Evening Fairies 🧚🏻♀️ We made it home last night! 🏡 So nice to be under the same roof again ❤️
Sorry for the long post!
It was a difficult stay, we’d already celebrated our last sleep over (we won’t this time 🙈) it threw up a lot of emotions for me, I found it tough, luckily their were some amazing people on the ward who all made it easier!
A lovely young girl named Jessie spent most of her time playing with Eden, she had the best time, our visit and trip the the park with Siobhan and Sarah, we always love every minute with them, other mums who listen and understand your pain, and finally our amazing, one of a kind, caring nurses. They really are the life of our NHS, they work tirelessly and from the heart. You can see they love our children and want only the best for them. We trust them. Our children trust them.
Edens scan took a little over 3hrs, the wait is horrific. It feels like I’m waiting all day, the clocks stop. I physically can’t stop myself staring at them. Time honestly stops still and noises change. My thoughts go ballistic and I fidget the entire time... shame it’s not as quick as a cheeky selfie!
Our nurses gets a call, Edens up. Everything is fine. Results soon!
Eden still has an infection in her line but thankfully she is well. 🎉 She is having something called a Teicoplanin Lock. This means a strong antibiotic is locked in her line 24hrs a day. Cultures to be taken Friday and Sunday and we visit Hillingdon daily.
Next week she is having a BMA, ECHO and GFR. They have pushed things through while Eden is still well and remove the line when needed or if the cultures continue to come back positive.
The risk of the infection spreading is Sepsis, we are keeping an eye on her but all is well! 🤞🏻🤞🏻🤞🏻
Back to nursery tomorrow which she has really missed!
Thank you for always being behind us, for thinking of us and your continued support and love. We are so grateful ❤️❤️❤️