Friday Zach and I made the trip across state to the Michigan Institute of Neurological Disorders (MIND) wherein I had a series of procedures done.
The hope was that combining a series of treatments would provide complete pain relief (or at least substantial pain relief) for up to 4 weeks. My overall pain scale has been reduced slightly the last few weeks so both neurologists (Grand Rapids and SE MI) agreed that this would be the best timing for a successful treatment as I was a bit lower than my “normal” threshold.
All that to say, I had 3 procedures done:
•Occipital Nerve Blocks: injections to reduce swelling/pain in the back of my head.
•Trigger Point Injections: injections to reduce swelling/pain in the back of my neck and shoulders.
•SphenoCath: essentially a catheter is inserted thru your nasal passage to deliver Lidocaine to numb nerve clusters. If you’ve ever had to do a Neti Pot (I hate those 🤢) it’s worse. While it’s not painful this has to drain down your throat, and you have to lay on your back afterwards for 15 minutes. Hence, the super flattering sucker picture 🙈
At this time, I believe it’s quite safe to say that unfortunately this concoction of treatments did not work. I felt a bit “off” when we left the office, which isn’t abnormal after lots of fun things going into your head, but I wasn’t feeling well that evening and went to bed early. By the next morning I was in excruciating pain. I’ve taken all the special emergency treatment cocktail meds they’ve given me for replacement of emergency room trips... I’m talking the GOOD stuff and I’ve found no relief whatsoever. This morning (day 4) I woke up drenched in sweat and feeling feverish, which is typically a sign that my migraine episode is trying to break, but I’m still pretty miserable. Alas, my neurologists put me on a heavy duty steroid burst starting today for the next week to try and get the swelling and pain back under control.
I’m not sure what went “wrong” or if my body just didn’t like what we did or what, but prayers for the steroids to kick in and bring relief would be deeply appreciated! It’s disappointing to see another avenue of hope in healing... (continued in comments)