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Check out my newest short film, My Dancing Eyes. 2 versions available, one with or without Audio Descriptions. Link in my bio! ๐Ÿ‘๐Ÿ‘๐Ÿ’ƒ๐Ÿป๐ŸŽฅ #albinism #nystagmus #ocularalbinism

Well this is something new... ๐Ÿ˜‰๐Ÿ˜Š Hazel Basil, cute as ever! #daddysgirl #outdaughtered #nystagmus

I s๐Ÿ‘€ you! Can you see my pendular nystagmus? (Shaky eyes) It gives me extra character!!

Our little Hazel Basil (yep! new nickname for her ๐Ÿ’•) had a follow up with her eye doctor. She was full of smiles and high fives, of course lol. Because she has Nystagmus, we see the eye doctor every few months.... her vision is checking out to be perfect for her age ๐Ÿ‘€๐Ÿ‘๐Ÿป๐Ÿ‘Œ๐Ÿป #eyecheckup #nystagmus #itsabuzzworld #OutDaughtered

We were both crying by the end of this ridiculously long (almost 3 hours ๐Ÿ˜ก) eye doctor appointment yesterday. At least I packed snacks for him though lol! Seriously though why should any appointment be that long but especially a pediatric one. I don't think any 2 year old understands waiting in a waiting room for that long. Ugh! #pregnantandemotional #nystagmus

A real-life American Ninja Warrior ๐Ÿค—๐ŸŽ‰ @nico.ninja is a true inspiration and role model. What an honour to meet him!
#americanninjawarrior #niconinja #futureninjawarrior #alwaysmovingforward #nystagmus


This is prob what his vision is like at its best, which is at the top of his eyes. Good news is he is now ready for surgery to bring his null point to the middle of his eyes! So excited! We've been waiting for this and it's finally come! Doctor said she is so pleased with how he's progressed! #happydance #tatumkiles #mommasboy #nystagmus #nystagmusawareness

Kallista has nystagmus. I dont really talk to people about it or mention it unless someone asks about her eyes. She was diagnosed at 3 months, her eyes started moving at 2 months old. I was told she has congenital nystagmus meaning she was born with it, either it was passed down or it's just how she was made. She hit all her Milestones early and seems to be very smart. Early on when she was first diagnosed I couldn't help blame myself for her having this. Something i did while i pregnant with her, to this day i still think like this some days. Now i worry about if she's going to be bullied, if others will fully accept her... even to the simple things will she be able to play sports, will schools have everything that she will need to help her learn, will she be able to drive, will she be able to just live her life like everyone else. All I can to is believe in her and hope for the best. She is beautiful, she is unique, she has amazing dancing eyes, and she is a strong brave little girl. #nystagmus #astigmatism #2yearold #myheart

I s๐Ÿ‘€ you! Can you see my pendular nystagmus? (Shaky eyes) It gives me extra character!!

"I am a strong, independent visually impaired woman." ๐ŸŽ‰๐ŸŒŸ Former RSBC apprentice Lauren blogs on living with #Nystagmus. She also shares how meeting other vision impaired people when working at RSBC showed her that she wasn't alone and gave her the confidence to pursue her dreams. "When I saw what people like me were achieving, I knew I was capable of it too." Click the link in our bio to read Lauren's story

I love grad school! I hate that my school for the blind requires progress reports, but it is fun to read professors' comments! #CatherineHughesMSW #ASU #catherinesadventuresatblindschool #MSW #legallyblind #opticnerveatrophy #opticnervehypoplasia #nystagmus #strabismus #amblyopia

the way he smiles now that he can see. ๐Ÿ™Œ๐Ÿ˜๐Ÿ˜Œ

Hi folks!

Well the day i have looked forward to for many years has arrived.

Finally coming out and speaking publicly and proudly about the disability i have had since birth, to help and encourage others by showing what is possible to achieve with the right attitude, determination, and the support, encouragement and love of the people closest to us.

It will become clear by watching the short film below that i have made why i chose not to speak openly about my impairment, until what i felt was the right time.

Please feel free to share the YouTube link (https://youtu.be/tyCfVWI22jQ) and ask me any questions you would like.

I plan on devoting the rest of my life to raising awareness of the condition that i and many others live with, and would love the film to be used to help show anyone with any kind of challenge or 'disability" that anything is possible, and that 'there is no such word as 'can't.' Shana tova, Happy New Year, and Happy Birthday Mum. ๐ŸŽฅ https://youtu.be/tyCfVWI22jQ

Hi, Friends!!! I met so many Cali Guys n Gals at Convention, and I would LOVE to see you again! Marisah Turner and I are doing a joint pop up party at her house, and I thought I'd spread the word in case you're looking for something to do next Saturday! #lularoevision17 #lulaoreellieh @lularoe @amelialyon @deannelularoe #amblyopia #nystagmus #lularoe #fallfashion #modelsofinstagram #momboss #bakersfield #mompreneur #bakersfieldmoms #dresses #leggings #butterysoft #maxi

Good footage if Monty wasn't trying to get her attention in the background "Lucy...who would win?" #whowouldwin #syntheticteenager #computereyes #nystagmus #ocularalbinism #albino #studentfilms #familyproject #MakeArt #art #cinema #storytelling

Tomorrow is the start of balance awareness week, so I thought I would share this image so that 'norms' may see the way the world often looks to me and those who suffer from vestibular disorders. Take note if you see me acting strange or you think I'm being ignorant, I'm just dealing with this! #balanceawarenessweek #vestibulardisorders #defeatdizziness #findingbalance #vertigo #nystagmus #osciliopsia #dizzyme #flamingo

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