I need is just another awful reminder that this disease is kicking my butt! Please keep my family and I in your prayers. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedandWhite #Strength #Survivor #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Fighter #FightingLikeAGirl #ThisOnesAFighter #DyingToLive #TeamKristin

I don't know how I got so lucky to experience this twice, but I am so sick of selfish jerks parking in the handicap space in front of my appt when they are NOT handicapped. If only they knew how lucky they are to be able to walk and not be permanently disabled at just 23 years old with a disease that will likely kill me. If youve ever parked illegally in a handicapped space. I encourage you to Try thinking about people besides just yourself and to be grateful for your good health. #AplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #Survivor #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

So, today I was admitted to MD Anderson for being neutropenic and for having another infection in my stomach. Shortly after I arrived to my room, I turned on the TV in my room and music started playing on the TV. The song that started playing was Tears in Heaven by Eric Clapton. The last time I heard this song was at my brother's funeral. If that's not a sign from my brother telling, me that he's with me, then I'm not sure what is. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedandWhite #PaintingTheWorldRedAndWhite #Survivor #Fighter #ThisOnesAFighter #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Strength #DyingToLive #FightingLikeAGirl #TeamKristin #SignsFromHeaven #FamilyIsForever #ABrothersLoveNeverDies

This is for all of you brave warriors fighting your battles! Stay strong! Losing is NOT an option!

I'm trying to remain positive and I'm hoping for improved Kidney labs from last week!

I'm fighting a rare & fatal illness. What's your superpower?

#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #Fighter #Survivor #Strength #ThisOnesAFighter #FightingLikeAGirl #RedAndWhite #SuperPower #Preserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #TeamKristin

So, as a nursing student I was unaware that IV piggyback Antibiotics like Daptomycin could even be ordered at home as an IV push, but here is what my IV antibiotic looks like and it is about to get administered through one of my two lumens over three to five minutes. I am fighting a highly fatal, and very rare disease. What's your superpower? #WhatIsYourSuperPower? #PharmacologyIsCool #ScienceIsCool #AplasticAnemiaAwareness #NeutropeniaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #Fighter #Survivor #DyingToLive #RedandWhite #ThisOnesAFighter #FightingLikeAGirl #Strength #KickingAplasticAnemiasButt #OneDayAtATime #WhatDoesntKillYouMakesYouStronger #LetGoLetGod #TeamKristin

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