A little bit of needed advice on this day....when I become symptomatic I tend to draw into my shell and hide from others, and unfortunately I was not able to do so today, which was very emotional and embarrassing for me to think about later on.
The funny part is...9 times out of 10 most other people (other than my husband) won't know I'm having any problems because I keep things hidden pretty well, so for at least part of the day (I know not quite all of it unfortunately) no one else knew how bad things were.
Why am I posting this.....I saw this quote on a friend's page and it stuck with me.
I could easily hide inside my shell and never come out again.
But that would not be fair to me, or my husband, or my family. So instead, I do something that is incredibly hard, and go out and interact with people. I don't know what they think of me. If they see me symptomatic, what does the voice inside their head say.... I don't have a sticker on my chest that says "I have a brain tumor" or "I had brain surgery" to explain.
Some days I have a very slight limp when my right side is numb, some days I luckily don't.
Some days my tremors or spasms are worse than others.
I'm one of the lucky ones, tho. I'm able to work, am able to see, and I am ALIVE.
And so I needed this reminder to myself to keep doing everything I want to do, even though I may feel self conscious having a slight limp, or a tremor, or whatever symptoms come along with this journey I am on right now.
#meningioma #braintumorsurvivor #braintumorssuck #newnormal #recoveryisnotlinear #braininjuryawareness