[PR] Gain and Get More Likes and Followers on Instagram.

#mayisedsawarenessmonth

190 posts

TOP POSTS

May is Ehlers-Danlos Syndrome Awareness month. My whole body is very hypermobile due to faulty collagen. I dislocate things very easily, causing chronic pain all over. I'm a very bendy person! #hypermobility #ehlersdanlossyndrome #mayisedsawarenessmonth

One of the hardest parts about having a genetic condition in my opinion is the fact that often others in your family have it too. Don't get me wrong I love that it means they really understand everything and that we can learn from one another and that it gives us a special kind of bond with one another but it also means that I know their pain. I know how much it hurts and what it feels like to constantly be fighting your body. I know how excruciating the surgeries are and how much they take out of you, and how much pain and suffering they deal with silently every day. I know how it feels when your body fails you despite your best efforts. I know exactly how they feel and am helpless to do anything for them. It's also terrifying seeing what EDS has done to their bodies over time and knowing that it might do the same to me. It's both a blessing and a curse. I'd never wish EDS on anyone but i'm so lucky to have mum, Brodie and Tayla fighting this same battle as me by my side❤ We are a Zebra strong family and we may have Ehlers Danlos Syndrome, but it does not have us! #edsawarenessmonth #MayisEDSawarenessmonth #EDSawareness #ehlersdanlossyndrome #EDS #ZebraStrong

May is Elhers Danlos Syndrome awareness month. EDS is a genetic condition that causes faulty collagen which in turn effects our blood vessels, skin, joints, and internal organs. No two cases of EDS are the same and symptoms can range from mildly loose joints, to life threatening. All of my illnesses (such as dysautonomia, mast cell activation disorder, IBS, GERD, and interstitial cystitis) have been caused by my EDS. EDS is a lifelong journey and all though I wish it didn't happen to me, I wouldn't be the same without it. This condition is a struggle for all who have it and we desperately need a cure. I one day hope I can say "Oh yeah, I used to have EDS."



#potssyndrome #dysautonomia #eds #ehlersdanlossyndrome #elhersdanlos #mayisedsawarenessmonth #awareness #awarenessmonth #awarnessiskey

Absolutely! Even when you have a Connective Tissue Disorder. Even when your ribs dislocate hourly or your head is literally not on straight. Some days any movement is really pushing your limits. I get it. But never give up. Move what you can and do it daily! Celebrate the movement you have today! Some days you will totally rock the gym, some days you will only do ankle pumps from bed. Know your bodies limits, listen it to it and treat it well. If you are interested in learning more about your bendy body and how exercise and mindfulness can help you stay ahead of your EDS, Marfans or other bendy issues, send a message or visit my site, LIB @acefitness #MayisEDSawarenessmonth #ACEcertified #ACECPT #exerciseismedicine #DaytonZebras #Coremotivation #EDSawareness #EDSA

I love how flat my incision has become even from just January! It's really wide from #eds but I am forever grateful for how it turned out after my skin fell to pieces last September #mrsa #sepsis #infectiousdisease #neurology #neurosurgery #brainsurgery #brainsurgerysurvivor #cm #chiari #mayisedsawarenessmonth #ehlersdanlossyndrome #pots #potsie #tbi #dysautonomia #tbiawareness #tia #spoonie #warrior

Ehlers Danlos can cause all kinds of issues - awareness is key #eds #dazzletogether #mayisedsawarenessmonth #ehlersdanlossyndrome #zebrawarrior

Don't forget! May is Elhers-Danlos Syndrome Awareness month! ❤ Keep up the fight! #edsawareness #edsawarenessmonth #mayisedsawarenessmonth #mayawareness #invisibleillness

MOST RECENT

Absolutely! Even when you have a Connective Tissue Disorder. Even when your ribs dislocate hourly or your head is literally not on straight. Some days any movement is really pushing your limits. I get it. But never give up. Move what you can and do it daily! Celebrate the movement you have today! Some days you will totally rock the gym, some days you will only do ankle pumps from bed. Know your bodies limits, listen it to it and treat it well. If you are interested in learning more about your bendy body and how exercise and mindfulness can help you stay ahead of your EDS, Marfans or other bendy issues, send a message or visit my site, LIB @acefitness #MayisEDSawarenessmonth #ACEcertified #ACECPT #exerciseismedicine #DaytonZebras #Coremotivation #EDSawareness #EDSA

May is Ehlers-Danlos Syndrome Awareness Month. Please share and get informed! We need all of the help we can get in spreading the word so we can educate others to lead the way to understanding and acceptance. Will you help? #mayisehlersdanlossyndromeawarenessmonth #mayisedsawarenessmonth #ehlersdanlos #ehlersdanlossociety #ehlersdanlossyndrome #dazzletogether #zebrastrong #zebras #medicalzebra #strengthbeginswithhope #awareness #advocate #chronicillness #chronicpain #jointpain #misunderstood #nocure #mylife #sierra

Most Popular Instagram Hashtags