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Oh dear! I really ought to do something but I am already in my pajamas🌜
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β€’#silkpyjamas #hairupforthenight #vintagestyle #vintagegirl #sleepthight #saterdaynight #eyebrowsonfleek #goodnightquote #pajamassatin #readyforbed #nomorespoons #spoonielife

A big purple mumu, a greasy mullet, cystic acne, bloated everything and the ever present full body ache of doom.
This is me this week.
Somehow, I managed to wake up happy this morning. Exhausted and frustrated at not being able to do my job or hang out with the people I want to hang out with without being scared of how my body will react.
I'm forever feeling like a flake and a bad human because I do let people down...all the time. I'm extremely lucky to be surrounded by some of the best.
Trying to view every day as a type of adventure rather than daunting festival of anxiety and chaos because I don't have control.
Fuck control.
But also, I would like some control. Thanks.

I'm going to be okay.
#fibromyalgia #pcos #anxiety #depression #spoonie #dailystruggle #chronicillness #chronicpain #frustrated #exhausted #wherethefuckaremyspoons #nomorespoons #mullet #greasy #mumu #giantpurplesackdress #grape #grimace #acne #cysticacne #hotstuff #hotgirlsofinstagram #model #shitbitchyouisfine

My live feed from Facebook! Great news from the neurosurgeon!

https://m.facebook.com/story.php?story_fbid=188895918550318&id=155512815221962

Clickable link in bio #EDS #MCAS #chronicpainwarrior #chronic #eaglessyndrome #fibromyalgia #IBD #GHSD #hypoglycemia #voiceboxtrimmer #DJD #degenerativejointdisease #arthritis #BrokenPersonCin #spoonie #nomorespoons #lovemyfurbabies #furbabies #bobblehead #greatnews #yaygod

Thank you @ladypurl for the excellent shirt!
#lupus #spoons #nomorespoons #stillstrong

3 years ago today this man made me the happiest girl ever and asked me to marry him! πŸ˜πŸ’œ Now today marks 100 days until my due date (😲) and I can't wait for our next chapter in our lives with our baby girl and seeing him become a daddy to her πŸ’œπŸ’œπŸ’œ I'm so extremely blessed and couldn't ask for anyone better to share this with 😍😘
#25weekspregnant #napacabbage #pregnancy #pregnant #Baby #mommy #love #girlmom #invisibleillness #fighter #chronicillnessfighter #autoimmunedisease #outofspoons #butyoudontlooksick #nomorespoons #beyou #beyourself #mctd #gastroparesis #spoonie #spoonielife

Have been cleaning, vaccuming, tidying doing laundry all around the house all morning and now I'm beat πŸ˜ͺπŸ’€ takes all my energy.. So I really don't Hope the boys come Home and make it all dirty again 😠😠 #tidying #cleaning #smellsnicenow #nomorespoons -------------------------------------------
#nouwblogg #nouw.com @nouw_com #nouwblogger #bloglife #blogger #blog #brondehairdontcare #danishgirl #denmark #slagelse #boyfriend #chihuahuamother #cancerfree #cancersurvivor #cervicalcancer #everydaylife #chronicallyill #chronicpain #chronicpainwarrior #spoonie #spoontheory #sideeffects

I got a new travel pillow today, just in time to use it on our 7 hour road trip to see my neurosurgeon! Thank you @mahalas_new_normal for recommending out! It's truly amazing. It's called the Cabeau Evolution Pillow. I got mine at #target but the also have them on #amazon
#EDS #MCAS #chronicpainwarrior #chronic #eaglessyndrome #fibromyalgia #IBD #GHSD #hypoglycemia #voiceboxtrimmer #DJD #degenerativejointdisease #arthritis #BrokenPersonCin #spoonie #nomorespoons #lovemyfurbabies #furbabies #bobblehead

My crohn's is debilitating this week. Praying to catch a break. #crohnsdisease #NoMoreSpoons #Defeated

Such a beautiful day outside. Still feeling horrible, so much so that a tiny outing took all that I had today. Trying to hold on to the bigger perspective and know that healing is on the way. Come on body... we can do this. #livingwithlupus #autoimmunedisease #invisibleillness #spoonie #nomorespoons #sotired

Self care after a day of adventure #nomorespoons #worthit

25 weeks with Miss Gabriella!! πŸ˜πŸ’œ It's amazing that even with the few aches and pains I may have I still feel 1000 times better than I did before pregnancy! The hormones with pregnancy has put my illnesses in remission, we're just praying that they don't come back way worse after giving birth!
#25weekspregnant #napacabbage #invisibleillness #fighter #chronicillnessfighter #autoimmunedisease #outofspoons #butyoudontlooksick #nomorespoons #beyou #beyourself #mctd #gastroparesis #spoonie #spoonielife #pregnancy #pregnant #Baby #mommy #love #girlmom

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