Today is our Masto diagnosis anniversary ... we thought bad allergy to peanuts, corn, dairy. Not once did it cross our mind that this was bigger then life.
Our world was flipped upside down as we frantically researched, looked for answers, cures, treatment, begging for normalcy. We were drowning in restrictions and measures to keep you safe. We were warned to be prepared for the worst, to never for one moment let our guards down, as this disease was so unpredictable and so fast we could lose you in a minute.
I use to think when you were young, limited verbally, unable to explain to us how you felt, internal symptoms etc was the toughest years. But now as you grow, mature, seek more independence and are so much more aware of your body ... this has been the toughest yet as I slowly have to pass the torch. Trusting you to know, trusting others who care for you to know ... trusting the universe to just let you see tomorrow is what I beg each night as I try to sleep.
Girl you’ve climbed this mountain with grace, humour, love and determination. We are so proud and so honoured to climb it with you!! Fuck You Masto ... this girl is kicking your ass! #mastocytosis #mastowarrior #myhero #servicedogsofinstagram #servicedogteam #kickingass #parentingistough #wevegotthis