#mayubend4eds

MOST RECENT

Unfortunately life got too busy to put together the #mayubend4eds challenge this year. I'm feeling the quilt 😒 I pray for all who are struggling with this monster and have faith that one day there will be a cure or effective treatment for EDS!! We are warriors and we will continue to fight and wear our stripes proudly!! Gentle Hugs πŸ’œ

#edsawareness #zebrawarrior #bendybutstrong #nevergiveup #faithandhope #myjourney

#Repost ・・・
We have come such a long long way
You and I
we have battled storms,
Danced under the sun,
Blown with the wind,
And rested on the clouds .
And we have a long long way to go.
Day 4 of #maychallenge 4eds #MayUBend4EDS with #lotuspose #padmasana

Tia loves her custom-blended oils from Sleepy Santosha! 🐢🌸🌿 Tia is a devoted #dogi who loves to be in all her mom Brigette's Instagram photos. Their page always brings me a smile ☺️🌸 _______________________________________________________

RepostBy @yruhhls: "Guys I can't even handle this package from @sleepysantosha for the #MayUBend4EDS challenge- she even made Tia her own essential oil blend! HOW CUTE is that??? Plus they smell amazingπŸ‘ŒπŸΌβœ¨πŸŒŸ Go check her out if you haven't already, she does awesome yoga videos as well (and has the most relaxing voice😌). Thank you dear, this was too sweetπŸΆπŸ’•πŸ™πŸΌ"

Guys I can't even handle this package from @sleepysantosha for the #MayUBend4EDS challenge- she even made Tia her own essential oil blend! HOW CUTE is that??? Plus they smell amazingπŸ‘ŒπŸΌβœ¨πŸŒŸ Go check her out if you haven't already, she does awesome yoga videos as well (and has the most relaxing voice😌). Thank you dear, this was too sweetπŸΆπŸ’•πŸ™πŸΌ

Sending out a huge thank you to @recoveringbeauties for this cool bracelet and yummy oils! Went right from the package and onto my wrist πŸ˜„ I know I'll get a lot of use out of both! .
.

#mayubend4eds
#essentialoils
#diffuserjewelry

πŸ’œπŸ’œπŸ’œ #MayUBend4EDS πŸ’œπŸ’œπŸ’œ Ehlers-Danlos syndrome (EDS) is an inherited condition that affects the connective tissues in the body. Connective tissue is responsible for supporting and structuring the skin, blood vessels, bones, and organs. It’s made up of cells, fibrous material, and a protein called collagen. Ehlers-Danlos syndrome is caused by a genetic defect in collagen production. According to the National Library of Medicine’s Genetics Home Reference, EDS is seen in 1 in 5,000 people worldwide.

There are six major types of Ehlers-Danlos syndrome, and the area affected differs with each type of EDS. The hypermobility and classic types of Ehlers-Danlos syndrome are the most common, and the other types are more rare. However, they all have one thing in common: hypermobility.
Hypermobility is an unusually large range of movement in the joints. Yoga can help people with EDS to increase strength and stability in their joints.

During this challenge, each host will share one pose that has inspired their yoga practice and one pose that they just can't live without. Yoga has changed our lives, and we're so grateful to have this chance to use our yoga practice to raise awareness and hopefully inspire others! Challenge is open to everyone! We can all do our part for EDS. πŸ’œ

Never Doubt That A Small Group of Thoughtful, Committed Citizens Can Change The World. Indeed, It Is The Only Thing That Ever Has." -The Fresh Quotes

Y'all made a difference πŸ™ŒπŸ™ŒπŸ™Œ Thank you for sharing and caring with us for #MayUBend4EDS it was an amazing challenge that definitely spread awareness for Ehlers Danlos Syndrome!!! Thank you for the personal stories people shared and the willingness to learn πŸ™ We loved all of your posts and comments so much it was hard to pick winners πŸ˜‰ Thank you to everyone who joined us for this special challenge πŸ’œπŸ™πŸ’œ Winners DM the sponsor please πŸŽ‰
@kasiyoga πŸ‘‡
@withinyouyoga

@yruhhlsπŸ‘‰ @sleepysantosha
@takenoprisoners42 πŸ‘‰
@recoveringbeauties
@mjoyogini πŸ‘‡@omsoulshop

@thatsgingerific πŸ‘‡@mowhawkmommaof3

#EDS #edsawarenessmonth
#ehlersdanlossyndrome #ehlersdanlossociety #edsawareness #itsourtime #dazzletogether #ZebraStrong #zebrawarriors #edsyogi #chronicillness #chronicillnessyogi #usanalifestyle #lusiouslifedesign #nevertoolate #nevergiveup

#Repost @mowhawkmommaof3 (@get_repost)
・・・
"Never Doubt That A Small Group of Thoughtful, Committed Citizens Can Change The World. Indeed, It Is The Only Thing That Ever Has." -The Fresh Quotes

Y'all made a difference πŸ™ŒπŸ™ŒπŸ™Œ Thank you for sharing and caring with us for #MayUBend4EDS it was an amazing challenge that definitely spread awareness for Ehlers Danlos Syndrome!!! Thank you for the personal stories people shared and the willingness to learn πŸ™ We loved all of your posts and comments so much it was hard to pick winners πŸ˜‰ Thank you to everyone who joined us for this special challenge πŸ’œπŸ™πŸ’œ Winners DM the sponsor please πŸŽ‰
@kasiyoga πŸ‘‡
@withinyouyoga

@yruhhlsπŸ‘‰ @sleepysantosha
@takenoprisoners42 πŸ‘‰
@recoveringbeauties
@mjoyogini πŸ‘‡@omsoulshop

@thatsgingerific πŸ‘‡@mowhawkmommaof3

#EDS #edsawarenessmonth
#ehlersdanlossyndrome #ehlersdanlossociety #edsawareness #itsourtime #dazzletogether #ZebraStrong #zebrawarriors #edsyogi #chronicillness #chronicillnessyogi #usanalifestyle #lusiouslifedesign #nevertoolate #nevergiveup

"Never Doubt That A Small Group of Thoughtful, Committed Citizens Can Change The World. Indeed, It Is The Only Thing That Ever Has." -The Fresh Quotes

Y'all made a difference πŸ™ŒπŸ™ŒπŸ™Œ Thank you for sharing and caring with us for #MayUBend4EDS it was an amazing challenge that definitely spread awareness for Ehlers Danlos Syndrome!!! Thank you for the personal stories people shared and the willingness to learn πŸ™ We loved all of your posts and comments so much it was hard to pick winners πŸ˜‰ Thank you to everyone who joined us for this special challenge πŸ’œπŸ™πŸ’œ Winners DM the sponsor please πŸŽ‰
@kasiyoga πŸ‘‡
@withinyouyoga

@yruhhlsπŸ‘‰ @sleepysantosha
@takenoprisoners42 πŸ‘‰
@recoveringbeauties
@mjoyogini πŸ‘‡@omsoulshop

@thatsgingerific πŸ‘‡@mowhawkmommaof3

#EDS #edsawarenessmonth
#ehlersdanlossyndrome #ehlersdanlossociety #edsawareness #itsourtime #dazzletogether #ZebraStrong #zebrawarriors #edsyogi #chronicillness #chronicillnessyogi #usanalifestyle #lusiouslifedesign #nevertoolate #nevergiveup

Day 9, the last day!!!! of #MayUBend4EDS - a yoga challenge to raise awareness for Ehlers-Danlos Syndrome (EDS) while we practice yoga together!
Ehlers-Danlos Syndrome (EDS) is a genetic condition that affects the connective tissues in the body. It is most commonly characterized by hypermobility of the joints, skin hyperextensibility and tissue fragility. People with EDS are also more likely to develop other chronic health conditions like fibromyalgia, chronic fatigue syndrome, POTS, and other auto-immune conditions. EDS can affect each patient differently. Just like no two zebras have the same stripes, no two EDS patients are the same.. #dancerspose #natarajasana #backbends
#variations #yogaforhealth #yogaforacause #yogaforeds #yogaforlife #yogaeverydamnday #yogalove #yogilife #yogainspiration #yogavariations #loveforasanas #yogi #indianyogi #dailypractice #innerpeace #yogachallenge #yogawithprerna
Our Bendy Hosts:
@sleepysantosha
@yoga_amanda
@mistyaelliott
@laceytcufitchick
@samratpasham

Our Generous Sponsors:
@mowhawkmommaof3
@recoveringbeauties
@withinyouyoga
@omsoulshop
@sleepysantosha

The past few days have bent me, with extreme fatigue and widespread pain, but it didn't break me 😑πŸ’ͺ I took some extra time to take care of myself and allow my family to take care of me. I've spent some time on my mat to mediate and pray πŸ™ I'm not going to lie and say that I'm "great" because I'm not, but I have found the strength and courage to get up and move forward. I'm not going to let the struggles I've been given take me down, I'm going to raise up and keep fighting for all who suffer from chronic illness so maybe one day we won't have to πŸ’œ
#faithhopeyoga
#EDS #edswarrior #ehlersdanlossyndrome #EhlersDanlosAwareness #itsourtime #dazzletogether #edsyogi #chronicillness #chronicpain #usanalifestyle #lusiouslifedesign #lovingmyselfloudly #yoga4awareness #yoga4healing #MayUBend4EDS

Dancers pose πŸ’ƒπŸ½ for the last day of #MayUBend4EDS. Huge thanks to all the host and sponsors.
πŸ’œOur Bendy Hosts:
@sleepysantosha
@yoga_amanda
@mistyaelliott
@laceytcufitchick
@mowhawkmommaof3
@samratpasham
.
.
πŸ’™Our Generous Sponsors:
@mowhawkmommaof3
@recoveringbeauties
@withinyouyoga
@omsoulshop
@sleepysantosha

Duo Yoga challenge poses!
.
Dancer pose for day 10 of #mayubend4eds such a beautiful Challenge by @mowhawkmommaof3 .
And a standing backbend for Day 1 of the lovely @lindsayumlahrhn yoga challenge #mayiloveme .
So stoked to be supporting everyone through beautiful poses! .
.
#yoga #yogaislife #dancer #standingbackbend #selfmademan #transman #transguy #transgender #ftm #love #selflove #nature #beauty #london #ontario #canada #home

#MayUBend4EDS
Final Day 10 #DancersPose - My nephew Marcus decided to join in with us today 😍😍
Thanks to our Awesome hosts and generous sponsors for this challenge as I knew nothing before and I can now say I am awareπŸ™
πŸ–€How prevalent is Ehlers-Danlos Syndrome?
πŸ—¨οΈAt this time, research statistics of Ehlers-Danlos Syndrome show the prevalence as 1 in 2,500 to 1 in 5,000 people. Recent clinical experience suggests Ehlers-Danlos Syndrome is more common. The condition is known to affect both males and females of all racial and ethnic backgrounds.
πŸ–€How is Ehlers-Danlos Syndrome inherited?
πŸ—¨οΈThe two known inheritance patterns for Ehlers-Danlos Syndrome include autosomal dominant and autosomal recessive Regardless of the inheritance pattern, we have no choice in which genes we pass on to our children.
πŸ–€What is the prognosis of someone with Ehlers-Danlos Syndrome?
πŸ—¨οΈThe prognosis depends on the type of Ehlers-Danlos Syndrome and the individual. Life expectancy can be shortened for those with the Vascular Type of Ehlers-Danlos Syndrome due to the possibility of organ and vessel rupture. Life expectancy is usually not affected in the other types. There can be a wide or narrow range of severity within a family, but each person’s case of Ehlers-Danlos Syndrome will be unique. While there is no cure for Ehlers-Danlos Syndrome, there is treatment for symptoms, and there are preventative measures that are helpful for most. -EDS Society πŸ¦„
πŸ¦„Our Bendy Hosts & Our Generous Sponsors are tagged. Having IG technical difficulties todayπŸ¦„ πŸ€”
Our Bendy Hosts:
@sleepysantosha
@mowhawkmommaof3
@yoga_amanda
@mistyaelliott
@laceytcufitchick
@samratpasham
β€’
Our Generous Sponsors:
@mowhawkmommaof3
@recoveringbeauties
@withinyouyoga
@omsoulshop
@sleepysantosha
#yogaforacause #yogaforawareness #EDS #EhlersDanlosSyndrome #EDSAwareness
#teamgethealthy working on my #mentalhealth #emotionalhealth #physicalhealth #workinprogressΒ  #yogajourneyΒ  #healthyhabits #practiceandalliscoming #practicenotperfectionΒ #yogisofinstagramΒ 
#curvyyoga #Blackgirlsdoyoga #blackyogasuperstars #yogachickΒ #effyourbeautystandards #gettingfit #gettingstronger #thesecurves #lovingonme #yeartobegreat #greattobe28

Day 10 of #MayUBend4EDS - What an enlightening challenge this has been! I've been looking more into EDS and it's pretty facinating, albeit scary. I'm glad I joined in this challenge to bring awareness to EDS! .
.

#DancerPose
#Natarajasana
.
. πŸ’œOur Bendy Hosts:
@sleepysantosha
@yoga_amanda
@mistyaelliott
@laceytcufitchick
@mowhawkmommaof3
@samratpasham
.
.
πŸ’™Our Generous Sponsors:
@mowhawkmommaof3
@recoveringbeauties
@withinyouyoga
@omsoulshop
@sleepysantosha

Day 10 for spreading awareness of EDS syndromeπŸ’œ#MayUBend4EDS πŸ’œπŸ’œπŸ’œ last day of spreading the awareness!!!
#dancerpose β€’
Our Bendy Hosts:
@sleepysantosha
@yoga_amanda
@mistyaelliott
@laceytcufitchick
@samratpasham
@mowhawkmommaof3 .
Our Generous Sponsors:
@mowhawkmommaof3
@recoveringbeauties
@withinyouyoga
@omsoulshop
@sleepysantosha
.
To help raise awareness and a chance to win some amazing prizes:
1️⃣ Follow All Hosts & Sponsors
2️⃣ Repost this flyer and tag a few friends
3️⃣ Post your poses daily using #MayUBend4EDS (honor your body please)
4️⃣ Your profile must be public so we can spread awareness
Have fun and be creative!!!! πŸ™πŸ’œ #yoga #yogi #yogachallenge #edswarrior #ehlersdanlossyndrome #iloveyoga #awaren

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