REBUILDING THE SYSTEM!!!!!!!! We elected Bro. David Barnes as our new Worshipful Master for this upcoming year of 2019. He will be working closely with soon to be PM Fred Steveson to insure the rebuilding process is smooth. We are still looking for services. If you have any ideas please let us know!!!!!!!! #850strong #panhandlestrong #PHASTRONG #MASONSTRONG

A little video of our strong boy showing us just what a healthy heart can do! To say I’m proud is an understatement! It because of our donor that Mason lives this life. It’s because of our donor we can celebrate these milestones! It’s because of our donor that he is here and alive. We will forever be thankful for our donor and every other donor out there! Please consider becoming an organ donor because of those that are, people like my Mason lives.
#livingforourdonor #thankyouisneverenough #day22posttransplant #hearttransplant #pediatrichearttransplant #transplantlife #chd #chdaware #donatelife #beanorgandonor #heartwarrior #uva #uvahealthsystem

Thank you to our #firstresponders from @mason_fire_department71 and #lesliefiredepartment for your quick and brave service. We love our community here in Mason and admire the the people and the sense of responsibility we feel for each other. #masonelevator #masonstrong #hereforyou

2 days post discharge and we are enjoying every moment. Of course Mason is into everything, as expected. You cannot stop this boy!
We had our first clinic visit today and everything still looks great! His echo and his ekg are all wonderful! We are still fighting this virus, but it could take a couple of weeks. We are already able to get rid of an extra dose of 2 of his medications!
Mama is doing fantastic at hooking his antibiotic up, PICC line care and even did a PICC line dressing change (it’s pretty stressful if you’re not a nurse). The Alyssa House is perfect. It a small and very cozy home. We are beyond blessed to have this place to feel as normal as possible and still be so close just in case. Most importantly will be spending this entire weekend as a complete family for the first time in months.
#livingforourdonor #thankyouisneverenough #day19posttransplant #hearttransplant #chd #chdaware #donatelife #beanorgandonor #heartwarrior #thealyssahouse #uva #uvahealthsystems

Mason has been doing well 😊 Our biggest goal is still feeding, but Mason has stopped spitting up and is back on track to gaining 1oz per day! We are making sure Mason bulks up before his next surgery 😉

Mason photo shoot by Mariel RauerNigro was AMAZING! And we can’t wait to share all of her pictures, but here’s a little sneak peek 😊 🙏🏻🙏🏻❤️❤️🙏🏻🙏🏻❤️❤️🙏🏻🙏🏻❤️❤️🙏🏻🙏🏻❤️❤️ #heartwarrior #designedtosurvive #Godisincontrolalways #WetrustinGodandsurrendertoHisplan
#doyoubelieveinmiracles #Masonstrong

Something exciting yet scary happened today, we got discharged!!! After a total of 55 days inpatient (definitely felt like an eternity), we were sent to our home away from home, The Alyssa House.
There aren’t enough words to express the gratitude we have for the surgeons, doctors, residents, NURSES and all staff at UVA. This was a really difficult road and had some bumps but because of them, my Mason is healthy and alive. They became like family to us and accepted us (mainly me) through all our bad moments. We will be forever grateful for each person whom we crossed paths with during this journey. We made so many memories, started a new “life”, and made new friends. It’s far from over, but how exciting it is to let this little guy run around in a home. A huge thank you to the family of Alyssa who started their foundation (The Alyssa House) and all the donors/volunteers who have given us a home for the remainder of our stay here. There’s nothing like knowing for the first time in two months, our family will all be together this weekend. This isn’t a sprint, it’s a marathon and Mason is leading us to the end!!! #masonstrong
#livingforourdonor #thankyouisneverenough #day17posttransplant #hearttransplant #chd #chdaware #donatelife #beanorgandonor #heartwarrior #thealyssahouse #uva #uvahealthsystems

Maseys doc!! Love them so much, they have become like family!!! God always knows what he does and the people he brings into your life are for a reason, we ended up at his office because everything went wrong...but its been so right!! Thank you to the bagnells and their whole team!! #masonsmiracles #masonstrong #bagnellbraincenter

This little guy loves PT. He walked down the hall today and started beating on the gym door because he wanted in so bad. He walked sooo long today, I’m so proud.
We are slowly but surely getting there! His CMV level is still pretty high so infectious disease has recommended staying on IV antibiotics. Once we are able to switch to oral, he will likely be on it for about 6 months 😳. I’m so proud of this little man!
#livingforourdonor #thankyouisneverenough #day16posttransplant #hearttransplant #chd #chdaware #donatelife #beanorgandonor #heartwarrior

Mason is doing so good!!
They run cultures on transplant children afterwards as a precaution. His unfortunately came back positive for a gnarly cold virus known as CMV (Cytomegalovirus). This virus is believed to have come from his donor heart. It can be fatal for transplanted kids so they are aggressively treating it. Luckily for us, he shows no symptoms.
#masonstrong #livingforourdonor #thankyouisneverenough #day13posttransplant #hearttransplant

Our convict cutie!!! #masonstrong #masonsmiracles

Masons miracles first event was a success!!! Thank you so much to those that attended and all those that help us put this fabulous event together!!! It takes a village and we are blessed!!! #masonsmiracles #masonstrong #faithlovehope #ourvillageisstrong

Ready to celebrate Julia & Drew #theyearofweddings #fab5 #lovethisman #masonstrong

Today’s excitement consists of hearing Dr. Hainstock and Dr. Gangemi tell me that Masons pressures are perfect!
Say that again?!
His pressures are perfect!!! This likely means no rejection (we will know for sure tomorrow)! Apparently it’s normal for pressures to be a little wonky after transplant but Masons are not, his are better than ever imagined! To see pure excitement in the doctors face really gives me so much joy.
It was a long day but in the end it was worth it for that moment. Getting closer to going home! #masonstrong #livingforourdonor #thankyouisneverenough #day11posttransplant #hearttransplant #cathprocedure

ITS HERE! Holiday season and your November promotions are officially open! We could scream we’re so excited! 🎄👑
Most of already got them in your inbox (and a special bonus too!) but for those behind here they are: 🌟 $18 Glow & Go 🌟$18 Gratitude Hair Treatment 🌟$120 Full Set of Classic Lash Extensions with a cleanser purchase 🌟$50 off @brazilianblowout
Make sure you check out our events and workshops this month too!

#masonmi #masonhairstylist #aveda #blonde #bookonline #masonhighschool #dartcontainer #masonstrong #eatoncounty #inghamcounty

It’s been a spectacular birthday/Halloween! Mason loved dressing up, reverse trick or treat, his treat bag from the surgeon and OR team, watching his nurses dance to baby shark, playing pegs with PT, lunch that nana sent, having the best visitors tonight and getting one of our favorite nurses back! The girls also had a blast and stocked up on candy! The best part was today was just about fun and not any procedures or worry for Mason. Tomorrow is his first cath procedure.
#masonstrong #halloween2018 #livingforourdonor #thankyouisneverenough #day10posttransplant #hearttransplant

✌🏻for Victory!
Mason is back in Boston's Children Hospital. 💔

Mason is a Warrior. He will fight. 🎖️🎖️🎖️ Please keep Mason and his family in your thoughts and prayers. 🙏🏻🙏🏻🙏🏻 #MasonStrong #MasonsArmy
#ExtrarepsforMason #NeverSettle

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