May is Ehlers-Danlos Syndrome awareness month. EDS is a congenital disorder that impacts the collagen in the body. Collagen is a protein made up of amino acids. In EDS patients, our collagen is faulty or insufficient to support the normal and healthy function of bones, ligaments, bloid vessels, joints, etc. It is classified as a connective tissue disorder.
Many of us with EDS also have other diagnoses; for me it's dysautonomia and Mitochondrial Disease. Many of the symptoms overlap with those related to EDS, but many are different. When you're dealing with multiple and complex conditions it's a day by day, hour by hour, and often minute by minute race to stay on top of symptom management (as much as possible), appointments, surgeries, maintaining lines and tubes, etc.
May is Ehlers-Danlos Syndrome awareness month.
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