#meningioma

MOST RECENT

Today is Christmas Eve for my family! Because of the difference in plane ticket prices now vs Christmas my family has a weird early Christmas. Last night, I admit I had a bit of a meltdown. I’ve been sick every Christmas as long as I can remember...and not just chronic illness sick. Chronic illness sick, plus a whole slew of flus, colds, and stomach flus. This year still being so weak and needy post surgery, I got really nervous. I melted down worrying that I was ruining another Christmas, keeping my mom from enjoying the holiday fully (since she can’t leave me to go partake in all the outdoor adventures everyone else goes on), and finally because I always feel like I’m being left behind. Since I was born, I’ve always tried to keep up with everyone and hated being left behind and now my life is nothing but slowly falling behind everyone else. Needless to say, it was a ridiculous meltdown of massive proportions. Luckily, my trusty Mama Bear and Tom kept my head up and reminded me of all the things that will still make this Christmas successful. 1) My family knows how sick I am and they love me and don’t care if I can’t bake or snowboard or even sit up and talk with them. 2) There are no hard fast rules of what has to and doesn’t have to happen at Christmas. Just because something has always been one way doesn’t mean it can’t be another. 3) New traditions can be fun and exciting so maybe it’s time to create some 4) People love me and just want to see me happy and healthy! 5) Christmas is about being kind and loving... this means to yourself as well as others. #chronicillness #chronicpain #pwme #myalgicencephalomyelitisawareness #chronicfatiguesyndrome #ehlersdanlossyndrome #zebrastrong #zebrawarrior #gastroparesis #tubie #gjtube #mcas #mastcellactivationdisorder #dysautonomia #degenerativediscdisease #posturalorthostatictachycardiasyndrome #potsie #potsiegirl #potsiestrong #potsielife #polycycsticovariansyndrome #vocalcorddysfunction #meningioma #seizures #spoonie #spoonielife #spooniewarrior #spooniestrong

For those of you who have been following my brain tumor journey, you know that I have to live and monitor my residual brain tumor that is on a dangerous spot on my brainstem. My next MRI is tomorrow at the hospital where had surgery two hours away. Having these frequent MRIs and meetings with my surgeons are very stressful because I don’t know when it’s going to grow more. The tumor I have will in fact grow again, it’s just a matter of when and not knowing how much more of my quality of life it will take. Radiation is too risky because of the vital nerves my tumor is untwined with. I’ve had two failed eye surgeries since my brain surgery in March to try to repair a damaged eye nerve resulting from the surgery. It’s been the hardest nine months of my life and my battle continues. This post is not about pity but prayers and support because I truly need it.

O meningioma cerebral é um tumor benigno que se origina a partir das membranas que recobrem e protegem o cérebro. Apesar de serem consideradas lesões benignas, existem também aqueles que apresentam comportamento maligno. Esses tendem a apresentar um crescimento mais rápido em relação ao meningioma benigno.
Os tratamentos variam desde a observação até a cirurgia, que é o tratamento mais indicado atualmente. A radioterapia convencional é indicada para tumores da bainha do nervo óptico e nos casos de meningiomas anaplásicos ou malignos. A radiocirurgia tem ótimas indicações para casos de Meningiomas na base do crânio com volumes até 30cm.
Saiba mais em www.gammaknifecuritiba.com.br
Fale conosco: contato@gammaknifecuritiba.com.br
#gammaknife #cirurgiasemcorte #curitiba #saude #informação #tecnologia #médico #gammaknifecuritiba #radiocirurgia #gamma #raiosgamma #toc #transtornoobsessivocompulsivo #cérebro #glomusjugular #tremoresessenciais #parkinson #maldeparkinson #doençadeparkinson #meningioma #meninciomacerebral

What an awful 2 weeks of tough emotions it’s been. Probably the hardest of my life so far.
2 weeks ago I got told that I have a tumour on my brain. I was advised to try not to worry as it looks relatively small.
Well those 2 words; #braintumour
scared the f**king sh*t out of me! As a mother of 2 young children, All I could think about was them - what would they do without a Mum?? My husband without a wife?? How many more cuddles and kisses did we have left?
It may seem melodramatic to some, but I think in situations like this your mind goes into overdrive;
I suppose as a defence mechanism - by preparing for the worst thing that could possibly happen.
I have to have a lot more tests, but I’ve since been told that the tumour looks like a #meningioma - 90% of which are benign 🤞🙏🏻 Not that this makes it insignificant - it’s still a serious issue and the start of a massive journey; as they may still have to remove it.
It worries me greatly thinking about if this may affect my personality, intelligence or relationships. Is it going to change me and my life as I know it? - My career is really taking off; I have my own successful business and absolutely love working - Am I going to be able to carry on with this?
I suppose only time will tell...I’m trying so hard to stay positive - some days are harder than others.

39yo Female. History of lung cancer.
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Brain metastatic deposit.

Description :
Post contrast MRI T1WI shows a round, heterogenous enhanced mass(yellow star) with dural tail sign(blue star) located adjacent to the falx cerebri. Note that edema is present (pink flower)and midline shifted to the left.

Knowledgement : This case was reported as meningioma due to its location and homogenous appearance in T1WI and T2WI before contrast enhancement, along with a dural tail sign, making it very similar to meningioma. Fortunately a Neuroradiologist in our hospital noticed that the mass grew more than twice in size under two months time. Meningioma would not grow at such rapid pace.

#neuroradiology #radiology #radiologystudent #medicalcase #radiologist #brainmetastasis #braindiseases #lungcancer #meningioma #mri #brain #brainsurgery

MY HEALTH: So yesterday my daughter asked me to show her how it feels to have a headache 🤕. I’ve been getting them a lot recently, which can be quite debilitating. I feel exhausted (not tired) and dizzy. I also have a blurry vision and nausea. .
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Over the years I got used to them so much that I have forgotten how it feels to live without them. I haven’t had 10 days of headache-free for ages. A good week for me is probably having only two days of headaches, not in a row. My headache frequency increases during autumn, winter and spring. I was told by my consultant to consider moving to a warmer climate. Ha!! I wish!! .
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The best way I’ve learnt to cope with it is to take painkillers, go for a long, very slow walk and work through my tasks with sunglasses on 😎. I also listen to music or podcasts. I find if I start thinking about it, I get frustrated and depressed. Maybe this is the wrong way of doing it. I go to bed early so I can regain my energy. When it’s really bad, all I can do is lie on the sofa and watch TV until it passes. My headaches last on average between half a day to full day. .
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Since a teenager, I can remember having headaches. I was misdiagnosed on many occasions with sinusitis. Until my brain tumour diagnosis 10 years ago. .
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Now I’m being monitored. I have MRI and check ups on regular basis. Things won’t improve but I’ve learnt to cope with it and I’m grateful to be able to live MY (normal) life!!
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With @estilamag I’m raising money for @thebraintumourcharity. We donate 20% of our yearly subscription. I’m considering adding more projects and products so we can raise even more!! The money goes to raising awareness, research and support for families who have to cope and deal with brain tumours on daily basis.
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If you like @estilamag, or know someone who would enjoy it, please subscribe on estila.co/shop. Thank you!!
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#braintumour #livingwithbraintumour #meningioma #estilamag #raisingmoney #supportingacharity #issuumagazine #indiemags #magazine #printisnotdead #welovemagazines #headaches

Tecnici già operativi nel monitoraggio intraoperatorio all'Ospedale di Cisanello (Pisa), in particolare un Baeps intra-auricolare durante la rimozione di un meningioma petroclivale.
Buon lavoro a tutti i colleghi...
Grazie @Arigio29
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#meningioma #meningiomapetroclivale #baeps #ospedalecisanello
#iom #monitoraggiointraoperatorio
#tecnicodineurofisiopatologia #tecnicidineurofisiopatologia #tnfp #neurofisiologia #neurofisiopatologia #neurologia #clinicalneurophysiologist #electrodiagnostictechnologists
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Follow: 👉 @tecnici_di_neurofisiopatologia

ورم سحائي - صورة بعد استئصالة من مريضة في الثلاثين من العمر
Meningioma - a picture after removing it

#brain
#brainsurgery
#braintumor
#meningioma
#neurosurgery
#neuroscience
#saudiarabia
#saudi
#dammam
#Khobar
#qatif
#alhasa
#bahrain
#bahrain
#ksa

Maybe some of you wondered where I’ve been lately?

2.5weeks ago I fell in my bathroom, went to the ER, insisted on a MRI scan,found 5cm meningioma in my brain by the cerebellum, emergency surgery next morning to remove it, benign but bc it is a grade 3 (higher chance of reoccurrence) I’ll be starting radiation treatments in a week. I’m home resting and recovering and trying to get stronger.

For a month I had nausea everyday and started migraine headaches, then finally I couldn’t walk straight.

The hardest part was really the mental strength to overcome my anxiety of being out of control T the hospital with strangers performing various procedures on me... being home, I feel more in control and safe. I experienced my first ever panic attack at the hospital. It was truly awful. The physical pain is not bad at all, managed with pain meds.

As the holidays approach, I feel so grateful for so many things despite these hard times.

This bento was from last winter when I used a snowflake ❄️ to make a fun sprinkle sandwich for the kids.

Take care of yourselves everyone. Enjoy life! It’s a gift! I can’t wait to get back to traveling, playing with my kids and yoga!

#onnamibento #meningioma #tumorssuck #mommybloggers #bentobox #yumboxlunch #easylunchboxes #travelblogger

A little bit of needed advice on this day....when I become symptomatic I tend to draw into my shell and hide from others, and unfortunately I was not able to do so today, which was very emotional and embarrassing for me to think about later on.
The funny part is...9 times out of 10 most other people (other than my husband) won't know I'm having any problems because I keep things hidden pretty well, so for at least part of the day (I know not quite all of it unfortunately) no one else knew how bad things were.

Why am I posting this.....I saw this quote on a friend's page and it stuck with me.

I could easily hide inside my shell and never come out again.

But that would not be fair to me, or my husband, or my family. So instead, I do something that is incredibly hard, and go out and interact with people. I don't know what they think of me. If they see me symptomatic, what does the voice inside their head say.... I don't have a sticker on my chest that says "I have a brain tumor" or "I had brain surgery" to explain.

Some days I have a very slight limp when my right side is numb, some days I luckily don't.

Some days my tremors or spasms are worse than others.

I'm one of the lucky ones, tho. I'm able to work, am able to see, and I am ALIVE.
And so I needed this reminder to myself to keep doing everything I want to do, even though I may feel self conscious having a slight limp, or a tremor, or whatever symptoms come along with this journey I am on right now.

#meningioma #braintumorsurvivor #braintumorssuck #newnormal #recoveryisnotlinear #braininjuryawareness

The past few days have been more difficult than I imagined, and I found myself thinking memories of my relatives that have passed away and dreaming of them more often than usual. I miss my dad and grandmother so much, I want them here through this journey with my brain tumor so much, I feel like I'm struggling so often. But all I can do is keep putting one foot in front of the other and trust that they are standing behind me every step of the way. #braintumorsurvivor #meningioma #braintumorssuck #braininjuryawareness

Young woman patinet
she has Back pain and lower leg strength are close to paralysis
We performed emergency diagnosis of the tumor of the spinal cord Meningioma Thoracic using a neuromanitoring device.
The waves of the foot were low and after the surgery,returned the strength of the legs, especially the right leg
بیمار خانم جوان که از مدتها قبل دچار کمردرد و کاهش قدرت پاها شدند از دیروز به طور ناگهانی قدرت پاها کاهش یافته و تا مرز فلجی پیش رفتند که ما امروز به صورت اورژانسی بیمار را با تشخیص تومور مننژیوم نخاع توراسیک عمل کردیم از دستگاه نورومانیتورینگ حین عمل استفاده کردیم و همانطور که در تصاویر میبینید موجهای پا کم بودند و بلافاصله بعد از برداشتن تومور خوشبختانه تا حد زیادی قدرت پاها بویژه پای راست برگشت.
#دکترگیوشریفی #دکترمهدی_پورقاضی #دکترآرامی#تومورنخاعی #تومورمغز #مننژیوم
#drguivesharifi #drmehdiporghazi #parisanaderi#mahshidkamangari #neurosurgery #meningioma#disc #spinalcord#tumor

بیمار خانم جوان که از مدتها قبل دچار کمردرد و کاهش قدرت پاها شدند از دیروز به طور ناگهانی قدرت پاها کاهش یافته و تا مرز فلجی پیش رفتند که ما امروز به صورت اورژانسی بیمار را با تشخیص تومور مننژیوم نخاع توراسیک عمل کردیم از دستگاه نورومانیتورینگ حین عمل استفاده کردیم و همانطور که در تصاویر میبینید موجهای پا کم بودند و بلافاصله بعد از برداشتن تومور خوشبختانه تا حد زیادی قدرت پاها بویژه پای راست برگشت.
#دکترگیوشریفی #دکترمهدی_پورقاضی #دکترآرامی#تومورنخاعی #تومورمغز #مننژیوم
#drguivesharifi #drmehdiporghazi #parisanaderi#mahshidkamangari #neurosurgery #meningioma#disc #spinalcord#tumor

Last night at a party I heard some one say, "Shes the one with the brain tumor". I know they didnt mean anything bad by saying that but everyday something hits me about this new reality, this new me. I just wanted to go home after that. #braintumor #meningioma #reality #theunknownsucks

Операция в сознаний - Awake craniotomy.
Нейрохирург: Абдуллаев Туйчи Бей.
@neuroalmaty
Рабочие моменты.
#нейрохирургия #операция #менингиома #neurosurgery #meningioma #операциявсознании #awakecraniotomy #АбдуллаевТуйчи #безнаркоза #микрохирургия

Операций на центральной нервной системе любой сложности по европейским стандартам с применением современной технологий.
#нейрохирургия #операция #менингиома #neurosurgery #meningioma #микрохирургия #microsurgery #neuroalmaty

Изъятие биоптата из тела Th7 позвонка. Нейрохирург: Абдуллаев Туйчибой Мансурханович.
#нейрохирургия #операция #менингиома #neurosurgery #meningioma #биопсия #позвоночник #spine #biopsy #microsurgery #микрохирургия

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