#neuroblastoma

MOST RECENT

When your friends come to your house and leave you sweet messages. #neuroblastoma #healing #prayforgeorgiamae #messageboard #friendships

Ava’s had a wonderful couple of days at home! She’s been so well surprisingly considering the 7 days of chemo last week! We try to fill those short periods she has with activities and events for her to remember but these couple of days we kept things slow; and I think it made a difference! We wandered to the local park, beach, and whilst it was super early and hardly any one around we even managed breakfast in a local cafe (unheard of due to risk of illness when she’s neutropenic) she started learning to ride her bike, did arts and crafts, made cookies and we bought Ava some little neon fish for her fish tank! She’s had a wonderful time, not too strenuous but filled with fun! ♥️ tomorrow we are back in hospital for a review with her oncologist, dressing changes (argh! She HATES these), bloods which will likely mean a blood transfusion, platelets and she requires her monthly prophylactic antibiotic infusion. Hopefully she may stay well enough throughout the weekend with limited chemo side effects so we can stay at home that little bit longer! 🙏 so grateful for these little in between good moments! #avasneuroblastomajourney #childhoodcancerawareness #childhoodcancer #neuroblastoma #toddler #family #love #chemotherapy #home

Voting has opened for @GamesAid funding! We've received over £150k in donations over the last 2 years which has helped us support 60 families of children with neuroblastoma emotionally, practically & clinically. Please help vote for us in 2018!
#gamedev #instadev #games #gamer #gaming #instagamer #instagaming #gamestagram #gamesaid2018 #gamesaid #charity #voting #vote #cancer #neuroblastoma #childhoodcancer

While my daughter Abbie was assembling this jigsaw puzzle ~ I was busily praying and knitting... Laina’s daughter Bella is battling cancer. I asked Laina @lainasland if I could make a hat for Bella, and Bella requested “a rainbow hat with a purple Pom Pom” 😊 So I reached into my yarn basket and picked green for Bella’s rejuvenation, pink to beat cancer, blue for the heavens of our mighty God, yellow for a peace upon Bella’s lovely mother, and purple for the Magestic God of Hope, and topped it off with Bella’s Purple Pom Pom request 😊. 🙏🙏🙏🙏🙏🙏🙏🙏🙏 Your little hat is on it’s way to you, beautiful Bella! 🌈 Keep smiling and fighting! 😊. Sharing today for #basketsandblessings that I host along with @farmhousetherapy and @sharonwarren7798 and asking that we remember gratitude in all circumstances. Please join #bellasbattalion and pray for sweet little Bella and her mom Laina. #neuroblastoma #prayerwarrior #kidswithcancer #godisbiggerthancancer #loomknitting #yarnwarrior #knittingandpraying

Need you to help Diego and his mother.
Follow the link. Share, comment, give if you can. Every little thing can be helpful.

https://www.gofundme.com/solidarite-pour-aurelia-et-diego #children #cancer #donation #thankful #don #neuroblastoma #superhero #auquotidien #littlebrother #needhelp

CAN YOU BELIEVE SHES ONLY 8 YEARS OLD?! There are no doubts in our minds that @roberta_b22 is such a young talented rising star! All of the artists that will be joining the stage with @thiagomusiconline at 1world1hope are so talented and unique in their own way! These are the youth of our future! Here is Roberta singing a little piece of @adele #Someonelikeyou we can’t wait for all of you to see what Roberta has planned to perform for us at the concert! Thank you again Roberta!! .
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#1WORLD1HOPE
#1WORLD1HOPE4Dominic
#ChildhoodCancerAwareness
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#Toronto #TorontoEvents #TorontoConcerts #the6ix #music #onehope #cancerawareness #905 #416 #brampton #life #factsarefacts #GTAconcerts #neuroblastoma #THIAGOLIVE #childhoodcancer #the6ix #fundraiser #lifeheros #whatavoice #RobertaBattaglia #torontotalent #8yearsold

1WORLD1HOPE welcomes Canadian hip hop artist @exxlmusic to the stage! EXXL will be performing along side @ThiagoMusicOnline performing all of their hits #TILLTHEDAYIDIE #LOCO #BIDIBIDIBOMBOM and will OFFICIALLY be releasing a new single the night of the concert!! Exxl was Born and raised in Brampton, Ontario Canada. Was surrounded by multi cultural influences of music that he carries with him in his music.
Within the 10 years of being involved in the music world of events, showcases, club nights, opening for main act artists such as Juicy J. The opportunity available to be on the same stage as some of the biggest artists in the music industry was an eye opener and on SUNDAY OCTOBER 21st he will be with us at the 1world1hope concert performing LIVE with THIAGO!
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#1WORLD1HOPE
#1WORLD1HOPE4Dominic
#ChildhoodCancerAwareness
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#Toronto #TorontoEvents #TorontoConcerts #the6ix #music #onehope #cancerawareness #905 #416 #brampton #life #factsarefacts #GTAconcerts #neuroblastoma #THIAGOLIVE #childhoodcancer #the6ix #fundraiser #lifeheros

15 hour of fitness crazy....done!!! before I summarise the day... just want to say: let’s not forget what this was about... Raising funds for Rosie... the real fighter...the 6 year old that faces each challenge with the biggest smile on her face, supported by the strongest and most amazing mum and dad.
So yesterday... 7am - 10pm.. not going to lie... it was tougher than I thought but it’s amazing what your body can do when your mind doesn’t quit! A massive thank you to every single PT at David Lloyd Renfrew who gave up some of their own time to lead the sessions with enthusiasm and passion.
Rus circuits nearly broke me after the first hour, and by the second hour I was questioning my sanity....followed by Roys most inventive but amazing strongman set up, and then later on a “eat jelly beans cos you will need them” HIIT session., Lloyds leg smashing circuit, Daniels bear crawling Woodway session, then on to Gavins “I’ll go easy on you and you can have a rest” triathlon of cycling, running and rowing 🤔 there was Jays packed boxing, running, squatting abs session and I found myself on a date with a log and the marine aka Rudi (Regan).bear crawling whilst pushing that log up a grassy hill .. will take some time to recover from... Sean was determined to find triceps and biceps and smash them. Whilst Daniel took his wear it pink, choon banging penalty free spin session (with a wee pop in visit from Rosie) Nicole took the group to the tennis courts. Debbies CrossFit into Broga was daunting. The effort put in by these guys was outstanding.
Huge thanks to each and every one of you who turned up to the sessions, took part or donated or provided cake, sweets, etc..they kept me going.
Im not sure yet how much money we raised, as it’s been via sessions, donations, text and weblink but will update once I know. Thank you all..xx @lloydstevo @debbiemcgovernfitness @jaypaton24 @sarethums @regan_j_hughes @bloodyrews @roystewartpt @danieljackson19118 @davidlloyd_renfrew @jacquimcgoldrick #neuroblastoma #fundraiser

The hero at home. The hardest working spouse is the one at work, worrying, paying the bills, keeping it together, then going home and keeping it together for 2. He is the foundation which allows me to be strong.
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Follow me at @oncology.mom.glamping
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#cancer #cancersucks #oncology #oncologymom #childrencancer #pediatriccancer #hospitallife #hospital #hospitalglamping #fightcancer #fightcancerwithstyle #cancerfight #cancerfighter #chla #nursesrock #oncologynurse #cancerdoctor #neuroblastoma #neuroblastomaawareness #neuroblastomawarrior @kpthrive @childrensla

If you are wondering why we keep asking you to register for the 3rd Annual Just Imagine® Childhood Cancer Walk just take a look at the pictures.
We know two local families with a child in a cancer battle that need help financially. We have seen their need and will give 50% proceeds from the walk to help them in their fight against cancer. Also, we will give 50% to childhood cancer research at Monroe Carell Jr. Children’s Hospital at Vanderbilt in Nashville, TN.
You can click on:
www.bookforhope.org/event/3rd-annual-just-imagine-childhood-cancer-walk/
and register by August 21, 2018, to make sure you get a t-shirt packet. Also, you can click on the link in the profile section to register, too! The walk will be at Noble Park on 9/8/2018 in Paducah, KY.
#ChildhoodCancerWalk
#GoGold
#VUE
#PartakeInPaducah

Today makes week 3 of me being in the hospital. But these guys came and cheered me up
#breestrong #explorepage #fuckcancer #neuroblastoma #childhoodcancer

Round one of chemo is done. Please continue to pray that her tumors will shrink so that she can get some much needed relief. #neuroblastoma #prayforgeorgiamae #cancersucks #healing

[EPISODE 2] Grant chats with his sister, Sophia, to learn what she likes most about the 11th Annual 5k/10k For Kids Cancer event coming up next month. Link in bio. Stay tuned for new episodes… Grant will be talking with cancer warriors throughout our community. Bouncy houses, cotton candy and popcorn, who doesn't love all that? Get registered 👉🏼5kforkidscancer.com #5kforkidscancer

Honored Kid Hunter was diagnosed with osteosarcoma in May 2010 and achieved full remission a year later. But after a routine scan, his family discovered that his cancer had returned – in 2014, Hunter passed away.

His dad says, “Throughout Hunter’s journey, he touched the lives of everyone that knew him through his glowing smile and his positive attitude.” Hunter enjoyed camping, basketball, fishing, and hanging out with his friends at school. Help conquer kids’ cancer with a donation in Hunter’s memory. Click the link in our bio to donate.
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#childhoodcancer #stbaldricks #kidswithcancer #neuroblastoma #kidstory #takechildhoodback #donate #fundresearch #research #chemotherapy #kidsaregold #pediatriccancer

Hahaha farts 🙄 #brothers #bedtimestories #fartjokes #theresamonsterundermybedwhofarts #cancertreatment #neuroblastoma #rydersjourney
PS when Ryder noticed my taking a video, Caden said “it’s ok Ryder because when I’m at auntie Naomi’s and you’re in hospital she likes to remember us having fun” 😪

Even though he hasn’t been feeling well Oscar still managed to enjoy a bit of painting and jigsaw puzzles.
Mummy also managed to get a bit of time out with the twins which was lovely as we hadn’t seen them for a couple of days. Although it’s never quite the same when Oscar can’t be there 🐻

#teamoscarbear #neuroblastoma #chemo

At the end of chemo Oscar hit neutropenic which is expected following chemo. His temperature spiked and we have been inpatient since.
Despite Oscar’s temperature improving he has been suffering from a lot of sickness. This has resulted in him losing quite a lot of weight which is very upsetting as he has become very gaunt and skeletal.

We have reverted to his NJ tube feeds again. We are trying not to think about this as a step back but a way to support him through chemo. Oscar has had so much chemo the last couple of years, we are so used to this that we almost forget he is being pumped with poison and it’s really not possible to go through chemo without side effects. 😢

#teamoscarbear #neuroblastoma #chemo #chemosucks #neutropenic #brave #childrenscancerawareness

Help Us #HarvestHope For Tomorrow's Children l August eNews https://bit.ly/2P9BGe1

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