#ourspecialboy

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His Laugh melts my heart πŸ˜‚πŸ˜‚πŸ˜‚ #ourspecialboy #laughattack

Matteo's special day. Missing some VIP (Nino, Nina and boys). #ourspecialboy #daddysbestfriend #mommyslittlelove #brosfavorite #terriblestwos

"Akkor most jatszunk , vagy mi?! " #lovemyboy #littlemiracle #ourspecialboy ❀️

He got his cane!! Look out world! #puglife #ourspecialboy #pma #muffinhalos

#Tbt to Pemby 2015 and @ghost_sniper420 winning the dance off with this superhuman kick. #pembyfest #ourspecialboy #zookeeper

#HappyBirthday to Brody Boy #ourspecialboy Abby's best friend! #twoyearsold

This is our "special" boy πŸ˜†πŸ™ˆ And yes...he's always got that ok on his face. I was doing laundry, looked down and this πŸ‘€God bless him! At least this time he's not staring at the wall or something. πŸ˜‚ #sully #ourspecialboy #hehasastaringproblem #hesalittleslow #welovehimanyway πŸ˜†

BIRTHDAY WISHES @yarrigan_maaman ... Happy cake day πŸ˜‚πŸ˜‚ #ourspecialboy #birthdayboy #headgraffiti

Six months ago, he would have had no interest in this. This week he asked to help. #smallvictories #wesleydavid #saturdaymorning #ourspecialboy

MOST RECENT

If the last month has shown me anything, it's the amount of love, support and well wishes from not only those closest to us, but also from complete strangers. We have had messages and calls unexpectedly from people we didn't expect day to day to see how we are, and from the bottom of our hearts, we thank you! You have, even for the rest of that day, made everything feel better.
As people go through different stages in their lives, it's known all too well that you win some and you lose some.
I know that some would read my posts and have their own negative thoughts about them, and you know what, we don't need you.
Some people don't know how to directly reach out and ask for help, or like to admit they are struggling day to day. Trying to act as if all is normal and they are just going about their day like everyone else. We have had a tremendously life changing cloud thrown our way and nothing we do will ever change that. If you can't or don't want to be here to support us, or you have negative things to say, then remove us from your life. Because you don't deserve to be a part of ours. They say to keep going about your days as normal, as though nothing has changed. You try to do the right thing by others, and you get shat on.
People reach out if many different ways and to a point, allowing others to follow our lives through this journey and to vent through some of these posts, is my way of dealing with things.
Remember you don't always know what someone is going through or what else may be going on that you know nothing about. But when they do know, they can come at you with everything they have and knock you down again.
Society are so quick to judge and yes things could be worse...but this is OUR worse and until you are handed YOUR worst, people have no idea how you feel. #microcephaly #kickingmicrocephalysbutt #developemental #developmentdelay #smallisbeautiful #pleasefollowus #raisingawareness #babynate #thisisourjourney #wewillnotgiveup #geneticdisorder #genetics #mumlife #perthkids #21monthsold #wegotthis #special #happyboy #ourblessing #specialneeds #ourspecialboy #speechtherapy #occupationaltherapy #perthmums #mumlife #nofilter

6 weeks old today and now weighs 4lb 4oz β˜ΊπŸ’™ Come off all his monitoring now so totally doing it alone. It's got to get the hang of the Breast feeding malarkey then he can come home β˜ΊπŸ’™πŸΌπŸ’™πŸ’™ #Georgeharry #gorgeousgeorge #littlefighter #ourspecialboy #smashingit #finalhurdal

Thank you God for giving me one of your angels to love and protectπŸ‘ΌπŸ½πŸ™πŸΌ Our love for him grows everyday. I'm blessed to have such an amazing husband. The way he talks about our son as if he's loved him for years and how he smiles every time I mention him. And how emotional I get when he tells me that he's been waiting to live this moment with someone special like me. I'm blessed and I owe it all to you GOD❀️#ourspecialboy #youalreadystoleourhearts #weloveyou #ourlittleangel

Being out at the park in the sun yesterday was like there wasn't a worry in the world. There was no sadness, fear, worry or feelings of being scared.
Some days we are strong, some days we are weak. Some days are ok, others are not. We as humans are given this face where we can hide behind a smile and say 'I'm ok'. But this is our story and I am being as open and honest about it as I can.
I am a fighter, I know I am and this has made me stronger. But today I am not ok. I am not ok with reading every new letter after letter, report after report and finding that Nates condition is definitely going to be a lifetime of worry. I am not ok with having to explain to someone why he is so small when we receive the comment 'oh how old is he? He's so small.' I am not ok with Nate not being able to do what other kids are doing at his age, and I am not ok with having to be reminded every single week when we attend the therapy sessions the fight we have to fight.
No matter what though, I am ok with being his mum, his voice and his protector. I am ok that god chose me to be his mum and take this fight on. I am so blessed he chose us to be his parents because I know we are going to kick the sh!t out of this diagnosis and give Nate the very best life we can full of adventure and fun.

Please love the life you have been given πŸ˜‡ #microcephaly #kickingmicrocephalysbutt #developemental #developmentdelay #smallisbeautiful #pleasefollowus #raisingawareness #babynate #thisisourjourney #wewillnotgiveup #geneticdisorder #genetics #mumlife #perthkids #21monthsold #wegotthis #special #happyboy #ourblessing #specialneeds #ourspecialboy #speechtherapy #occupationaltherapy #ruok #perthmums #mumlife #nofilter

George first cuddles with Grandad β˜ΊπŸ’™πŸ’™ #Georgeharry #gorgeousgeorge #littlefighter #littlemiracle #ourspecialboy #Grandaddave

George first cuddles with Nana β˜ΊπŸ’—πŸ’™ #Georgeharry #ourspecialboy #littlefighter #littlemiracle #Nanaalice

Our first session went very well!
Our speech therapist Diana is very surprised at how intuitive Nate is and is excited for what's to come. Some good news for a Friday! πŸ‘πŸ» Next week we have another session and also our first Occupational Therapy session. #microcephaly #kickingmicrocephalysbutt #developemental #developmentdelay #smallisbeautiful #pleasefollowus #raisingawareness #babynate #thisisourjourney #wewillnotgiveup #geneticdisorder #genetics #mumlife #perthkids #21monthsold #wegotthis #special #happyboy #ourblessing #specialneeds #ourspecialboy #speechtherapy #occupationaltherapy

I still can't get my head around the dates!! πŸŽ—πŸŽ— **REPOST**
Planning Nates second birthday and it is going to be a truly special one this year.... Not only is September 30th Nates birthday, it is also Microcephaly Awareness day!
Microcephaly Awareness Day is celebrated around the world by family and friends of kids & adults with microcephaly. Everyone wears yellow, as well as decorating their home/school with yellow. πŸŽ—πŸŽ— We'd love to ask people to wear yellow and join us for an walk along West Coast Highway on this date to help us raise awareness of this condition. I will be setting up a Facebook events page soon and will post the link.
When I first discovered this I was blown away. Of all 365 days of the year, how is this on the same date as Nates birthday?! #microcephaly #kickingmicrocephalysbutt #developemental #developmentdelay #smallisbeautiful #pleasefollowus #raisingawareness #babynate #thisisourjourney #wewillnotgiveup #geneticdisorder #genetics #mumlife #perthkids #21monthsold #wegotthis #special #happyboy #ourblessing #specialneeds #ourspecialboy

Planning Nates second birthday and it is going to be a truly special one this year.... Not only is September 30th Nates birthday, it is also Microcephaly Awareness day!
Microcephaly Awareness Day is celebrated around the world by family and friends of kids & adults with microcephaly. Everyone wears yellow, as well as decorating their home/school with yellow. πŸŽ—πŸŽ— We'd love to ask people to wear yellow and join us for an walk along West Coast Highway on this date to help us raise awareness of this condition. I will be setting up a Facebook events page soon and will post the link.
When I first discovered this I was blown away. Of all 365 days of the year, how is this on the same date as Nates birthday?! #microcephaly #kickingmicrocephalysbutt #developemental #developmentdelay #smallisbeautiful #pleasefollowus #raisingawareness #babynate #thisisourjourney #wewillnotgiveup #geneticdisorder #genetics #mumlife #perthkids #21monthsold #wegotthis #special #happyboy #ourblessing #specialneeds #ourspecialboy

Today I am 5 weeks old & weigh 3lb 12oz β˜ΊπŸ’™πŸΌπŸ’ͺ🏼 #GeorgeHarry #gorgeousgeorge #littlefighter #ourspecialboy

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