At 24 weeks gestation, our Little Chick was diagnosed with double outlet right ventricle, d-malposition of the great arteries, and a ventricular septal defect. A few weeks later it was discovered she had subpulmonic stenosis, and an atrial septal defect was found when she was born. After months of worry, 2 cardiac caths, several hospitalizations, lactic acidosis, adenovirus, multiple doctors appointments, countless tears, and enough prayers to fill the Heavens, #marvelousmarcie has a mended heart. For the first time in her short little life, her heart is functioning essentially normal. The joy, relief, and excitement we feel tonight is what we needed after so many months of unknowns.
Dr. Bichell worked some wondrous magic, and he was able to repair her heart with the Nikaidoh procedure. Marcie should not need another heart surgery for a long time, hopefully years. Her pulmonic valve will need to be replaced when she is bigger, but medical technology these days is so wonderful that this can be done with cardiac cath many times. The fact that he was able to do that repair is a miracle. We had been told that her anatomy was too complicated, but Dr. Bichell felt confident he could do it. And he did.
Tonight the PICU team is working hard to manage Marcie's blood pressure and the electrical conductions in her heart. As you can see, she is on a ventilator, 10 different drips, multiple monitors, and more lines than Disney World. Dave Henn and I are convinced we created a super hero.
Something special I definitely want to point out too is for the first time, her little toes are a perfect shade of pink! I am in complete awe and disbelief of the huge blessings we have received in just one day. We are so proud of Marcie, and we are humbled that so many people prayed throughout the day for her and us. They obviously worked! The recovery is going to be tough, but I'm on cloud 9 tonight. Thank you everyone for everything! #heartbaby #chd #DORV #tga #nikaidoh