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MOST RECENT

Not exactly how I wanted to start off my day! So, my blood counts have improved and are still low, but they’re better than they were, my kidney labs, however, aren’t the same. I have to get fluids again because my Creatinine, Uric acid and phosphorus are all high. Due to them being high, I may now have to be on IV antibiotics even longer until they improve enough to start the bactrim. Please keep me in your prayers! Some days I feel like I cannot win with this broken body of mine; it’s always something! Thank you for keeping me in your prayers! God bless you all! #SevereAplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #FightForTheRedAndWhite #TeamKristin #KristinLovesLife #KristinStrong #Fighter #ThisOnesAFighter #FightingLikeAGirl #GodsGotThis #LetGoLetGod #ImFightingARareAndTerminalIllness #WhatsYourSuperPower #DyingToLive #PhilippiansFourThirteen #Strength #NEGU #NeverEVERGiveUp #TeamKristinNeverGivesUp #KristinsKrew #aCureForKris #KristinKicksSevereAplasticAnemia

Friends,

I wanted to give everyone an update on my health. The doctors have ruled out the flu and my fevers broke after 48 hours of being consistently elevated. I have all of the signs of sepsis and have MRSA growing in my blood cultures and an additional bacteria in my urine. MD Anderson will send me home on IV antibiotics for two weeks after my blood cultures stop growing bacteria. MRSA is a very dangerous and deadly bacteria that takes the lives of many people annually. Additionally, MRSA is highly resistant to multiple antibiotics. This is my third MRSA infection in 11 months and it is also the worst one yet. They had to pull my PICC line and will replace it tomorrow. There is a possibility that the bacteria will go into the heart valves, so they have to do further testing to make sure it’s not growing there. My white blood cells, neutrophils, hemoglobin and platelets are all critically low, so tomorrow I will most likely need platelets, blood and neulasta. My heart rate and temperature are both back in the normal range and we’re hoping to be discharged by the end of this week. I am finally starting to feel like myself again! As always, thank you for all of your love, support and prayers and thank you for following my journey! Please continue to keep me in your prayers! Pray specifically that the bacteria doesn’t colonize in my heart or anywhere else in my body and that the antibiotics do their job! Thank you and God bless you all!
#SevereAplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #FightForTheRedAndWhite #TeamKristin #KristinLovesLife #KristinStrong #Fighter #ThisOnesAFighter #FightingLikeAGirl #GodsGotThis #LetGoLetGod #ImFightingARareAndTerminalIllness #WhatsYourSuperPower #DyingToLive #PhilippiansFourThirteen #Strength #NEGU #NeverEVERGiveUp #TeamKristinNeverGivesUp #KristinsKrew #aCureForKris #KristinKicksSevereAplasticAnemia

Have never worried so much before..Please help to keep him in your prayers that he will be healed fully.. #myfirstborn #mybraveboy #asherquek #3years9mths #pancytopenia #pancytopeniaawareness

Dear Aplastic Anemia, Today I Won. Today I am so proud of this broken body of mine. Today I pushed myself really hard and walked over THIRTEEN miles outside. Just a few months ago I was barely able to walk and had to be carried. Just a few months ago I had to use a wheelchair wherever I went. Just a few months ago I was labeled as a fall risk and wasn’t even allowed to go to the restroom without assistance. Aplastic Anemia, I am a strong, determined and positive person and I will never stop fighting. Just a few months ago I would be admitted to the hospital monthly for various infections. I have been out of the hospital for SIX incredible months. I will beat this disease. I will not let it control my life like it used to do. Severe Aplastic Anemia has a terrible prognosis, just 20% of people survive two years after diagnosed, but I refuse to become a part of a statistic. I refuse to let this disease control my life. I WILL kick this disease to the curb. Aplastic Anemia, you messed with the wrong girl; I will annihilate you.
Sincerely,

The girl who WON’T Give up without a fight.

#SevereAplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RareDisease #RedAndWhite #FightForTheRedAndWhite #MeAndMyGirlAgainstTheWorld #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #DyingToLive #NEGU #NeverEverGiveUp #TeamKristinNeverGivesUp #KristinStrong #KristinLovesLife #LetGo #LetGod #Determined#TeamKristin #KristinsKrew #KristinKicksSevereAplasticAnemia
I’m fighting a rare and terminal illness what’s your superpower?

Hey guys,
So I found out my respiratory issues are from a group of viruses called parainfluenza Virus. The type I have can cause infections like croup (normally found in children), pneumonia, and bronchitis. It is most often found in young children and babies. Additionally, my gastroparesis is at full force right now, which is giving me intense nausea. Additionally, my kidney labs are still abnormal which has led to gout in both knees. On top of all that, I’m still Neutropenic, Anemic and thrombocytopenic. Please continue to keep me in your prayers and pray this is taken care of quickly. As you can all imagine, I don’t feel that great right now. On a positive note, last Thanksgiving (I know I’m a day late) was spent in the hospital, but this year I’m FREE! Thank you and God bless you all. #SevereAplasticAnemiaAwareness #PancytopeniaAwareness #BoneMarrowFailureAwareness #TeamKristin #KristinLovesLife #KristinStrong #Fighter #ThisOnesAFighter #FightingLikeAGirl #GodsGotThis #LetGoLetGod #ImFightingARareAndTerminalIllness #WhatsYourSuperPower #DyingToLive #PhilippiansFourThirteen #Strength #NEGU #NeverEVERGiveUp #TeamKristinNeverGivesUp

We found out some of the results of my bone marrow aspiration today. Unfortunately, they were not as good as we were hoping. They were lower than they were the last time, meaning the disease has progressed. Please keep my family and I in your prayers. I'm fighting a rare and fatal disease. What's your superpower? #AplasticAnemiaSucks #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #FightForTheRedAndWhite #RedAndWhite #PaintingTheWorldRedAndWhite #RareDisease #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButIAmNotGivingUpWithoutAFight #LetGo #LetGod #GodsGotThis #TeamKristin

Friends,

I'm getting my seventh bone marrow biopsy done tomorrow, but these do not come without pain. It will be useful in determining how much the disease has progressed and what else could possibly be going wrong in my bone marrow. For whatever reason, I am more nervous now than I have ever been with any of my previous biopsies. Please keep me my family and I in your prayers tonight. Please pray for wisdom for the doctor, A pain-free and anxiety-free procedure and that we will finally get some answers to further my treatment plan. Thank you and God bless you all.
I'm fighting A rare and fatal disease. What's your superpower?
#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #FightForTheRedAndWhite #RedAndWhite #PaintingTheWorldRedAndWhite #TeamKristinNeverGivesUp #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #NEGU #NeverEverGiveUp #TeamKristin

Even though I don't feel the best today and the day has been physically and emotionally draining, I remember that God has a bigger plan than I can even imagine and that everything happens for a reason. Today might not have been the best, but tomorrow is a new day. I'm fighting a rare and fatal disease. What's your super power? #TeamKristin #NeverGivesUp #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #FightForTheRedAndWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #DyingToLive #NEGU #LetGo #LetGod #NeverGiveUp

Friends,

I wanted to give everyone an update on what had been going on with my health. So, I went to another physician that believes I might have another genetic disease wrecking havoc along with the Aplastic Anemia that is causing additional issues. He also said that my Aplastic Anemia has worsened and they think it could have morphed into MDS which is a form of leukemia. They are going to do additional testing and another bone marrow biopsy to try to figure out what is going on! Please pray that it doesn't progress. Please pray that it's not cancer and that whatever is going on is mild. Please keep my family and I in your prayers during this difficult time. Thank you and God bless you all!
#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedAndWhite #PaintingTheWorldRedAndWhite #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #TeamKristin

Hey Friends,
One of the many joys of having Aplastic Anemia! Infusing Magnesium for the next five hours through my PICC line!
My last post was obviously misleading. I still have Aplastic Anemia and it has actually progressed further. MD Anderson defines a survivor by saying 'you became a survivor the day you were diagnosed.' Thank you for your sweet words and prayers!!
#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #PaintingTheWorldRedAndWhite #RedAndWhite #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #RareDisease #IAmRare #GodsGotThis #LetGo #LetGod #iBelieve #Psalm7326 #DyingToLive #TeamKristin

Hey Everyone,
I got discharged home recently and I'm settling in back home, but I do have a BIG prayer request for you all. This disease doesn't just take innocent lives, organs, or your health; it also destroys relationships. Please pray for my parents and my husband and I. Thank you and God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedAndWhite #PaintingTheWorldRedAndWhite #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #TeamKristin

I'm getting my sixth PICC line in two years placed tonight because the other one is infected. You would think I would be used to it by now, but I get anxious because it is a painful procedure. Please pray that it is a quick, easy and painless procedure and that the bacteria from the other PICC hasn't infiltrated into my blood. Please pray for negative blood cultures as well! One thing is certain Houston, you are looking beautiful tonight. Even after 27+ Hospitalizations, this view never gets old!! #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedAndWhite #PaintingTheWorldRedAndWhite #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #TeamKristin

Hey Everyone,
I'm currently back at M.D. Anderson. They are admitting me to get IV Antibiotics because I have high fevers, vomiting and abdominal pain. This is my third time this month having to be hospitalized. I feel absolutely awful. Please keep my family and I in your prayers. Thank you and God bless you all! #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #RedAndWhite #PaintingTheWorldRedAndWhite #DyingToLive #IBelieve #LetGo #LetGod #RareDisease #Survivor #Fighter #ThisOnesAFighter #FightingLikeAGirl #FightingForMyLife #FightingForACure #InTheFightOfMyLife #AndIWontGiveUp #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LeukemiasEvilCousin #TeamKristin

Friends,
I am still at MD Anderson due to getting paeudomembranous colitis caused by the C Diff bacteria. I am still experiencing quite a bit of pain and nausea. Due to my counts being low, I am getting another unit of blood. Please continue to keep me in your prayers and that the vancomycin starts to help my pain get better. Thank you all for all of the love and prayers. God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LetGo #LetGod #TeamKristin

Friends,
I am still at MD Anderson due to getting paeudomembranous colitis caused by the C Diff bacteria. I am still experiencing quite a bit of pain and nausea. Due to my counts being low, I am getting another unit of blood. Please continue to keep me in your prayers and that the vancomycin starts to help my pain get better. Thank you all for all of the love and prayers. God bless you all. #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOneIsAFighter #FightingLikeAGirl #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #LetGo #LetGod #TeamKristin

Friends,
I know I tend to sound like a broken record, but I need your help again. Today, I woke up feeling better than I have in a long time. Well, I guess my body decided I was having too much fun because I am getting admitted for IV Antibiotics for neutropenic colitis again. I ask prayers specifically for pain control. I have had so many infections in my colon and because of that, the pain is absolutely excruciating. To make matters worse, Victor and I were supposed to move to Houston on Thursday. Now my husband has to move everything all by himself while trying to juggle our businesses, my health and being my full time caretaker. As cheesy as this sounds, many people have asked me what they can do to help; well, here is your answer. If anyone is available at all (even just 30 minutes) either Wednesday or Thursday to help us pack and move, we would forever be indebted. Thank you and God bless you all!
#AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedAndWhite #RedAndWhite #Survivor #Fighter #ThisOneIsAFighter #FightingLikeAGirl #LetGo #LetGod #IBelieve #InMiracles #DyingToLive #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButIAmNotGivingUpWithoutAFight #TeamKristin

Unexpected hospital stay! Oh well it's all for the well being of my son! #itpwarrior #pancytopenia #pancytopeniaawareness

Hey Everyone! I have important news to tell you all! IM GETTING A DIVORCE.. from my IV pole that is! My counts are still critically low, but after two weeks in the hospital I'm finally going HOME! :) #AplasticAnemiaAwareness #BoneMarrowFailureAwareness #PancytopeniaAwareness #PaintingTheWorldRedandWhite #RedAndWhite #DyingToLive #Strength #Fighter #ThisOnesAFighter #FightingLikeAGirl #LetGo #LetGod #Perserverance #EitherMyBodyWillWin #OrIWillWin #ButImNotGivingUpWithoutAFight #TeamKristin

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